Annual Report of the National Intellectual Disability Database Committee 2007

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Improving people’s health through research and information
HRB Statistics Series 13
Annual Report of the National Intellectual Disability
Database Committee 2010
Fionnola Kelly and Caraíosa Kelly

Rita McAuley
National Intellectual Disability Database
Committee Annual Report 2010 cover
design competition winner.
Rita is a service member of the Sonas
programme in Malta Services Drogheda
and has been attending the service for the
past thirty years. Rita enjoys art, pottery,
literacy and numeracy and going out for
meals and outings with her friends. Rita
painted her winning picture at her weekly
art class in the James Carroll Centre,
Donore Road, Drogheda. Her picture was
painted in poster paints using a brush
and sponge.
‘I’m Here!’
by Rita McAuley

Improving people’s health through research and information
HRB Statistics Series 13
Annual Report of the National
Intellectual Disability Database
Committee 2010
Fionnola Kelly and Caraíosa Kelly

Published by:
Health Research Board, Dublin
An Bord Taighde Sláinte
Knockmaun House
42–47 Lower Mount Street
Dublin 2
Ireland
© Health Research Board 2011
HRB Statistics Series ISSN: 2009-034x
Sub-series ISSN: 1393–9904
t 353 1 234 5194
f 353 1 661 1856
e disability@hrb.ie
w www.hrb.ie
Copies of this publication can be obtained from:
Disability Databases Team
Health Research Board
Knockmaun House
42–47 Lower Mount Street
Dublin 2
Ireland
t 353 1 234 5194
f 353 1 661 1856

About the HRB
The Health Research Board (HRB) is the lead agency supporting and funding health
research in Ireland. We also have a core role in maintaining health information
systems and conducting research linked to these systems. Our aim is to improve
people’s health, build health research capacity, underpin developments in service
delivery and make a significant contribution to Ireland’s knowledge economy.
Our information systems
The HRB is responsible for managing five national information systems. These systems
ensure that valid and reliable data are available for analysis, dissemination and service
planning. Data from these systems are used to inform policy and practice in the areas
of alcohol and drug use, disability and mental health.
The HRB Statistics Series compiles data on problem alcohol and drug use, disability
and mental health from a single point or period in time. Previous reports associated
with this series are:
• Activities of Irish Psychiatric Units and Hospitals (1965–2010)
• National Physical and Sensory Disability Database Committee Annual Reports
(2004–2009)
• National Intellectual Disability Database Committee Annual Reports (1996–2009)
The Disability Databases Team manages two national service-planning databases
for people with disabilities on behalf of the Department of Health: the National
Intellectual Disability Database (NIDD), established in 1995, and the National Physical
and Sensory Disability Database (NPSDD), established in 2002. These databases inform
decision making in relation to the planning of specialised health and personal social
services for people with intellectual, physical or sensory disabilities.

Statistics Series publications to date
Tedstone Doherty D, Walsh D, Moran R and Bannon F (2007) High support community
residences census 2006. HRB Statistics Series 1. Dublin: Health Research Board.
Kelly F, Kelly C and Craig S (2007) Annual report of the National Intellectual Disability
Database Committee 2007. HRB Statistics Series 2. Dublin: Health Research Board.
O’Donovan MA, Doyle A and Craig S (2007) National Physical and Sensory Disability
Database Committee annual report 2007. HRB Statistics Series 3. Dublin: Health
Research Board.
Daly A, Walsh D and Moran R (2007) Activities of Irish psychiatric units and hospitals
2006. HRB Statistics Series 4. Dublin: Health Research Board.
Daly A, Walsh D and Moran R (2009) Activities of Irish psychiatric units and hospitals
2007. HRB Statistics Series 5. Dublin: Health Research Board.
Kelly F, Kelly C and Craig S (2009) Annual report of the National Intellectual Disability
Database Committee 2008. HRB Statistics Series 6. Dublin: Health Research Board.
Daly A and Walsh D (2009) Activities of Irish psychiatric units and hospitals 2008. HRB
Statistics Series 7. Dublin: Health Research Board.
Kelly C, Kelly F and Craig S (2010) Annual report of the National Intellectual Disability
Database Committee 2009. HRB Statistics Series 8. Dublin: Health Research Board.
Daly A and Walsh D (2010) Activities of Irish psychiatric units and hospitals 2009. HRB
Statistics Series 9. Dublin: Health Research Board.
Doyle A, O’Donovan MA and Craig S (2009) National Physical and Sensory Disability
Database Committee Annual Report 2008. HRB Statistics Series 10. Dublin: Health
Research Board.
O’Donovan MA, Doyle A and Craig S (2010) National Physical and Sensory Disability
Database Committee Annual Report 2009. HRB Statistics Series 11. Dublin: Health
Research Board.
Daly A and Walsh D (2011) Irish psychiatric units and hospitals Census 2010. HRB
Statistics Series 12. Dublin: Health Research Board.

Table of contents
Acknowledgements 9
Members of the National Intellectual Disability
Database Committee 2010 10
Chairperson’s statement 11
Executive summary 12
1. The National Intellectual Disability Database 15
2. Profile of the population 19
3. Service provision in 2010 28
4. Assessment of need 2011–2015 45
5. Conclusion 78
References 80
Appendix A 81
2010 National Intellectual Disability Database form 81
Appendix B: Service categories 85
Day programmes 85
Residential circumstances 86
Day service groupings 87
Appendix C 88
Supplementary table 88
Appendix D 90
National Intellectual Disability Database publications 90

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List of tables and figures
Tables
Table 2.1 Number of people registered on the NIDD, by age, gender and
degree of intellectual disability, 2010 20
Table 2.2 Prevalence of intellectual disability, by degree (moderate, severe
and profound) and by age group, 1974, 1981, 1996, 2010 23
Table 2.3 Number of people registered on the NIDD, by HSE region, 2010 25
Table 2.4 Number of people registered on the NIDD with a physical and/
or sensory disability, by gender, 2010 27
Table 3.1 Overall service provision to those registered on the NIDD, 2010 29
Table 3.2 Main residential circumstances, by degree of intellectual disability
and by age group, 2010 32
Table 3.3 Main residential circumstances and overall level of residential service
provision, 2010 33
Table 3.4 Use of respite nights, by HSE region and by LHO area of residence, 2010 36
Table 3.5 Residential status of people availing of day services, by degree of
intellectual disability and by age group, 2010 37
Table 3.6 Principal day service availed of, by degree of intellectual disability
and by age group, 2010 39
Table 3.7 Principal day service and overall level of day service provision,
by age group, 2010 41
Table 3.8 Overall provision of multidisciplinary support services, by age and
access to an early intervention team (EIT), 2010 43
Table 3.9 Service provision by HSE region of registration, 2010 44
Table 4.1 Number of new places required to meet need 2011–2015, by HSE
region of registration, 2010 47
Table 4.2 Future full-time residential service requirements of
individuals receiving no residential service in 2010, by degree
of intellectual disability 49
Table 4.3 Future day service requirements of individuals receiving no day
service in 2010, by degree of intellectual disability 50
Table 4.4 Future residential support service requirements of individuals
receiving no residential support services in 2010, by degree of
intellectual disability 51
Table 4.5 Use of and requirements for respite by people living in home/
independent setting, by HSE region and LHO area, 2010 53

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Table 4.6 Category of service change required 2011–2015, by degree
of intellectual disability 55
Table 4.7 Number of places requiring change, 2011–2015 55
Table 4.8 Pattern of movement of individuals from existing residential
services to future residential services, 2011–2015 57
Table 4.9 Pattern of movement of individuals from existing day services to
future day services, 2011–2015 61
Table 4.10 Additional residential support services required by people availing
of residential support services in 2010 64
Table 4.11 Future day service requirements of individuals aged 16 years or
over who were in an education setting in 2010, by age 66
Table 4.12 Future day service requirements of individuals aged 16 years or
over who were in an education setting in 2010, by degree of
intellectual disability 66
Table 4.13 Future day service requirements of individuals aged 16 years
or over who were in an education setting in 2010, by year
of service requirement 67
Table 4.14 Overall service requirements of people with intellectual
disability resident in psychiatric hospitals in 2010, by HSE
region of registration 68
Table 4.15 Day service requirements of people appropriately accommodated
in psychiatric hospitals in 2010 69
Table 4.16 Residential service requirements of people resident in
psychiatric hospitals in 2010 who require transfer to the
intellectual disability sector 69
Table 4.17 Day service requirements of people resident in psychiatric
hospitals in 2010 who require transfer to the intellectual
disability sector 70
Table 4.18 Pattern of full-time residential service provision required, 2011–2015 74
Table 4.19 Pattern of day service provision required, 2011–2015 77
Table C1 Details of main residential circumstances, degree of
intellectual disability and age group 88

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Figures
Figure 2.1 Profile of the population registered on the NIDD, 2010 19
Figure 2.2 Individuals registered on the NIDD, by degree of intellectual
disability and by age group, 2010 21
Figure 2.3 Proportion of people with moderate, severe or profound
intellectual disability (combined), by age group: 1974–2010 24
Figure 2.4 Prevalence of NIDD registrations per 1,000 of the general population,
by HSE LHO area of residence, 2010 26
Figure 3.1 Summary of service provision, by age group, 2010 28
Figure 3.2 Number of people in receipt of respite nights and median number
of respite nights received, by degree of intellectual disability, 2010 34
Figure 3.3 Total number and median number of respite nights received, by
HSE region of residence, 2010 35
Figure 4.1 Summary of the service requirements of those
registered on the NIDD, 2010 46
Figure 4.2 Multidisciplinary support services received in 2010 and required
in the period 2011–2015 72

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Acknowledgements
The National Intellectual Disability Database Committee wishes to acknowledge the
continuing commitment and co-operation of the following groups who are involved in
the ongoing maintenance of the National Intellectual Disability Database:
• the Office for Disability and Mental Health in the Department of Health;
• the Health Service Executive, in particular the database co-ordinators, the
database administrators/managers and the database committees;
• the National Federation of Voluntary Bodies providing services to people with
intellectual disability;
• the parents and families of people with an intellectual disability and their
representative bodies; and
• all those in intellectual disability services throughout Ireland.
Particular thanks are extended to Ms Joan Moore for editing the text and to Conor
Teljeur for designing the map of the local health offices in Ireland.

10
Members of the National
Intellectual Disability Database
Committee 2010
Mr Colm Desmond (Chairperson)
Office for Disability and Mental Health,
Department of Health
Mr Harry Harris
Office for Disability and Mental Health,
Department of Health
Mr James Rocke
Western Care Association
Castlebar
Co Mayo
Representing the National Federation of
Voluntary Bodies providing services to
people with intellectual disability
Mr Paul Ledwidge
St Michael’s House
Ballymun Road
Ballymun
Dublin 9
Representing the National Federation of
Voluntary Bodies providing services to
people with intellectual disability
Ms Elizabeth Doherty
Health Service Executive
Area Disability Specialist
HSE West Region
Ms Sarah Craig
Disability Databases Team
Ms Fionnola Kelly
Disability Databases Team
Ms Mary O’Gorman
Disability Databases Team
Ms Caraíosa Kelly
Disability Databases Team
Health Research Board
An Bord Taighde Sláinte
Knockmaun House
42–47 Lower Mount Street
Dublin 2

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Chairperson’s statement
I am pleased to introduce the 2010 Annual Report of the National Intellectual Disability
Database (NIDD). The database has almost 26,500 registrations and this year the focus
continues on areas that have particular relevance to service planners and providers,
namely: the transition from youth to adulthood and the service needs required as a
result, and the growing provision and demand for respite services to support people
with intellectual disability and their families to remain at home.
This year we will spend in the region of €1.5bn of taxpayers’ money on specialist
health services for people with a disability, approximately 10% of the health budget.
While the government has initiated a comprehensive spending review across all
departments, the disability sector is already the subject of a detailed value for money
(VFM) and policy review. The review will assess how well current services for people
with disabilities are meeting their objectives. The evaluation will also explore the way
forward for services. I expect that the review will be completed by the end of 2011. The
data in this report have proved extremely useful for the work of the VFM review.
This year’s report, similar to those in previous years, identifies trends in the data that
have been discernible in the last number of years. These trends include increased
provision of services, an increase in the reported needs of people with an intellectual
disability, the move to community group homes, the move from psychiatric hospitals,
and greater numbers of individuals surviving into old age. All of these trends have
implications for the planning and provision of services into the future.
In this context, an Expert Reference Group on Disability Policy was established to
look specifically at existing disability policy, and to propose how it might better meet
the expectations and objectives of people with disabilities. People with disabilities
and their families are looking, above all, for more choice in the services they receive
and more control over how they access them. The government published a summary
of the proposals emerging from the Expert Reference Group in December 2010. The
report proposes a very significant reframing of disability services towards a model of
individualised supports, underpinned by mainstreaming of all public services.
I would like to thank the NIDD Committee members for all their work on the report
and their ongoing input into the National Committee. I would like to add a particular
thanks to those working in the Disability Databases Team at the HRB for their efforts in
preparing and completing this report on behalf of the Committee.
Colm Desmond
Chairperson
National Intellectual Disability Database Committee

12
Executive summary
Demographic profile
There were 26,484 people registered on the National Intellectual Disability Database
(NIDD) in December 2010, representing a prevalence rate of 6.25 per 1,000 population.
The prevalence rate for mild intellectual disability was 2.09 per 1,000 and the
prevalence rate for moderate, severe or profound intellectual disability was 3.69 per
1,000. There were more males than females at all levels of intellectual disability, with
an overall ratio of 1.32 to 1. The total number with moderate, severe or profound
intellectual disability has increased by 39% since the first Census of Mental Handicap in
the Republic of Ireland was carried out in 1974. One of the factors contributing to this
increase in numbers is the growth in the general population over the period. Of the
people with moderate, severe or profound intellectual disability, the proportion who
were aged 35 years or over increased from 29% in 1974 to 38% in 1996, and to 49% in
2010. This reflects an increase in the lifespan of people with intellectual disability. This
changing age profile observed in the data over the past three decades gives rise to an
ongoing high level of demand for full-time residential services, support services for
ageing caregivers, and services designed specifically to meet the needs of older people
with intellectual disability. This helps to explain the ongoing demand for additional
resources for people with intellectual disability.
Service provision in 2010
The numbers registered on the NIDD in December 2010 were as follows:
• 25,936 people with intellectual disability who were in receipt of services,
representing 98% of the total population registered on the NIDD. This was
the highest number of people in receipt of services since the database was
established.
• 287 people (1% of those registered) who were without services in 2010 and who
were identified as requiring appropriate services in the period 2011–2015.
• 261 people (1%) who were not availing of services and had no identified
requirement for services during the planning period 2011–2015.
Of the 25,936 people who were in receipt of services in 2010:
• 8,213 (31.2%) were in receipt of full-time residential services, a decrease of 38
since 2009. This is the seventh consecutive year in which the data indicate that
more people live in community group homes than in residential centres.

