The individual affective-cognitive evaluations are important factors that control the way he feels the disease impact in his life. Then, the perception of seizure control is a more important factor to evaluate Quality of Life (QoL) than the illness characteristics, such as the severity, type, sickening period and seizure frequency. This study searched for the relationship among the subjective variables (perception of seizure control) and the illness characteristics to evaluate QoL. The sample consisted of 60 individuals with chronic epilepsy, aging 18 to 70 (M=37.05; SD=11.25), chosen at randon from the ambulatory of epilepsy - HC/UNICAMP, by the Questionnaire 65. The illness characteristics were not significant, except the seizures frequency, when associated to the impairment in QoL among controlled seizures and seizures with frequency higher than 10 per month (p=0.021). The perception of control was significantly associated to QoL (p=0.005).
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[Show abstract][Hide abstract] ABSTRACT: This study searched for the knowledge of the most affected aspects in the quality of life (QoL) of patients with epilepsy. The sample consisted of 134 individuals with epilepsy, aging 18 to 59 years (M=35.38; DP=9.86) chosen at random from the Ambulatory of Epilepsy of HC/UNICAMP, interviewed by the QoL-65. Most of the subjects have not completed elementary school (58.2%), have not had any paid work (69.5%) and were single (48.5%). The most affected factor in epilepsy was the work area (31.29%), what reinforces studies showing the high level of unemployment or subemployment in epileptic population and aware to the importance of the insertion in the work-market as an economic and social integration factor and as a way of improving self-esteem.
Preview · Article · Jul 2002 · Arquivos de Neuro-Psiquiatria
[Show abstract][Hide abstract] ABSTRACT: To assess the epilepsy treatment gap in Campinas and São Josédo Rio Preto, two cities in the State of São Paulo, Brazil.
The treatment gap was estimated using the formula n1-n2/n1x100, where n1 was calculated using 1.86% prevalence and represented the number of individuals with epilepsy, while n2 represented the number of people who could be treated with an adult standard dose for a year utilizing the antiepileptic drugs supplied by the public health system.
Our estimates revealed that in 2001, approximately 50% of the population with epilepsy was treated with the recommended antiepileptic medication.
These results suggest that a relevant percentage of patients with epilepsy are not untreated. Further epidemiological studies are needed to investigate the reasons for this treatment gap so that interventions can reduce this gap and improve the quality of life of patients with epilepsy.
Full-text · Article · Oct 2004 · Arquivos de Neuro-Psiquiatria
[Show abstract][Hide abstract] ABSTRACT: The aim of this study was to study anxiety and depression in patients with epilepsy and evaluate their relationships with neuroepilepsy and psychological variables. neuroepilepsy and psychological variables. Sixty patients and 60 healthy subjects were interviewed at the outpatient clinic for epilepsy, using the Beck Depression Inventory and State-Trait-Anxiety Inventory. The objective of the semistructured interview was to identify the patients' perception of the disease, self-concept, personal strategies, and perception of seizure control. There was a significant difference in anxiety and depression between the groups, as well as a strong relationship between perception of seizure control and depression and anxiety, independently assessed. Epilepsy was associated with disease (63.4%), mental problems (11.6%), feelings of shame, fear, worry, and low self-esteem (56.6%), and perception of stigma (26.6%). The strategies were: looking for social support, seeking medical treatment, withdrawal, denial, and spiritual support. There was a significant association between psychological symptoms and perception of seizure control, which reinforces the importance of subjective aspects involved in epilepsy.
Preview · Article · Mar 2006 · Epilepsy & Behavior