Sylvie D Lambert

Sylvie D Lambert
McGill University | McGill · Ingram School of Nursing

PhD

About

145
Publications
42,179
Reads
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4,782
Citations
Citations since 2017
73 Research Items
3415 Citations
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20172018201920202021202220230200400600
20172018201920202021202220230200400600
Additional affiliations
June 2020 - present
McGill University
Position
  • Professor (Associate)
August 2013 - May 2020
McGill University
Position
  • Professor (Assistant)
September 2011 - July 2013
UNSW Sydney
Position
  • NHMRC Research Fellow

Publications

Publications (145)
Article
Full-text available
Purpose The aim of this study was to evaluate the quality, readability, suitability, and usefulness of resources publicly available to adult cancer survivors (aged 18 +) who have completed primary treatment. Methods Resources were identified in July 2021 through Google. Search completeness was verified using Yahoo, Bing, and MedlinePlus. Retrieved...
Article
Full-text available
Background: Psychometrically sound measures of chronic disease self-management tasks are needed to improve identification of patient needs and to tailor self-management programs. This study aimed to develop and conduct a preliminary psychometric analysis of the CanSMART questionnaire among a diverse, multimorbid Canadian population. Methods: The...
Article
Full-text available
Background Detecting anxiety in oncology patients is important, requiring valid yet brief measures. One increasingly popular approach is the Patient Reported Outcomes Measurement Information System (PROMIS); however, its validity is not well established in oncology. We assessed the convergent and criterion validity of PROMIS anxiety measures in an...
Article
In the management of most chronic conditions characterized by the lack of universally effective treatments, adaptive treatment strategies (ATSs) have grown in popularity as they offer a more individualized approach. As a result, sequential multiple assignment randomized trials (SMARTs) have gained attention as the most suitable clinical trial desig...
Article
Full-text available
Background The Identification of Seniors at Risk (ISAR) screening tool is a widely-used risk stratification tool for older adults in the emergency department (ED). Few studies have investigated the use of ISAR to predict outcomes of hospitalized patients. To improve usability a revised version of ISAR (ISAR-R), was developed in a quality improvemen...
Article
Full-text available
A range of anxiety measures is used in oncology but their comparability is unknown. We examined variations in measurement across three commonly used instruments: Hospital Anxiety and Depression-Anxiety subscale (HADS-A); Depression, Anxiety, Stress Scale - Anxiety subscale (DASS-A); and Generalised Anxiety Disorder scale (GAD-7). Participants (n =...
Article
Objectives Identify the key effective components of a depression self-care intervention. Methods Secondary analysis of data from 3 studies that demonstrated effectiveness of a similar depression self-care intervention (n=275): 2 studies among patients with chronic physical conditions and 1 among cancer survivors. The studies used similar tools, an...
Article
Full-text available
Background: Prostate cancer is the most common cancer diagnosis among men. Family caregivers (often female spouses) play a key role in ensuring patients' needs are met, frequently assuming their role with no formal training, which can contribute to a high burden. The purpose of this study was to pilot TEMPO-the first dyadic, Tailored, wEb-based, p...
Preprint
Full-text available
Background: The Identification of Seniors at Risk (ISAR) screening tool has been used primarily to predict adverse outcomes among older patients in the emergency department (ED). Few studies have investigated the use of ISAR to predict outcomes of hospitalized patients. To improve the usability of ISAR, the revised ISAR (ISAR-R) was developed in a...
Article
Full-text available
PurposeThe present analysis explores whether demographic, psychosocial, or intervention adherence factors moderated treatment efficacy of Finding My Way (FMW), an efficacious self-directed web-based psychosocial program for newly diagnosed curatively treated cancer patients.Methods Participants (n = 191) completed a 6-module intervention (n = 94) o...
Article
Full-text available
Background: Chronic diseases are the leading cause of death worldwide. It is estimated that 20% of adults with chronic physical diseases experience concomitant depression, increasing their risk of morbidity and mortality. Low intensity psychosocial interventions, such as self-management, are part of recommended treatment; however, no systematic re...
Article
Full-text available
