
William GoossenResults 4 Care BV. · Research and Projects in Health Informatics
William Goossen
PhD
About
139
Publications
30,901
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Introduction
Current research interest include information architectures that are patient centered and use cloud based approaches and semantics.
Additional affiliations
January 2015 - December 2017
openMedicine.eu project
Position
- expert
Description
- Responsible for a comprehensive standards framework around the identification of medicinal products (IDMP). Work includes epSOS, Medicinal Product Dictionary, HL7, terminology, architectures, RM ODP, Contsys, archetypes, detailed clinical models and more.
September 2010 - June 2012
Publications
Publications (139)
application of artificial intelligence to nursing care planning using structured knowledge engineering.
This presentation was about three main standards influencing the Dutch strategy for electronic data exchange in health care.
ISO 13972 underpins the series of clinical information models that are currently used at national level for all domains as the foundation for chain of care, network of care and data reuse.
ISO 18104 has been instrumental to...
Introduction:
The electronically submitted data from midwives and hospitals to the Netherlands perinatal registry vary significantly in their data definitions, and electronic message versions. The purpose of this article is to describe the semantic cross-mapping tool and execution procedure to prepare the data for statistical analysis.
Methods:...
Presentatie over de aanlevering van gegevens aan Perined, de verschillende formaten en de Etraxt Transfer en Load procedure om de data in een Perinataal Data Ware House te krijgen. Vervolgens hoe met datamarts elk gebruiks doel wordt bediend met toestemming, data minimalisatie en de relevante subset. Vanuit de datamarts worden de verschillende rapp...
INTRODUCTION:
The Dutch perinatal registry required a new architecture due to the large variability of the submitted data from midwives and hospitals. The purpose of this article is to describe the healthcare information architecture for the Dutch perinatal registry.
METHODS:
requirements analysis, design, development and testing.
RESULTS:
The a...
Contains the proceedings of the 14th pHealth conference, held at TU/e Eindhoven, the Netherlands.
In the Netherlands, the perinatal registry has undergone significant changes in the past decades. The purpose of this article is to describe the current health care information architecture for the national perinatal registry, including how the national data set is arranged and how electronic messages are used to submit data. We provide implication...
Describes what nurses need to know about information sharing in a connected health IT environment.
Introduction:
The Dutch perinatal registry required a new architecture due to the large variability of the submitted data from midwives and hospitals. The purpose of this article is to describe the healthcare information architecture for the Dutch perinatal registry.
Methods:
requirements analysis, design, development and testing.
Results:
The...
This introduction to the book discusses how the topic of competencies for nurses in a world of connected health needs to be addressed at the curriculum level to achieve the specific competencies for various roles, including practicing nurse, nurse teacher, nurse leader, and nursing informatics specialists. It looks back at milestone publications fr...
The panel will share international Health Information Exchange (HIE) projects to improve quality and lower costs in healthcare communities (i.e. hospitals, clinician practices, and aged care facilities). HIE allows healthcare professionals and patients to appropriately access and securely share a patient's vital medical information electronically w...
The selection, implementation, and certification of electronic health records (EHR) could benefit from the required use of one of the established clinical model approaches.
Background: The exchange of clinical data between electronic health records is a challenge and need flexible models that adapt to clinical needs. Detailed Clinical Models (DCM) are used for this purpose, however, what is their quality? This paper's objective is to report on the application of an existing instrument to determine DCM quality. Methods...
Background:
The exchange of clinical data between electronic health records is a challenge and need flexible models that adapt to clinical needs. Detailed Clinical Models (DCM) are used for this purpose, however, what is their quality? This paper's objective is to report on the application of an existing instrument to determine DCM quality.
Metho...
The panel will share international Health Information Exchange (HIE) projects to improve quality and lower costs in healthcare communities (i.e. hospitals, clinician practices, and aged care facilities). HIE allows healthcare professionals and patients to appropriately access and securely share a patient's vital medical information electronically w...
Telehealth or eHealth can play an important motivational role in improving the patient's/citizen's physical condition and quality of life, and at the same time be an aid in monitoring a growing group of citizens with chronic diseases such as cardiovascular diseases and oncology. In this paper, we present an ICT architecture and key design requireme...
Korte presentatie over de manier waarop informatiebeveiliging in de zorg wordt vertaald van wetten naar een samenhangend stelsel van normen van ISO, CEN en NEN. Met name de NEN 7510 is onlangs omgezet naar toetsbare voorschriften waartegen kan worden gecertificeerd. De NEN 7515 is begin 2015 gepubliceerd.
