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Abstract

People with disabilities have the same needs and desires for tourism as others. However, travel in a context designed primarily for people without disabilities poses unique challenges. A qualitative study was conducted employing indepth interviews and focus groups to explore the tourism experiences of individuals with mobility or visual impairments. The results revealed that they experience five different stages in the process of becoming travel active: personal, re-connection, tourism analysis, physical journey, and experimentation and reflection. Better understanding of these stages will facilitate more awareness of the tourism needs of people with disabilities.RésuméVoyager avec un handicap: pas seulement une question d’accès. Les personnes handicapées ont les mêmes désirs et besoins quant au tourisme que les autres. Pourtant, un voyage dans on contexte qui a été conçu surtout pour les gens non handicapés présente des défis uniques. On a mené une enquête qualitative en employant des interviews en profondeur et des groupes de discussion pour étudier les expériences de tourisme des personnes avec des difficultés de mobilité ou des handicaps visuels. Les résultats montrent que ces personnes perçoivent cinq étapes dans le processus de devenir des voyageurs actifs: l’étape personale, la remise en contact, l’analyse du tourisme, le voyage physique et l’expérimentation et la réflexion. Une meilleure connaissance de ces étapes facilitera une plus grande conscience des besoins dans le tourisme des personnes handicapées.
www.elsevier.com/locate/atoures
Annals of Tourism Research, Vol. 31, No. 4, pp. 946–960, 2004
#2004 Elsevier Ltd. All rights reserved.
Printed in Great Britain
0160-7383/$30.00
doi:10.1016/j.annals.2004.03.007
TRAVELING WITH A DISABILITY
More than an Access Issue
Matthew Kwai-sang Yau
Bob McKercher
The Hong Kong Polytechnic University, China
Tanya L. Packer
Curtin University of Technology, Australia
Abstract: People with disabilities have the same needs and desires for tourism as others.
However, travel in a context designed primarily for people without disabilities poses unique
challenges. A qualitative study was conducted employing indepth interviews and focus
groups to explore the tourism experiences of individuals with mobility or visual impair-
ments. The results revealed that they experience five different stages in the process of
becoming travel active: personal, re-connection, tourism analysis, physical journey, and
experimentation and reflection. Better understanding of these stages will facilitate more
awareness of the tourism needs of people with disabilities. Keywords: disability, accessibility,
barriers, culture. #2004 Elsevier Ltd. All rights reserved.
Re
´sume
´:Voyager avec un handicap: pas seulement une question d’acce`s. Les personnes
handicape´es ont les meˆmes de´sirs et besoins quant au tourisme que les autres. Pourtant, un
voyage dans on contexte qui a e´te´ conc¸u surtout pour les gens non handicape´s pre´sente des
de´fis uniques. On a mene´ une enqueˆte qualitative en employant des interviews en pro-
fondeur et des groupes de discussion pour e´tudier les expe´riences de tourisme des per-
sonnes avec des difficulte´s de mobilite´ ou des handicaps visuels. Les re´ sultats montrent que
ces personnes perc¸ oivent cinq e´ tapes dans le processus de devenir des voyageurs actifs:
l’e´tape personale, la remise en contact, l’analyse du tourisme, le voyage physique et l’expe´r-
imentation et la re´flexion. Une meilleure connaissance de ces e´tapes facilitera une plus
grande conscience des besoins dans le tourisme des personnes handicape´ es. Mots-cle
´s:
handicap, accessibilite´, barrie`res, culture. #2004 Elsevier Ltd. All rights reserved.
INTRODUCTION
Living with a disability poses unique challenges and can influence
participation in many activities. Tourism is one activity that many
people with disabilities feel must be sacrificed as it requires an orche-
strated cooperation of physical, mental, and social capabilities, which
are often adversely affected or compromised by a disability. Nevertheless,
Matthew Yau is Assistant Professor in the Department of Rehabilitation Sciences, Hong
Kong Polytechnic University (Hung Hom, Hong Kong SAR, China. Email
<rsmyau@polyu.edu.hk>). His research interests include culture, advocacy and disability.
Bob McKercher is Associate Professor with varied research interests in tourism.
Tanya Packer is Professor with research interests focusing on activity participation of people
with disabilities.
