The Health Information National Trends Survey (HINTS): Development, Design, and Dissemination

Journal of Health Communication (Impact Factor: 1.61). 10/2010; 9(5). DOI: 10.1080/10810730490504233
Source: PubMed


Little is known about access, sources, and trust of cancer-related information, or factors that facilitate or hinder communication on a populationwide basis. Through a careful developmental process involving extensive input from many individuals and organizations, the National Cancer Institute (NCI) developed the Health Information National Trends Survey (HINTS) to help fill this gap. This nationally representative telephone survey of 6,369 persons aged !18 years among the general population was first conducted in 2002–2003, and will be repeated biennially depending on avail-ability of funding. The purpose of creating a population survey to be repeated on a cyclical basis is to track trends in the public's rapidly changing use of new The authors gratefully acknowledge the contributions of, without whom launching a new survey program would not have been possible.

Download full-text


Available from: Bradford W Hesse
  • Source
    • "last accessed 12/5/13). The HINTS survey has been shown to be a reliable measure of information-seeking behaviors/experiences (Nelson et al. 2004). Specifically, the survey includes questions about health information seeking habits, what resources were used when seeking information (i.e., books, internet, health care providers ), and experience with seeking information (i.e., did it take a lot of effort to get information, did you feel frustrated during your search). "
    [Show abstract] [Hide abstract]
    ABSTRACT: As the practice of medicine has become more patient-driven, patients are increasingly seeking health information within and outside of their doctor's office. Patients looking for information and support are often turning to the Internet as well as family and friends. As part of a study to understand the impact of delivery method of genomic testing for type 2 diabetes risk on comprehension and health-related behaviors, we assessed participants' information-seeking and sharing behaviors after receiving their results in-person with a genetic counselor or online through the testing company's website. We found that 32.6 % of participants sought information after receiving the genomic test results for T2DM; 80.8 % of those that did seek information turned to the Internet. Eighty-eight percent of participants reported that they shared their T2DM risk results, primarily with their spouse/partner (65 %) and other family members (57 %) and children (19 %); 14 % reported sharing results with their health provider. Sharing was significantly increased in those who received results in-person from the genetic counselor (p = 0.0001). Understanding patients' interests and needs for additional information after genomic testing and with whom they share details of their health is important as more information and clinical services are available and accessed outside the clinician's office. Genetic counselors' expertise and experience in creating educational materials and promoting sharing of genetic information can facilitate patient engagement and education.
    Full-text · Article · Jun 2014 · Journal of Genetic Counseling
  • Source
    • "We computed descriptive statistics including means and totals. Jackknife weights, provided by HINTS [17,18], were used for calculating standard errors. Multivariable logistic regression analysis was used to examine the association of first-sought health information sources with key sociodemographic characteristics. "
    [Show abstract] [Hide abstract]
    ABSTRACT: Background The need to understand preferred sources of health information remains important to providing patient-centered care. The Internet remains a popular resource for health information, but more traditional sources may still be valid for patients during a recent health need. This study sought to understand the characteristics of patients that turn to their doctor or healthcare provider first for a recent health or medical information need. Methods Using the national cross-sectional survey, Health Information National Trend Study [HINTS], characteristics of those who sought a doctor or healthcare provider for a recent health information need were compared to other sources. Weighted survey responses from Cycle 1 and Cycle 2 of the HINTS survey were used for multivariable logistic regression. Results A total 5,307 patient responses were analyzed. Overall, those who seek a doctor or healthcare provider first for a health need are female, 46–64 years, White non-Hispanic, educated, in good health and users of the Internet. Yet, adjusted logistic regressions showed that those who sought a doctor or healthcare provider first during a recent health information need compared to other sources were most likely to be 65+ years, in poor health, less educated and have health insurance. Conclusions Patients who seek their doctor or healthcare provider first for health information rather than other sources of information represent a unique population. Doctors or healthcare providers remain an important resource for these patients during recent needs, despite the wide use of the Internet as a source of health information.
    Full-text · Article · Jun 2014 · BMC Family Practice
  • Source
    • "In response to the limited availability of data on COPD patients’ Internet access and use [13], we used data from a national survey of COPD patients to evaluate the relationship between patients’ socioeconomic factors, clinical characteristics, comorbidities, disease severity, and their reported Internet access and frequency of use. Based on a modified framework of Wilson’s 1996 Model of Information Behavior (Figures 1 and 2) and other models of information-seeking behavior in the chronically ill patients used in large information survey design [14], we developed a model of Internet access and use among COPD patients. We predicted that personal characteristics can precede the ability to access a service (building of awareness or pre-contemplation), and that ensuing needs influence the patient’s decision to seek information (awareness and action). "
    [Show abstract] [Hide abstract]
    ABSTRACT: Technology offers opportunities to improve healthcare, but little is known about Internet use by COPD patients. We tested two hypotheses: Internet access is associated with socio-demographic disparities and frequency of use is related to perceived needs. We analyzed data from a 2007-2008 national convenience sample survey of COPD patients to determine the relationship between Internet access and frequency of use with demographics, socio-economic status, COPD severity, and satisfaction with healthcare. Among survey respondents (response rate 7.2%; n = 914, 59.1% women, mean age 71.2 years), 34.2% reported lack of Internet access, and an additional 49% had access but used the Internet less than weekly. Multivariate models showed association between lack of access and older age (OR 1.10, 95% CI 1.07, 1.13), lower income (income below $30,000 OR 2.47, 95% CI 1.63, 3.73), less education (high school highest attainment OR 2.30, 95% CI 1.54, 3.45), comorbid arthritis or mobility-related disease (OR 1.56, 95% CI 1.05, 2.34). More frequent use (at least weekly) was associated with younger age (OR 0.95, 95% CI 0.93, 0.98), absence of cardiovascular disease (OR 0.48, 95% CI 0.29, 0.78), but with perception of needs insufficiently met by the healthcare system, including diagnostic delay (OR 1.72, 95% CI 1.06, 2.78), feeling treated poorly (OR 2.46, 95% CI 1.15, 5.24), insufficient physician time (OR 2.29, 95% CI 1.02, 5.13), and feeling their physician did not listen (OR 3.14, 95% CI 1.42, 6.95). An analysis of the characteristics associated with Internet access and use among COPD patients identified two different patient populations. Lack of Internet access was a marker of socioeconomic disparity and mobility-associated diseases, while frequent Internet use was associated with less somatic disease but dissatisfaction with care.
    Full-text · Article · Apr 2014 · BMC Pulmonary Medicine
Show more