Relationship Between Caregiver Burden and Health-Related Quality of Life

Northwestern University, Evanston, Illinois, United States
The Gerontologist (Impact Factor: 3.21). 11/1999; 39(5):534-45. DOI: 10.1093/geront/39.5.534
Source: PubMed


This study tested the cross-sectional relationship between caregiver burden and health-related quality of life (HRQOL) among
1,594 caregivers of veterans identified to qualify for formal home care. A two-stage model found that familial relationship,
coresidence, and low income predicted objective burden. Coresidence also predicted subjective burden, whereas being African
American was protective. In the full model, spousal relationship, low income, and burden were associated with poor HRQOL scores.
Total variance explained in HRQOL ranged from 14% to 29%, with objective burden contributing more than subjective burden.
These findings suggest a direct effect of objective burden on caregiver HRQOL, indicating a need among caregivers for assistance
in caring for disabled family members.

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Available from: Anita Giobbie-Hurder, Sep 22, 2014
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    • "Caregivers must devote considerable time, energy, and resources to the caregiving role (Hughes et al., 1999), and adult children are increasingly assuming that role for their aging parents (Pew Research, 2012; Clark, 2002). General systems theory and prior research (Loomis & Booth, 1995) suggest that adversity associated with caregiving affects the marital relationships of caregivers. "
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    ABSTRACT: The goal of this study was to gain a more complete understanding of the marital satisfaction of family caregivers based on a strength-based framework of family resiliency. Previous research has identified a relationship between the caregiving experience and coping, spirituality/religiosity, and hope, but no study to date has investigated the effect of those three variables on the marital satisfaction of family caregivers. We hypothesized that family caregivers who are spiritual/religious, hopeful, and use effective family coping strategies would experience greater marital satisfaction. A hierarchical linear regression analyzing data from 191 family caregivers supported the hypotheses. Implications for clinicians are discussed.
    Full-text · Article · May 2015 · American Journal of Family Therapy
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    • "Caregiver burden is often experienced by family caregivers of palliative care patients, and has been shown to be an important predictor of anxiety and depression (Grunfeld et al. 2004, Rhee et al. 2008, Papastavrou et al. 2009, Francis et al. 2010), and to be associated with poor physical health (Williams & McCorkle 2011, Shieh et al. 2012, Lee et al. 2013) and reduced quality of life (Hughes et al. 1999, Hudson & Payne 2011, Song et al. 2011). Furthermore, many of these outcomes extend into bereavement, increasing morbidity and mortality (Schulz & Beach 1999, Schulz et al. 2008, Kapari et al. 2010). "
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    ABSTRACT: Family caregivers of patients enrolled in home-based palliative care programmes provide unpaid care and assistance with daily activities to terminally ill family members. Caregivers often experience caregiver burden, which is an important predictor of anxiety and depression that can extend into bereavement. We conducted a longitudinal, prospective cohort study to comprehensively assess modifiable and non-modifiable patient and caregiver factors that account for caregiver burden over the palliative care trajectory. Caregivers (n = 327) of patients with malignant neoplasm were recruited from two dedicated home-based palliative care programmes in Southern Ontario, Canada from 1 July 2010 to 31 August 2012. Data were obtained from bi-weekly telephone interviews with caregivers from study admission until death, and from palliative care programme and home-care agency databases. Information collected comprised patient and caregiver demographics, utilisation of privately and publicly financed resources, patient clinical status and caregiver burden. The average age of the caregivers was 59.0 years (SD: 13.2), and almost 70% were female. Caregiver burden increased over time in a non-linear fashion from study admission to patient death. Increased monthly unpaid care-giving time costs, monthly public personal support worker costs, emergency department visits and low patient functional status were associated with higher caregiver burden. Greater use of hospice care was associated with lower burden. Female caregivers tended to report more burden compared to men as death approached, and burden was higher when patients were male. Low patient functional status was the strongest predictor of burden. Understanding the influence of modifiable and non-modifiable factors on the experience of burden over the palliative trajectory is essential for the development and targeting of programmes and policies to support family caregivers and reduce burden. Supporting caregivers can have benefits such as improved caregiver health outcomes, and enhancing their ability to meet care-giving demands, thereby potentially allowing for longer patient care in the home setting. © 2015 John Wiley & Sons Ltd.
    Full-text · Article · Mar 2015
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    • "Beyond the economics literature, the impact of care giving on the carer has been well documented. Caregivers have reported negative effects on their physical and mental health, finances, social life and leisure, as well as labour market participation (Pearlin et al., 1990; Kramer, 1997; Hughes et al., 1999; Schulz and Beach, 1999; Dunn and Strain, 2001; Savage and Bailey, 2004; Hirst, 2005; Yamazaki et al., 2005; Kenny et al., 2010). This has lead to another stream of literature which tries to incorporate the so-called quality of life impacts of informal caregiving. "
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    ABSTRACT: This paper estimates the impact of informal caregiving on self-reported well-being. It uses a sample of 23,285 respondents of the first eleven waves of the Household, Income and Labour Dynamics in Australia (HILDA). We apply a relatively new analytical method that enables us to estimate fixed effects ordered logit to analyse subjective well-being. The econometric estimates show that providing informal care has a negative effect on subjective well-being. The empirical evidence of our paper could be helpful to inform policy makers to better understand the impact of caregiving and design the appropriate long term care policies and support services.
    Full-text · Article · May 2014 · Journal of Health Economics
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