946
it is widely accepted that desire to travel is the same for persons with
or without a disability.
While some people with disabilities never travel, many others enjoy
a full, active, and varied travel career. To become active, though, is not
an automatic process for such people. They face many practical and
social obstacles that can inhibit their full participation in tourism,
which involves more than simply purchasing a ticket, booking accom-
modation, or paying for a package tour. People with disabilities have
more things to consider and more challenges to face before and dur-
ing a trip than those without. Indeed, it is sometimes a challenging
personal journey.
This paper reports part of a larger study focusing on issues associa-
ted with tourism and disability. It provides insight into the tourism
experiences of people with disabilities, in particular those with
mobility or visual impairment. With better understanding of their
experiences, it is hoped that the society at large will be more aware of
their needs, especially those from an Asian background. It is also
anticipated that the tourism industry through this insight, will be bet-
ter able to provide inclusive and barrier-free services tailored to the
needs of people with disabilities (Germ and Schleien 1997).
TOURISTS WITH DISABILITIES
Disabling conditions are either congenital, or acquired with either
acute or insidious onset. They may be characterized by a single event
or a degenerative over time. Disabling conditions involve hearing,
vision, mobility, intellectual, and psychiatric disorders. Between 5%
and 20% of the population are disabled (UNESCAP 2000); reported
incidence and prevalence of disability varies depending on denitions
of disability, data collection strategies, and survival rates. Based on
self-report, in Hong Kong, 4% of the population of 6.7 million have
at least one type of mental or physical disability, and another 1.5% an
intellectual handicap. A further 13% of the populace is affected by
chronic disease (Census and Statistics Department 2002).
Importantly, the number of people with disabilities is expected to
increase as a result of increasing life-span, decreases in communicable
diseases, improved medical technology, and improved child mortality.
In the United States, for example, the number of people with dis-
abilities is expected to double to around 100 million people by the
year 2030 (cited in Burnett and Bender-Baker 2001:4). Together with
family and friends, they create a potentially signicant, but often
ignored market (McKercher, Packer, Yau and Lam 2003; Murray and
Sproats 1990; Ray and Ryder 2003).
Little research has been published examining tourism and disability
(Burnett and Bender-Baker 2001; Darcy 1998, 2002). A number of
researchers mentioned this idea in the late 80s and early 90s
(Driedger 1987; Muloin 1992; Murray and Sproats 1990; Smith 1987),
but then this area of study fell quiet until quite recently (Burnett and
YAU, MCKERCHER AND PACKER 947
Bender-Baker 2001; Darcy 2002; McKercher et al. 2003; Ray and
Ryder 2003).
Existing literature tends to suggest that persons with disabilities
face a number of barriers to participation (McGuire 1984; Murray
and Sproats 1990; Smith 1987) and that, because of these barriers,
they enjoy less access to tourism opportunities than people without
(Turco, Stumbo and Garncarz 1998). Smiths (1987) work represents
the rst and, to date, most comprehensive assessment of barriers and
obstacles to participation. He identied three main types of barriers:
environmental, including attitudinal, architectural, and ecological fac-
tors; interactive barriers relating to skill challenge incongruities and
communication barriers; and intrinsic barriers associated with each
participants own physical, psychological, or cognitive functioning
level. Of these, intrinsic barriers are felt to be the greatest obstacle
(McGuire 1984; Murray and Sproats 1990; Smith 1987). Feelings of
incompetence in leisure activity may, over time, lead to feelings of
generalized helplessness resulting in reduced future participation. It
has also been suggested that the rst tourism experience is a major
hurdle determining whether an individual with a disability will con-
tinue to travel or not (Murray and Sproats 1990).
The underlying assumption behind much of this work is that if bar-
riers could be eliminated, participation rates would increase. Over the
past 20 years, however, much progress has been made in removing
barriers, so that today the transport, accommodation, and attractions
sectors are largely accessible. Yet, a disproportionately small number
of people with disabilities participate fully in mainstream tourism
(Darcy 1998). In fact, the tourism industry in general, and the accom-
modation sector in particular, apparently see little demand for access-
ible facilities (AHLA 2000). They are actually lobbying governments
in the United States (Elliott 2000) and the United Kingdom (Finan-
cial Mail 2000) to reduce requirements for the provision of accessible
accommodations.
