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56
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Introduction
Current institution
Additional affiliations
July 2018 - present
February 2014 - June 2018
Publications
Publications (56)
Background
Refusals of care in dementia are common and can create difficult situations for caregivers. Little is known about the best way to manage them.
Aim
To identify possible strategies and interventions to reduce or cope with refusals of care in dementia, and determine the evidence for these.
Methods
We searched MEDLINE, CINAHL, PsycINFO, EM...
Background and Objectives
Refusals of care in dementia can be a source of distress for people with dementia and their caregivers. Informant-based measures to examine refusals of care are limited and often measure other behaviours such as agitation. We aimed to assess the validity and reliability of the newly developed, 14-item, Refusal of Care Info...
Policy guidance promotes supporting people to live in their own homes for as long as possible with support from homecare services. People living with dementia who need such support can experience a range of physical and cognitive difficulties, which can increase the risks associated with homecare for this group. We aimed to examine risk and safety...
Background:
People with dementia sometimes refuse assistance with personal care activities such as washing or dressing. We aimed to investigate the factors associated with refusals of care in advanced dementia.
Methods:
A cross-sectional study using informant-based measures. Participants were people with advanced dementia and their caregivers (f...
Background and objectives
Personal care interactions can provide vital opportunities for caregivers to engage with a person living with advanced dementia. However, interactions may also be a contentious experience, what makes this so is not fully understood. We aimed to examine features of personal care interactions between caregivers and people wi...
Background
Public involvement is crucial to ensure research is relevant and addresses the needs of its target population. However, care home residents, a potentially vulnerable group, are often excluded from research that could directly benefit them. This systematic review examined the existing literature on public involvement approaches in researc...
Background and Objectives: As low and middle-income countries face a rapid increase in their older adult populations, the demand for informal caregiving is expected to rise. Understanding caregiving dynamics in these settings is crucial for developing effective support systems.
Aims: To investigate whether the frequency and duration of care provide...
Anticipatory grief (AG) in family carers of people living with motor neurone disease (MND) is underexplored. Research has identified MND symptoms as significant predictors of AG in carers. This study investigated whether carer psychological inflexibility moderates the relationship between MND symptoms and carer AG, a crucial area for informing supp...
Background
Hip fracture has a substantial impact on the health, well-being and independence of patients and their families. In the 12 months after fracture, patients are at increased risk of cognitive and functional decline, admission to long-term care institutions and higher mortality. People with cognitive impairment are among the most vulnerable...
INTRODUCTION
Little is known about the factors associated with care‐resistant behavior in community‐dwelling persons living with dementia.
METHODS
Regression modeling was performed on 41,143 responses to a standardized questionnaire from the National Alzheimer's Coordinating Center's Uniform Data Set.
RESULTS
In the fully adjusted mixed‐effects r...
Introduction
People with dementia develop progressive difficulties conducting basic activities of daily living, often requiring considerable assistance from caregivers. Many people with dementia, particularly in the advanced stages, can refuse assistance with care leading to difficult interactions. The ways in which refusals of care can be best red...
Introduction
As people with dementia progressively experience difficulties when performing daily tasks, family carers often become the main providers of support. Little is known about the role of carer support during task performance. Therefore, Occupational Therapy interventions are often underinformed in this area. Knowledge of how carers assist...
Purpose of review
Alongside motor and cognitive symptoms, amyotrophic lateral sclerosis (ALS) and ALS with frontotemporal dementia (ALSFTD) present with behavioural symptoms, which can be challenging for all affected by the disease. A scoping review of studies published between 2011 and 2024 was conducted to present the breadth of behavioural sympt...
Objective:
To investigate the effect of carer- and disease-related factors on anticipatory grief (AG) in family carers supporting people living with Motor Neurone Disease.
Methods:
Seventy-five carers from the UK and USA participated in this cross-sectional study, between July 2021 and February 2023. Participants completed assessments on: antici...
Objective:Personal care interactions can provide important opportunities for caregivers to engage with a person living with advanced dementia but may also prove to be a difficult experience; why this so is not completely understood. We aimed to examine the person’s engagement and refusals of care in personal care interactions and identify both succ...
