Article

The Relationship of Physical Activity to Health Status and Quality of Life in Cerebral Palsy

Pediatrics/Genetics and Developmental Medicine, University of Washington, Seattle, Washington, USA.
Pediatric physical therapy: the official publication of the Section on Pediatrics of the American Physical Therapy Association (Impact Factor: 1.04). 02/2008; 20(3):247-53. DOI: 10.1097/PEP.0b013e318181a959
Source: PubMed

ABSTRACT

To compare the influence of functional level, ambulatory, and physical activity performance on self-reported health status and quality of life (QOL) of youth with cerebral palsy (CP) and with typical development.
A cross-sectional comparison cohort design was used in 81 youth with CP, ages 10 to 13 years and 30 youth with typical development. Participants wore the StepWatch monitor for 7 days and completed the Activity Scale for Kids, Child Health Questionnaire-Child Form, and Youth Quality of Life Questionnaire. Multiple regression analysis was used.
Self-reported activity performance influenced self-reported physical (beta = 0.36), behavioral (beta = 0.32), and emotional (beta = 0.29) health. Functional level and performance did not influence QOL.
Measures of ambulatory and physical activity and youth-reported health status separated from the measure of QOL seem helpful in defining the specific health issues of ambulatory youth with CP and have implications for physical activity intervention.

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    • "Moreover, chronic pain may negatively affect health-related quality of life (HRQOL), limiting life satisfaction [4,10-12] and health perception in CP [9,13]. In this sense, HRQOL is considered a multidimensional construct that embraces several domains of physical and psychological well-being [13-17]. Moreover, suffering from persistent pain seems to reduce emotional, social and physical domains of HRQOL in children with CP [14]. "
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    ABSTRACT: Background Children and adolescents with cerebral palsy suffer from higher levels of pain than their peers without disability. The aim of this study was to explore the impact of pain on health-related quality of life and motor function in individuals with cerebral palsy as reported by health professionals. Methods Cross-sectional study carried out in Associations for Care of Individuals with Cerebral Palsy and Related Disabilities (ASPACE) in Balearic Islands and Castile Leon (Spain). Thirty-five physiotherapists rated pain, health-related quality of life and motor function in 91 children and adolescents with cerebral palsy [8-19y]. A semi-structured interview was used to collect demographic and clinical data according with the Study of Participation of Children with Cerebral Palsy Living in Europe (SPARCLE). Results Physiotherapists reported that 51% of individuals with cerebral palsy suffered from pain. Physiotherapists also perceived that pain in individuals with cerebral palsy was responsible for reductions of psychological but not physical domains of health-related quality of life. According with physiotherapists’ estimations, motor impairment scores were not correlated with pain scores in individuals with cerebral palsy, but they were significantly associated with physical and autonomy domains of health-related quality of life. Conclusions These findings highlighted the importance of assessing and providing interventions for pain relief in persons with cerebral palsy even at an early age.
    Full-text · Article · Jul 2014 · BMC Pediatrics
    • "self-reported health status for youth with CP (Bjornson et al., 2008). Low activity levels may contribute to secondary impairments, such as fatigue (Nieuwenhuijsen et al., 2011), and an increased risk of health problems, such as cardiovascular disease , later in life (Fowler et al., 2007; Martin, Cotie, Timmons, Gorter, & Macdonald , 2012). "
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    ABSTRACT: ABSTRACT Youth with cerebral palsy (CP) face significant barriers to participation in physical activity (PA). There is little information available about the nature of these barriers. Seventeen (17) youth and/or their parents participated in focus groups and individual interviews to identify factors that make it easy or hard to be physically active. Four themes emerged across functional levels: environmental and personal factors, limitations related to impairment in body structure and function, the perception that health benefits alone do not motivate youth to be physically active, and variable preferences for activity delivery. Dialogue with participants revealed that interventions to promote PA in youth should mitigate the interactions between personal and environmental factors that act as barriers to PA, and enhance the interactions that facilitate PA. Partnerships between researchers, policy makers, service providers, and families must be developed to address system barriers and build capacity in youth with CP and their communities.
    No preview · Article · May 2013 · Physical & Occupational Therapy in Pediatrics
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    • "Associations between emotional and psychosocial well-being and participation in leisure have also been reported when children engage in everyday activities or social activities [32, 36]. Qualitative studies have shown how children and adolescents with disabilities place a high value on participating in leisure activities. "
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    ABSTRACT: The objective of this study was to examine the association between leisure participation and quality of life (QoL) in school-age children with cerebral palsy (CP). Leisure participation was assessed using the Children's Assessment of Participation and Enjoyment (CAPE) and QoL using the Pediatric Quality of Life Inventory (PedsQL). Pearson correlation coefficients were calculated to examine the association between CAPE and PedsQL scores, and a multiple linear regression model was used to estimate QoL predictors. Sixty-three children (mean age 9.7 ± 2.1 years; 39 male) in GMFCS levels I-V were included. Intensity of participation in active-physical activities was significantly correlated with both physical (r = 0.34, P = 0.007) and psychosocial well-being (r = 0.31, P = 0.01). Intensity and diversity of participation in skill-based activities were negatively correlated with physical well-being (r = -0.39, P = 0.001, and r = -0.41, P = 0.001, resp.). Diversity and intensity of participation accounted for 32% (P = 0.002) of the variance for physical well-being and 48% (P < 0.001) when age and gross motor functioning were added. Meaningful and adapted leisure activities appropriate to the child's skills and preferences may foster QoL.
    Full-text · Article · Aug 2012 · International Journal of Pediatrics
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