Eine bekannte Herausforderung im Gesundheitswesen ist die Darstellung klinischer Daten und ihrer Bedeutung, um ihre Verwendung für unterschiedliche Zwecke zu erleichtern. Bewertungsskalen (Assessments), Scores oder auch Indizes, die entwickelt und für die klinische Praxis validiert werden, erfordern hierbei besondere Aufmerksamkeit. Diese Skalen, S...
Objectives
This paper will present an overview of the developmental effort in harmonizing clinical knowledge modeling using the Detailed Clinical Models (DCMs), and will explain how it can contribute to the preservation of Electronic Health Records (EHR) data.
Methods
Clinical knowledge modeling is vital for the management and preservation of EHR...
Unlabelled:
The Clinical Data Ware House needs to meet three functions: reporting quality indicators, clinical research, and continuity of care. This paper reports on one function, namely the development and testing of data exchange for continuity of nursing care for oncology patients. The proof of principle was carried out using system analysis,...
In healthcare a huge amount of assessment scales and score systems are in use to abbreviate and summarize the results of clinical observations to interpret a patient's condition in a valid and reliable manner. It is challenging to convey the information in a semantic interoperable form to other systems. A bad approach would be to invent individual...
This paper describes Health Level 7 (HL7) V.3 Care Transfer, Care Record Query, and Care Record messages. This is the core of the Care Provision Domain in the HL7 standard which became normative at the end of 2012 and is an American National Standards Institute (ANSI)-approved HL7 standard.
Using a message is somewhat different from the approach of...
Objective: The aim was to create a reliable information provisioning system in healthcare for both care and research processes, based on existing data standards and standardized electronic messages. The research question is: How can a Clinical Data Ware House (CDWH) be developed for standardized basic patient data, generic nursing data and data abo...
Compilation of two plus years of research in the form of proofs of principle to standardize nursing data through detailed clinical models and to import data from electronic health systems and other data sources in hospital to the clinical data ware house. Every (re)use of clinical data gets a separate data mart. Applies security measures through co...
Modeling clinical processes (and their informational representation) is a prerequisite for optimally enabling and supporting high quality and safe care through information and communication technology and meaningful use of gathered information.
The paper investigates existing approaches to clinical modeling, thereby systematically analyzing the und...
This chapter describes the need for Detailed Clinical Models for contemporary Electronic Health Systems, data exchange and data reuse. It starts with an explanation of the components related to Detailed Clinical Models with a brief summary of knowledge representation, including terminologies representing clinic relevant "things" in the real world,...
The IT-monitor gives an overview on the use and implementation of information technology (IT) in general and university hospitals in the Netherlands. Using the questionnaire, earlier applied in Germany and Austria, all Dutch hospitals were requested to participate, of which 20% responded. The results show that the introduction of IT is realised in...
Isala Clinics Hospital and Icare Homecare under leadership of Windesheim use a multi-method approach to standardize nursing data for oncology care based on Detailed Clinical Models (DCM), and use these DCM as requirements for the Electronic Health Record (EHR) system. Further, the DCM are used for extracting the data from EHRs into a Clinical Data...
Zorginstellingen hebben steeds meer behoefte aan standaardisatie
van data, terwijl het data- en applicatielandschap van zorgorganisaties
juist versnipperd is. De oplossing voor dit probleem is te vinden bij
de bron: de kleinst mogelijk klinische dataconcepten.
Methods 931 newborns where followed in the Dutch youth health records, during 2 years to detect children with a rare condition. The preventive scheme includes registration of pregnancy and delivery information, neonatal and vision screening, growth-, development and physical evaluation.
Results 12 children had been diagnosed because the child’s obv...
The electronic nursing record (ENR) as part of the larger electronic health record has been discussed for years. Its implementation is not that widespread as often considered. E.g. in the Netherlands, a fraction of hospitals uses it. This paper describes a nurse led project in a Dutch hospital where an electronic nursing record system has been defi...
Report about a survey amongst heads of IT departments in Dutch hospitals.
Dit artikel beschrijft de resultaten van een enquete in Nederland en in Duitsland t.a.v. de stand van zaken van ICT gebruik in ziekenhuizen. Er worden diverse categorieen ICT gebruik aangehaald, zoals EPD, uitwisseling en hergebruik van data.
With the move towards next generations of Electronic Health Record Systems (EHRS), the focus changes from administrative and data retrieval and data entry system capabilities towards clinical functions. The representation of the clinical knowledge and evidence base into EHRS becomes an important asset for health care, with its own challenges. Clini...