The World Health Organizations International Classication of
Functioning argues that a linear, cause and effect relationship
between disability and participation, based primarily on disability, is
both incorrect and limiting (WHO 2001). Instead, it recognizes that
participation in life situations involves complex interactions (includ-
ing social attitudes, natural and man-made structures, family attitudes,
policies, etc.), with disability being only one of many contributing fac-
tors and possibly not even the key one in peoples ability to partici-
pate in daily activities and life situations such as tourism. Thus, the
elimination of physical barriers to access may only address part of the
issue. Unless appropriate enabling environments are facilitated and
the individual is empowered to take advantage of these environments,
people may still not have access to tourism.
Indeed, the individuals own tourism career is a subject that has not
been examined in a comprehensive manner. A number of authors
have written rst-hand accounts of their experiences, but their papers
usually adopt an editorial style, rather than presenting empirical stu-
dies (Kaufman 1995; Parry 1995; Patching 1990). What is unknown is
948 TRAVELING WITH A DISABILITY
how those with disabilities become travel active; how they view their
options; or how they negotiate environmental barriers and capitalize
on environmental facilitators. This paper seeks to contribute to the
body of knowledge on the touristic experiences of people with dis-
abilities.
Study Method
In order to capture the lived experience of participation in tour-
ism, naturalistic inquiry using indepth interviews and focus groups
was chosen. Participants with either a mobility disability or a visual
impairment were recruited through the investigatorsclinical and
community networks and subsequent personal referrals (snowball
technique) and invited to participate in either individual interviews
or focus discussion groups. These occasions canvassed a wide range of
issues.
Indepth interviews were rst conducted with key informants from
various organizations of or for people with mobility (wheelchair or
nonwheelchair users) or visual impairments. Key informant interviews
were used to generate a basic understanding of the issues. Focus ses-
sions were subsequently conducted with participants, many of whom
were also members of the groups identied above. Interviews and dis-
cussion groups were conducted in Cantonese, and full Chinese tran-
scripts and English translations were produced. During the
preliminary stages of the research, parts of these transcripts were
back-translated into Cantonese to verify the accuracy of translation.
Each of the authors read the transcripts independently. Emerging
themes from the content analysis of the transcripts were discussed,
elaborated, and validated through continuous dialogue among the
three investigators.
Fifty-two participants were recruited for the study, 28 (18 male and
10 female) with mobility disabilities and 24 (17 male and 7 female)
with visual impairment. Data were collected via six individual inter-
views with key informants and nine focus groups. The focus groups
had an average of ve persons participating and were composed of
those with either mobility or visual impairments. Four indepth inter-
views and ve focus groups were conducted with people with mobility
disabilities, while two indepth interviews and four focus groups were
conducted with people with visual impairments. Study participants
included both men (n¼35) and women (n¼17), ranging in age
from 24 to 72.
In order to ensure broad representation, purposive sampling was
used and participants were selected to include those with both con-
genital and acquired disabilities, those who travel regularly, those who
do so less frequently, and some who are just beginning their post-
trauma tourism careers. Participants with visual impairment com-
prised those who had acquired their disability earlier and later in life.
The groups with mobility limits included some with congenital dis-
abilities, but most had acquired theirs through injury or illness.
YAU, MCKERCHER AND PACKER 949
Study Results
All participants reported that their disability affected their tourist
behavior. Participants with acquired disabilities also acknowledged
that their type, severity and nature of onset played critical roles in
determining the length and difculty of rehabilitation and, subse-
quently, whether they developed an interest in tourism. Most respon-
dents felt it was preferable to have a sudden rather than a slow,
progressive deterioration of a condition: for a sudden onset, while
traumatic, forces the individual, and his or her family and friends to
begin the adjustment process immediately. They also suggested that
interest in travel and tourism is essential and that it, in turn, is inu-
enced by the individuals desire to explore new interests, take risks,
manage daily living tasks, seek social support networks, and accept
the disability.
This study focused on the process of becoming travel active, rather
than on disability itself. Participants identied ve stages along the
path to becoming active. They have been labeled as: personal
acceptance and reintegration; reconnectionexploration for future
traveling; analysissearching for information; physical journeycom-
pensation and compromise; and experimentation and reection
experiencing different tastes of traveling. Participants indicated that
the nature of the journey is highly personal, with many needing to
progress through each step sequentially, while others tackled them in
parallel and in certain cases indicated that some stages had to be
revisited.
