Veronica Swallow

Veronica Swallow
Sheffield Hallam University | SHU · Department of Nursing and Midwifery

PhD, MMedSci, RGN, RSCN

About

125
Publications
21,838
Reads
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1,924
Citations
Introduction
I am a Paediatric and Adult nurse whose research focusses mainly on the way children, families and health professionals share home-based clinical care of long-term childhood conditions
Additional affiliations
February 2016 - May 2020
University of Leeds
Position
  • Professor in Child and Family Health
January 2015 - February 2016
University of Leeds
Position
  • Associate Professor in Child, Young Person and Family Health Care
January 2007 - January 2015
The University of Manchester
Position
  • Professor (Associate)
Education
August 2000 - July 2006
Northumbria University
Field of study
  • Child Health

Publications

Publications (125)
Article
Aims and objective: To explore differences in nurses' attitudes regarding the importance of family in nursing care and factors associated with nurses' attitudes across 11 European countries. Background: Family involvement in healthcare has received attention in many European healthcare systems. Nurses have a unique opportunity to promote family...
Article
Full-text available
Introduction: The responsibility for managing a long-term condition (LTC) such as chronic kidney disease (CKD) typically transfers from parent to child, as children become older. However, children can find it challenging to become independent at managing their LTC, and evidence for how healthcare professionals (HCPs) support transfer of responsibi...
Article
Objective To describe four approaches to qualitative analysis in order to provide a pragmatic, application-oriented guide to their use in research focused on children and their families. Methods Four commonly used approaches to qualitative analysis—framework analysis, rapid qualitative analysis, content analysis, and reflexive thematic analysis—ar...
Article
Full-text available
Worldwide, the prevalence of chronic (or long-term) conditions in children and young people from birth to 18 years (children) is increasing. Promoting competent and effective self-management skills early in the trajectory is important to improve adherence to treatment and optimise quality of life. Successful self-management, therefore, requires par...
Article
Full-text available
Care coordination is a critical component of health management aimed at linking care providers and health-information-involved care management. Our intent in this scoping review was to identify care coordination needs of families of children with Down syndrome (DS) and the strategies they used to meet those needs, with the goal of contributing to t...
Poster
Full-text available
Poster (with pre-recording via the congress system) and live guided tour, delivered as part of HPR - adapting and individualising care poster tour at the 22nd Annual European Congress of Rheumatology. The poster summarised a realist evaluation identifying the factors facilitating the self- and shared-management of JIA by children, young people, the...
Poster
Full-text available
Poster (with pre-recording via the congress system) and live guided tour, delivered as part of PARE poster tour at the 22nd Annual European Congress of Rheumatology. The poster summarised patient and parent organisation services promoting self- and shared-management of JIA in the UK and Ireland.
Article
Full-text available
Background Various patient/parent organisations provide information, education, and support services to children and young people with JIA and their families. Some organisations are JIA/uveitis focused, while others are umbrella rheumatic and musculoskeletal disease (RMD) organisations or have a broader remit to long-term conditions (LTCs). However...
Article
Full-text available
Background Juvenile idiopathic arthritis (JIA) is a long-term condition, often requiring some element of lifelong management. Therefore, it is logical that children and young people are empowered to become competent at self-managing their health and wellbeing, while families are supported in their shared-management role during childhood, relinquish...
Article
Full-text available
Aim: To summarise reviews of family-focused care interventions that support families with a family member with a long-term condition across the life course. Design: Umbrella review. Data sources: Medline (1946- 2019), Cochrane Data Base of Systematic Reviews (2019), Database of Abstracts of Reviews of Effect and EMBASE (1947- 2019), CINAHL (19...
Article
Full-text available
Background The use of patient-facing health technologies to manage long-term conditions is increasing; however, children and young people may have particular concerns or needs before deciding to use different health technologies. Aims To identify children and young people’s reported concerns or needs in relation to using health technologies to sel...
Article
Objective Despite increased research into how caring for a child diagnosed with juvenile idiopathic arthritis (JIA) affects mothers, more needs to be known about ways in which such experiences transform their lives. Insight into the experiences of such mothers was sought through analysis of interviews with eight mothers and one father caring for a...
Conference Paper
Aims Developing self-management skills is part of growing up for many young people with long-term conditions (LTCs) such as chronic kidney disease (CKD). However, young people can find it challenging to become independent at managing their LTC and there is limited evidence for how health-care professionals (HCPs) can support this process. This stud...
