“Positive Aspects of Caregiving: Rounding Out the Caregiver Experience,”

Department of Psychiatry, University of Toronto, Canada.
International Journal of Geriatric Psychiatry (Impact Factor: 2.87). 02/2002; 17(2):184-8. DOI: 10.1002/gps.561
Source: PubMed


To identify positive aspects of caregiving and examine how they are associated with caregiver outcomes.
This study used a national sample of caregivers derived from the Canadian Study of Health and Aging (part 2). Two hundred and eighty-nine caregivers caring for seniors living in the community were questioned about their experience of caregiving. Caregivers were asked whether they could identify any positive aspects related to their role, the type of positive aspects and to rate their feelings about caring. Using a conceptual model developed by Noonan and Tennstedt (1997), a staged stepwise multiple regression approach was used factoring the background/contextual variables, stressor variables (3 MS score, ADL limitations), mediator variables (positive aspects of caregiving, number of services used) and outcome variables (depression, burden and self-assessed health measures) into the model.
Two hundred and eleven caregivers (73%) could identify at least one specific positive aspect of caregiving. An additional 20 (6.9%) could identify more than one positive aspect. Positive feelings about caring were associated with lower CES-D scores ( p<0.001), lower burden scores ( p<0.001) and better self assessed health ( p<0.001).
Clinicians should inquire about the positive aspects of caregiving if they are to fully comprehend the caregiver experience and identify risk factors for negative caregiver outcomes.

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    • "Caregiving has the potential to be a source of positive transformations in people's lives and can give rise to a sense of satisfaction and meaningfulness, company, and joy for meeting their obligations and knowing that they are performing a vital and caring role for a loved one. Caregiving can be a rewarding experience and facilitate personal growing and maturity (Cohen et al., 2002;Given et al., 1992;Lawton, Kleban, Moos, Rovine, &amp; Glicksman, 1989;Lawton et al., 1991;Mendez-Luck, Kennedy, &amp; Wallace, 2008;Picot, Youngblut, &amp; Zeller, 1997). Among the most frequently studied positive aspects of caregiving, we are going to focus on satisfaction and quality of life. "
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    ABSTRACT: Previous research recently revealed the presence of positive aspects in caregiving. This study had a double objective: first, to identify positive aspects of family caregiving; second, to analyze the relationship between these caregiving rewards and different variables. A total of 140 family caregivers of dependent elderly participated in the study. Out of these, 79 of the elderly suffered dementia and 63 were institutionalized. Caregivers’ satisfaction and quality of life was above average. Those caregivers who perceived a good quality of relationship with their elder presented more satisfaction than the others. Problems in quality of life showed a positive relationship with the level of dependence of the elder. On the other hand, the more level of dependence of the elder, the greater the level of satisfaction of the caregiver. Those caregivers with a good relationship showed less provisional meaning than those with a normal or a bad relationship. We confirm the relevance of the caregiver-elder relationship, which can be improved and modified through specific preventive interventions. Our findings indicate that interventions for caregivers of people with dementia should explore ways to find meaning in caregiving.
    No preview · Article · Jul 2015 · Educational Gerontology
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    • "Furthermore, carers may undergo great burden, physical and psychological problems, and even increased risk of mortality [3] [4] [5] [6] [7]. However, carers may also experience positive feelings as a result of the care they provide [8] [9] [10]. Despite the relevance of these costs and effects, economic evaluations of health care interventions usually ignore them [11], which is equivalent to view informal care as a costless resource [12]. "
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    ABSTRACT: Objectives: To elicit willingness-to-accept (WTA) values for informal care based on the preferences of informal carers and noncarers. Methods: Two surveys were conducted with a sample of carers (n = 202) and a sample of noncarers (n = 200). Individuals in both groups were asked three questions in which they had to state the minimum monetary compensation they would require (WTA) if they had to look after a person described in a hypothetical scenario for one extra hour per day. Furthermore, carers were asked for the compensation they would demand if they had to be in charge of their actual care recipient for one extra hour per day. Results: No significant differences were found between the distributions of carers' and noncarers' WTA values. Overall, respondents' valuations were sensitive to and consistent with their preferences over the tasks to be carried out in the extra hour of informal care. On average, carers required a lower monetary compensation for one extra hour taking care of their loved one (mean/median WTA values €5.2/€4.5) than if they had to devote that time to look after the hypothetical care recipient (mean/median WTA values €6.4/€5.5). More than half of the carers stated the same value under the two caring situations, which suggests that carers' WTA values were influenced by their own experience providing informal care. Conclusions: Our results show that it is feasible to derive a monetary valuation for informal care from the preferences of noncarers.
    Full-text · Article · Jun 2015 · Value in Health
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    • "In one study, nearly 75% of caregivers of PWD could identify at least one caregiving benefit, including companionship, fulfillment, and enjoyment (Cohen, Colantonio, & Vernich, 2002). Further, caregivers reporting satisfaction with their role and greater benefit from caregiving also reported greater life satisfaction (Haley, Lamonde, Han, Burton, & Schowetter, 2003) and were less likely to experience depression, burden or poor health (Cohen et al., 2002). "
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    ABSTRACT: Spousal caregivers of persons with dementia often have difficulty engaging persons with dementia in leisure activities. This qualitative descriptive study identifies how caregivers perceive their spouses' participation in leisure activities since dementia onset and the professional guidance caregivers require to increase persons with dementia participation in shared leisure activities. Nine spousal caregivers from a hospital-based caregiver intervention attended one of three focus groups. Using symbolic interactionism and selective optimization with compensation theory as guiding frameworks, thematic content analysis was performed. Three major themes were identified: Recognizing and acknowledging changes, Making sense of changes and conflicts, and Embracing changes and forging ahead. Findings can be used by healthcare providers to better understand caregivers' needs for engaging persons with dementia in shared leisure activities, and inform development of feedback protocols to enhance caregiver interventions. © The Author(s) 2015 Reprints and permissions:
    Full-text · Article · Feb 2015 · Dementia
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