Personal StageAcceptance and Reintegration. Participants reported
that ‘‘ coming to terms with the disability’’ is, at least to some extent,
necessary before tourism is seen as even a hypothetical possibility.
In general, acceptance of the disability, particularly if is acquired, is
a necessary part of becoming an active member of the family, the
community, and wider society. Viewing oneself as a person who hap-
pens to live with a disability is the rst step in the process. These
ndings corroborate other research that suggests people often per-
ceive that their future hopes and aspirations have been dashed after
acquiring a disability, particularly in later life (Bee and Boyd 2002).
The participants expressed the opinion that those who cannot
accept their disabilities tend to avoid public places and conse-
quently travel rarely, if ever. Some participants also expressed the
opinion that, travel as a leisure pursuit, was not a priority during
the rehabilitation process and/or when learning to be independent
in their daily living tasks. Instead, the focus was, rst and foremost,
one learning to look after oneself. Rehabilitation was lengthy, and
lasted far longer than the time spent in hospital or in active treat-
ment. Many respondents suggested it could last several years.
As noted earlier, personal acceptance is inuenced by the empathy
and support within the family. In Hong Kong, where many traditional
Chinese family values still prevail (Tseng, Lin and Yeh 1995), indivi-
duals are still locked into a hierarchical and cohesive family structure
950 TRAVELING WITH A DISABILITY
(King and Bond 1985). Family interest and harmony supersede indi-
vidual interests. As a result, each family member seems to lose his/
her individuality and idiosyncrasies (Yang 1995). Thus, without the
familysnancial, physical, and/or psychological support, it is difcult
for a person with a disability to travel despite personal acceptance of
it. The following is a good example of how family members can inu-
ence desire, as expressed by one of the participants with a mobility
impairment:
Once I needed to travel for a long distance and it involved taking a
ight. My mother tried to stop me from going and said it was very
dangerous. I had to persuade her many times even till the last day
before my departure. She insisted that it would be dangerous and she
worried that there would be no one to help me. She was so worried that
she could not sleep for a few nights. Eventually, I did not go, as she had
inuenced my decision.
The same participant was later able to make his rst trip, which has
since motivated him to do more. He stated, ‘‘ As I could make it the
rst time [traveling], I then went for a second trip. I came across a
nice experience.’’ In contrast to the overprotective nature of some
parents, other participants particularly those with congenital dis-
orders, stressed that parental or family expectations and support were
the very thing that gave them the condence to become travel active.
Societal attitudes to disabilities further complicate acceptance of
disability in Hong Kong, where traditional viewpoints teach that dis-
ability represents a form of punishment from ‘‘ the gods’’ somehow
deserved for misdeeds in this or a prior life. According to one respon-
dent, ‘‘If a person is injured and becomes disabled, very often, theyll
[the public] say its because they [the person with the disability] did
something wrong and they must be bad. [The disabled person will
then say] this is the punishment that I have, so I must accept it.’’ A
woman who acquired a visual impairment added, ‘‘ neighbors might
say that you must have done something wrong in a past life.’’
It is perhaps not surprising that people with disabilities are sup-
posed to play the role of victim and not to live full, independent lives.
Instead, they are expected to become passive members of the family
and society. This attitude is also prevalent among some members of
the healthcare community. Another participant suggested that ‘‘Occu-
pational therapists actually give the message that people with dis-
abilities cant make it outside of Hong Kong. They stress too much
daily living and dont think we have a chance [or deserve] to relax, to
have recreation, or to have some leisure activities.’’
Availability of travel partners appears to be a catalyst to encourage
people with disabilities to engage in tourism; it can be the factor that
motivates them to participate. Very often, they prefer family members
or friends without disabilities to be their traveling partners. This pro-
vides a sense of security, but also practical help during the trip. If
relatives or friends are not available, participants felt they must rely
on busy tour guides, those in the hospitality industry, or volunteer
YAU, MCKERCHER AND PACKER 951
helpers on tours organized by disability organizations. However,
respondents frequently noted that the desire to travel with family
and/or friends was not based solely on the need for assistance. The
trip experience itself is one of ‘‘ fun’’ and ‘‘ leisure’’ that is best shared.