13
• The number of people with intellectual disability accommodated in psychiatric
hospitals decreased by 39 (14.1%), from 277 in 2009 to 238 in 2010.
• 25,857 (99.7%) people availed of at least one day programme in 2010. This is the
highest rate of day service usage since NIDD data were first reported in 1996. Of
this group, 8,152 were in full-time residential placements.
• 21,803 (84.1%) people availed of one or more multidisciplinary support services.
The services most commonly availed of by adults were social work, medical
services and psychiatry. The services most commonly availed of by children were
speech and language therapy, occupational therapy and social work.
Sixty-five per cent of those registered on the NIDD (17,112 individuals) lived at home
with parents, siblings, relatives or foster parents in 2010. More than one in four people
who had a moderate, severe or profound intellectual disability and who were aged
35 years or over in 2010 lived at home. Because people with intellectual disability
are living longer, the likelihood of their outliving their caregivers has increased
substantially in recent years, which has implications for service planning.
Since the first report from the NIDD in 1996, there has been significant growth in the
level of provision of full-time residential services, residential support services, and day
services. Key developments during the period 1996 to 2010 include:
• an increase of 71% in the number of people with intellectual disability living full
time in community group homes;
• a 75% reduction in the number of people with intellectual disability
accommodated in psychiatric hospitals;
• a continued expansion in the availability of residential support services,
particularly planned or emergency centre-based respite services, which have
grown by a substantial 468%; 4,951 people availed of this type of service in 2010,
allowing them to continue living with their families and in their communities;
and
• increased provision in almost all areas of adult day services and in the level of
support services delivered as part of a package of day services to both children
and adults.
Service requirements
The 2010 data indicate that 4,539 new residential, day and/or residential support
places will be needed to meet service requirements. The following services will
be needed in the period 2011–2015 (most service needs were recorded as being
immediate):

14
• 2,269 full-time residential placements, a decrease of 29, or 1%, since 2009.
• 2,045 residential support services, a decrease of 70, or 3.3%, since 2009. This
high level of need is presenting even though there were over 5,500 people
availing of residential support services in 2010.
• 225 day programmes (this figure excludes multidisciplinary support services and
services provided by early intervention teams). This number does not include the
841 young adults who, as they approach the age of 18, are preparing to leave the
education system to take up a range of training and supported/sheltered employment
opportunities, which traditionally have been funded by the health sector.
• 162 individuals who were living in psychiatric hospitals in 2010 have been identified
as needing to transfer from these locations to more appropriate accommodation.
Further analysis and review of this cohort will be undertaken in 2011.
Of those in receipt of services in 2010, 11,505 people required alternative, additional, or
enhanced services in the period 2011–2015, a decrease of 59, or 0.5%, since 2009. This
group included people who required an increased level of service provision, increased
support within their existing services, transfer to more appropriate placements, or a
service change to coincide with transition periods in their lives, for example, movement
from child to adult services, or from education to training and/or employment
placements. To address the required service changes over the next five years:
• 9,873 day places will require changes or enhancements. Health-funded services
are required by 6,808 individuals (69.0%), employment services are required by
1,243 individuals (12.6%), education services are required by 1,186 individuals
(12.0%) and generic services are required by 636 individuals (6.4%). Of the 1,186
service changes required within education, 926 (78.1%) are requirements for
an alternative service and 260 (21.9%) are requirements for an enhancement of
the individual’s existing service. A large proportion of the 1,343 individuals who
were attending special schools in 2010 require adult day services within the
period 2011–2015. Of this group, almost one quarter (328 individuals) require
rehabilitative training, 282 (21.0%) require vocational training and 150 (11.2%)
require activation programmes.
• 2,869 residential places will require changes or enhancements.
• 1,701 residential support places will require changes or enhancements.
Despite high levels of service provision in 2010, there remained a significant demand
for new and enhanced multidisciplinary support services. Three quarters (19,466
individuals) of the population registered on the NIDD require a new or enhanced
multidisciplinary support service in the period 2011–2015. There was substantial
demand for all the therapeutic inputs, in particular, psychology, speech and language
therapy and occupational therapy.

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1. The National Intellectual
Disability Database
Background
The National Intellectual Disability Database (NIDD) was established in 1995 in the
Republic of Ireland. The principal aim of the NIDD is to ensure that information is
available to enable the Department of Health, the Health Service Executive (HSE)
and the non-statutory agencies in Ireland to provide appropriate services designed to
meet the changing needs of people with intellectual disability and their families. The
database is intended to provide a comprehensive and accurate information base for
decision making in relation to the planning, funding and management of services for
people with an intellectual disability.
The database was established on the principle that minimal information with
maximal accuracy was preferred; hence, it incorporates only three basic elements
of information: demographic details, current service provision and future
service requirements. Information is generally collected on day, residential and
multidisciplinary support service usage and future service need (the form used to
collect information, and details of the service categories that are included on the NIDD
are presented in Appendices A and B). The objective is to obtain this information
for every individual known to have an intellectual disability and assessed as being
in receipt of, or in need of, an intellectual disability service. Information pertaining
to diagnosis is specifically excluded, as the database is not designed as a medical,
epidemiological tool. The data held on any individual represent the information
available for that individual at a specified point in time only. The record is updated
whenever there are changes in the person’s circumstances or during the annual review
process when service provider agencies assess ongoing and future needs.
The information now available from the NIDD provides a much better basis for
decision making than was previously the case. Priorities can be set based on
evaluation of the needs of people with intellectual disability, and services that are
sensitive to these needs can be delivered. The commitment of all services and agencies
involved in the maintenance of the database is significant and their continuing
commitment and co-operation is crucial in ensuring the ongoing availability of
accurate information.

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Structure
The HSE is responsible for the administration of the database. This includes the
implementation and maintenance of structures for the identification of individuals
and the collection, review and updating of data. The initial step in the generation of
the national dataset is the completion of a data form for each identified individual
(Appendix A). Responsibility for providing this information to the HSE lies primarily
with the service providers, local health office (LHO) personnel and school principals.
The designated data providers supply this information to their LHO and a local
database is compiled. Data from the local databases enable more sophisticated service
planning at local level and promote effective co-ordination of services within the area.
Information (excluding personal details such as name and address) is extracted from
the NIDD at the end of the annual review and update period. This information forms
the national dataset for that year.
Data quality
The Health Research Board (HRB) oversees a system of ongoing validation which aims
to identify and correct gaps and inconsistencies in the data. The database guidelines
and protocols are revised and refined in response to issues highlighted by the HRB,
HSE regions and service providers. The HRB also provides training to HSE and service
provider staff which ensures greater standardisation of data collection throughout the
country. In addition, the NIDD software contains a series of technical checks which
enable routine data validation to be carried out by service providers and HSE regions.
There are ongoing efforts to ensure continued improvement of data quality at local,
regional and national levels. As part of these efforts a national audit of the NIDD
was undertaken in 2007; some of the recommendations of that audit have since been
implemented.
2010 annual report
This is the thirteenth report of the National Intellectual Disability Database Committee.
The report is based on validated data extracted from the NIDD in December 2010. In
addition to this report, a summary bulletin and a complete set of tables are produced
for each HSE LHO.
Prevalence rates per thousand population are based on up-to-date data from the 2006
Census of Population (Central Statistics Office, 2007).

17
The nature of service provision in the intellectual disability area in Ireland ensures
that an almost complete capture of data on all individuals with a moderate, severe
or profound intellectual disability is possible and expected. Inclusion of individuals
with a mild level of intellectual disability is sought if they are in special classes or
special schools for children with intellectual disability, or are attending an intellectual
disability service as adults, or if they are considered likely to require such a service
within the next five years. Some of those in the average ability and borderline
intellectual disability categories are registered on the NIDD but have been excluded
from the analyses presented in this report because services for this group are not
usually provided within intellectual disability services. In the 2010 dataset, there were
646 people recorded as being of average ability and 710 people in the borderline
intellectual disability category. The HSE regions are involved in an ongoing appraisal
of the appropriateness of such registrations on the database. The disability category
described as ‘not verified’ has been included in the analyses as members of this
group have an intellectual disability but the level of disability has not been confirmed.
Accordingly, the data presented include the ‘not verified’ category in addition to those
with a mild, moderate, severe or profound intellectual disability.
The 2010 dataset consists of information in relation to 26,484 individuals. Of the
26,484 registrations, 98.5% (26,091 cases) were updated following the completion of
the 2010 review of NIDD information; the remaining 393 registrations contain the last-
known data in each case.
National Disability Survey 2006
In 2006 the Central Statistics Office (CSO) conducted a National Disability Survey (NDS)
to establish the extent and impact of disability in Ireland. The preliminary results were
published in October 2008. Data from the survey indicate that 50,400 people in Ireland
have a diagnosed intellectual disability (CSO, 2008). This information differs greatly
from what is recorded on the NIDD, for two main reasons:
• Intellectual disability is defined differently by the two data sources: the NIDD
definition is based on the WHO International Classification of Diseases, Tenth
Edition (ICD-10), while the NDS definition is based on the WHO International
Classification of Functioning (ICF). In addition, the data-collection methods differ.
For inclusion on the NIDD a person is usually assessed by a multidisciplinary
team, and his/her level of intellectual disability (mild, moderate, severe
or profound) is established based on this assessment. The response to the
question in the NDS pertaining to whether or not the individual had a diagnosed
intellectual disability was self-interpreted in a guided interview context. Almost
14,000 individuals whose main disability was classified as dyslexia or a specific

18
learning difficulty answered ‘Yes’ to this question, as did over 2,500 individuals
(or their proxy) whose disability was classified as attention deficit disorder (CSO,
2008, unpublished data). This question was also answered positively by a large
number of people who had an acquired brain injury. People diagnosed with the
conditions mentioned above are not generally included on the NIDD unless they
have a diagnosed intellectual disability as defined by the WHO ICD-10, where
disability is estimated on a scale ranging from mild to moderate to severe to
profound (WHO, 1996).
• As a general principle, the NIDD registers data only on individuals with an
intellectual disability for whom specialised health services are being provided
or who, following a needs assessment, are considered to require specialised
services in the next five years. Almost everyone with a moderate, severe or
profound intellectual disability is expected to be included on the NIDD as they
are likely to be in receipt of or require intellectual disability services. The number
of people on the NIDD with a mild intellectual disability may, however, be
underestimated as they are less likely to require specialised intellectual disability
services. By contrast, the NDS included all individuals who defined themselves as
having an intellectual disability, regardless of whether they were in receipt of or
required intellectual disability services.

19
2. Profile of the population
National level
Summary
Figure 2.1 shows that there were 26,484 people registered on the NIDD in 2010. There
were more males (56.9%) than females (43.1%) registered on the database, with the highest
proportions of both males and females diagnosed as having a moderate level of intellectual
disability. Figure 2.1 also indicates that the largest proportions of people registered were in
the HSE South Region (27.8%) and in the 35–54-year age group (29.0%).
n %
Mild 5080 (33.7)
Moderate 5889 (39.1)
Severe 2328 (15.5)
Profound 541 (3.6)
Not verified 1223 (8.1)
n %
Dublin/Mid-
Leinster 6906 (26.1)
South 7364 (27.8)
West 6904 (26.1)
Dublin/
North-East 5310 (20.0)
n %
0-4 years 1199 (4.5)
5-9 years 2438 (9.2)
10-14 years 2808 (10.6)
15-19 years 2839 (10.7)
20-34 years 6235 (23.5)
35-54 years 7676 (29.0)
55 years
and over 3289 (12.4)
n %
Mild 3761 (32.9)
Moderate 4675 (40.9)
Severe 1737 (15.2)
Profound 457 (4.0)
Not verified 793 (6.9)
Female
11423 (43.1%)
Male
15061 (56.9%)
Number of people registered on the NIDD in 2010
26484
Gender Age
group
Level of
intellectual
disability
HSE region
of registration
Figure 2.1 Profile of the population registered on the NIDD, 2010
During the review and update period prior to the 2010 extract of data from the NIDD,
652 people were removed from the Database1 and there were 1,070 new or reactivated
registrations. Table 2.1 summarises the age and gender distribution of those registered
on the Database by degree of intellectual disability and shows the corresponding
prevalence2 rates per thousand of the population.
1 Records of those who had died, who had no requirement for intellectual disability services, or who no
longer wanted their information to be held on a national system were among those removed from the
database.
2 Prevalence is the proportion of people in a population who have a disease or condition at a specific
point in time. For example, in 2010, 300 people with an intellectual disability received services in a
specific LHO area. The prevalence is the total number of cases (300) divided by the population living in
the LHO area (35,000) expressed per 1,000 of the population. The calculation in this case is as follows:
(300/35,000) X 1,000, which gives a prevalence rate of 8.6 per 1,000 of the specific LHO area population
in 2010.

20
Table 2.1 Number of people registered on the NIDD, by age, gender and degree of intellectual disability, 2010
Not verified Mild Moderate Severe Profound All levels
Age
group Females Males Total Females Males Total Females Males Total Females Males Total Females Males Total Females Males Total
0–4 452 576 1028 32 63 95 18 21 39 12 18 30 3 4 7 517 682 1199
5–9 215 454 669 233 483 716 231 508 739 93 157 250 34 30 64 806 1632 2438
10–14 22 51 73 464 860 1324 370 635 1005 138 201 339 34 33 67 1028 1780 2808
15–19 2 10 12 515 890 1405 426 638 1064 114 178 292 36 30 66 1093 1746 2839
20–34 33 34 67 964 1188 2152 1208 1621 2829 392 593 985 88 114 202 2685 3550 6235
35–54 50 53 103 1067 1156 2223 1597 1766 3363 666 871 1537 200 250 450 3580 4096 7676
55 &
over 19 45 64 486 440 926 825 700 1525 322 310 632 62 80 142 1714 1575 3289
All ages 793 1223 2016 3761 5080 8841 4675 5889 10564 1737 2328 4065 457 541 998 11423 15061 26484
Prevalence rates – numbers per 1,000 of the general population for each age group3
0–4 3.06 3.73 3.40 0.22 0.41 0.31 0.12 0.14 0.13 0.08 0.12 0.10 0.02 0.03 0.02 3.50 4.41 3.97
5–9 1.53 3.07 2.32 1.66 3.26 2.48 1.65 3.43 2.56 0.66 1.06 0.87 0.24 0.20 0.22 5.74 11.03 8.46
10–14 0.16 0.36 0.27 3.48 6.12 4.83 2.77 4.52 3.67 1.03 1.43 1.24 0.25 0.23 0.24 7.71 12.67 10.25
15–19 0.01 0.07 0.04 3.63 6.00 4.84 3.00 4.30 3.67 0.80 1.20 1.01 0.25 0.20 0.23 7.70 11.78 9.78
20–34 0.06 0.06 0.06 1.83 2.20 2.02 2.30 3.00 2.66 0.75 1.10 0.92 0.17 0.21 0.19 5.11 6.58 5.85
35–54 0.09 0.09 0.09 1.88 2.00 1.94 2.81 3.06 2.94 1.17 1.51 1.34 0.35 0.43 0.39 6.31 7.09 6.70
55 &
over 0.04 0.11 0.07 1.05 1.07 1.06 1.78 1.70 1.74 0.70 0.75 0.72 0.13 0.19 0.16 3.71 3.82 3.76
All ages 0.37 0.58 0.48 1.78 2.39 2.09 2.21 2.78 2.49 0.82 1.10 0.96 0.22 0.26 0.24 5.39 7.10 6.25
3 Prevalence rates are based on Census of Population 2006 figures (CSO, 2007).

21
Prevalence
The prevalence rate for mild intellectual disability in 2010 was 2.09/1000, a slight
increase on the 2009 rate of 2.04/1000. This figure is not a true reflection of the
prevalence as those with a mild intellectual disability are under-represented; of this
group, only those accessing or requiring intellectual disability services are included
in the Database. The prevalence rate for moderate, severe and profound intellectual
disability in 2010 was 3.69/1000, compared to 3.65/1000 in 2009.
Gender differences
As Table 2.1 indicates, the number of males exceeded the number of females at all
levels of intellectual disability, and in all age groups, except the 55-years-and-over
group. The overall male to female ratio was 1.32:1. This represents a prevalence rate
of 7.10/1000 males and 5.39/1000 females.
Age differences
Of the persons recorded on the NIDD, 9,284 (35.1%) were aged 19 years or under, 6,235
(23.5%) were aged between 20 and 34 years, 7,676 (29.0%) were aged between 35 and
54 years, and 3,289 (12.4%) were 55 years or over. Figure 2.2 illustrates the proportion
in each age group at each level of intellectual disability.
0
20
40
60
80
100
Moderate, Severe, Profound Mild Not verified
Age group
Percentage
Figure 2.2 Individuals registered on the NIDD, by degree of intellectual disability and by age
group, 2010

22
Trends over time
Recent trends
Prevalence rates for moderate, severe and profound intellectual disability between
1974 and 2010 are shown in Table 2.2. The 1996 prevalence rates are calculated using
NIDD data from 1996 and Census of Population data from 1996. The 2010 prevalence
rates are calculated using NIDD data from 2010 and Census of Population data from
2006. Compared to the 1996 data (National Intellectual Disability Database Committee,
1997), the 2010 data in Table 2.2 demonstrate the following trends:
• The prevalence rate among the 0–4-year age group has continued to decline.
This can in part be attributed to an increase between the two census dates in
the numbers in this age group in the general population and to the declining
numbers in this age group that are registered on the NIDD. In compiling the
Database each year, attempts are made to discover every child with intellectual
disability at the earliest possible age, but respect is also given to situations where
parents are reluctant to allow information about their young child to be recorded
on the Database. Indeed, significant developmental delay is much less evident in
the first two years, becoming much more noticeable by the time a child is aged
three or four. Another potential reason for the fall in the number of 0–4-year-
olds registered on the Database is that children in this age group are increasingly
using mainstream services. In addition, the assessment of need process, which
has been in place since 2007 for those aged under five years, may have had some
impact on registration for this age group.
• The prevalence rate among 20–34-year-olds continues to fall, as has consistently
been the case over the period 1974–2010.
• There has been an overall increase in prevalence in the 55-years-and-over age
group; the prevalence rate in 2010 was 2.63 per thousand of population. The
number of people in this age group registered on the Database increased by 865
(60.3%) between 1996 and 2010.