Purpose Fear of cancer recurrence (FCR) may be equally prevalent, persistent and burdensome in cancer caregivers as in survivors. This systematic review evaluated FCR prevalence, severity, correlates, course, impact and interventions in cancer caregivers. Methods Electronic databases were searched from 1997 to May 2021. Two reviewers identified el...
Article
Full-text available
In Canada, people from culturally and linguistically diverse (CALD) backgrounds are at a greater risk of developing a chronic illness, and are more likely to experience adverse health effects and challenges in accessing high-quality care compared with Canadian-born individuals. This, in part, has been attributed to having inadequate access to infor...
Article
Context: With advancements in mobile technology and increased access to smartphones, the use of Mobile Health applications (apps) has surged. These apps provide an innovative avenue for supporting cancer caregivers who face increasing burden and lack formal support; however, the quality of these apps is rarely evaluated. Objectives: Evaluate the...
Article
Objective To assess the feasibility and acceptability of using a Sequential Multiple Assignment Randomized Trial (SMART) to optimize the delivery of a web-based, stress management intervention for CVD patients. Methods 59 patients with a CVD and moderate stress were randomized to a self-directed web-based stress management program (n = 30) or the...
Article
Full-text available
PurposeOpal is a new patient-centered mobile application that gives cancer patients access to their real time medical data in conjunction with disease- and treatment-specific patient education material. Few studies have focused on patients’ experiences with such mobile applications. This study’s objectives were to (1) explore cancer patients’ perce...
Article
Background Caregivers experiencing depression or caring for people experiencing depression are at risk of high burden. This systematic review examined the effect of non-pharmacological interventions for caregivers that (a) target improving caregivers’ depressive symptoms, (b) help caregivers manage the depressive symptoms of the person for whom the...
Article
Objective The aims of this study were to evaluate the readability, suitability, and quality of publicly available online self-management (SM) resources for people with cancer. Methods Resources were identified using two strategies: a) a targeted search of 20 Canadian organizations and b) a Google search. These were evaluated using the Suitability...
Article
Full-text available
PurposeThe PACIC assesses key components of the Chronic Care Model. The purpose of this study is to examine the dimensionality and psychometric properties of the PACIC.MethodsA convenience sample of 221 adults in Canada who self-identified as living with one or more physical and/or mental chronic diseases was invited to participate via an online su...
Article
Full-text available
Background Prostate cancer predisposes patients and caregivers to a wide range of complex physical and psychosocial challenges, and interventions must incorporate a wide range of self-management strategies to help patients and their caregivers effectively cope with cancer challenges. To palliate this need, our team recently developed and evaluated...
Preprint
Full-text available
Background: Chronic diseases are the leading cause of death worldwide. It is estimated that 20% of adults with chronic physical diseases experience concomitant depression, increasing their risk of morbidity and mortality. Low intensity psychosocial interventions, such as self-management (SM), are part of recommended treatment; however, no systemati...
Article
PURPOSE Depression in post-treatment cancer survivors is common and can impair quality of life. CanDirect is a novel, telephone-delivered depression self-care intervention for cancer survivors. We conducted a randomized controlled superiority trial to compare CanDirect with usual care (UC) in this population. METHODS Participants completing cancer...
Article
Objective To review the effectiveness of health education interventions adapted for culturally and linguistically diverse (CALD) populations with a chronic illness. Methods A systematic review and meta-analysis were conducted. Eligible studies were identified across six databases. Data were extracted and intervention effect was summarized using st...
Article
Full-text available
Caregivers of men with prostate cancer report high burden, and there is a need to develop cost-effective programs to support them in their roles. This study reports on the acceptability of a dyadic, Tailored, wEb-based, psychosocial and physical activity (PA) self-Management PrOgram called TEMPO. TEMPO was accessed by a convenience sample of 19 men...
Article
Full-text available
Both men with prostate cancer and their caregivers report experiencing a number of challenges and health consequences, and require programs to help support the cancer patient–caregiver dyad. A tailored, web-based, psychosocial and physical activity self-management program (TEMPO), which implements behavior change techniques to help facilitate behav...