Background
Various intrinsic and extrinsic dementia factors have been suggested to contribute separately to disability in people with dementia (PwD). Objective: To investigate if the combination of specific intrinsic and extrinsic factors at baseline can predict longitudinal declines in activities of daily living (ADL) performance of PwD at 12‐mont...
Background. Family carers of people living with motor neurone disease (MND) face continuous changes and losses during the progression of the disease, impacting on their emotional
wellbeing. Carers’ emotions might affect their engagement in everyday activities and their caring role. However, how carers manage their emotions and which strategies they...
Background
Various intrinsic (related to dementia) and extrinsic (not related to dementia) factors have been suggested to contribute separately to disability in people living with dementia (PLwD).
Objective
To investigate if the combination of specific intrinsic and extrinsic factors at baseline is associated with longitudinal declines in activiti...
Aims:
The aim of this study was to explore the experiences, values and preferences of people living with relapsing multiple sclerosis (PLwRMS) focusing on their treatments and what drives their treatment preferences.
Methods:
In-depth, semi-structured, qualitative telephone interviews were conducted using a purposive sampling approach with 72 PL...
The purpose of this mixed methods systematic review was to identify factors associated with anticipatory grief, post-death grief, and prolonged grief in informal carers of people living with Motor Neuron Disease (MND) to inform future research and practice. Six electronic databases were searched and two quantitative and eight qualitative studies we...
Background
Delivering care to growing numbers of patients with increasingly ‘complex’ needs is currently compromised by a system designed to treat patients within organizational clinical specialties, making this difficult to reconfigure to fit care to needs. Problematic experiences of people with cognitive impairment(s) admitted to hospitals with a...
Objectives
To determine how, and under what circumstances, the PERFECT-ER intervention was implemented in five acute hospital wards and impacted on staff practices and perceptions.
Design
Mixed methods process evaluation (undertaken between 2016 and 2018).
Setting
Five acute hospital wards across three different UK regions.
Participants
Patients...
Organisational priorities for health care focus on efficiency as the health and care needs of populations increase. But evidence suggests that excessive planning can be counterproductive, leading to resistance from staff and patients, particularly those living with cognitive impairment. The current paper adds to this debate reporting an Institution...
Background and objectives
Caregivers may encounter, or inadvertently cause, refusals of care by a care recipient. Managing refusals of care can be challenging and have potential negative consequences. We aimed to examine caregivers’ (care-home staff and family carers) experiences of managing refusals of personal care in advanced dementia.
Research...
Background
The identification and understanding of the discrepancy between caregivers’ reports of people with dementia’s (PwD) performance of activities of daily living (ADLs) and observed performance, could clarify what kind of support a PwD effectively needs when completing tasks. Strategies used by caregivers have not been included in the invest...
Little is known about risk management in homecare for people with dementia. We aimed to gain an understanding of the ways in which homecare workers assess and manage risk whilst caring for people with dementia in their own homes. We conducted a qualitative interview study with 17 homecare workers assisting people with dementia with their personal c...
The aim of this study was to compare perceptions of learning from the COVID-19 pandemic and beliefs in subsequent changes for the future, among care home and home care staff, in four European countries. A 29-item on-line questionnaire was designed in English and later translated into Swedish, Italian, and German on the impact of the pandemic on str...
Objectives
Assess feasibility of a cluster randomised controlled trial (RCT) to measure clinical and cost-effectiveness of an enhanced recovery pathway for people with hip fracture and cognitive impairment (CI).
Design
Feasibility trial undertaken between 2016 and 2018.
Setting
Eleven acute hospitals from three UK regions.
Participants
284 parti...
Purpose
Research ethics committees (RECs) and ethical standards govern research. To conduct research involving participants, researchers must first gain a favourable opinion on their protocol from a REC. This paper aims to promote researcher reflexivity and openness about applying agreed ethical protocols in practice.
Design/methodology/approach
U...
