Article

Tools to measure quality of life and carer burden in informal carers of heart failure patients: A narrative review

School of Nursing, Midwifery and Physiotherapy, University of Nottingham, Nottingham, UK.
Palliative Medicine (Impact Factor: 2.86). 02/2013; 27(7). DOI: 10.1177/0269216313477179
Source: PubMed

ABSTRACT

Background: Heart failure is a complex cardiac syndrome prevalent in an older population. Caring for heart failure patients through the disease trajectory presents physical and emotional challenges for informal carers. Carers have to deal with clinically unstable patients, the responsibility of managing and titrating medication according to symptoms and frequent admissions to acute care. These challenges compound the demands on caregivers’ physical and psychosocial well-being. Alongside the negative impact of being a carer, positive aspects have also been demonstrated; carers describe feelings of shared responsibility of caring with professional carers and the reward of supporting a loved one, which creates a new role in their relationship.

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    • "In line with findings from other studies [14, 16, 20, 23], 88 % of key relatives reported that they had gotten something positive out of the situation. In particular, 72 % of key relatives mentioned having changed their perception of the meaning of life’s values, while 18 % mentioned an increased sense of strength and courage against adversities. "
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