Due to the increasing use of electronic patient records and other health care information technology, we see an increase in requests to utilize these data. A highly level of standardization is required during the gathering of these data in the clinical context in order to use it for analyses. Detailed Clinical Models (DCM) have been created toward...
Over de rol van het EPD in de patientenzorg en wat de verpleegkundige daar aan heeft.
Discusses how a model driven architecture can benefit from detailed clinical models, which are on the most detailed level of the architecture, and which can be defined by clinicians.
The idea of two level modeling has been taken up in healthcare information systems development. There is ongoing debate which approach should be taken. From the premise that there is a lack of clinician's time available, and the need for semantic interoperability, harmonization efforts are important. The question this paper addresses is whether Det...
There is a growing need to exchange nursing related information electronically from one health care professional to another, crossing institutional, time and language boarders. Both continuity of care, care for populations, decision support and secondary use of patient data are valid uses of nursing information. Achieving electronic exchange of nur...
In wurden Veranstaltungskonzepte und die dazugehörigen elektro-nischen Materialien für eine Serie von acht curricular verankerten Kursen im Gesund-heitswesen entwickelt. Dabei kam eine Vielfalt unterschiedlicher elektronischer Medien bestehend aus Vorlesungsaufzeichnungen, Wikis, Übungsblätter, Diskussionsforen und Ablaufpläne zum Einsatz. Die elek...
Advances in information technology (IT) enable a fundamental redesign of health care processes based on the use and integration of electronic communication at all levels. New communication technologies can support a transition from institution centric to patient-centric applications. This white paper defines key principles and challenges for design...
Two level object modelling has been introduced in recent health care IT standards, such as Health Level 7 version 3, CEN/ISO 13606 and OpenEHR. Generic functions of electronic health records and electronic messages can be developed in such a way that they become independent of the clinical data, but allow its data management. Clinical data are elic...
The ROC van Twente offers nursing education at the diploma level (MBO), and is innovating the program to include a major/minor structure for education about care and technology. In order to achieve this, a new position was created: the Master Docent, Care and Technology. The task of the master docent includes development of education for nursing ab...
The International Standards Organization's (ISO) International Standard IS 18104 should assist the nursing profession to integrate their terminologies into computer systems and healthcare reference terminologies. The purpose of this study is to cross-map between different terminologies; that is, to determine if concepts in one terminology are simil...
For a project on development of an Electronic Health Record (EHR) for stroke patients, medical information was organised in care information models (templates). All (medical) concepts in these templates need a unique code to make electronic information exchange between different EHR systems possible. When no unique code could be found in an existin...
Electronic patient record (EPR) systems for the continuity of care for stroke patient are under development. These systems are based on standards such as for clinical practice, vocabularies, and the HL7 information model.
In order to achieve intelligent semantic interoperability, knowledge about evidence based patient care, vocabulary and informati...
Healthcare depends on evidence for practice and for electronic exchange of clinical patient information. To standardize the information that is being exchanged we created a format for describing care related information: a care information model. This model integrates knowledge, terminology and an information model. During a meeting between experts...
The new budget system for Dutch hospitals makes use of patient groups that are highly homogeneous in terms of diagnosis and treatment combinations (diagnose behandeling combinaties (DBC)). These DBCs are the Dutch DRG variants. The DBC mainly concerns medical care; nursing care is almost regarded as a constant factor. In this study the DBC is linke...
When people become patients, they place their trust in their health care providers. As providers assume responsibility for their diagnosis and treatment, patients have a right to expect that this will include responsibility for their safety during all aspects of care. However, increasing epidemiological data make it clear that patient safety is a g...
Since 1999, the Nursing Terminology Summits have promoted the development, evaluation, and use of reference terminology for nursing and its integration into comprehensive health care data standards. The use of such standards to represent nursing knowledge, terminology, processes, and information in electronic health records will enhance continuity...
The ISO IS 18104 is intended for helping the nursing profession to integrate their terminologies into computer systems and into larger health care reference terminologies. One purpose of the standard is to map between different terminologies.
This mapping was tested, using three terminologies that are relevant for nursing in the Netherlands. Concep...
The Dutch national ICT institute in healthcare (www.nictiz.nl) developed a domain information model for perinatology, to map to the Health Level 7 Reference Information Model (HL7 RIM). This model was constructed with the intention to make it reusable for other domains in order to achieve a national infrastructure based on the HL7 RIM. In two proje...
The Netherlands is developing a set of national domain information models to support electronic information exchange and electronic patient records (EPR). These domain information models aim to support the development, adoption, implementation and maintenance of the EPR in Dutch healthcare practice. This article describes the modelling for a pilot...