The COVID-19 pandemic has affected care workers all over the globe, as older and more vulnerable people face a high risk of developing severe symptoms and dying from the virus infection. The aim of this study was to compare staff experiences of stress and anxiety as well as internal and external organizational support in Sweden, Italy, Germany, and...
Home‐care workers are increasingly caring for clients living with dementia. Workers usually have limited dementia training and are low paid and often lone working. Little is known about how home‐care workers assist people with dementia with their personal care. We aimed to explore the experiences of home‐care workers and the knowledge and skills th...
Background
Refusals of assistance with personal care in dementia can be a major source of distress for people living with dementia and their caregivers.
Aims
This article examines refusals of care and considers ways of minimising them.
Methods
Summary of factors related to refusals of care.
Findings
Refusals of care in dementia are common, can o...
Context: The work presented in this paper was undertaken during the first three months of the COVID-19 crisis in the UK.
Objectives: The project is aimed to respond to questions and concerns raised by front-line care staff during this time, by producing research-based ‘Top Tips’ to complement emerging COVID-19 policy and practice guidelines.
Method...
The United Kingdom-Brazil Dementia Workshop took place in July 2019 in the city of Belo Horizonte, MG, Brazil, with an interdisciplinary group of health and care professionals from the United Kingdom and from Brazil to address challenges in diagnosis, public perception and care of dementia. The aim of this article is to present the results identifi...
Within health and social care, academic attention is increasingly paid to understanding the nature and centrality of body work. Relatively little is known about how and where body work specifically fits into the wider work relations that produce it in healthcare settings. We draw on ethnographic observations of staff practice in three National Heal...
This overview aimed to systematically synthesize evidence from existing systematic reviews to signpost practitioners to the current evidence base on nonpharmacological interventions to improve depression, anxiety, and quality of life (QoL) in people with dementia and to discuss priorities for future research. The databases MEDLINE, PsycINFO, Scopus...
Enhanced Recovery Pathways (ERPs) are based on the premise that evidence-based medicine can be brought to bear on a sequence of events to maximise throughput, productivity and quality in healthcare (in this case orthopaedic care in acute hospital settings). However, what is usual care is less well described in the literature and many health and car...
Background
Behavioral crises in dementia are represented by a wide variety of symptoms, regularly require external intervention from professionals, and are reported as a risk factor for hospital admission. Little is known about the factors that are associated with them.
Objective
To determine the factors associated with dementia-related behavioral...
Background
Health and social care provision for an ageing population is a global priority. Provision for those with dementia and hip fracture has specific and growing importance. Older people who break their hip are recognised as exceptionally vulnerable to experiencing confusion (including but not exclusively, dementia and/or delirium and/or cogni...
Older people and their families consistently place high value on hospital care which promotes personalised relationships between staff and patients; often termed Person-Centred Care (PCC). PCC features in care guidelines from across Europe, North America and the Asia-Pacific region, evidencing the value placed on approach emphasising ‘personhood’ e...
Care-home residents with dementia can experience behavioural and psychological symptoms such as aggression, agitation, anxiety, wandering, calling out and sexual disinhibition. Care-home staff have a duty to keep residents safe. However, residents with dementia can pose particular challenges in this area. In this paper, we draw on a study which exp...
Full text available here: https://academic.oup.com/ageing/article/45/6/856/2499227
Background
antipsychotic medications have been used to manage behavioural and psychological symptoms of dementia (BPSD). Due to the potential risks associated with these medications for people with dementia, non-pharmacological interventions (NPIs) have been recomme...
Background: patient and public involvement (PPI) in research can enhance its relevance. Older care-home residents are often not involved in research processes even when studies are care-home focused.
Objective: to conduct a systematic review to find out to what extent and how older care-home residents have been involved in research as collaborators...
Objectives: To determine the prevalence of antipsychotic use in care homes. To explore which behaviours care home staff can find difficult to manage and which non-pharmacological interventions are currently used within care homes to help cope with behavioural and psychological symptoms of dementia. Method: A postal survey sent to all care homes reg...
