Project

Postpartum Voices: Research & Advocacy

  • Marie C. Hansen
  • Nev JonesNev Jones
  • Peri Zarella

Goal: The Postpartum Voices Project is dedicated to better understanding the experience of postpartum voices, extreme states and unusual beliefs from the perspectives of women with lived experience. What is conventionally referred to as ‘postpartum psychosis’ is a profoundly under-researched and widely misunderstood experience and there are currently few forms of intervention or support other than medications. Our goal is to increase our understanding of these experiences, explore their meaning and context, and develop better strategies for supporting mothers.

Methods: Qualitative Interview, Web-based questionnaire

Date: 1 January 2019

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Project log

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Consultant survey now open:
Postpartum psychosis, including voices, paranoia or extreme states experienced during or following pregnancy or birth, remains an extraordinarily under-researched and misunderstood topic. The voice of women with first-hand experiences are particularly under-represented in research. How can we better understand the subjective experience of postpartum psychosis - including the nature and content of postpartum voices, visions, and distressing beliefs, their
social meanings, and women's experiences of support and treatment?
Right now, we (TRP- Transforming Research through Participation Collaborative ) are soliciting feedback from the experts- women who have experienced postpartum psychosis, family members and healthcare professionals - regarding
research ideas and priorities.
If you have a view on what research should focus on, and how it should be done, please consider participating in our short consultation survey:
This consultation, which runs from September –December 2017, is led by Nev Jones, Marie C. Hansen and Angela Woods as part of the Transforming Research through Participation (TRP) collaborative. The feedback collated through this survey will be shared on the TRIP site and used to inform the design of a research study to be conducted in 2018.
 
Michele R Davidson
  • 18.93
  • Sentara College of Health Sciences
If you are interested in recruiting women with a previous diagnosis of PPP, please let me know. I am the Coordinator for PPP for PSI and am happy to place a recruitment survey notice on our Facebook page. You can also reach me at 703-298-3247.
 
Private Profile
added a project goal
The Postpartum Voices Project is dedicated to better understanding the experience of postpartum voices, extreme states and unusual beliefs from the perspectives of women with lived experience. What is conventionally referred to as ‘postpartum psychosis’ is a profoundly under-researched and widely misunderstood experience and there are currently few forms of intervention or support other than medications. Our goal is to increase our understanding of these experiences, explore their meaning and context, and develop better strategies for supporting mothers.