This, they pointed out, is not different from people who do not have
a disability.
Participants also commented on the impact of public acceptance
(specically in the hospitality sector). It was often mentioned that the
tourism industry in Hong Kong is too ‘‘ commercialized’’ , and prot
driven, and thus not prepared to cater to their needs. One partici-
pant explained that ‘‘ perhaps they believe that we will create more
troubles, particularly when there are different disabilities in the
group. The travel agents are often hesitant to take us on a package
tour as there may be more caring tasks for the guide, unless we char-
ter the tour, but that would be expensive’’ , as detailed by McKercher
et al (2003).
Although both perceived and actual independence does vary from
culture to culture, increasingly communities are becoming more
aware of and sensitive to the rights of all. With continued vigilance
and provision of appropriate services, more people with disabilities
are able to actively participate in the community, creating an environ-
ment within which acceptance is easier. One of the focus group parti-
cipants with visual impairment shared his joy at acceptance and
‘‘coming out’’ :
My eyesight deteriorated gradually. It was hard for me to accept in the
beginning. Frankly, I tried to hide myself away. Later, I was introduced
to the Society for the Blind and I started to participate in their activities.
Whenever they took me out for picnics, I was accompanied by a volun-
teer helper as I had had a few serious falls. And now, I like to travel and
taste different food but I still need to be accompanied by others.
Reconnection StageExploration for Future Traveling. The second
stage in the process of becoming active represents an integration
where the individual begins to establish him or herself fully in com-
munity life. This task is challenging, for as one participant observed
‘‘moving back home from the hospital was a big step as home is
now an unfamiliar environment.’’ Reconnection can be a period of
self-discovery, personal empowerment, and growth. But, generally,
little tourism occurs as the individual focuses on learning to live
independently. Importantly, the person must confront the imposed
‘‘role’’ that a person with a disability is expected to play. A prevail-
ing social attitude exists that those with disabilities are not worthy
of having or wanting anything but the sheer basics of life. They are
expected to be sad, feel like a burden on their families, and be
inactive. As one key informant stated, ‘‘In Chinese culture, a luxur-
ious lifestyle doesnt go with a disability. If youre disabled, you
should live a simple life.’’ This also means, as was claimed,
952 TRAVELING WITH A DISABILITY
‘‘[people] should sacrice self-enjoyment rather than giving work,
extra worries, or burdens to family members.’’
This attitude is so prevalent, and so well entrenched within Hong
Kong society that many with disabilities accept this role without ques-
tion. One key informant stated sarcastically, ‘‘ if you are disabled,
youre expected to be dependent. If youre dependent, you better not
do too much, expect too much, or want too much. Just sit there.’’
Elsewhere he added,
Amazingly enough, some people who have acquired disabilities in the
late stages of life, accept being charity cases. They just sit there and wait
for people to provide for them. They dont work, even if they have the
opportunity to work. ... Once they become part of the system, they play
the role of the disabled person.
Some at this stage begin to travel again, but efforts are tentative,
especially if the person has an acquired disability. First experiences
expose the person to confronting stereotypes regarding how those
with disabilities are expected to behave. To avoid this, many travel
with family members or close friends or join a specialty tour orga-
nized for people with disabilities. Some with newly acquired ‘‘ hidden’’
disabilities, such as visual impairments may even try to disguise their
disabilities. One participant with a deteriorating type of visual impair-
ment explained how he joined a package tour:
Whenever I make my booking, I always have this thought that I better
not disclose my visual problem. But once I get to the airport I will tell
the guide my problem, so that he can help me to go through the cus-
toms quickly as a person with a disability. I usually ask for a single room
as I worry that the other co-traveler may not like to share the room with
me because of my disability. So, I have to pay more and that can be a
big concern, particularly in this difcult economic time.
Others with obvious disabilities suggest that travel may be a positive
experience as they nd the public is more willing to help, even to the
extent of disrupting their routines and ignoring wishes to be left
alone. At other times, though, it can be negative, especially when they
receive curious looks from others, or are ignored or discriminated
against when receiving services. One thing annoying to those with less
severe or less evident disabilities is that they are expected to behave
or receive the same treatment as those without disabilities. In this
case, if they declare their disabilities, it may bring favorable treatment
at the expense of embarrassment, or it may arouse jealousy among
others. The following quote from a participant with a mobility dis-
ability is an example.
