Educational needs of patients with advanced heart failure and their caregivers
At the time of initial transplant evaluation, we evaluated the information and counseling needs of 82 outpatients with advanced heart failure and compared them with the needs of 74 of their caregivers. Both groups answered a 23-item questionnaire, which used a 5-point Likert scale to assess needs across 6 sub-scales specific to heart failure and the process of determining transplant eligibility. The 5 most important learning needs of patients and caregivers were similar, and we found significant differences only in the groups' responses to 3 individual questions. We conclude that nurses can meet the needs of patients and their caregivers by providing honest explanations, focusing on enhanced quality of life issues, and giving information for dealing with an emergency.
[Show abstract] [Hide abstract] ABSTRACT: Living with patients of chronic diseases such as heart failure (HF) is a difficult situation for the caregivers. This study explored the Iranian family caregivers' burden of caregiving for patients with HF. Eighteen family caregivers of the HF patients from two governmental medical training centers in Isfahan, Iran were recruited using purposive sampling. Data were collected through face-to-face semi-structured interviews. Each interview was transcribed verbatim and was thematically analyzed concurrently. FOUR MAJOR THEMES EMERGED FROM THE ANALYSIS OF THE TRANSCRIPTS: Lack of care-related knowledge, physical exhaustion, psychosocial exhaustion, and lack of support. Family caregivers believed that they have little knowledge about the patients' disease, drugs, and how to perform caregiving roles. They experienced negative physical and psychosocial consequences of full-time and highly extended caregiving roles, such as musculoskeletal disorder, fatigue, and sleep disturbance, and a high level of anxiety, stress, and social isolation. Caregivers believed that they receive little familial and organizational support on the emotional and financial dimensions of caregiving. The findings of this study can be used by healthcare providers, especially nurses, to provide more effective social, informational, and professional support for family caregivers.0Comments 3Citations
- "These studies showed that HF caregivers faced with several challenges and needs in their caregiving. They mentioned the physical, psychosocial, educational, and financial needs of HF family caregivers. "
[Show abstract] [Hide abstract] ABSTRACT: This article describes carers' experiences of the support to them by a specialist heart failure nurse (SHFN) service working in the community. In particular, it focuses on the elements of the service they felt to be beneficial to them in their roles as carers. Four carers were interviewed in their own homes. From the interviews, three key themes emerged: education, rapport/ongoing suport and financial concerns. Overall, there was a high level of satisfaction regarding the education, and particularly the medication advice, the the SHFN provided. The role of the SHFN as a nurse prescriber was highly valued. Carers also appreciated the rapport they had with the SHFN. The case management approach was seen to enhance the relationship with the carer as the SHFN coordinated care throughout the patient's disease trajectory. In addition, participants held a great respect for the SHFN's clinical expertise and were reassured that support was available should they need it. Financial concerns led to the most emotive dialogue. The evaluation has outlined the important role that an SHFN can offer in supporting carers. As case managers, SHFNs work opportunistically and proactively to recognize carer fatigue and implement appropriate strategies. As the health service in England moves into a challenging economic climate of commissioning services, it is important that the added value SHFNs offer in supporting carers is recognized.0Comments 1Citation
- "The SHFN was identified as being an integral part of medication management and key to this was the role taken in prescribing medication to reduce demands on the carer. Alongside information and education, carers report a need to have open and honest dialogue to promote understanding of the disease progression (Walden et al, 2001; Aldred et al, 2005) Carers may acknowledge that heart failure is a serious medical condition but there is limited understanding of it being a chronic, incurable disease (Walden et al, 2001; Clark et al, 2008). Carers can feel isolated and out of control at times in their role. "
Linee guida per le attività di psicologia in cardiologia riabilitativa e preventiva Guidelines for psychology activities in cardiac rehabilitation and prevention Task Force per le Attività di Psicologia in Cardiologia Riabilitativa e Preventiva, Gruppo Italiano di Cardiologia Riabilitativa e Preventiva (GICR)* Task Force for Psychology Activities in Cardiac Rehabilitation and Prevention Italian Working Group on Cardiac Rehabilitation and Prevention (GICR)* Gruppo di Lavoro (Core Writing Group)[Show abstract] [Hide abstract] ABSTRACT: Guidelines for psychology activities in cardiac rehabilitation and prevention. Task Force for psychology activities in cardiac rehabilitation and prevention, Italian Work- ing Group on Cardiac Rehabilitation and Prevention (GICR) - Core Writing Group: M. Sommaruga, R. Tramarin (Chair- persons), E. Angelino, O. Bettinardi, M.A. Cauteruccio, M. Miglioretti, M. Monti, A. Pierobon, C. Sguazzin - Reviewers:0Comments 4Citations