Project

SPHERE - Supporting Parenting at Home: Empowering Rehabilitation through Engagement

Goal: Parenting children with neurodevelopmentla disorders and disability is a daily challenge that may expose parents to increased risk of psychological and affective symptoms. For these parents understanding the communicative signals and the mind of their babies is often difficult. Video-feedback interventions are effective in promoting healthy development and the quality of parent-child relationship in the first months and years of life. Nonetheless, it is not always possible for parents to come to regular video-feedback visits as they may live far from centers that promote such powerful early intervention progams. This project aims to develop, deliver and assess for effectiveness a protocol for a videoconfering video-feedback intervention for parents of children with neurodevelopmental disorder.

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Project log

Serena Grumi
added a research item
Introduction. Infants with neurodevelopmental disabilities (NDs) show emotional, cognitive and sociointeractive dysregulation dramatically impacting on caregiving behaviour. Early video-feedback interventions (VFIs) are effective in promoting sensitive parenting, which in turn supports infants’ development, even in case of ND. In the light of limited resources of the healthcare systems, technological advances in telemedicine may facilitate the delivery of VFI to a greater number of families of infants with ND. To date, no study has implemented a telemedicine VFI (TVFI) for families of infants diagnosed with ND. Methods and analysis. The Supporting Parenting at Home-Empowering Rehabilitation through Engagement project is a randomised controlled trial aimed at assessing the effectiveness of an early family-centred TVFI parenting support on dyads with infants diagnosed with ND. It includes two arms (TVFI vs Booklet Psychoeducational Intervention) and three assessment phases: T0, baseline; T1, immediate postintervention; T2, 6-month follow-up. Ethics and dissemination. This study is funded by the Italian Ministry of Health and was approved by the Ethics Committee (Pavia). Results will be published in peer-reviewed journals and presented at national and international scientific conferences. Trial registration number. The study protocol has been also registered on NIH Clinical Trials (protocol code NCT04656483; Pre-results).
Livio Provenzi
added a research item
Parents of children with developmental disabilities face many daily challenges that can lead to emotional and affective problems, difficulties in caregiving, and partial mental representations about themselves and their children. The multi-faceted nature of these parents’ needs requires a multi-component approach that should include the analysis of priority support goals and the planning of tailored therapeutic actions. Despite different types of validated interventions are available, the choice of the most appropriate strategy to pursue a family-centered approach to support parents of infants with developmental disabilities is not obvious. In this scenario, we propose a multi-dimensional model, the porridge-like framework of parenting. It considers three interrelated domains in parents' experience – affective (A), behavioral (B), and cognitive (C) aspects – that are intertwined with the specific degree of the child's impairment (D). This ABCD model may provide professionals with pragmatically valid guidance to plan and deliver family-centered healthcare interventions. By covering the multi-dimensional nature of parenting challenges, it provides clinicians with conceptual categories to recognize the specific needs and to choose the most suitable therapeutic action to address them. In addition, it aims to promote an ethical approach to family-centered rehabilitation for children with developmental disabilities, maximizing the potentials of a collaborative assessment approach.
Livio Provenzi
added a research item
The Video-Feedback Intervention (VFI) is a technique aimed at promoting positive parenting that has been found to be supportive of child development and parent–child interaction in different at-risk and clinical populations. The application of VFI with parents of children with neurodevelopmental disabilities (ND; e.g., cerebral palsy, sensory and/or psychomotor delay, and genetic syndromes) is growing. Nonetheless, no systematic review is currently available documenting whether this type of intervention improves children’s developmental outcomes (e.g., behavioral stability and cognitive abilities), parental caregiving skills (e.g., responsive parenting), and parental emotional well-being (e.g., depressive symptomatology). In the present mini-review, 212 VFI records were retrieved from three databases (i.e., PubMed, Scopus, and Web of Science), and 10 papers were finally included. Abstracted information included age, diagnosis, methodological aspects (timing, setting, and themes), and child/parent outcomes. Significant improvements from pre- to post-VFI were observed in all studies. Specifically, the VFIs were significantly associated with better children developmental outcomes and parental caregiving skills. Inconsistent findings emerged for the VFI effects on parental emotional well-being. Overall, the current mini-review supports the potential effectiveness of parent-focused VFI interventions for parents of children with ND, despite the presence of open questions that need to be addressed in future clinical trials.
Livio Provenzi
added a project goal
Parenting children with neurodevelopmentla disorders and disability is a daily challenge that may expose parents to increased risk of psychological and affective symptoms. For these parents understanding the communicative signals and the mind of their babies is often difficult. Video-feedback interventions are effective in promoting healthy development and the quality of parent-child relationship in the first months and years of life. Nonetheless, it is not always possible for parents to come to regular video-feedback visits as they may live far from centers that promote such powerful early intervention progams. This project aims to develop, deliver and assess for effectiveness a protocol for a videoconfering video-feedback intervention for parents of children with neurodevelopmental disorder.