You know, I often walk without my walking aid. I just cant ask people to
give me their seats. Every time when I get off a bus, I just worry I may
have blocked other people behind. When I use the public toilet, I am
just concerned people waiting outside may say, ‘‘Oh, what takes you so
long!’’ I just feel embarrassed.
YAU, MCKERCHER AND PACKER 953
Travel Analysis StageSearch for Information. In this stage, the pro-
cess changes from tourism as an abstract concept to resolving the
practical concerns relating to ensuring a safe and enjoyable experi-
ence. At this stage, the tourist must consider and resolve a range of
issues. For some, the task is too daunting and the prospect is aban-
doned. As one participant commented, ‘‘ [You have to ask] whether
it is worth it. I have to consider whether the process of achieving
this goal is difcult or not. If the process of achieving this task cau-
ses too much inconvenience, I would say its not worth it.’’ Fortu-
nately, participants reported that with more experience the type and
magnitude of considerations grow smaller.
In order to minimize potential problems, detailed preplanning is
often required. Respondents invariably indicated that they must do
far more of it, at a much deeper level, than their nondisabled coun-
terparts. They need to identify information on accessibility to scenic
spots, toilets, hotel accommodation, and transportation, as well as
availability of assistance and presence of travel partners. Even if the
actual scenic spot or hotel is accessible, routes and connections
between them must also be investigated and found to be accessible.
Moreover, participants reported the constant need to verify the accu-
racy of published information, as it is often wrong or misleading.
As noted above, those who travel alone or join a package tour want
the tourism industry to provide information about whether the tour is
suitable for their needs or not, providing information on the accom-
modation, transport arrangement, availability of accessible amenities,
availability of assistance, etc. Literature indicates that people with dis-
abilities are more likely to be disproportionately loyal to businesses
(such as specic travel agents and hotels) that best serve their needs
or provide them positive experiences (Turco et al. 1998), further sup-
porting the lack of preparedness of most of the industry.
Physical Journey StageCompensation and Compromise. People with
disabilities must make many compromises and adopt a number of
compensatory strategies to manage the experience. Some of the com-
promises relate to adjusting to unsuitable accommodations, dealing
with architectural and ecological barriers, forsaking certain activities
in order to allow extra time to return to an assembly point, and not
visiting attractions with others in the group due to inaccessibility. In
addition, respondents indicated that international caliber hotels
usually have better facilities, but they come at a premium price.
In extreme cases, tourists with disabilities are forced to adopt dras-
tic coping strategies. Some respondents indicated that they dehy-
drated themselves on long-haul airline ights so that they would have
to go to the toilet less frequently. One participant with quadriplegia
also indicated he would eat less food before a trip so that he would
be less likely to defecate during the journey.
Some participants accept their exclusion from some activities with a
degree of humor rather than resignation: they accept this as being
part of the price they must pay for tourism activities. Instead, they
seek innovative strategies to visit sites that are high on their priority
954 TRAVELING WITH A DISABILITY
list. This includes (in developing countries) paying local residents to
carry them to the site, doing additional research for other ways of
participating, or relying on friends to temporarily leave the tour
group to give them assistance.
Compromise is not always by choice. Tourists with disabilities may
be excluded from certain attractions, especially if the degree of physi-
cal exertion is beyond their capabilities or access to the attraction is
impractical given their disabilities. They must often rely on the advice
of others regarding which places are accessible or are not accessible.
For the most part, they adhere to the advice even if their abilities are
under estimated. If the tourism industry regards participation in a
specic event as impossible, it is just not worth the risk. Regardless, a
level of disappointment or frustration can occur if the tourist was
looking forward to visiting a certain attraction and was advised not to
make the trip. Being shown a photograph by other members of the
tour group is small compensation.
There are limits in the range of activities that some can participate
in comfortably. Most participants expressed an unwillingness to par-
ticipate in adventure tourism while some felt they could not partici-
pate in certain experiential pursuits. In extreme cases, the ability to
participate can adversely affect the enjoyment of the trip. One of the
informants observed ‘‘ if you go to Thailand and others go swimming,
then what are you going to do? There are many limitations on my
participation.’’