23
Table 2.2 Prevalence of intellectual disability, by degree (moderate, severe and profound) and by age group, 1974, 1981, 1996, 2010
Moderate Severe Profound All levels
Age group 1974 1981 1996 2010 1974 1981 1996 2010 1974 1981 1996 2010 1974 1981 1996 2010
–4 189 214 226 39 143 92 83 30 99 26 30 7 431 332 339 76
5–9 809 955 736 739 617 330 260 250 224 99 77 64 1650 1384 1073 1053
10–14 752 1035 948 1005 583 428 305 339 292 117 93 67 1627 1580 1346 1411
15–19 698 1203 1072 1064 445 508 378 292 241 154 132 66 1384 1865 1582 1422
20–34 1498 2419 2997 2829 1017 1129 1350 985 441 340 460 202 2956 3888 4807 4016
35–54 1321 1559 2626 3363 626 612 1183 1537 201 97 343 450 2148 2268 4152 5350
55 & over 669 715 987 1525 307 248 394 632 84 24 53 142 1060 987 1434 2299
All ages 5936 8100 9592 10564 3738 3347 3953 4065 1582 857 1188 998 11256 12304 14733 15627
Prevalence rates – numbers per 1,000 of the general population for each age group
0–4 0.6 0.62 0.83 0.13 0.45 0.27 0.3 0.10 0.31 0.07 0.11 0.02 1.36 0.97 1.24 0.25
5–9 2.55 2.73 2.31 2.56 1.95 0.94 0.82 0.87 0.71 0.28 0.24 0.22 5.2 3.95 3.37 3.65
10–14 2.52 3.08 2.72 3.67 1.95 1.27 0.88 1.24 0.98 0.35 0.27 0.24 5.45 4.7 3.86 5.15
15–19 2.61 3.79 3.2 3.67 1.66 1.6 1.13 1.01 0.9 0.48 0.39 0.23 5.17 5.88 4.72 4.90
20–34 2.78 3.33 3.93 2.66 1.88 1.56 1.77 0.92 0.82 0.47 0.6 0.19 5.48 5.35 6.31 3.77
35–54 2.13 2.43 3.25 2.94 1.01 0.95 1.46 1.34 0.32 0.15 0.42 0.39 3.46 3.53 5.14 4.67
55 & over 1.08 1.09 1.45 1.74 0.5 0.38 0.58 0.72 0.14 0.04 0.08 0.16 1.71 1.51 2.11 2.63
All ages 1.99 2.35 2.72 2.49 1.25 0.97 1.12 0.96 0.53 0.25 0.34 0.24 3.80 3.60 4.18 3.69

24
Trends over past three decades
Data from the 1974 and 1981 Censuses of Mental Handicap, carried out by the
Medico-Social Research Board (Mulcahy, 1976; Mulcahy and Ennis, 1976; Mulcahy and
Reynolds, 1984), enable us to monitor trends in the population with an intellectual
disability over the past 35 years (Table 2.2).
Of particular interest from a trends point of view, and most relevant to service
planning, is that, as reported in previous years, the increase in numbers since 1996
is confined largely to the two older age groups, the 35–54-year age group and the
55-years-and-over age group. A number of factors contributed to this increase,
including the general population increase in these age groups during the period,
improved standards of care and an increase in the lifespan of people with intellectual
disability. However, in 2010 as in 2009, there was an increase in the numbers in the
10–14-year age group.
Ageing population
Figure 2.3 shows continued growth in the proportion of over-35s among those with
moderate, severe or profound intellectual disability in Ireland. Increased longevity in
this population is attributed in the research literature to improved health and well-
being, the control of infectious diseases, the move to community living, improved
nutrition, and the quality of health care services. It can be seen that 28.5% of this
population were aged 35 years or over in 1974. A steady increase in the proportion
aged 35 years or over has been observed in each dataset since 1996; the proportion
rose from 37.9% in 1996 to 48.9% in 2010, when almost half of those with a moderate,
severe or profound intellectual disability were aged 35 years over.
Figure 2.3 Proportion of people with moderate, severe or profound intellectual disability
(combined), by age group: 1974–2010
0
10
20
30
40
50
60
70
80
90
100
35 years and over Under 35 years
Percentage
1974 1981 1996 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010
28.5 26.5 37.9 40.1 41.8 43.5 44.0 44.8 45.6 46.0 46.6 47.2 48.0 48.4 48.6 48.9

25
Impact of observed trends
As previous reports from the NIDD have highlighted, the changing age profile of
the population with moderate, severe or profound intellectual disability has major
implications for service planning in the years ahead as this is where the demands on
the health services are most acute. Key issues include:
• Residential services are primarily used by adults with a moderate, severe or
profound intellectual disability (see Chapter 3). As the number of individuals in
this group increases, more pressure is being placed on residential services.
• Improved life expectancy among adults with a more severe intellectual disability
places an increased demand on the health services and poses new challenges
to health care professionals. Fewer places are becoming free over time, a higher
degree of support within day and residential services is required, and specific
support services for older people are needed.
• The majority of adults with intellectual disability continue to live with their
families. As these caregivers age beyond their care-giving capacity, residential
supports are required. Additional therapeutic support services are also required
for people who wish to continue to live with their families and to live as
independently as possible.
Regional level
Numbers in each Health Service Executive region
Table 2.3 shows the number of individuals registered on the NIDD in 2010 by HSE
region. The numbers registered in each region were broadly in line with what would be
expected based on the size of the general population of the region (CSO, 2006).
Table 2.3 Number of people registered on the NIDD, by HSE region, 2010
HSE Region n % of NIDD % of total population
Dublin/Mid-Leinster 6906 26.1 28.7
South47364 27.8 25.5
West56904 26.1 23.9
Dublin/North-East65310 20.0 21.9
Total 26484 100.0 100.0
4 An additional 118 individuals received services in the HSE South Region but have not been included in
the overall figures as they did not consent to their information being included on the national system.
5 An additional 56 individuals received services in the HSE West Region but have not been included in the
overall figures as they did not consent to their information being included on the national system.
6 An additional 36 individuals received services in the HSE Dublin/North-East Region but have not
been included in the overall figures as they did not consent to their information being included on the
national system.

26
Figure 2.4 Prevalence of NIDD registrations per 1,000 of the general population, by HSE LHO
area of residence, 2010
Donegal
6.61
Cavan
-Monaghan
5.45 Louth
8.67
Meath
4.63
Sligo-Leitrim
West Cavan
9.59
Mayo
8.03 Roscommon
7.64
Galway
6.61
Clare
4.44
North Cork
6.78
West Cork
7.08
South Lee
4.38
North Lee 7.07
Kerry
6.52
Limerick
7.01
Kildare-
South West
Wicklow
6.88
Laois -
Offaly
5.59
South
Tipperary
6.98
North
Tipperary -
East Limerick
6.90
Waterford
6.05
Carlow -
Kilkenny
9.15
Wicklow
5.42
1. South Dublin Area 1 – 4.75
2. South Dublin Area 2 – 2.83
3. Dublin South City Area 3 – 2.81
4. Dublin South City Area 4 – 5.78
5. Dublin West Area 5 – 8.16
6. North Dublin Area 6 – 6.44
7. North Dublin Area 7 – 3.71
8. North Dublin Area 8 – 5.89
Wexford
7.13
2.72-4.50 NIDD registrations per 1,000 population
4.51-6.00 NIDD registrations per 1,000 population
6.01-7.24 NIDD registrations per 1,000 population
7.25 & over NIDD registrations per 1,000 population
Longford-
Westmeath
7.51

27
Figure 2.4 presents the number of NIDD registrations by the LHO area in which service
users reside. The national prevalence rate was 6.25/1000. The Sligo/Leitrim/West
Cavan LHO area had the highest prevalence rate, at 9.59/1000 of the population, while
the lowest prevalence rate was in the Dublin South City LHO area, at 2.81/1000.
Co-morbidity within the NIDD population
As Table 2.4 indicates, 9,263 individuals (35.0%) registered on the NIDD in 2010 had a
physical and/or sensory disability in addition to an intellectual disability. This number
represents an increase of 8.8% on the 2009 figure, reflecting an improvement in the
recording of people with multiple disabilities. Individuals with multiple disabilities are
likely to have more complex service needs than those with intellectual disability alone.
Table 2.4 Number of people registered on the NIDD with a physical and/or sensory disability,
by gender, 2010
Male Female Total
n%n%n%
Intellectual and physical/
sensory disability 4983 33.1 4280 37.5 9263 35.0
Intellectual disability only 10051 66.7 7115 62.3 17166 64.8
Not reviewed 27 0.2 28 0.2 55 0.2
Total 15061 100.0 11423 100.0 26484 100.0

28
3. Service provision in 2010
National level
Summary of service provision
Figure 3.1 presents summary data for the main day and residential services provided
to adults (aged 18 years and over) and children (aged under 18 years) registered on
the NIDD in 2010. Day services were availed of by 97.6% of all those registered on the
NIDD in 2010. The majority of services accessed by adults were health related, and the
majority accessed by children were educational. Figure 3.1 also shows that a larger
proportion (3.1%) of adults were without day services, compared to their younger
counterparts (0.6%). The residential circumstances for both age groups also differed
in 2010; 97.8% (8,047) of those aged under 18 years lived at home, compared to 49.6%
(9,065) of those aged 18 years and over.
Note: The NIDD permits the recording of two different types of residential service and three different types of day
service for each person on the database. The data above represents each person’s main day and main residential
service only. Overall service provision is detailed in Tables 3.3 and 3.7.
Figure 3.1 Summary of service provision, by age group, 2010
n %
Home setting 8047 (97.8)
Independent
setting 0 (0.0)
Community
group homes 97 (1.2)
Residential
centres 37 (0.4)
Other full time
services 39 (0.5)
No fixed
abode 0 (0.0)
Insufficient
information 4 (0.0)
n %
Health 1722 (20.9)
Education 6443 (78.3)
Employment 0 (0.0)
Generic 6 (0.1)
No day
service 53 (0.6)
n %
Home setting 9065 (49.6)
Independent
setting 1076 (5.9)
Community
group homes 3991 (21.9)
Residential
centres 2774 (15.2)
Other full time
services 1275 (7.0)
No fixed
abode 13 (0.1)
Insufficient
information 66 (0.4)
n %
Health 15518 (85.0)
Education 423 (2.3)
Employment 1122 (6.1)
Generic 623 (3.4)
No day
service 574 (3.1)
Under 18
8224 (31.1%)
18 or over
18260 (68.9%)
Main residential circumstance and type of main day service received by age group
26484
Age
group
Main day service
grouping
Main residential
circumstances

29
In 2010, 25,936 people with intellectual disability were receiving services, which
accounted for 97.9% of the total population registered on the NIDD. Of the remaining
548 people (2.1%) who were not in receipt of services, 287 (1.1% of total registered
population) had expressed a need for services in the period 2011–2015. The overall
level of service provision in 2010 is provided in Table 3.1 (a comprehensive list of the
types of service availed of is given in Appendix B).
Table 3.1 Overall service provision to those registered on the NIDD, 2010
n%
Attending services on a day basis 17705 66.9
Receiving 5- or 7-day residential services 7975 30.1
Resident in a psychiatric hospital 238 0.9
Receiving residential support services only 18 0.1
Receiving no service – on waiting list 287 1.1
No identified service requirements 261 1.0
Total 26484 100.0
Residential circumstances
Table 3.2 provides an overview of the main residential circumstances of those
registered on the NIDD in 2010 by degree of intellectual disability and age group
(a further breakdown is presented in Table 3.3).
The main groupings of individuals consisted of:
• 17,112 individuals (64.6%) who lived at home with parents, relatives, or foster
parents. This figure does not take account of those in the mild intellectual
disability category who were living at home/independently without supports or
services, and who are under-represented on the NIDD.
• 8,213 individuals (31.0%) who lived in full-time residential services, mainly in
community group homes, residential centres, psychiatric hospitals, and intensive
placements. This represents a decrease of 38 on the 2009 figure.
• 1,076 individuals (4.1%) who lived independently or semi-independently. This
represents an increase of 84 on the 2009 figure.
The most commonly availed of residential settings were community group homes. The
data indicate that more full-time residents lived in homes in the community (4,088)
than in residential centres (2,811). The number of people accommodated in community
group homes has increased and in residential centres has decreased on an almost
continuous basis since data collection commenced. This reflects an ongoing trend
towards community living for people with an intellectual disability.

30
In 2010, 293 people with an intellectual disability resided full time in mental health
services, either in psychiatric hospitals (238 individuals, compared with 277 individuals
in 2009) or in mental health community residences (55 individuals) (Table 3.3).
Age difference
There were notable differences in the age profiles of the groups in the various
categories of accommodation (Table 3.2). The proportion of people who lived in a
home setting in 2010 decreased with age: 97.2% of individuals aged 0–19 years lived
in a home setting, declining to 72.7% of those aged 20–34 years, 39.1% of those aged
35–54 years, and 16.8% of those aged 55 years or over.
By contrast, the proportion of people in the different age categories who lived in
full-time residential services increased with age: in 2010 2.7% of all 0–19-year-olds
received full-time residential services, compared with 23.3% of 20–34-year-olds, 53.0%
of 35–54-year-olds, and 74.3% of those aged 55 years or over.
The data indicate that more than one in four people aged 35 years or over with a
moderate, severe or profound intellectual disability lived with their families in 2010.
Because people with intellectual disability are living longer, the likelihood of their
outliving their caregivers has increased substantially in recent years, which has
implications for service planning. Of the 1,076 individuals who lived in independent or
semi-independent settings in 2010, 78.7% were aged 35 years or over, and over three
quarters (77.2%) had a mild intellectual disability.
Degree of intellectual disability
There were also noticeable variations between level of ability and type of residential
situation (Table 3.2). Of those with a mild intellectual disability, 74.6% lived in a home
setting, compared to 55.0% of those with a moderate, severe or profound intellectual
disability. The proportion of people in full-time residential services increased as the
level of intellectual disability increased. Only 15.8% of people with a mild intellectual
disability lived in full-time residential services, but this increased to 43.3% in the case
of those with a moderate, severe or profound disability.
Where individuals were in full-time residential services in 2010, the type of service
varied according to the level of intellectual disability. Full-time residents with a mild
intellectual disability were in the past more likely to be accommodated in community
group homes, while full-time residents with a moderate, severe or profound
intellectual disability were more likely to be accommodated in residential centres.
However, since 2007 the number of full-time residents with a moderate, severe or
profound intellectual disability living in community group homes exceeds the number
living in residential centres.

31
• Of those in full-time residential services in 2010 who had a moderate, severe or
profound intellectual disability, 46.4% were in community group homes, 37.9%
were in residential centres, and 15.7% were in other full-time residential services
such as nursing homes or intensive placements.
• Of those in the mild range of intellectual disability who were in full-time
residential services in 2010, 66.7% were in community group homes, 16.7% were
in residential centres, and 16.7% were in other full-time residential services.
Table 3.3 outlines the main residential circumstances and overall level of residential
service provision of those registered on the NIDD in 2010 (a more detailed breakdown
of main residential circumstances is presented in Table C1 in Appendix C). The NIDD
permits the recording of two different types of residential service for each individual
registered. The overall level of residential service provision shown in Table 3.3 is a
combination of the main and secondary residential services provided, while the main
residential circumstance is the place in which the individual resides most of the time.
Of particular note is the number of residential support services available in addition
to an individual’s principal residential service; these include holiday residential
placements, crisis or planned respite care, occasional respite with a host family,
overnight respite in the home and regular part-time care.
Between 1996 and 2010 there has been considerable growth in the number of
residential support places available. In particular, the data show a significant increase
of 468.4% (4,080) in the number of individuals who availed of centre-based respite
services, either as a planned or emergency intervention, bringing the total number of
people availing of respite services in 2010 to 4,951 (Table 3.3).

32
Table 3.2 Main residential circumstances, by degree of intellectual disability and by age group, 2010
Not verified Mild Moderate, severe or profound All levels
0–19 20–34 35–54 55+ Total 0–19 20–34 35–54 55+ Total 0–19 20–34 35–54 55+ Total 0–19 20–34 35–54 55+ Total
Home
setting 1778 53 61 21 1913 3477 1740 1158 226 6601 3770 2740 1781 307 8598 9025 4533 3000 554 17112
Independent
setting 0 8 29 15 52 5 182 459 185 831 0 34 90 69 193 5 224 578 269 1076
Community
group home 1 5 5 7 18 45 144 451 289 929 85 571 1752 733 3141 131 720 2208 1029 4088
Residential
centre 0 0 2 9 11 4 28 73 127 232 48 384 1232 904 2568 52 412 1307 1040 2811
Other
full-time
services7
3 1 6 12 22 6 49 80 97 232 57 271 466 266 1060 66 321 552 375 1314
No fixed
abode 000000522900314055313
Insufficient
information 0000034007216261963520261970
Total 1782 67 103 64 2016 3540 2152 2223 926 8841 3962 4016 5350 2299 15627 9284 6235 7676 3289 26484
7 Other full-time services include psychiatric hospitals, intensive placements, nursing homes, mental health community residences and full-time residential support
places.

