Community-Researcher Partnerships at NIAID HIV/AIDS Clinical Trials Sites: Insights for Evaluation and Enhancement

Division of Clinical Research, National Institute of Allergy and Infectious Diseases, National Institutes of Health, USA.
Progress in community health partnerships: research, education, and action 09/2012; 6(3):311-20. DOI: 10.1353/cpr.2012.0034
Source: PubMed


Community engagement has been a cornerstone of National Institute of Allergy and Infectious Diseases (NIAID)'s HIV/AIDS clinical trials programs since 1990. Stakeholders now consider this critical to success, hence the impetus to develop evaluation approaches.
The purpose was to assess the extent to which community advisory boards (CABs) at HIV/AIDS trials sites are being integrated into research activities.
CABs and research staff (RS) at NIAID research sites were surveyed for how each viewed (a) the frequency of activities indicative of community involvement, (b) the means for identifying, prioritizing, and supporting CAB needs, and (c) mission and operational challenges.
Overall, CABs and RS share similar views about the frequency of community involvement activities. Cluster analysis reveals three groups of sites based on activity frequency ratings, including a group notable for CAB-RS discordance.
Assessing differences between community and researcher perceptions about the frequency of and challenges posed by specific engagement activities may prove useful in developing evaluation tools for assessing community engagement in collaborative research settings.

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Available from: William Michael Trochim, Jan 23, 2014
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    ABSTRACT: This special issue in the journal Progress in Community Health Partnerships (PCHP) stems from growing encouragement for community engagement in federally funded research, increasingly involving community stakeholders in developing models of care delivery that incorporate the unique cultural, social, demographic, economic, and resource needs of their communities. The idea for this issue was initially articulated at a February 2010 National Institutes of Health Clinical and Translational Science Award (CTSA) Community Engagement (CE) Key Function Committee Meeting. We also conducted a PubMed search in May 2012 which showed a consistent and increasing incorporation of the community engagement concepts into the work of biomedical and translational scientists; similarly, Doug Brugge recently commented on a SCOPUS literature search, also noting an increase in scholarship related to community-based participatory research. 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