BUILD CARE (Building Support for Children and Families Affected by Stroke)
Goal: Childhood stroke alters the life of children and their families as care continues for many years after stroke onset. We aim to, for the first time, investigate the role of the built environment in the everyday life of children and families affected by this rare disease. We will examine both the informal (i.e. home, neighbourhood, school) and formal (i.e. hospital, rehabilitation clinic, outpatient clinic) care environments. Children and their families, healthcare professionals, and design practitioners will be involved in the project through ethnographic and participatory research methods.