33
Table 3.3 Main residential circumstances and overall level of residential service
provision, 2010
Main residential circumstances
Overall level of residential
provision/circumstance
Under 18 18 and over All ages Under 18 18 and over All ages
Home setting 8047 9065 17112 8053 9072 17125
At home with both parents 6230 5312 11542 6230 5312 11542
At home with one parent 1565 2539 4104 1565 2539 4104
At home with sibling 4 900 904 4 900 904
At home with other relative 52 156 208 52 156 208
Living with non-relative 4 25 29 4 25 29
Adoption 10 13 23 10 13 23
Foster care and boarding out
arrangements 182 120 302 188 127 315
Independent setting 0 1076 1076 0 1078 1078
Living independently 0 707 707 0 708 708
Living semi-independently 0 369 369 0 370 370
Community group homes 97 3991 4088 97 3991 4088
5-day community group home 37 402 439 37 402 439
7-day community group home 10 529 539 10 529 539
7-day (52-week) community group home 50 3060 3110 50 3060 3110
Residential setting 37 2774 2811 37 2774 2811
5-day residential centre 3 58 61 3 58 61
7-day residential centre 11 333 344 11 333 344
7-day (52-week) residential centre 23 2383 2406 23 2383 2406
Other full time residential services 39 1275 1314 39 1275 1314
Nursing home 0 156 156 0 156 156
Mental health community residence 0 55 55 0 55 55
Psychiatric hospital 0 238 238 0 238 238
Intensive placement (challenging
behaviour) 13 478 491 13 478 491
Intensive placement (profound or
multiple disability) 14 242 256 14 242 256
Occupying a full-time support place 7 40 47 7 40 47
Other full-time residential service 5 66 71 5 66 71
Residential support service 0 0 0 1404 4208 5612
Holiday residential placement 0 0 0 3 130 133
Crisis or planned respite 0 0 0 1240 3711 4951
Occasional respite with host family 0 0 0 124 183 307
Overnight respite in the home 0 0 0 7 8 15
Shared care or guardianship 0 0 0 2 9 11
Regular part-time care (2/3 days per
week) 000177390
Regular part-time care (every weekend) 0 0 0 4 10 14
Regular part-time care (alternate weeks) 0 0 0 2 60 62
Other residential service 0 0 0 5 24 29
No fixed abode 0 13 13 0 13 13
Insufficient information 4 66 70 4 66 70
8224 18260 26484 9634 22477 32111
Note: The total number of services received (32,111) exceeds the actual number of people with an intellectual disability
as a number of people availed of two residential services.

34
Respite services
As illustrated in Table 3.3, the majority of residential support services are service-
based respite breaks. The NIDD allows for the recording of each person’s need for
respite services.
Degree of intellectual disability
Figure 3.2 highlights a clear relationship between level of disability and the median8
number of nights availed of. As would be expected, people with moderate, severe or
profound levels of intellectual disability required more respite nights than those with a
mild level of intellectual disability.
Figure 3.2 Number of people in receipt of respite nights and median number of respite nights
received, by degree of intellectual disability, 2010
Geographical variation in respite provision
Figure 3.3 displays the total number of respite nights received in 2010 for those who
were living within each of the four HSE regions. Table 3.4 presents data on respite for
each of the HSE LHO areas. Both the figure and the table show that there were marked
differences between regions in the total number of respite nights received in 2010, which
ranged from 28,329 nights in the HSE South region to 46,645 nights in the HSE West
region. Chapter 4 presents data on those who require respite care.
8 The median is the value at the mid-point in a sequence of values which are ranged in ascending order. It
is described as the numeric value separating the higher half of a sample from the lower half. The median
can be found by arranging all the observations from lowest value to highest value and picking the
middle one. For example, in the case of five clients who received 18, 19, 21, 22 and 55 nights of respite
care in one year, the median (middle value) is 21 nights, whereas the mean is 27 nights. While the mean
and median both describe the central value of the data, the median is more useful in this case because
the mean is influenced by the one client who required a lot of respite care.
2500
2000
3000
1500
1000
500
0
Number of people
25.0
20.0
35.0
30.0
40.0
15.0
10.0
5.0
0.0
Median number of respite rights
Profound
182
35.5
Severe
923
28.0
Moderate
2650
18.0
Not verified
115
13.0
Mild
1081
13.0
N
Median

35
Figure 3.3 Total number and median number of respite nights received, by HSE region of
residence, 20109
9 A small number of individuals (62) remained in respite care for more than 150 nights, which may have
slightly inflated the respite figures. Twenty-six of these people were resident in the West Region, 16 in
the Dublin/Mid-Leinster Region, 13 in the Dublin/North-East Region and seven in the South Region.
HSE South
HSE Dublin/Mid–Leinster
HSE West
HSE Dublin/North–East
HSE Dublin/North–East
Total number of respite nights received – 29326
Total number of people in receipt of respite – 1126
Total number of people registered on NIDD – 5310
Median number of respite nights – 14
HSE West
Total number of respite nights received – 46645
Total number of people in receipt of respite – 1275
Total number of people registered on NIDD – 6904
Median number of respite nights – 27
HSE Dublin/Mid–Leinster
Total number of respite nights received – 39578
Total number of people in receipt of respite – 1375
Total number of people registered on NIDD – 6906
Median number of respite nights – 18
HSE South
Total number of respite nights received – 28329
Total number of people in receipt of respite – 1175
Total number of people registered on NIDD – 7364
Median number of respite nights – 14

36
Table 3.4 Use of respite nights, by HSE region and by LHO area of residence, 2010
Total number
of respite nights
received
Number of people
in receipt of respite
nights
Median number of
respite nights received
HSE Dublin/Mid-Leinster Region 39578 1375 18.0
LHO Dublin South 4776 132 31.0
LHO Dublin South East 2475 65 21.0
LHO Dublin South City 2846 99 18.0
LHO Dublin South West 7162 235 19.0
LHO Dublin West 5062 146 23.5
LHO Kildare/West Wicklow 6148 266 14.0
LHO Wicklow 4212 108 24.5
LHO Laois/Offaly 2062 156 4.0
LHO Longford/Westmeath 4835 168 18.0
HSE South Region 28329 1175 14.0
LHO Carlow/Kilkenny 2386 123 10.0
LHO Tipperary SR 2220 128 12.0
LHO Waterford 1566 103 12.0
LHO Wexford 2848 165 14.0
LHO Cork North Lee 3948 136 17.0
LHO Cork South Lee 4437 133 25.0
LHO North Cork 3037 104 19.0
LHO West Cork 3413 88 17.0
LHO Kerry 4474 195 13.0
HSE West Region 46645 1275 27.0
LHO Limerick 4792 154 24.0
LHO Tipperary NR 4442 97 40.0
LHO Clare 3290 121 18.0
LHO Galway 15499 322 34.0
LHO Mayo 6835 182 32.5
LHO Roscommon 1967 55 27.0
LHO Donegal 6960 220 20.5
LHO Sligo/Leitrim/West Cavan 2860 124 13.0
HSE Dublin/North-East Region 29326 1126 14.0
LHO Dublin North West 5136 204 15.5
LHO Dublin North Central 2945 174 5.0
LHO Dublin North 10006 381 12.0
LHO Cavan/Monaghan 2097 100 17.5
LHO Louth 4725 107 35.0
LHO Meath 4417 160 22.5
All regions 143878 4951 19.0
Day services
In 2010, 25,857 people, representing 97.6% of all those registered on the NIDD,
received day services (Table 3.5). This is the highest number registered as receiving
such services since the database was established.

37
Residential status of people availing of day services
Day services are availed of by people who live at home or in independent living
settings in the community, and also by people who are receiving full-time residential
services.
Of the 25,857 individuals who availed of day services in 2010, 8,152 (31.5%) were in
full-time residential services, the majority of whom were in the moderate, severe, or
profound range of intellectual disability (82.4%) and aged 18 years or over (97.9%). The
remaining 17,705 (68.5%) attended services on a day basis, of whom 40.7% were in the
mild range of intellectual disability and 45.2% were aged under 18 years (Table 3.5).
Table 3.5 Residential status of people availing of day services, by degree of intellectual
disability and by age group, 2010
Not verified Mild
Moderate, severe
or profound Total
Under
18
18 or
over Total
Under
18
18 or
over Total
Under
18
18 or
over Total
Under
18
18 or
over Total
Residents 4 45 49 42 1340 1382 127 6594 6721 173 7979 8152
Day
attendees 1742 180 1922 2978 4234 7212 3278 5293 8571 7998 9707 17705
Total 1746 225 1971 3020 5574 8594 3405 11887 15292 8171 17686 25857
Main day services by age group and degree of intellectual
disability
As in 2009, the top three day activities availed of by people with an intellectual
disability in 2010, and accounting for more than half of principal day service provision,
were activation programmes, special schools, and sheltered work (Table 3.6).
Age difference
Of the 25,857 individuals who availed of day services in 2010, 8,171 (31.6%) were aged
under 18 years, and 17,686 (68.4%) were aged 18 years or over (Table 3.6).
The principal day services accessed by the majority of those aged under 18 years
were mainstream or special education services at primary and secondary level,
early intervention services, mainstream or specialised pre-school services and child
education and development services.
Of the 17,686 adults who availed of at least one day service in 2010, most attended
either activation centres (35.3%) or sheltered work centres (19.2%) as their
principal day service. Smaller proportions availed of rehabilitative training (9.5%),
multidisciplinary support services only (9.1%), and supported employment (5.3%).

38
Degree of intellectual disability
Of those who received day services in 2010 (25,857 individuals), 8,594 (33.2%) had
a mild intellectual disability, 15,292 (59.1%) had a moderate, severe or profound
intellectual disability and 1,971 (7.6%) had not yet had their degree of intellectual
disability established (Table 3.6).
The age profiles of these groups are quite different. Just over one in five (3,405, 22.3%)
of the population with moderate, severe or profound intellectual disability who availed
of day services in 2010 were aged under 18 years, whereas more than one in three
(3,020, 35.1%) of the population with mild intellectual disability who availed of day
services were aged under 18 years.
Of the 8,171 under-18s who availed of day services in 2010:
• 3,020 (37.0%) had a mild degree of intellectual disability; most of this group
availed of special education services as their principal day service, with smaller
numbers in mainstream schools and pre-school services.
• 3,405 (41.7%) had a moderate, severe or profound intellectual disability and,
while most were receiving special education services as their principal day
service, smaller numbers were in mainstream education or pre-school services
and some also availed of more intensive services such as child education and
development centres.
• 1,746 (21.4%) had not had their degree of intellectual disability verified.
Of the 17,686 adults in receipt of day services in 2010:
• 5,574 (31.5%) had a mild degree of intellectual disability, most of whom attended
sheltered work centres, were in receipt of activation programmes, availed of
rehabilitative training, or were in supported employment.
• 11,887 (67.2%) were in the moderate, severe or profound range and were
most likely to be in receipt of activation programmes, with smaller numbers in
sheltered work and rehabilitative training.
• 225 (1.3%) had not had their degree of intellectual disability verified.

39
Table 3.6 Principal day service availed of, by degree of intellectual disability and by age group, 2010
Not verified Mild Moderate, severe or profound All levels
Under
18
18
and
over All ages
Under
18
18
and
over All ages
Under
18
18
and
over All ages
Under
18
18
and
over All ages
Home support 43 10 53 3 64 67 10 100 110 56 174 230
Home help 1 1 2 0 10 10 0 8 8 1 19 20
Early intervention team 455 0 455 25 0 25 20 0 20 500 0 500
Special pre-school for intellectual disability 366 0 366 54 0 54 100 0 100 520 0 520
Child education and development centre 3 0 3 1 0 1 140 7 147 144 7 151
Mainstream pre-school 219 0 219 68 0 68 32 0 32 319 0 319
Mainstream school 231 0 231 841 37 878 565 29 594 1637 66 1703
Resource/visiting teacher 28 0 28 55 13 68 35 7 42 118 20 138
Special class – primary 93 0 93 211 0 211 198 0 198 502 0 502
Special class – secondary 3 1 4 67 20 87 82 25 107 152 46 198
Special school 225 0 225 1637 137 1774 2172 129 2301 4034 266 4300
Third level education 0 1 1 0 24 24 0 0 0 0 25 25
Rehabilitative training 0 12 12 3 826 829 0 850 850 3 1688 1691
Activation centre 0 24 24 1 1223 1224 1 4997 4998 2 6244 6246
Programme for the older person 0 10 10 0 112 112 0 534 534 0 656 656
Special high-support day service 0 0 0 1 55 56 3 647 650 4 702 706
Special intensive day service 0 0 0 6 47 53 15 344 359 21 391 412
Sheltered work centre 0 24 24 0 1324 1324 1 2045 2046 1 3393 3394
Sheltered employment centre 0 13 13 0 57 57 0 17 17 0 87 87
Multidisciplinary support services 29 33 62 15 437 452 9 1139 1148 53 1609 1662
Centre-based day respite service 0 1 1 0 8 8 2 9 11 2 18 20
Day respite in the home 2 0 2 0 1 1 0 2 2 2 3 5
Outreach programme 1 4 5 1 46 47 1 59 60 3 109 112
Other day service 46 1 47 27 164 191 18 253 271 91 418 509
Enclave within open employment 0 0 0 0 5 5 0 7 7 0 12 12
Supported employment 0 37 37 0 535 535 0 357 357 0 929 929
Open employment 0 3 3 0 133 133 0 45 45 0 181 181
Vocational training 0 5 5 4 166 170 1 64 65 5 235 240
Generic day services 1 45 46 0 130 130 0 213 213 1 388 389
Total 1746 225 1971 3020 5574 8594 3405 11887 15292 8171 17686 25857

40
Table 3.7 outlines the main day service and overall level of day service provision
for those registered on the NIDD in 2010. The NIDD records up to three different
types of day service for each person registered. The overall level of day service
provision shown in Table 3.7 is a combination of the main, secondary and tertiary day
programmes provided. Of note is the number of support services available to people
with an intellectual disability in addition to their principal day service; these include
services such as home support, early intervention, education support, centre-based
and home-based day respite, home help, and multidisciplinary support.
Between 1996 and 2010 there was significant growth in overall day service provision.
In particular, the data show:
• Increases in the number of both high-support and intensive day places. The
number of high-support day places increased by 79.5% (318 people) and the
number of intensive day places increased by 267.2% (310 people). The data
indicate that 718 and 426 people respectively attended high-support and intensive
day services in 2010.
• An increase of 155.2% (430 people) in the number in receipt of day programmes
specific to the older person. The number of people who attended such services in
2010 was 707.
• An increase of 50.3% (2,175 people) in the number who attended activation
centres, bringing the total number to 6,501 in 2010.
Increases were also observed over the 15-year period in the numbers of individuals
who availed of mainstream schooling, resource teachers, and vocational training.

41
Table 3.7 Principal day service and overall level of day service provision, by age group, 2010
 Principal day service
Overall level of day service
provision

Under
18
18 and
over All ages
Under
18
18 and
over All ages
Home support 56 174 230 1125 907 2032
Home help 1 19 20 87 74 161
Early intervention team 500 0 500 1699 0 1699
Special pre-school for intellectual disability 520 0 520 536 0 536
Child education and development centre 144 7 151 158 9 167
Mainstream pre-school 319 0 319 405 0 405
Mainstream school 1637 66 1703 1665 68 1733
Resource/visiting teacher 118 20 138 748 63 811
Special class – primary 502 0 502 506 0 506
Special class – secondary 152 46 198 152 46 198
Special school 4034 266 4300 4035 267 4302
Third-level education 0 25 25 0 27 27
Rehabilitative training 3 1688 1691 3 1745 1748
Activation centre 2 6244 6246 2 6499 6501
Programme for the older person 0 656 656 0 707 707
Special high-support day service 4 702 706 7 711 718
Special intensive day service 21 391 412 23 403 426
Sheltered work centre 1 3393 3394 1 3603 3604
Sheltered employment centre 0 87 87 0 89 89
Multidisciplinary support services 53 1609 1662 5562 14542 20104
Centre-based day respite service 2 18 20 319 440 759
Day respite in the home 2 3 5 83 66 149
Outreach programme 3 109 112 50 231 281
Other day service 91 418 509 735 671 1406
Enclave within open employment 0 12 12 0 15 15
Supported employment 0 929 929 0 1855 1855
Open employment 0 181 181 0 337 337
Vocational training 5 235 240 5 276 281
Generic day services 1 388 389 3 423 426
Total 8171 17686 25857 17909 34074 51983
Note: The total number of services received (51,983) exceeds the actual number of people with an intellectual disability
as a number of people availed of two or more day services.