All participants identied the need for these altered strategies
when planning and taking a holiday of any kind. They also acknowl-
edged the impact these strategies had on their own enjoyment. Some
seemed to accept these inevitable facts hesitantly. Others strongly
voiced their protest or grievances and, in particular, felt since their
disabilities were not due to their own short-comings, they should not
be required to make so many compromises in order to access public
and private services. Relatively inexperienced tourists or those who
were just beginning their tourism career felt that compromises signi-
cantly impaired their enjoyment of travel. As one participant indi-
cated, ‘‘ To travel, you want to experience different things, to do
different things. But we cannot do it. Undoubtedly, I can be in Thai-
land physically, but I cannot enjoy the programs.’’
A constant theme of self-reliance was revealed in the narrative
responses throughout the interviews and focus groups. Perhaps this is
a culturally relevant issue within the Asian context. It is perceived to
be breaking the cultural code when one has to ask for or receive
assistance outside the family. In Western cultures, self-reliance is
based on the individual, whereas in Asian cultures it extends to and
includes the family, and this includes the responsibility not to make
demands on others. Particularly among the Chinese, families are
expected to internally cope with and overcome difculties and not
burden or impose these on others (Tseng et al. 1995). Thus, there is
reluctance among the families and people with disabilities to ask for
help, as it is thought that it will undermine self-reliance and/or
create burdens or problems for others. ‘‘ Not to bother others’’ is
YAU, MCKERCHER AND PACKER 955
taught to Chinese when they are young. Even when paying for a ser-
vice, assertive behavior is still difcult to engender. In a relation-
oriented culture like Chinas, one avoids creating troubles for others
so that a harmonious and courteous relationship can be maintained
between the two parties. The non-assertive behaviors that inuence
the desire for traveling seem to be even more obvious among people
with disabilities. This may be partly due to their self-concept of not
being a ‘‘ whole person’’ , leading to the belief that they do not deserve
othershelp.
Experimentation and Reflection StageDifferent Tastes of Traveling.
Although traveling may be a-matter-of-fact event for people without
disabilities, it can be a challenging task for people with disabilities.
The different but unique experiences can be described as diverse
tastes. If the person has a positive tourism experience, he or she will
be motivated to do it again. On the other hand, as was speculated by
Smith (1987), if the experience is negative or if the individual is not
ready to travel, future touristic activities will be affected. As the per-
son becomes a more experienced tourist, he or she will learn appro-
priate strategies to maximize enjoyment. However, rst trips usually
provide a mixed experience. The following examples display the array
and intensity of the menu experienced.
A bitter experience seems to be an inevitable consequence if pro-
blems with mobility or ambulation aids occur during the ight or
tour. People may not stop traveling, but their overall enjoyment is
diminished and their enthusiasm for future trips lessens. Many tour-
ists who use wheelchairs report on the perils of travel, as airlines
require their chairs to be stowed under the plane for security and
safety reasons. While some have encountered the misfortune of lost
luggage, losing ones wheelchair is much more distressing. A few part-
icipants complained that their wheelchairs had been improperly reas-
sembled, arrived with missing parts, or that the airlines had lost the
batteries. Very often ight crews are not trained to handle wheel-
chairs properly.
Tourists with disabilities are often faced with limited choices or
access problems, which can leave a sour taste. They are often forced
to accept more expensive arrangements than the rest of the group. In
addition, in order to have companions, they may have to make many
compromises, in terms of destination, time, and date of traveling.
Such impositions may decrease the propensity or frequency of travel.
The public often does not realize that people with a disability
develop other senses and select different foci to experience, which
can produce a sweet, memorable taste. Many participants expressed
the opinion that by ‘‘ having been there or being able to do that,’’ and
by exploring the places through descriptive words, smells, touch, and
sound, they could achieve the same satisfaction as anyone else. For
example, one of the participants with a visual impairment described
his recent experience of a trip to the Yellow Fruit Tree Fall in Guiz-
hou, one of the provinces in Mainland China.