Conference Paper
Background The responsibility for managing a long-term condition such as chronic kidney disease (CKD) typically transfers from parents to their child during adolescence. However, due to difficulties with self-managing their condition, some young people with CKD can experience poor health outcomes. Little is known about how health-care professionals...
Article
Full-text available
Purpose: The study aims were: (i) to convert the Research and Development Culture Index (a validated rating instrument for assessing the strength of organizational Research and Development culture) into electronic format (eR&DCI), and (ii) to test the format and assess the feasibility of administering it to the multidisciplinary (allied health pro...
Article
Congenital heart disease (CHD) is one of the common types of birth defects. Children and young people (CYP) with CHD might exhibit behavioural and emotional changes related to undergoing different medical treatments and hospitalization. Therefore, a literature review was conducted from January 2000 to June 2017 that aimed to understand and evaluate...
Presentation
Background and Purpose: International research collaboration in health care predicts quality in scientific knowledge development. Yet, information about the process and challenges of collaboration is limited. The purpose of this presentation is to share research collaboration processes from survey development to manuscript writing in an internation...
Article
Aim: This study aimed to identify the ways in which adolescents living with Type 1 diabetes and their parents communicate about Type 1 diabetes management with healthcare professionals in a clinical setting. Methods: Twenty-nine adolescents (aged 11-17 years) and their parents were purposively recruited from two outpatient clinics for non-partic...
Article
Full-text available
The aim of this review was to conduct a meta-synthesis of the experiences and perceptions of self-management of type 1 diabetes of children and young people living with type 1 diabetes (CYPDs). Six databases were systematically searched for studies with qualitative findings relevant to CYPDs’ (aged 8–18 years) experiences of self-management. A them...
Conference Paper
Aims Treatment of type 1 diabetes in adolescence requires input from parents to support the completion of complex multi-component self-management tasks in order to achieve optimal glycaemic control and maintain adolescent health and well-being. This study explored parents’ experiences of learning about their child’s type 1 diabetes including their...
Conference Paper
Aims Parents of adolescents living with type 1 diabetes often struggle with sharing self-management responsibility with their children as roles change throughout adolescence. Existing evidence suggests that parents’ own emotions may impact how responsibility is shared. Parent diabetes-related distress may lead to ineffective communication between p...
Article
Background Children and young people with long‐term conditions (LTCs) are usually dependent on, or share management with their families and are expected to develop self‐management skills as they mature. However, during adolescence young people can find it challenging to follow prescribed treatment regimens resulting in poor clinical outcomes. Thoug...
Article
Purpose: A deeper understanding was sought of what peer-based social support means to young people with juvenile arthritis within the UK and ways in which it could be best provided. Design and methods: A secondary analysis of underused, descriptively rich data relating to peer-based support contributed by young people with juvenile arthritis, th...
Article
Full-text available
Background: There is growing evidence that supporting self-management of Juvenile Arthritis can benefit both patients and professionals. Young people with Juvenile Arthritis and their healthy peers increasingly use mobile technologies to access information and support in day-to-day life. Therefore, a user-led, rigorously developed and evaluated mo...
Article
Purpose Transition to adult health and social-care services is a time of great uncertainty for young adults with life-limiting conditions; due to improved management, many who would have previously died before they were 18 years old are now surviving into early adulthood. Nevertheless, few services exist to meet their specific needs for specialist...
Article
Background: There is growing evidence that supporting self-management of chronic rheumatic disease (CRD) can benefit both patients and professionals. Young-people with CRD and their healthy peers increasingly use mobile technologies to access information and support in day-to-day life. Therefore, a user-led, rigorously developed and evaluated mobil...
Article
Full-text available
Title amended to: Identifying the self- and shared-management needs of children with juvenile idiopathic arthritis, their families and professionals: a realist approach Background For those diagnosed with long-term conditions in childhood, the skills needed to self-manage are not usually promoted until the child reaches adolescence. However, enco...
Poster
Full-text available
iSMART is a research study looking at ways in which children, aged 4 to 11, with chronic disease are able to look after their own health, with the support of their families, friends, healthcare professionals and teachers. This poster was presented as part of the poster session at the International Children’s Advisory Network (iCAN) Research and Adv...
Presentation
Background/Purpose: The purpose of this study was to define family nursing from a global perspective as perceived by family nurse researchers. Bronfenbrenner’s bioecological perspective guided the study. Methods: A mixed methods design with survey methods was used. Family nurse researchers (n=42) who understand written English and who are members...