42
Multidisciplinary support services
In the case of multidisciplinary support services (which include services delivered
by early intervention teams), the large difference between the principal day
service provision and the overall day service provision (Table 3.7) arises because
multidisciplinary support and early intervention services are only recorded as a
principal day service if they are the sole day service that an individual receives. The
majority of people who are in receipt of such services also receive another service as
their principal day service.
Table 3.8 details the overall provision of specific therapeutic inputs. Specific inputs are
only recorded if the individual has received, or will receive, at least four inputs of that
service in a 12-month period.
• Overall, 21,803 individuals received one or more multidisciplinary support
services in 2010 (including those provided by early intervention teams). This was
an increase of 580 people since 2009. As in 2009, the most commonly availed of
multidisciplinary support services were social work (10,530 individuals), medical
services (9,775 individuals), speech and language therapy (8,536 individuals) and
psychology (8,354 individuals).
• The services most commonly availed of by adults were social work (6,815),
medical services (6,767) and psychiatry (6,259).
• The services most commonly availed of by children were speech and language
therapy (1,729 children aged six years or under and 3,894 children aged 7–17
years), occupational therapy (1,415 children aged six years or under and 2,404
children aged 7–17 years), and social work (1,173 children aged six years or
under and 2,542 children aged 7–17 years).
• Early intervention teams usually provide services to children aged six years or
under; 1,649 children (82.3%) in this age group received multidisciplinary support
services from an early intervention team in 2010. There were also 50 children
aged seven years or over who received services from an early intervention team
in 2010.

43
Table 3.8 Overall provision of multidisciplinary support services, by age and access to an
early intervention team (EIT), 2010
Aged 6 or under Aged 7–17
Aged 18
or over Total
Provided
by an
EIT
Not
provided
by an
EIT Total
Provided
by an
EIT
Not
provided
by an
EIT Total
Medical services 1050 119 1169 21 1818 1839 6767 9775
Nursing 835 110 945 19 1191 1210 5895 8050
Nutrition 352 45 397 7 512 519 2575 3491
Occupational therapy 1182 233 1415 33 2371 2404 2762 6581
Physiotherapy 1194 168 1362 30 1693 1723 3178 6263
Psychiatry 56 21 77 2 513 515 6259 6851
Psychology 860 164 1024 27 2410 2437 4893 8354
Social work 1021 152 1173 32 2510 2542 6815 10530
Speech and language
therapy 1434 295 1729 39 3855 3894 2913 8536
Other 441 72 513 12 1342 1354 4234 6101
Number of people 1649 354 2003 50 5208 5258 14542 21803
Note: Therapeutic inputs are only recorded if the individual has received, or will receive, at least four inputs of that
service in a 12-month period. The number of therapeutic inputs received exceeds the number of people as many people
receive more than one input/service.
Regional level
Table 3.9 provides summary details of the level of service provision in 2010 within the
four HSE regions. Nationally, 25,936 individuals (97.9%) with an intellectual disability
registered on the NIDD were in receipt of services in 2010.
At national level, 8,213 individuals (31.0%) registered on the NIDD in 2010 were in
receipt of a full-time residential service. Regionally, this proportion varied from 29.1%
in the HSE South Region to 32.0% in the HSE West Region.
At national level, 17,705 (66.9%) attended services on a day basis, with the proportion
ranging from 65.0% in the HSE West Region to 69.4% in the HSE South Region.
Nationally, a small proportion (287, 1.1%) of registrations were without services but
were identified as requiring services in the five-year period 2011–2015. The HSE West
Region had the highest proportion (1.8%) of people without any service and awaiting
services within the next five years.

44
Table 3.9 Service provision by HSE region of registration, 2010
Attending services
on a day basis
Receiving 5- or
7-day residential
services
Resident in
a psychiatric
hospital
Receiving
residential support
services only
Receiving no
service – on
waiting list
No identified
service
requirements Total
n (%) n (%) n (%) n (%) n (%) n (%) N
Dublin/Mid-Leinster 4592 (66.5) 2171 (31.4) 15 (0.2) 7 (0.1) 54 (0.8) 67 (1.0) 6906
South 5108 (69.4) 2087 (28.3) 58 (0.8) 5 (0.1) 63 (0.9) 43 (0.6) 7364
West 4491(65.0) 2191 (31.7) 23 (0.3) 3 (0.0) 121 (1.8) 75 (1.1) 6904
Dublin/North–East 3514 (66.2) 1526 (28.7) 142 (2.7) 3 (0.1) 49 (0.9) 76 (1.4) 5310
All regions 17705 (66.9) 7975 (30.1) 238 (0.9) 18 (0.1) 287 (1.1) 261 (1.0) 26484

45
4. Assessment of need 2011–2015
The NIDD provides an assessment of the needs of people with an intellectual disability.
Four distinct categories of need are identified, as follows:
A – Unmet need: applies to people who, in 2010, were without a major element of
service such as day or residential, or who were without residential support services, or
who were without any service, and will require these services in the period 2011–2015.
It excludes those whose only requirement was for multidisciplinary support services as
these are dealt with in category D below.
B – Service change: applies to those who already had an intellectual disability
service in 2010 but will require that service to be changed or upgraded during the
period 2011–2015, and includes children/young people who will require access to
health-funded services in the period. It excludes those whose only service change
requirement was for multidisciplinary support services (see category D below).
C – People with intellectual disability who were accommodated in psychiatric
hospitals in 2010: includes people who need to transfer out of psychiatric
hospitals in the period 2011–2015 and people who were resident in the psychiatric
services in 2010 but require an appropriate day service in the period 2011–2015. For
completeness, multidisciplinary support service requirements, where applicable, are
noted in the tables relating to this category.
D – Multidisciplinary support services: services that will be required in the period
2011–2015 by all individuals registered on the NIDD in 2010. This category includes the
multidisciplinary support service requirements of the unmet need and service change
groups as well as those of people with an intellectual disability within the psychiatric
services.
The NIDD records up to two future residential services and up to two future day
services for each individual. To avoid double-counting of individuals, only the first
service identified is reported in the tables in this report relating to the unmet need,
service change, and people with intellectual disability within the psychiatric services
groups, but the level of additional need of these individuals is noted in the relevant
sections of the text as well as in the multidisciplinary support services section.

46
Summary
Figure 4.1 indicates that 4,539 new residential, day and/or residential support places
will be needed to meet service requirements in the period 2011–2015, half of which are
residential places. Of the existing places availed of in 2010, 14,443 need to be changed
or upgraded, with just over two-thirds of the changes/upgrades required in day
services. Figure 4.1 also shows that 162 people accommodated in psychiatric hospitals
in 2010 require specialist services; 90% of this group require residential services. In
2010, 19,466 people were recorded as requiring new or enhanced multidisciplinary
services, which is a slight increase on the number recorded in 2009.
Note: ‘New service required’ refers to a new type of therapeutic input that the individual does not currently receive.
‘Enhanced service required’ refers to a change in the delivery of a therapeutic input that the individual currently
receives. There are 8,301 individuals whose multidisciplinary support service change involves both a new service and
an enhanced service, therefore, the actual number of people requiring a new and/or enhanced service is
(16,102+11,665)-8,301=19,466.
Figure 4.1 Summary of the service requirements of those registered on the NIDD, 2010
A – Unmet need
Number of places required to meet need
The number of new residential, day and residential support places required to meet
need as assessed by service providers is shown by HSE region in Table 4.1.
n %
Residential
service 2269 (50.0)
Day service 225 (5.0)
Residential
support service 2045 (45.0)
n %
Residential
service 2869 (19.9)
Day service 9873 (68.4)
Residential
support service 1701 (11.8)
n %
Residential
service 147 (90.7)
Day service 12 (7.4)
Other 3 (1.9)
n %
New service
required 16102 (82.7)
Enhanced
service
required 11665 (59.9)
Number of new
places required to
meet service need
4539
Number of places
required to be
changed or upgraded
14443
Numbers
accommodated
in psychiatric hospitals
who require services
162
Numbers requiring
enhanced and/or
new multidisciplinary
services
19466
Number of people registered on the NIDD in 2010
26484
Unmet need Type of service required in the
next five years (2011-2015)

47
Table 4.1 Number of new places required to meet need 2011–2015, by HSE region
of registration, 2010
Residential Day
Residential
support
% of total NIDD
registrations
Dublin/Mid-Leinster 623 52 476 26.1
South 559 44 666 27.8
West 502 97 566 26.1
Dublin/North-East 585 32 337 20.0
Total 2269 225 2045 100
The key figures and trends are summarised as follows:
• The number of new day places required has been falling steadily since 1996.
However, the 2010 figure of 225 is a slight increase on the 2009 figure of 209.
This figure does not, however, take account of the individuals who require a
change or enhancement to their day service, for example, those who are leaving
education and require a training/employment service (see Figure 4.1). This
service need is considered in Section B below.
• The number of new residential places required has decreased slightly since 2009,
from 2,298 places in 2009 to 2,269 places in 2010. Seven out of ten of those
requiring a new residential place (1,613 individuals, 71.1%) have a moderate,
severe or profound intellectual disability.
• The demand for residential supports has decreased slightly since 2009. The 2010
figure of 2,045 represents a small decrease of 70 (3.3%) since 2009. This high
level of need is presenting even though there were over 5,000 people availing of
residential support services in 2010.
Full-time residential services
Of the 2,269 people who required full-time residential services in 2010 (Table 4.2):
• 1,613 individuals (71.1%) had a moderate, severe, or profound level of intellectual
disability, of whom 1,358 required placements in community group homes,
145 required placements in a residential centre, and 103 required specialised
intensive placements because of their increased dependency.
• 611 (26.9%) individuals had a mild intellectual disability, of whom 540 required
placements in community group homes, 49 required placements in a residential
centre, and 20 required specialised intensive placements due to their increased
dependency.

48
• 45 (2.0%) had not had their level of intellectual disability verified in 2010. Of
those who required full-time residential services in 2010, 2,251 (99.2%) were in
receipt of a day service or a residential support service, 2,185 (96.3%) lived at
home, and 74 (3.3%) lived independently or semi-independently.
Day services
As in previous years, demand for day services among those reported as not being in
receipt of such services was confined almost exclusively to adult services (Table 4.3).
Of the 225 individuals who required day services, 206 (91.6%) lived either at home (187
individuals) or independently/semi-independently (19 individuals). The largest demand
came from 203 people who had no service whatsoever in 2010. Of the 203 people who
had no service:
• 135 individuals (66.5%) had a mild intellectual disability and their principal
service requirements were in the training and employment areas.
• 62 individuals (30.5%) had a moderate, severe or profound intellectual disability
and their principal service requirements were for sheltered work, activation
programmes and rehabilitative training.
Residential support services
Residential support services, such as respite and regular part-time care, were required
by 2,045 people (Table 4.4). Of this group, 1,768 individuals (86.5%) lived either at
home (1,692 individuals) or independently/semi-independently (76 individuals); 1,737
individuals (85.9%) were in receipt of a day service; and 32 individuals (1.6%) had no
day service in 2010. An additional 276 individuals (13.5%) were full-time residents and
needed a residential support service either to enhance, or as an alternative to, their
existing services.
• People with moderate, severe or profound intellectual disability accounted for
more than half of the demand for residential support services in 2010 (1,091
individuals), while people with mild intellectual disability accounted for 42.5%
(869 individuals). The remaining 4.2% (85 individuals) had not had their degree of
intellectual disability verified in 2010.
• Most of the demand in 2010 was for crisis or planned respite services (1,244
individuals, 60.8%), semi-independent and independent living arrangements (395
individuals, 19.3%), and holiday residential placements (142 individuals, 6.9%).

49
Table 4.2 Future full-time residential service requirements of individuals receiving no residential service in 2010, by degree of intellectual disability
No service – requires
residential service
Receives residential
support only – requires
residential service
Receives day service
– requires residential
service Overall need
NV Mild MSP All NV Mild MSP All NV Mild MSP All NV Mild MSP All
5-day community group home 0 1 1 2 0 0 1 1 4 109 166 279 4 110 168 282
7-day (48-week) community group home 0 0 2 2 0 0 0 0 1 87 211 299 1 87 213 301
7-day (52-week) community group home 0 4 2 6 0 0 0 0 13 339 975 1327 13 343 977 1333
5-day residential centre 0 1 0 1 0 0 0 0 0 2 17 19 0 3 17 20
7-day (48-week) residential centre 0 0 0 0 0 1 0 1 0 11 35 46 0 12 35 47
7-day (52-week) residential centre 0 1 4 5 0 0 0 0 23 33 89 145 23 34 93 150
Nursing home 0 0 0 0 0 0 0 0 0 2 6 8 0 2 6 8
Mental health community residence 0 0 0 0 0 0 0 0 0 0 1 1 0 0 1 1
Intensive placement (challenging behaviour) 0 0 0 0 0 0 0 0 0 18 49 67 0 18 49 67
Intensive placement (profound or multiple disability) 0 0 2 2 0 0 0 0 4 2 52 58 4 2 54 60
All services 0 7 11 18 0 1 1 2 45 603 1601 2249 45 611 1613 2269
Note: NV refers to a level of intellectual disability that has not been verified and MSP refers to a moderate, severe or profound level of intellectual disability.

50
Table 4.3 Future day service requirements of individuals receiving no day service in 2010, by degree of intellectual disability
No service – requires day
service
Receives residential
support only – requires
day service
Receives residential
service only – requires
day service Overall need
NV Mild MSP All Mild MSP All NV Mild MSP All NV Mild MSP All
Home support 1 1 5 7 0 0 0 0 0 0 0 1 1 5 7
Home help 0 0 1 1 0 0 0 0 0 0 0 0 0 1 1
Mainstream pre-school 2 0 0 2 0 0 0 0 0 0 0 2 0 0 2
Mainstream school 1 0 1 2 0 0 0 0 0 0 0 1 0 1 2
Special class – secondary 0 1 0 1 0 0 0 0 0 0 0 0 1 0 1
Special school 2 2 0 4 0 0 0 0 0 0 0 2 2 0 4
Third level education 0 1 0 1 0 0 0 0 0 0 0 0 1 0 1
Rehabilitative training 0 32 8 40 0 0 0 0 0 1 1 0 32 9 41
Activation centre 0 7 13 20 0 2 2 1 0 8 9 1 7 23 31
Programme for the older person 0 2 2 4 0 0 0 0 0 1 1 0 2 3 5
Special high support day service 0 0 4 4 0 0 0 0 0 0 0 0 0 4 4
Special intensive day service 0 0 1 1 0 0 0 0 1 0 1 0 1 1 2
Sheltered work centre 0 14 14 28 2 0 2 0 1 1 2 0 17 15 32
Sheltered employment centre 0 1 1 2 0 0 0 0 0 0 0 0 1 1 2
Other day service 0 4 0 4 0 0 0 0 0 1 1 0 4 1 5
Enclave within open employment 0 1 0 1 0 0 0 0 0 0 0 0 1 0 1
Supported employment 0 26 5 31 0 0 0 0 2 0 2 0 28 5 33
Open employment 0 8 0 8 0 0 0 0 0 0 0 0 8 0 8
Vocational training 0 35 7 42 0 0 0 0 0 1 1 0 35 8 43
All services 6 135 62 203 2 2 4 1 4 13 18 7 141 77 225
Note: This table excludes people who were receiving no day service and whose only day service requirements are for multidisciplinary support services (including those delivered by an
early intervention team). These people are reported in the multidisciplinary support services section later in this chapter.