The Nursing Minimum Data Set for the Netherlands (NMDSN) describes nursing care based on nursing phenomena, interventions and outcomes. The validity and reliability of its data collection has not been tested yet.
Purpose: To report about the discriminative validity and the interrater reliability of the NMDSN.
Design: Data were collected in an inten...
This article describes the attempt that was made to fit nursing knowledge into the Reference Information Model developed by Health Level 7 (HL 7 RIM). A part of nursing knowledge concerning pressure ulcer was used to show the possibilities of modeling nursing knowledge, terminology, and information in the Health Level 7 Reference Information Model....
The purpose of this overview is to examine and illustrate the feasible options for the statistical analysis of nursing minimum data sets (NMDSs). After explaining the need for these data collections, examples from different countries are discussed and examples of the methods used for statistical analysis are summarized. Distinct purposes for inform...
The Care Dependency Scale (CDS) is an instrument for assessing functional care demands of psychogeriatric nursing home patients. The purpose of this study was to examine whether the CDS can be used on institutionalized elderly people other than psychogeriatric nursing home patients. Therefore, data were gathered on two different populations: reside...
The purpose of this article was to illustrate how nurses can contribute to the development and improvement of the International Classification for Nursing Practice (ICNP). It provides researchers and students with an example of how to submit terms to the ICNP Programme for review. The article provides a brief general background on the ICNP and expl...
Currently a national domain information model is developed to support information exchange via electronic patient records (EPR), and to support the adoption of the EPR in Dutch healthcare practice. This article describes a pilot for the domain information model for mother- and childcare (perinatology) that serves as a first 'use case'. The 'use cas...
VIZI and its successor NICTIZ (National ICT Institute for Healthcare) carried out a study to assess the status of ICT use in hospitals. The statutory obligation for the retention of care records and instructions was highlighted by the professional nursing institutions. Literature was studied to find out more about the contribution of nursing record...
To fulfil the need for a systematic collection of nursing data that give insight in nursing care and its benefits and costs, a nursing minimum data set (NMDS) has been developed and validated for Dutch general hospitals. A NMDS provides data describing the diversity in patient populations and variability in nursing activities that can be analysed i...
A nursing minimum data set (NMDS) provides data that are useful to legitimate nurses' contribution to healthcare. In Belgium and the US, such NMDS are operational, other countries are developing it, among which is the Netherlands.
To evaluate whether the nursing minimum data set for the Netherlands (NMDSN) is suitable to describe the diversity of p...
The purpose of this overview is to examine and illustrate the feasible options for the statistical analysis of the Nursing Minimum Data Set for the Netherlands. Distinct purposes for information use and for the presentation of information require different approaches for data collection and data analysis. Several explorative studies are discussed,...
The general goal of the reviews and research described in this thesis is to analyse the problems associated with information management and the use of information and communication technology in nursing. Based on this analysis, three tools are developed that allow addressing these problems, criteria for nursing information systems, a nursing inform...
Development of the Nursing Minimum Data Set for the Netherlands (NMDSN): identification of categories and items
Rationale Currently, there is no systematic collection of nursing care data in the Netherlands, while pressure is growing from the profession, policy-makers and society to justify the contribution of nursing and its costs. A nursing minim...
About research questions and research methods and designs in nursing informatics.
This paper describes why a module about health and nursing informatics is a necessary component for nursing education. Several developments in society and health care force health providers to manage the large amount of health data adequately. A module about health and nursing informatics was developed in international cooperation by three schools...
It is often argued that Nursing Minimal Data Sets (NMDSs) have advantages for the nursing profession. The NMDSs that have been developed and applied in some countries have many features in common, but there are differences in purpose, content, sampling, collection approach, and developmental stage as well. This paper examines the advantages and dis...
This paper describes how nursing informatics content will be integrated into the education of Advanced Nursing Practitioners at Masters level. Changes in health care, especially the need to deliver evidence based nursing care and the growing amount of health data, information and knowledge, require well educated Advanced Nurse Practitioners to lead...
: In many countries nurses lack an adequate tool to assist in determining the essentials of an information policy in health care institutions and to outline the nursing component of the electronic patient record. In the United States criteria exist for systems that support the nursing process and for the electronic patient record, and the United Ki...
Dutch nurses are confronted with health care information systems quite often. However, they do not take full advantage of electronic support for their care activities and professional development. The nursing process is often considered the core of nursing care delivery and guides the documentation of care. Currently, this process can be supported...