Article
Background Mobile apps for mobile phones and tablet devices are widely used by children and young people aged 0-18 years with long-term health conditions, such as chronic kidney disease (CKD), and their healthy peers for social networking or gaming. They are also poised to become a major source of health guidance. However, app development processes...
Article
Background The development and evaluation of Online Parent Information and Support (OPIS) involved the creation of a web resource for parents who needed support for the home-based management of their child's chronic kidney disease (CKD).
Chapter
This chapter focuses on how clinical practitioners and leaders make decisions and the relevance and significance of decision making for clinical leaders and for care and services delivery. It outlines the theoretical background underpinning clear, effective decision making, explores why decisions sometimes go wrong and considers how clinical leader...
Article
Background: An exploration of children and young people's views on a proposed web-based application to support personal management of chronic kidney disease at home is important for developing resources that meet their needs and preferences. Methods: As part of a wider study to develop and evaluate a web-based information and support application...
Article
Background: There is limited evidence about the effectiveness of occupational therapy interventions for participation outcomes in children with coordination difficulties. Developing theory about the interventions, i.e. their ingredients and change processes, is the first step to advance the evidence base. Aim: To develop theory about the key ingred...
Article
Aim: The aim of the Narrative Review was to explore the patient experience following cardiac surgery and nursing care. Methodology: A Narrative Review was used to integrate the indings of different types of evidence in order to gain an understanding of the patient’s experience of cardiac surgery and nursing care. Three key databases were searched;...
Article
Full-text available
Aim: The aim of the Narrative Review was to explore the patient experience following cardiac surgery and nursing care. Methodology: A Narrative Review was used to integrate the findings of different types of evidence in order to gain an understanding of the patient’s experience of cardiac surgery and nursing care. Three key databases were searched;...
Article
Background: The natural response to the intrusive bodily sensation is positional change. This study explored how children and young people (CYP) with intellectual disabilities had their comfort needs met when using adaptive positioning equipment. Methods: Thirteen qualitative case studies were undertaken. A parent, a teacher/key worker and a the...
Article
Full-text available
Introduction: Health policy advocates that professionals involve parents in care and care decisions, yet models advocating involvement are not embedded into practice. Aim: Identify the shared antecedents and key attributes associated with embedding family-centred care (FCC) and partnership-in-care (PiC) into practice. Methods: A concept synthe...
Article
Background: Few evidence-based, on-line resources exist to support home-based care of childhood long-term conditions. Methods: In a feasibility study, children with stages 3, 4 or 5 chronic kidney disease, parents and professionals collaboratively developed a novel Online Parent Information and Support (OPIS) application. Parents were randomized to...
Article
Full-text available
Background: The prevalence of physical chronic or long-term conditions in adolescents aged 10-24 years is rising. Mobile phone and tablet mobile technologies featuring software program apps are widely used by these adolescents and their healthy peers for social networking or gaming. Apps are also used in health care to support personal condition ma...
Presentation
Full-text available
The aim of this presentation was to outline current policy approaches to public empowerment in healthcare research, illustrating this with one example of a collaborative research partnership between researchers and people living with long-term conditions.
Conference Paper
Full-text available
Background Prevalence of long-term conditions is rising in young people. Mobile technologies featuring software program applications or ‘apps’ are well used by young people for social networking and gaming. Apps are being increasingly utilized in health contexts. This systematic review’s objective was to assess the effectiveness of smartphone and...
Conference Paper
Full-text available
Aims/Objectives To outline current policy approaches to public empowerment in health-care research To illustrate one example of a collaborative health-care professional/patient partnership in a research project Background INVOLVE, the UK National Institute of Health Research advisory group for patient and public involvement, identified six values...
Conference Paper
Full-text available
Background: The use of mobile devices is commonplace among young people. There is scope to develop this technology to support the needs of those with long-term health conditions (LTCs). Young people need support to become independent and be able to self-manage their condition. The mobile app would be a valuable tool in this process. However, there...
Article
Objective To determine children and young people's (CYP) views on desirable components for a proposed interactive health communication application (IHCA) to promote personal and family management of their long-term condition/s. Methods Participants were selected using purposive sampling based on sex, age and condition type. We conducted qualitativ...
Article
Full-text available
This review aimed to (1) identify parents' learning needs and preferences when sharing the management of their child's long-term/chronic (long-term) condition and (2) inform healthcare professional support provided to parents across the trajectory. We conducted a literature search in seven health databases from 1990 to 2013. The quality of included...