51
Table 4.4 Future residential support service requirements of individuals receiving no residential support services in 2010, by degree of intellectual
disability
No service-requires
residential support
Receives day service-
requires residential
support
Receives residential
service-requires
residential support
Receives residential and
day services-requires
residential support Overall need
NV Mild MSP All NV Mild MSP All NV Mild MSP All NV Mild MSP All NV Mild MSP All
Foster care and boarding-out 0 0 0 0 0 1 0 1 0 0 0 0 0 1 1 2 0 2 1 3
Living independently 0 4 0 4 2 40 5 47 0 1 0 1 0 5 1 6 2 49 6 58
Living semi-independently 0 7 0 7 8 196 39 243 0 0 0 0 1 52 35 88 9 255 74 338
Holiday residential placement 0 0 1 1 0 39 31 70 0 0 0 0 0 7 64 71 0 46 96 142
Crisis or planned respite 2 12 6 20 54 420 723 1197 0 0 0 0 1 4 22 27 57 436 751 1244
Occasional respite care
with host family 0 0 0 0 12 32 38 82 0 0 0 0 0 0 1 1 12 32 39 83
Shared care or guardianship 0 0 0 0 0 4 5 9 0 0 0 0 0 0 4 4 0 4 9 13
Regular part-time care
(2/3 days per week) 000005101500000000051015
Regular part-time care
(every weekend) 00001146000001011247
Regular part-time care
(alternate weeks) 00000257000000110268
Other residential service 0 0 1 1 2 15 20 37 0 0 0 0 0 15 58 73 2 30 79 111
Overnight respite in the home 0 0 0 0 2 5 16 23 0 0 0 0 0 0 0 0 2 5 16 23
All services 2 23 8 33 81 760 896 1737 0 1 0 1 2 85 187 274 85 868 1091 2045

52
Future need for centre-based respite services
As illustrated in Table 4.5, most of the demand for residential support services in
2010 was for crisis or planned respite services. Table 4.5 presents the respite use
and requirements of those registered, by LHO area. It also presents the total number
who were living in a home or independent setting in 2010, and who may be in need
of respite services in the future. The table presents data on each of the LHO areas
and shows a marked difference in the number of people receiving and requiring the
service. Overall, 25% of those who were living at home or in an independent setting in
2010 received respite care, while 7% of the same group required respite care. Within
the LHO areas the percentage receiving respite ranged from 13.2% in LHO Roscommon
to 37.8% in LHO North Dublin. Similarly, the percentage requiring respite ranged from
2.8% in LHO Dublin South-East to 12.0% in LHO Carlow/Kilkenny.

53
Table 4.5 Use of and requirements for respite by people living in home/independent setting,
by HSE region and LHO area, 2010
Number in receipt
of crisis or planned
respite in 2010
Number who do not
receive respite but
require it (2011–2015)
Number in home/
independent setting
in 2010
LHO area n n n
HSE Dublin/Mid-Leinster Region 1316 255 4719
LHO Dublin South 128 26 402
LHO Dublin South East 65 6 212
LHO Dublin South City 92 18 288
LHO Dublin South West 228 30 667
LHO Dublin West 144 25 625
LHO Kildare/West Wicklow 243 44 889
LHO Wicklow 100 14 444
LHO Laois/Offaly 154 32 621
LHO Longford/Westmeath 162 60 571
HSE South Region 1065 359 5060
LHO Carlow/Kilkenny 116 90 749
LHO Tipperary SR 126 18 464
LHO Waterford 101 45 502
LHO Wexford 157 35 716
LHO Cork North Lee 124 37 668
LHO Cork South Lee 123 42 563
LHO North Cork 87 23 431
LHO West Cork 60 24 287
LHO Kerry 171 45 680
HSE West Region 1171 372 4826
LHO Limerick 146 57 726
LHO Tipperary NR 87 26 350
LHO Clare 109 10 350
LHO Galway 279 71 1041
LHO Mayo 176 83 712
LHO Roscommon 48 24 363
LHO Donegal 208 58 790
LHO Sligo/Leitrim/West Cavan 118 43 494
HSE Dublin/North-East Region 955 230 3580
LHO Dublin North West 187 44 689
LHO Dublin North Central 110 23 341
LHO Dublin North 303 51 802
LHO Cavan/Monaghan 99 16 520
LHO Louth 103 25 626
LHO Meath 153 71 602
All regions 4507 1217 18188
Note: The total number recorded as receiving respite in Table 4.5 (4,507 individuals) is less than that recorded in Table
3.4 (4,951 individuals) as Table 4.5 includes only those living in a home setting or living independently. A small number
of people living in other residential settings also receive respite services – this group is included in Table 3.4 but is
excluded from Table 4.5 above.

54
B – Service change
The term ‘service change’ applies to those who already had an intellectual disability
service in 2010 but who require that service to be changed or upgraded during the
period 2011–2015, and includes children who availed of education services in 2010
and who will require access to health-funded services in the future. Changes in service
provision relate to:
• upgrading of residential places from 5-day to 7-day;
• changes in type of residential accommodation being provided, such as from
residential centres to community-based residential services;
• provision of more intensive care and specialist interventions; and
• changes to existing day services, for example, from education to training or from
training to employment.
Not included in the ‘service change’ category in this report are people whose only
service change requirement is for multidisciplinary support services (including those
to be delivered by an early intervention team). Multidisciplinary support service
requirements are detailed in the multidisciplinary support services section later in this
chapter.
Categories of service change requirements
Table 4.6 indicates that 11,505 people who were receiving services in 2010 will require
a change to their existing service provision in the period 2011–2015, a decrease of 59
(0.5%) since 2009. Of the 11,505 who were recorded as requiring a service change:
• 7,778 (67.6%) were day attendees (of whom 843 also availed of residential
support services).
• 2,869 (24.9%) were full-time residents (of whom 2,095 also availed of day
services).
• 858 (7.5%) received residential support services only.
A breakdown of the category of service change required by level of intellectual
disability is provided in Table 4.6.
• People in the moderate, severe and profound ranges of intellectual disability
accounted for 7,379 (64.1%) of the service changes required.
• People in the mild range required 3,284 (28.5%) of the service changes.
• 842 (7.3%) of the service changes were required by people whose level of
intellectual disability had not been verified in 2010.

55
Table 4.6 Category of service change required 2011–2015, by degree of intellectual disability
Residential
and day
Residential
only Day only
Day and
residential
support
Residential
support only
Total
requiring
service
changes
nnnnnn
Not verified 8 15 789 14 16 842
Mild 194 95 2598 208 189 3284
Moderate, severe
or profound 1893 664 3548 621 653 7379
All levels 2095 774 6935 843 858 11505
Number of places required to address service changes
The numbers and types of places needed to meet the service change requirements
are summarised in Table 4.7. Four types of day service are listed: health, education,
employment and generic. The programmes included under each heading are outlined
in Appendix B.
Table 4.7 Number of places requiring change, 2011–2015
Residential 2869
Day
Of which:
Health services
Education services
Employment services
Generic services
9873
6808
1186
1243
636
Residential support 1701
The number of places requiring change exceeds the number of people who require
service changes because some people require changes in both their residential and
their day services. In addition, it is important to note that, although 11,505 people
were recorded in 2010 as requiring service changes, this demand does not necessitate
11,505 new places. In many instances, these individuals will be vacating their existing
placement when they receive their change of service. This will free up places for other
people requiring a service change and those with unmet needs. For example, when
young adults move into employment from training, their training place is freed up
for young adults leaving school. It is also important to note that this entire group got
some level of service in 2010, so a certain level of funding is already committed to
these individuals.

56
Summary of service change requirements
Details of the types of service change required by people who need alternative or
enhanced full-time residential, day and residential support services are set out in
Tables 4.8, 4.9 and 4.10.
Residential service change
Table 4.8 indicates that 2,869 individuals in full-time residential services in 2010 will
require an upgrading or change of accommodation within the next five years. For
60.5% of this group (1,735 individuals) changes of service type are required as follows:
• Residential placements in the community are required by 985 individuals (34.3%).
• Intensive services for either challenging behaviour or profound or multiple
disability are required by 577 individuals (20.1%).
• Centre-based placements are required by 127 individuals (4.4%).
• Nursing home placements are required by 46 individuals (1.6%).
The remaining 1,134 individuals (39.5%) require an enhancement of their existing
service type, as follows:
• 323 individuals need their existing service upgraded to include care at weekends
and holiday times.
• 18 individuals require less care and could return to their families at weekends
and holiday times.
• 793 individuals need an enhancement of their existing service provision (shaded
areas of Table 4.8).

57
Table 4.8 Pattern of movement of individuals from existing residential services to future residential services, 2011–2015
Full-time residential service required in the period 2010–2014
5-day
CGH
7-day
(48-wk)
CGH
7-day
(52-wk)
CGH
5-day
RC
7-day
(48-wk)
RC
7-day
(52-wk) RC
Nursing
home
Intensive
placement
(CB)
Intensive
placement
(P/MD)
Total
services
2010
Full-time residential service in 2010
5-day community group home (CGH) 15 50 132 1 0 11 0 5 0 214
7-day (48-week) community group home 1 38 113 1 6 13 0 6 2 180
7-day (52-week) community group home 6 8 477 0 0 33 21 46 27 618
5-day residential centre (RC) 8 3 23 2 4 2 0 0 0 42
7-day (48-week) residential centre 1 57 74 0 16 22 6 19 16 211
7-day (52-week) residential centre 1 13 688 0 3 141 15 193 238 1292
Nursing home 0 0 19 0 0 3 11 2 4 39
Mental health community residence 0 0 1 0 0 0 0001
Intensive placement (challenging behaviour)
(CB) 1 1 34 1 3 45 3 51 10 149
Intensive placement (profound or multiple
disability) (P/MD) 02270 1 50 24279
Occupying a residential support place 2 1 21 0 0 1 1 2 3 31
Other residential service 0 1 7 0 0 3 0 2 0 13
Total services required 35 174 1616 5 33 279 57 328 342 2869
Note: The abbreviations in the sub-column headings refer to the placement descriptions which are given more fully in column one. The shaded areas of the table represent existing
services that require alteration or enhancement.

58
Day service change
Within the next five years, 9,873 individuals will require a change, enhancement, or
upgrading of their day service (Table 4.9).
• Health-funded services are required by 6,808 individuals (69.0%).
• Employment services are required by 1,243 individuals (12.6%).
• Education services are required by 1,186 individuals (12.0%).
• Generic services are required by 636 individuals (6.4%).
Day service groupings are reported under health, employment, education, and generic
services as set out in Appendix B.
Health services
Of the 6,808 service changes required within health-funded services, 4,970 (73.0%)
are requirements for an alternative or additional service and 1,838 (27.0%) are
requirements for an enhancement of the individual’s existing service (Table 4.9). The
majority of the demand for alternative or additional health-funded services arises as
follows:
• 849 individuals require high-support or intensive placements, the majority of
whom currently attend activation programmes (381 individuals), or receive
multidisciplinary support services as their only day service (204 individuals).
• 824 individuals require activation programmes, the majority of whom currently
receive multidisciplinary support services as their only day service (344
individuals), or attend special schools (150 individuals), or rehabilitative training
(100 individuals).
• 745 individuals require services specific to older people, the majority of
whom currently attend activation programmes (335 individuals) or receive
multidisciplinary support services as their only day service (184 individuals).
• 552 individuals require rehabilitative training, the majority of whom currently
attend special schools (328 individuals).
There are also 1,838 individuals who need to have their existing health-funded service
enhanced (shaded area of Table 4.9). Most of these people are attending activation
centres (1,001 individuals, 54.5%) or sheltered work (256 individuals, 13.9%). The main
enhancements required are an increased level of support and an increased level of
service provision from part-time to full-time.

59
Employment services
Of the 1,243 service changes required within employment services, 1,158 (93.2%)
are requirements for an alternative placement and 85 (6.8%) are requirements for an
enhancement of the individual’s existing placement (Table 4.9).
Most of the demand for alternative employment opportunities comes from 1,054
individuals who require supported employment, the majority of whom currently attend
sheltered work (378 individuals) or activation centres (254 individuals). There are 85
individuals who require their existing employment placement to be enhanced
(Table 4.9).
Education services
Of the 1,186 service changes required within education services, 926 (78.1%) are
requirements for an alternative service and 260 (21.9%) are requirements for an
enhancement of the child’s existing service (Table 4.9).
Most of the demand for alternative education services comes from three groups:
• 325 children who require special classes, mainly at secondary level. The majority
of those requiring special classes at secondary level (228 children) currently
attend special classes at primary level (149 children).
• 280 children who require a mainstream school placement, the majority of whom
currently attend a mainstream (143 children) or specialised (67 children) pre-
school.
• 235 children who require a special school placement, the majority of whom
currently attend special pre-schools (126 children).
There are 260 children who require their existing education placement to be enhanced
(Table 4.9), the majority of whom currently attend mainstream schools (164 children).
There is also a significant demand for increased support within existing education
placements.
A large proportion of the 1,343 individuals who were attending special schools in
2010 require adult day services within the period 2011–2015. Of this group, almost one
quarter (328 individuals) require rehabilitative training, 282 (21.0%) require vocational
training and 150 (11.2%) require activation programmes.

60
Generic services
Of the 636 service changes required within generic services, 610 (95.9%) are
requirements for an alternative service and 26 (4.1%) are requirements for an
enhancement of the individual’s existing service (Table 4.9).
Most of the demand for alternative generic services comes from 581 individuals who
require vocational training, the majority of whom currently attend special schools (282
individuals).
Thirteen individuals attending vocational training and 13 individuals availing of
generic day services require their existing generic service to be enhanced (Table 4.9).

61
Table 4.9 Pattern of movement of individuals from existing day services to future day services, 2011–2015
Day service required in the period 2011–2015
Day service in 2010 HS HH MPS SPS CEDC MS RT SCP SCS SS TL RHT AC POP SHS SI SWC SEC CDR DRH OP OTH E SE OE VT GD Total
Home support (HS) 28 0 7 16 01011108931261030106021 98
Home help (HH) 0 0 1000000001110001010000000 6
Early services 13 0 138 71 1 10 0 2 0600000000000200000243
Mainstream pre-school
(MPS) 22022701430602200000000000000000222
Special pre-school
(SPS) 2005444367230012600000000400300000353
Child education and
development centre
(CEDC)
20000400005002401100200000000 57
Mainstream school (MS) 76 3 7 1 1 164 62 16 55 36 2 13 7 0 00004621338012511597
Resource teacher (RT) 4 0 30091607309000000000000025076
Special class – primary
(SCP) 32200019651491601100000810600000246
Special class –
secondary (SCS) 600002308401812010712012011290 98
Special school (SS) 151 6 5 1 4 14 2 34 13 67 0 328 150 0 20 33 134 15 28 6 2 33 0 12 2 282 1 1343
Third-level education
(TL) 00000000000010001100010813016
Rehabilitative training
(RHT) 172000000001451009432671271175019399215799
Activation centre (AC) 43 5 000020002741001 335 179 202 120 12 10 1 5 19 1 254 13 24 3 2305
Programme for the
older person (POP) 6100000000001522562260003115001292
Special high support
day service (SHS) 41100000000748171131001121019307000334
Special intensive day
service (SI) 410001111301141107640013208100133

62
Table 4.9 Pattern of movement of individuals from existing day services to future day services, 2011–2015 (continued)
Day service required in the period 2011–2015
Day service in 2010 HS HH MPS SPS CEDC MS RT SCP SCS SS TL RHT AC POP SHS SI SWC SEC CDR DRH OP OTH E SE OE VT GD Total
Sheltered work centre
(SWC) 16200000000125681611912256235026134378291641058
Sheltered employment
centre (SEC) 00000000000001003000000602012
Multidisciplinary
support services 13520130014048344184751293123001024312361949
Centre-based day
respite service (CDR) 0000000001001100000000000104
Day respite in the home
(DRH) 0020000000001000000000010004
Outreach programme
(OP) 001000000101100320101810611037
Other day service (OTH) 92315010171701012186759000260193100207
Enclave within open
employment (E) 0000000000000000000000010001
Supported employment
(SE) 73000000000246006250661761042140
Open employment (OE) 310000000001010011101101193034
Vocational training (VT) 100000000014431115500001547130110
Generic day services
(GD) 30000100000174653000121340001399
Total 498 34 246 155 14 444 95 102 236 302 7 597 1825 970 442 596 932 78 123 16 128 154 13 1130 100 594 42 9873
Note: Multidisciplinary support services (including those delivered by early intervention teams) have been excluded from future service requirements and are documented in the
multidisciplinary support services section later in this chapter.
The abbreviations in the sub-column headings refer to the placement descriptions which are given more fully in column one.
The shaded areas of the table represent existing services that require alteration or enhancement.

63
Residential support service change
The database indicates that 1,701 individuals receiving residential support services
will require an additional or alternative residential support service, or will require
their existing support service to be upgraded during the period 2011–2015 (Table 4.10).
Additional or alternative support services are required by 466 individuals (27.4%) and
1,235 individuals (72.6%) require their existing service to be upgraded (shaded areas of
Table 4.10).
The principal residential support service changes or enhancements include:
• More frequent centre-based crisis or planned respite breaks for people already
availing of this service (1,186 individuals).
• Opportunities to experience semi-independent living arrangements for people
receiving centre-based respite breaks (90 people).
• Occasional holiday residential placements and occasional respite care with a host
family for people currently availing of crisis or planned respite (70 people).
As with certain types of day service, it is important to note that existing residential
support services may be retained by individuals when their new service becomes
available, with the result that not all existing services may be freed up for use by
people who are without such services at present.