956 TRAVELING WITH A DISABILITY
They [family members] held my hands and told me how deep the water
was. They took me walking over the Seven Star Bridge and I could feel
every brick under my feet. There are bends on the bridge! Everyone was
holding hands one by one, including the tour guide. We walked across
those ponds under the falls. Actually, they were not very deep, but we all
got wet. We also walked into those caves behind the falls. What a mem-
orable experience for my entire life!
CONCLUSION
Tourism for people with disabilities entails a signicant element of
individual risk. By its nature, it involves leaving familiar places and
venturing into unknown physical and psychological space. This study
suggests that the process of re-entry into tourism involves ve stages
that may be taken sequentially or in parallel. The stages ranged from
constant reference to participantsunderstanding and acceptance of
themselves as individuals (or families) with a disability, to those deci-
sions and tasks undertaken in order to travel, and to the actual
experience. As the rst stage, the personal stage is intense by individ-
ual and, for the most part, hidden from others. It is often linked to
early experiences soon after onset of a disability and/or during
rehabilitation. Tourism is seen as impossible. Instead, priorities rest
on recovery, rehabilitation, and learning to accept life with a dis-
ability. Indeed, some studies suggest that the perceived loss of opport-
unity to travel represents an additional real loss that the individual
must adjust to (Lindgren 1996; Mumma 1986).
The prospect of tourism emerges as a possibility during the recon-
nection stage when the person begins to connect with the outside
world and explore his or her potential to participate in a wide range
of activities. This stage often involves a conscious process of weighing
perceived and real risks against possible rewards. The risks vary
depending on the nature and severity of the disability. For example,
people with visual impairments felt vulnerable in new and unfamiliar
surroundings and worried about their personal safety. Those with
spinal cord injuries voiced concerns about pragmatic issues, such as
bladder control and the risk of personal embarrassment should they
soil themselves in transit. They also felt vulnerable about the prospect
of airlines losing their wheel chairs. If the risks are felt to be too high,
no travel will occur. But, if they can be overcome, the individual will
move to the next stage.
During the analysis stage, the person gathers information, plans the
trip, and determines possible strategies for coping with the physical
act of travel. Next, the physical journey stage involves the actual trip.
When this coincides with the personsrst trip as a tourist with a dis-
ability, the individual must test out the strategies developed, modify
them if needed, and learn new strategies to make that and sub-
sequent trips more enjoyable.
The nal stage in the process, the experimentation and reection,
provides an opportunity to consider the experience. These reec-
tions, perhaps more than the trip itself, determine whether the indi-
YAU, MCKERCHER AND PACKER 957
vidual will try again, with experience playing a crucial feedback role
in determining future interests. A positive trip experience builds con-
dence and motivates the person to travel more frequently. Planning
and organizing the trip, getting visas, even doing mundane things like
checking in at a hotel or clearing customs, are new skills that some
individuals must learn. On the contrary, a negative experience may
inhibit future tourism activity, especially if the person is not physically
or psychologically ready. For example, according to an individual with
a visual impairment, ‘‘very few people will persist despite repeated fail-
ures. Many people will withdraw. Its normal that [they] would not
tour again.’’ If they try again, they may need to go through the earlier
stages and re-resolve issues.
The ndings of the study clearly suggest that the process of becom-
ing travel active for those with disabilities is more than just removing
physical barriers. For many, tourism represents a metaphor of recovery.
The complex process of being a tourist with a disability involves per-
sonal initiative, accurate evaluation of ones own capabilities, the abil-
ity to collect reliable information, managing the trip, manage oneself,
and reect on experiences. Being able to travel is a meaningful task
through which a person with a disability can demonstrate to others
that they have recovered or started to regain their control over destiny
and to assert their future quality of life. Overcoming self-doubt and the
hesitation of burdening others in the initial stages helps people come
to terms with their disability. Courage and ability to reconnect to the
outside world make travel become an attainable goal. Family and the
tourism industrys support by providing accurate information are likely
to hasten the progress through this stage. The success in managing the
trip and gaining positive experiences provides fun and leisure, but also
facilitates self-condence and future tourism interests. The tourism
industry certainly can play an important role in enhancing this pro-
cess._
A
AcknowledgementsThe study was funded by an Internal Competitive Research Grant from
The Hong Kong Polytechnic University. The authors would like to thank Patrick Lam for his
assistance in preparing the manuscript.
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960 TRAVELING WITH A DISABILITY
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