Article
Full-text available
Aims The purpose of the paper is to present a recently completed, multicentred project, the Parent Learning Needs and Preferences Assessment Tool (PLAnT) study, in which we designed, developed and pre-piloted a tool to promote a standardised, multi-disciplinary approach to assessing parents’ learning needs/preferences. Health-care professionals spe...
Article
Full-text available
Background and purpose Effective collaboration between nurses and families is fundamental to supporting children with long-term conditions and their families. The family-centred care model is widely espoused as an effective framework that facilitates parents’ involvement in their child’s care (Smith et al, 2015). The implementation and evaluation o...
Article
Full-text available
Background Families living with chronic childhood conditions face multiple challenges and parents have previously identified the need for an interactive health communication application (IHCA) to improve their condition management ability. We developed, and evaluated in a feasibility randomised controlled trial the OPIS (online parent information a...
Article
Full-text available
Background: The prevalence of long-term or chronic conditions that limit activity and reduce quality of life in young people aged 10-24 years is rising. This group has distinct health care needs and requires tailored support strategies to facilitate increasing personal responsibility for the management of their condition wherever possible, as they...
Conference Paper
aims We developed a novel, long-term condition-specific Interactive Health Communication Application, the on- line parent information and support (OPIS) to promote parents’ home-based management ability. We aimed to assess feasibility of a future full-scale randomised clinical trial (RCT) of OPIS in terms of recruitment, retention and data collecti...
Article
Full-text available
Long-term childhood conditions are often managed by hospital-based multidisciplinary teams (MDTs) of professionals with discipline specific expertise of a condition, in partnership with parents. However, little evidence exists on professional-parent interactions in this context. An exploration of professionals' accounts of the way they individually...
Article
Full-text available
Families living with chronic or long-term conditions such as chronic kidney disease (CKD), stages 3-5, face multiple challenges and respond to these challenges in various ways. Some families adapt well while others struggle, and family response to a condition is closely related to outcome. With families and professionals, we developed a novel condi...
Article
Full-text available
Families living with chronic or long-term conditions such as chronic kidney disease (CKD), stages 3-5, face multiple challenges and respond to these challenges in various ways. Some families adapt well while others struggle, and family response to a condition is closely related to outcome. With families and professionals, we developed a novel condi...
Poster
Full-text available
Although young people are frequent users of mobile devices in day-to-day life, there is little reliable research that actually involves young people with long-term conditions as partners in the development and testing of mobile technology applications to support their health needs. However, the transition from child to adult health services means t...
Conference Paper
Full-text available
Although young people are frequent users of mobile devices in day-to-day life, there is little reliable research that actually involves young people with long-term conditions as partners in the development and testing of mobile technology applications to support their health needs. However, the transition from child to adult health services means t...
Article
Full-text available
Background/aims We developed a novel, long-term condition-specific Interactive Health Communication Application, the on- line parent information and support (OPIS) to promote parents’ home-based management ability. We aimed to assess feasibility of a future full-scale randomised clinical trial (RCT) of OPIS in terms of recruitment, retention and da...
Article
Full-text available
Background Interactions between parents and healthcare professionals are essential when parents of children with chronic conditions are learning to share expertise about clinical care, but limited evidence exists on how they actually interact. This paper discusses the use of focused ethnography in paediatric settings as an effective means of explor...
Article
Full-text available
Background: Few evidence-based, on-line resources exist to support home-based care of childhood long-term conditions. Methods: In a feasibility study, children with stages 3, 4 or 5 chronic kidney disease, parents and professionals collaboratively developed a novel Online Parent Information and Support (OPIS) application. Parents were randomized...
Article
Full-text available
Background Parents of children and young people with long-term conditions who need to deliver clinical care to their child at home with remote support from hospital-based professionals, often search the internet for care-giving information. However, there is little evidence that the information available online was developed and evaluated with pare...
Article
Full-text available
Background: Long-term childhood conditions are often managed by hospital-based multidisciplinary teams (MDTs) of professionals with discipline specific expertise of a condition, in partnership with parents. However, little evidence exists on professional-parent interactions in this context. An exploration of professionals' accounts of the way they...
Article
Full-text available
Background: Differing doctoral supervision models currently exist. Three key conceptual supervisory models relevant to doctoral students from within the healthcare professions were identified from a literature review: the 'functional pre-modern' model, the 'team' model and the 'community group' model. However, whilst these models exist, for the mos...