64
Table 4.10 Additional residential support services required by people availing of residential support services in 2010
Residential support service required 2011–2015
Residential
support
service in
2010
Foster
care and
boarding-
out
Living
independently
Living semi-
independently
Holiday
residential
placement
Crisis
or
planned
respite
Occasional
respite
care
(host
family)
Shared care /
guardianship
Regular
part-time
care
(2/3
days per
week)
Regular
part-time
care
(every
weekend)
Regular
part-
time care
(alternate
weeks)
Overnight
respite in
the home
Other
residential
service Total
Foster care
and boarding-
out
31726311010126
Living semi-
independently 014211250 00000052
Holiday
residential
placement
00405101040116
Crisis or
planned
respite
3 3 90 23 1186 47 21 68 18 19 2 14 1494
Occasional
respite care
(host family)
0 2 9 1 33 21 4 3 0 1 3 2 79
Shared care /
guardianship 0000201000003
Regular part-
time care (2/3
days per week)
00208030200015
Regular part-
time care
(alternate
weeks)
0010300001005
Overnight
respite in the
home
0000100000113
Other
residential
service
0020400001018
All services 6 20 136 38 1253 72 30 73 20 27 6 20 1701
Note: The shaded areas of the table represent existing services that require alteration or enhancement.

65
Day service requirements of school leavers
Each year a proportion of those on the NIDD, as they reach the age of 18 years,
leave the education system to take up a range of training and supported/sheltered
employment opportunities which have traditionally been funded by the health sector.
The future day service requirements of this cohort are generally recorded not as new
day service places but as enhancements to existing services. This report focuses on
the day service requirements of this specific group to examine their likely demand for
services in the health sector. The next section focuses on children aged 16 years or
older who were in second-level education in 2010 and who will require an adult day
service in the years 2011–2015.
Over eight hundred young adults with an intellectual disability aged 16 years or over
who were in an education setting in 2010 will require a range of day services within
the period 2011–2015 (Table 4.11). Most of the demand is for vocational training (284
places) or rehabilitative training (227 places).
Of the 841 individuals who will require a day service (Table 4.12):
• 454 (54%) individuals had a mild intellectual disability, of whom 224 require
vocational training and 123 require rehabilitative training.
• 386 (46%) individuals had a moderate, severe or profound level of intellectual
disability, of whom 104 require rehabilitative training and 80 require activation
programmes.
• One person had not had his/her level of intellectual disability verified in 2010 but
requires vocational training.
Table 4.13 identifies the year in which the day services are required. Most of the day
service requirements are immediate: 750 individuals (89%) require their day service in
2011 or 2012.

66
Table 4.11 Future day service requirements of individuals aged 16 years or over who were in
an education setting in 2010, by age
16 years 17 years 18 years 19 years + Total
Home support 14 12 8 1 35
Third-level education 00101
Rehabilitative training 89 91 33 14 227
Activation centre 32 51 19 2 104
Special high-support day service 136010
Special intensive day service 974121
Sheltered work centre 30 35 16 4 85
Sheltered employment centre 542213
Centre-based day respite service 574117
Day respite in the home 20002
Outreach programme 21003
Other day service 6 12 5 4 27
Supported employment 03418
Open employment 31004
Vocational training 72 110 59 43 284
Total 270 337 161 73 841
Table 4.12 Future day service requirements of individuals aged 16 years or over who were in
an education setting in 2010, by degree of intellectual disability
Mild
Moderate/Severe/
Profound Total*
Home support 6 29 35
Third-level education 1 0 1
Rehabilitative training 123 104 227
Activation centre 24 80 104
Special high-support day service 0 10 10
Special intensive day service 1 20 21
Sheltered work centre 39 46 85
Sheltered employment centre 7 6 13
Centre-based day respite service 4 13 17
Day respite in the home 0 2 2
Outreach programme 1 2 3
Other day service 13 14 27
Supported employment 7 1 8
Open employment 4 0 4
Vocational training 224 59 283
Total 454 386 840
*The total excludes one individual whose level of intellectual disability was ‘not verified’.

67
Table 4.13 Future day service requirements of individuals aged 16 years or over who were in
an education setting in 2010, by year of service requirement
2011 2012 2013-15 Total*
Home support 33 0 0 33
Third-level education 1 0 0 1
Rehabilitative training 119 78 30 227
Activation centre 53 38 12 103
Special high-support day service 7 2 0 9
Special intensive day service 12 7 1 20
Sheltered work centre 46 29 10 85
Sheltered employment centre 7 4 2 13
Centre-based day respite service 17 0 0 17
Day respite in the home 1 0 0 1
Outreach programme 3 0 0 3
Other day service 21 5 1 27
Supported employment 6 0 1 7
Open employment 2 1 1 4
Vocational training 181 77 23 281
Total 509 241 81 831
*The total excludes ten individuals for whom year in which service was required was not recorded.

68
C – People with intellectual disability who are
accommodated in psychiatric hospitals
The data from the NIDD for 2010 identified 238 individuals with intellectual disability,
all aged 20 years or over, who were accommodated in psychiatric hospitals. Table
4.14 details the overall service requirement status of this group by level of intellectual
disability and by HSE region responsible.
Table 4.14 Overall service requirements of people with intellectual disability resident in
psychiatric hospitals in 2010, by HSE region of registration
No service requirements Has service requirements
Resident in psychiatric
hospital in 2010
Not
verified Mild
Moderate/
Severe/
Profound
All
levels
Not
verified Mild
Moderate/
Severe/
Profound
All
levels Total
Dublin/Mid-Leinster
With no day programme 0 0 1 1 0 0 0 0 1
With day programme 1 3 4 8 0 5 1 6 14
South
With no day programme 0 0 1 1 0 1 1 2 3
With day programme 0 10 11 21 0 11 23 34 55
West
With no day programme 0 0 0 0 0 0 0 0 0
With day programme 0 7 7 14 0 4 4 8 22
With residential support
service and day
programme
0101000 01
Dublin/North-East
With no day programme 0 0 0 0 0 0 0 0 0
With day programme 0 10 20 30 0 29 83 112 142
All residents 1 31 44 76 0 50 112 162 238
Of this group, 162 individuals (68.1%) were recorded as having service requirements in
the period 2011–2015, of whom:
• 147 individuals had an appropriate alternative residential facility identified
for them (60 of whom also required a day service). The residential service
requirements of this group are shown in Table 4.16 and their day service
requirements are shown in Table 4.17. In recent years there has been
considerable change in service provision for this cohort, mainly as a result of
changes implemented following the report of the expert group on mental health
policy, A Vision for Change. Some additional investigation of the status of this
cohort and their placement within services will be undertaken in 2011 and
reported on in next year’s Annual Report.
• 12 individuals were recorded as appropriately placed within the psychiatric
hospital but had identified day service requirements, as shown in Table 4.15.

69
Table 4.15 Day service requirements of people appropriately accommodated in psychiatric
hospitals in 2010
Services required 2011–2015
Day service in 2010
Activation
centre
Special high-
support day
service
Supported
employment
Other day
service All services
Rehabilitative training 0 0 1 0 1
Activation centre 1 1 0 0 2
Multidisciplinary support
services only 710 19
All services 8 2 1 1 12
Note: Four of the 12 also have multidisciplinary support service requirements. These are documented in the
multidisciplinary support services section later in this chapter.
Of the 147 people who were recorded in 2010 as needing to transfer from psychiatric
to intellectual disability services for provision of their residential services, 58
individuals (39.5%) required places in residential centres, 52 individuals (35.4%)
required intensive placements, and 36 individuals (24.5%) required community group
home places. One individual needed to move to a mental health community centre. In
all cases the need was immediate (Table 4.16).
Table 4.16 Residential service requirements of people resident in psychiatric hospitals in 2010
who require transfer to the intellectual disability sector
Number requiring residential service
7-day (48-week) community group home 2
7-day (52-week) community group home 34
7-day (48-week) residential centre 1
7-day (52-week) residential centre 57
Mental health community residence 1
Intensive placement (challenging behaviour) 41
Intensive placement (profound/multiple disability) 11
All residential services 147
Of this same group of 147 people, 60 required an appropriate day service. The greatest
demand was for high-support or intensive day programmes (36 individuals, 60.0%),
activation programmes (9 individuals, 15.0%) and programmes for the older person (7
individuals, 11.7%). All day services were required immediately (Table 4.17).

70
Table 4.17 Day service requirements of people resident in psychiatric hospitals in 2010 who
require transfer to the intellectual disability sector
Number requiring day service
Rehabilitative training 3
Activation centre 9
Programme for the older person 7
Special high-support day service 28
Special intensive day service 8
Sheltered work centre 2
Sheltered employment centre 1
Generic day services 2
All day services 60
Note: 34 of the 60 also have multidisciplinary support service requirements. These are documented in the
multidisciplinary support services section later in this chapter.
The 2010 data indicate that the current day and residential programmes for 76 people
with intellectual disability resident in psychiatric hospitals were appropriate and
that these people had no identified service needs in the period 2011–2015 (Table
4.14). Forty-four of this group (58%) had a moderate, severe or profound intellectual
disability, 31 (41%) had a mild disability and one person’s level of disability was not
verified. Within this group, two people had no formal day programme.
D – Multidisciplinary support services
Although the NIDD facilitates the recording of two future day services that will be
required by an individual, earlier sections of this chapter detail only the first future
day service so that individuals are not double-counted. Future multidisciplinary
support services, including those to be delivered by early intervention teams, are
only recorded as a first future day service if these support services are the only future
day service required. In reality, these services are required in addition to a more
substantial day service component. To avoid under-reporting the demand for these
services, these requirements are excluded from the unmet need, service change,
and psychiatric hospital sections above and are reported separately below in Figure
4.2. A ‘requirement’ refers to a new type of therapeutic input that the individual did
not receive in 2010 and an ‘enhancement’ refers to a change in the delivery of a
therapeutic input that the individual received in 2010 (e.g. an increase in the provision
of the specific service or a change in service provider). Data from Table 3.9 are
reproduced in Figure 4.2 to compare service provision in 2010 with the demand for
services in the period 2011–2015.

71
In 2010 multidisciplinary support services were availed of by 21,803 people, 16,957
of whom had further requirements for such services. A further 2,509 individuals
who did not access such services in 2010 require them. There are, therefore, 19,466
(16,957 plus 2,509) individuals with a need for multidisciplinary support services; these
needs involve either an enhancement of a type of service received in 2010 (3,364
individuals), a requirement for a new type of service (7,801 individuals), or both (8,301
individuals). Of the 19,466 people with future multidisciplinary support service needs,
17510 received no service whatsoever in 2010. Ninety-nine per cent of those in need of
multidisciplinary support services require them immediately.
Despite high levels of service provision in 2010, there was substantial demand for new
services and enhanced services relating to all the therapeutic inputs, in particular,
for psychology, speech and language therapy and occupational therapy. For example,
8,354 individuals received a psychology service in 2010, 3,731 of whom needed an
enhancement of their service, and a further 6,793 individuals who did not receive a
psychology service in 2010 require one in the period 2011–2015.
The data show that there was a significant shortfall in the provision of nutritionist
services; this was the only therapeutic input where the demand for a new service
exceeded service provision in 2010. For example, 3,491 individuals were in receipt of
the services of a nutritionist in 2010, 1,348 of whom needed an enhancement of their
service, and a further 4,303 individuals who were not in receipt of this service in 2010
require it in the immediate future.
10 108 of the 175 also have other future service requirements that are included in the ‘unmet need’ section
at the beginning of this chapter.

72
Figure 4.2 Multidisciplinary support services received in 2010 and required in the period
2011–2015
Overall service provision to people with intellectual disability and the
pattern of care required in the period 2011–2015
The data presented in this chapter in relation to unmet need for services and demand
for service changes need to be considered together to enable the future pattern of
care to be forecast. The 2010 data indicate that there were large numbers of people
who required residential services for the first time in 2010 and also that there were
significant numbers who required changes to, or enhancements of, their existing
residential or day placements (or both). Not all service changes will require the
individual to move to a new placement as many changes involve enhancements, such
as increased support, which can be made available in the existing placement. Where
the enhancement involves a move to a new placement, the freed-up place may become
available to others who have an identified need for such a placement. The existing
placements occupied by these individuals are secure until their new places become
available.
0 2000 4000 6000 8000 10000 12000
New services required 2011–2015 for those not receiving this input
Enhancement of service required 2011–2015 for those currently receiving this input
Currently receiving this input
Social work
3531
4545
10530
1648
2484
9775
6793
3731
8354
5432
4177
8536
967
2314
8050
1150
2653
6851
6021
3455
6581
3007
2683
6263
4303
1348
3491
2707
1264
6101
Medical services
Psychology
Speech and language therapy
Community nursing
Psychiatry
Occupational therapy
Physiotherapy
Nutritionist
Other multidisciplinary service
Number of people

73
Pattern of care required in full-time residential services
As indicated in Table 4.18, demand for full-time residential services in the period 2011–
2015 comes from three distinct groups already identified in this chapter:
• 2,269 individuals who lived at home in 2010 and who were recorded as requiring
full-time residential services for the first time in 2010;
• 147 individuals who resided in psychiatric hospitals in 2010 and who were
recorded as requiring to transfer to the intellectual disability services; and
• 2,869 individuals who were in full-time residential services within the intellectual
disability sector in 2010 and who require changes to their existing placement.
Of this group, 1,735 require alternative services and 1,134 require their existing
service to be enhanced. Not all of the group who require service enhancements
will move to new placements. However, they have been factored into the
overall calculation of placement requirements, as some costs will be incurred in
upgrading their services. Where the change involves a move to a new placement,
the freed-up place may be available to others who are identified as requiring this
service.
Table 4.18 outlines the pattern of full-time residential service provision that will be
required in the period 2011–2015 to meet this demand. A total of 2,447 residential
places will be required, a decrease of 54 since 2009.
• As expected, there is significant demand for community-based placements, both
from people who will be coming into residential services for the first time and
from people in existing residential placements. In total, 2,765 community-based
placements will be required during the period, a decrease of 100 placements
(3.5%) since 2009.
• There will also be a shortfall of 621 intensive residential placements, a decrease
of 50 placements (7.5%) on the shortfall recorded in 2010. It should be noted
that there are significantly higher costs associated with the provision of these
intensive placements.

74
Table 4.18 Pattern of full-time residential service provision required, 2011–2015
New services
required by
people living at
home
New services
required
by people
transferring
from
psychiatric
hospitals
Service
changes
required by
people in
existing full-
time residential
places
Places vacated
by people
in full-time
residential
places
Shortfall (-)/
Excess of
places arising
from demand
5-day community group
home 282 0 35 214 -103
7-day (48-week)
community group home 301 2 174 180 -297
7-day (52-week)
community group home 1333 34 1616 618 -2365
5-day residential centre 20 0 5 42 17
7-day (48-week)
residential centre 47 1 33 211 130
7-day (52-week)
residential centre 150 57 279 1292 806
Nursing home 8 0 57 39 -26
Mental health
community residence 1101-1
Psychiatric hospital 0 0 0 0 0
Intensive placement
(challenging behaviour) 67 41 328 149 -287
Intensive placement
(profound or multiple
disability)
60 11 342 79 -334
Other/unspecified
intellectual disability
service
0001313
Designated residential
support placement 0 0 0 31* 0
Total 2269 147 2869 2838 -2447
* 31 designated residential support places being blocked by full-time residents will be freed up, but they have not been
deducted from the total number of full-time residential places required as they should not be made available for full-
time use.

75
Pattern of care required in day services
As can be seen from Table 4.19, demand for day services over the next five years
comes from four distinct groups:
• 225 individuals who were without day services in 2010;
• 60 individuals who were resident in psychiatric hospitals in 2010 and who will
require an appropriate day service when they transfer to intellectual disability
services;
• 12 individuals appropriately placed in psychiatric hospitals in 2010 who will
require a day programme within that setting between 2011 and 2015; and
• 9,873 individuals who were in day services within the intellectual disability sector
in 2010 and who will require changes to, or enhancements of, their placement. Of
this group, 7,664 require alternative or additional services and 2,209 require their
service to be enhanced. The majority (6,808) of these changes involve services
provided by the health sector. Many of the changes are required to address
transitional needs, such as moving from child to adult services or moving from
training into employment. Not all of the group who require service enhancements
will move to new placements. However, the entire group has been factored into
the overall calculation of placement requirements, as some costs will be incurred
in upgrading services for these individuals. Where the change involves a move
to a new placement, the freed-up place may be available to others who are
identified as requiring this service.
The pattern of movement in day services is not as clear-cut as that in residential
services. People in full-time residential services who require alternative full-time
placements will vacate their existing services when their new places become available.
However, certain existing day services (for example, early intervention services and
home support services) will not necessarily be freed up when a new service is provided
as these are ongoing services that are generally required in addition to other day
services. Similarly, certain required services will not replace existing services, but
rather will enhance the range of services being provided to an individual.

76
The data in relation to certain day services11 are reported and interpreted on the
assumption that:
(a) where the service already exists, it will be retained by the individual, even when
his/her new service comes on stream, or
(b) where the service is new to the individual, it will not replace existing services.
Table 4.19 outlines the pattern of day service provision that will be required in the
period 2011–2015 to meet demand. The data in the table have been adjusted to reflect
the fact that not all existing services will be freed up.
A total of 1,677 day places will be required. The table shows that there is less demand
by young children for certain services and a considerable demand for the full spectrum
of adult services. Trends in the NIDD data indicate that, based on current levels of
service provision, the situation in relation to service requirements in the period 2011–
2015 will be as follows:
• A reduction of approximately 10% may be expected in the number of children
requiring places in special schools; the number decreased from 1,157 children in
2009 to 1,037 in 2010. Although the numbers are small, there is a demand within
this group for mainstream services.
• There is likely to be a shortfall of training and employment opportunities. In
the next five years, 1,024 supported employment opportunities, 527 vocational
training placements, and 74 placements in open employment will need to be
developed to meet the demand that exists for these services.
• The growth in the ageing population with intellectual disability discussed in
Chapter 2 is increasing the demand for specific programmes for the older person;
690 such places will be needed over the next five years in addition to current
provision.
• As with residential services, there is significant demand for high-support and
intensive day placements. Over the next five years, 142 high-support day
placements and 473 intensive day placements will be required. These services
involve a higher staff-to-client ratio and more specialist interventions to address
needs arising from behavioural problems, multiple disabilities and the effects of
ageing.
11 The services involved include home support services, early intervention team, resource or visiting
teacher, home help, multidisciplinary support services, centre-based day respite service, and day respite
in the home.

77
Table 4.19 Pattern of day service provision required, 2011–2015
New services
required by people
without day
services
New services
required by people
transferring
from psychiatric
hospitals
Service changes
required by people
within psychiatric
hospitals
Service changes
required by people
receiving day
services
Places vacated by
people receiving
day services
Shortfall (-)/
Excess of places
arising from
demand
Home support 7 0 0 498 0 -505
Home help 1 0 0 34 0 -35
Mainstream pre-school 2 0 0 246 222 -26
Special pre-school 0 0 0 155 353 198
Child education and development centre 0 0 0 14 57 43
Mainstream school 2 0 0 444 597 151
Resource/visiting teacher 0 0 0 95 0 -95
Special class – primary 0 0 0 102 246 144
Special class – secondary 1 0 0 236 98 -139
Special school 4 0 0 302 1343 1037
Third-level education 1 0 0 7 16 8
Rehabilitative training 41 3 0 597 799 158
Activation centre 31 9 8 1825 2305 432
Programme for the older person 5 7 0 970 292 -690
Special high-support day service 4 28 2 442 334 -142
Special intensive day service 2 8 0 596 133 -473
Sheltered work centre 32 2 0 932 1058 92
Sheltered employment centre 2 1 0 78 12 -69
Centre-based day respite service 0 0 0 123 0 -123
Day respite in the home 0 0 0 16 0 -16
Other day service 5 0 1 154 207 47
Outreach programme 0 0 0 128 37 -91
Enclave within open employment 1 0 0 13 1 -13
Supported employment 33 0 1 1130 140 -1024
Open employment 8 0 0 100 34 -74
Vocational training 43 0 0 594 110 -527
Generic day services 0 2 0 42 99 55
All services 225 60 12 9873 8493 -1677

78
5. Conclusion
As a national health information system on intellectual disability, the NIDD continues
to be relevant to health service managers and policy makers as a tool for planning
services in this area. This annual report from the NIDD, based on information from
almost 26,500 people who were registered on the database at the end of December
2010, represents the cumulative specialised health service needs of this group of
people.
The report highlights the need to be cognisant of trends over time in the population
with intellectual disability, and of how changing circumstances can impact
substantially on the type and quantity of services that are used or required by those
who are registered. Trend data are presented for the period 1996–2010, and further
information is reported for the past three decades, which allows an opportunity to look
back at changes over time and estimate what the consequence of these changes may
be for future provision.
Overall, the 2010 data show that, in line with previous years, there has been a
significant increase in the levels of day service and respite service provision; however,
there has been a small decrease in the number of people living in full-time residential
services. Alongside this, however, this report highlights the fact that the changing age
profile of individuals with intellectual disability continues to contribute to high levels
of demand for residential services, support services for ageing caregivers and services
designed specifically to meet the needs of older people with intellectual disability.
This report also shows that the proportion of those registered who are in receipt of day
services is the highest since the database was established. In addition, many of those
in receipt of day services are also benefiting from additional supports such as early
intervention services, home support, and home help and respite services.
The report highlights that school leavers require significant service interventions as
they leave the education system and require day services that are funded by the HSE in
the areas of training and employment.
In relation to data on residential services, this report draws attention to the continuing
shift away from the more traditional institutional models of care towards community
living; for the seventh year in a row the data show that the number of full-time
residential placements in the community exceeds that of centre-based settings. The
data on respite services also show high levels of provision in 2010, albeit with varying
degrees of coverage across the country.

79
The data on the co-existence of a physical/sensory disability and an intellectual
disability indicate that this cohort has a range of additional needs, some of which do
not come within the ambit of intellectual disability services but which still require to be
met.
The majority of those registered on the NIDD in 2010 received multidisciplinary
support services, with social work, medical services and psychiatry being the services
most commonly availed of by adults, and speech and language therapy, occupational
therapy and social work the services most commonly availed of by children. This
pattern of multidisciplinary support usage is similar to that indicated by 2009 data.
Despite the high levels of service provision in 2010, there remains a substantial
demand for new services and enhanced services relating to all the therapeutic inputs,
in particular, psychology, speech and language therapy and occupational therapy, in
the five-year period 2011–2015.
Despite increasing levels of service provision, there are still high levels of unmet need
among a critical number of individuals who are registered on the NIDD. Although the
data in recent years highlight growth in services, demographic factors are contributing
to the increasing need for these services. The number of people with an intellectual
disability is growing and the proportion who are in the older age groups is increasing.
This changing age profile observed in the data has major implications for service
planning; it points to an ongoing demand for full-time residential services, support
services for ageing caregivers, and services designed specifically to meet the needs of
older people with intellectual disability. The challenge for all will be to set priorities
and deliver and plan quality services within a national policy and tight budgetary
framework.

80
References
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Central Statistics Office (2007) Census of population, 2006: principal demographic
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Central Statistics Office (2008) National Disability Survey 2006: first results. Dublin:
Stationery Office.
Kelly F, Kelly C and Craig S (2007) Annual report of the National Intellectual Disability
Database Committee 2007. Dublin: Health Research Board.
Kelly F, Craig S and Kelly C (2009) Trends in demand for services among children aged
0–5 years with an intellectual disability, 2003–2007. HRB Trends Series 3. Dublin: Health
Research Board.
Kelly F, Kelly C and Craig S (2009) Annual report of the National Intellectual Disability
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Kelly C, Kelly F and Craig S (2009) Trends in demand for services among those aged 50
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Mulcahy M (1976) Census of the mentally handicapped in the Republic of Ireland 1974:
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Mulcahy M and Reynolds A (1984) Census of mental handicap in the Republic of Ireland
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81
Appendix A
2010 National Intellectual Disability Database form
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Appendix B: Service categories
Day programmes
— Home support (assistance provided to the family in terms of assisting with care or
facilitating attendance at a social activity)
— Special pre-school for intellectual disability
— Mainstream school (includes mainstream pre, primary and secondary schools)
— Special class – primary level
— Special class – secondary level
— Special school
— Child education and development centre (programme for children with severe or
profound intellectual disability)
— Vocational training (e.g. FAS. VEC, CERT, NTDI)
— Rehabilitative training
— Activation centre/adult day centre (day centre for adults who need ongoing care,
training and development)
— Programme for the older person
— Special high-support day service (e.g. relating to challenging behaviour) less than
1:1 staff ratio
— Special intensive day service (e.g. relating to challenging behaviour) 1:1 staff
ratio contact or greater
— Sheltered work centre – may include long-term training schemes
— Sheltered employment centre (person receives payment and pays PRSI)
— Enclave within open employment (person works for mainstream employer and
receives normal rates for the job)
— Supported employment
— Open employment
— Other day programme
— Resource teacher/visiting teacher
— Early services (multidisciplinary intervention with infants and young children)
— Generic day services (person attends a social, psychiatric or similar centre away
from their residence on a regular basis)
— Home help (assistance provided to the family in terms of assisting with domestic
tasks)
— Multidisciplinary support services for school age children or adults
— Centre-based day respite service (respite services provided within Intellectual
Disability Services)
— Day respite in a home (regular respite provided in the person’s residence)

86
Residential circumstances
— At home, with both parents
— At home, with one parent
— At home with sibling
— At home with relative
— Living with non-relative (e.g. neighbour or family friend)
— Adoption
— Foster care (includes ‘boarding-out’ arrangements)
— Living independently
— Living semi-independently – maximum 2 hours’ supervision daily
— Vagrant or homeless
— 5-day community group home – goes home for weekends/holidays
— 7-day x 48-week community group home – goes home for holidays
— 7-day x 52-week community group home
— 5-day village-type/residential centre – goes home for weekends/holidays
— 7-day x 48-week village-type/residential centre – goes home for holidays
— 7-day x 52-week village-type/residential centre
— Nursing home
— Mental health community residence
— Psychiatric hospital
— Other intensive placement with special requirements due to challenging
behaviour
— Other intensive placement with special requirements due to profound or multiple
disabilities
— Holiday residential placement
— Crisis or planned respite
— Occasional respite care with a host family in a scheme such as Home Sharing or
Share-a-Break
— Shared care or guardianship (usually 5 or 7 days per week)
— Regular part-time care – 2-3 days per week
— Regular part-time care – every weekend
— Regular part-time care – alternate weeks
— Other residential service
— Overnight respite in the home

87
Day service groupings
Health
— Home support
— Home help
— Early services
— Mainstream pre-school
— Special pre-school
— Child education and development centre
— Rehabilitative training
— Activation centre
— Programme for the older person
— Special high-support day service
— Special intensive day service
— Sheltered work centre
— Sheltered employment centre
— Multidisciplinary support services
— Centre-based day respite service
— Day respite in the home
— Outreach programme
— Other day service
Education
— Mainstream school
— Resource or visiting teacher
— Special class – primary
— Special class – secondary
— Special school
— Third-level education
Employment
— Enclave within open employment
— Supported employment
— Open employment
Generic
— Vocational training
— Generic day services

88
Appendix C Supplementary table
Table C1 Details of main residential circumstances, degree of intellectual disability and age group
Not verified Mild Moderate-Severe-Profound All levels
Residential circumstances 0-19 20-34 35-54 55+
All
ages 0-19 20-34 35-54 55+
All
ages 0-19 20-34 35-54 55+
All
ages 0-19 20-34 35-54 55+
All
ages
Home Setting 1778 53 61 21 1913 3477 1740 1158 226 6601 3770 2740 1781 307 8598 9025 4533 3000 554 17112
At home with both parents 1503 40 21 1 1565 2505 1222 503 12 4242 2928 2047 745 15 5735 6936 3309 1269 28 11542
At home with one parent 246 10 27 5 288 787 443 451 50 1731 750 616 672 47 2085 1783 1069 1150 102 4104
At home with sibling 0 2 11 13 26 5 12 157 125 299 3 33 330 213 579 8 47 498 351 904
At home with other relative 4 012743223130126191122237566335455208
Lives with non-relative 2 0002339318123396512629
Adoption 0000058001354101010121023
Foster care and boarding out
arrangements 23110251293076172642786105216581612302
Independent/Semi-
independent Setting 0 8 29 15 52 5 182 459 185 831 0 34 90 69 193 5 224 578 269 1076
Lives independently 0 4 19 14 37 5 121 298 134 558 0 23 47 42 112 5 148 364 190 707
Living semi-independently 0 4 10 1 15 0 61 161 51 273 0 11 43 27 81 0 76 214 79 369
Community Group Homes 1 5 5 7 18 45 144 451 289 929 85 571 1752 733 3141 131 720 2208 1029 4088
5-day community group home 0 1 1 2 4 28 24 51 12 115 17 94 199 10 320 45 119 251 24 439
7-day (48 week) community
group home 000003207020113127728849426159735869539
7-day (52 week) community
group home 1 4 4 5 14 14 100 330 257 701 56 400 1265 674 2395 71 504 1599 936 3110
Residential centres 00291142873127232483841232 904 2568 52 412 1307 1040 2811
5-day (48 week) residential
centre 00000112265173035561832561
7-day (48 week) residential
centre 0010107111230169114066313169815278344
7-day (52 week) residential
centre 00191032060113196272761062 835 2200 30 296 1123 957 2406

89
Not verified Mild Moderate-Severe-Profound All levels
Residential circumstances 0-19 20-34 35-54 55+
All
ages 0-19 20-34 35-54 55+
All
ages 0-19 20-34 35-54 55+
All
ages 0-19 20-34 35-54 55+
All
ages
Other full-time services 3 1 6 12 22 6 49 80 97 232 57 271 466 266 1060 66 321 552 375 1314
Nursing home 0 0 3 10 1300432360229761070236118156
Mental health community
residence 000000291324006253102153855
Psychiatric hospital 0 001118324081012598515612091126238
Intensive placement
(Challenging Behaviour) 001011242945825154210434322617824047491
Intensive placement (Profound
or Multiple disability) 1000103418178512718247188813119256
Full time 'other' residential
service 102144102420582014471018241971
Full time resident in residential
support place 1100202035101015540111315847
No fixed abode 000000522900314055313
Insufficient Information 0000034007216261963520261970
1782 67 103 64 2016 3540 2152 2223 926 8841 3962 4016 5350 2299 15627 9284 6235 7676 3289 26484
Table C1 Details of main residential circumstances, degree of intellectual disability and age group (continued)

90
Appendix D
National Intellectual Disability Database publications
National Intellectual Disability Database Committee (1997) Annual report 1996. Dublin:
Health Research Board.
Mulvany F (2000) Annual report of the National Intellectual Disability Database Committee
1998/1999. Dublin: Health Research Board.
Mulvany F (2001) Annual report of the National Intellectual Disability Database Committee
2000. Dublin: Health Research Board.
Mulvany F (2003) Annual report of the National Intellectual Disability Database Committee
2001. Dublin: Health Research Board.
Mulvany F and Barron S (2003) Annual report of the National Intellectual Disability
Database Committee 2002. Dublin: Health Research Board.
Barron S and Mulvany F (2004) Annual report of the National Intellectual Disability
Database Committee 2003. Dublin: Health Research Board.
Barron S and Mulvany F (2004) Annual report of the National Intellectual Disability
Database Committee 2004. Dublin: Health Research Board.
Barron S and Mulvany F (2005) Annual report of the National Intellectual Disability
Database Committee 2005. Dublin: Health Research Board.
Barron S and Kelly C (2006) Annual report of the National Intellectual Disability Database
Committee 2006. Dublin: Health Research Board.
Kelly F, Kelly C and Craig S (2007) Annual report of the National Intellectual Disability
Database Committee 2007. HRB Statistics Series 2. Dublin: Health Research Board.
Kelly F, Craig S and Kelly C (2009) Trends in demand for services among children aged
0–5 years with an intellectual disability, 2003–2007. HRB Trends Series 3. Dublin: Health
Research Board.
Kelly C, Kelly F and Craig S (2009) Trends in demand for services among those aged 50
years and over with an intellectual disability, 2003–2007. HRB Trends Series 5. Dublin:
Health Research Board.

91
Kelly F, Kelly C and Craig S (2009) Annual report of the National Intellectual Disability
Database Committee 2008. HRB Statistics Series 6. Dublin: Health Research Board.
Kelly C, Kelly F and Craig S (2010) Annual report of the National Intellectual Disability
Database Committee 2009. HRB Statistics Series 8. Dublin: Health Research Board.

92

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