Article
Full-text available
Objective: This study explored the perceptions, needs and preferences for chronic disease self- management (SM) and SM support among men experiencing homelessness. Design: A qualitative interpretive approach was used. Eighteen semi-structured interviews were conducted with 18 homeless men with a chronic disease at an emergency overnight shelter...
Article
Background: The International Psycho-Oncology Society (IPOS) is a multidisciplinary professional network that aims to improve psychosocial care for individuals impacted by cancer. IPOS encourages research activity, recognizing that a high-quality evidence base is essential to provide best-practice, data-driven clinical care. This study aimed to de...
Article
Full-text available
Abstract Objective To test the psychometric properties of the Dutch 45-item Supportive Care Needs Survey—Partners and Caregivers (SCNS-P&C45-D) among partners of women with breast cancer living in the Netherlands. Methods In this cross-sectional validation study, partners of patients with breast cancer were invited to complete a survey on the patie...
Article
Full-text available
Objective Measuring self-management helps identify the degree of participation of people in the management of their chronic conditions and guides clinicians in determining person-centred priorities for providing support. The Partners in Health scale, a self-report generic questionnaire, was developed to capture the self-management of patients with...
Article
Objectives: Among Canadian adults with chronic disease: 1) to identify groups that differ in self-management task frequency and self-efficacy; 2) to compare group characteristics and preferences for self-management support. Methods: Using data from an online survey, cluster analysis was used to identify groups that differed in self-management ta...
Article
Full-text available
Purpose This multicentre randomised controlled trial examined the efficacy of Finding My Way (FMW), a 6-week/6-module online self-guided psychotherapeutic intervention for newly diagnosed curatively treated cancer survivors, in reducing cancer-related distress and improving quality of life compared to an online attention control. Methods Participa...
Article
Informal caregivers are the primary source of support for cancer patients, providing assistance with household tasks, medical care and emotional support. These responsibilities often result in high levels of emotional, physical, social and financial burden for the caregiver. The aim of this study was to perform a scoping review exploring what is kn...
Article
Objective: To evaluate online depression self-management (SM) resources based on their readability, suitability, and quality to determine their appropriateness for use by patients. Methods: A Google search using patients' most frequently searched terms was conducted. Resources were evaluated using readability indices, the Suitability Assessment...
Article
Objective Evaluate the suitability, readability, quality, and usefulness of publicly available online resources for cancer caregivers. Methods Resources identified through a Google search and environmental scan were evaluated using the Suitability Assessment of Materials (SAM), an online readability text analysis tool, the DISCERN (quality), and c...
Article
Full-text available
PurposeWith an increased investment in psychosocial caregiving research, it becomes critical to establish the need for data of key stakeholders and future strategic directions. The purpose of this international Delphi study was to engage caregivers, clinicians, researchers, and managers to identify priority topics for caregiver research in cancer c...
Article
Full-text available
Objectives To explore the information needs of caregivers of culturally and linguistically diverse (CALD) patients, and how they access and understand health information related to the management of their care person's chronic illness(es). Background Caregivers of CALD patients experience greater unmet needs compared to the general caregiver popul...
Article
Full-text available
PurposeMesothelioma is an insidious disease with a generally poor prognosis even after invasive treatment. This qualitative study aimed to explore the experiences of patients suffering from mesothelioma and their carers and their perceptions of how their needs may be addressed. Methods Eligible patients and carers were identified by a lung cancer c...
Article
Full-text available
Introduction Cancer is often considered a chronic disease, and most people with cancer have a caregiver, often a family member or friend who provides a significant amount of care during the illness trajectory. Caregivers are frequently in need of support, and a range of interventions have been trialled to improve outcomes. Consensus for optimal way...
Article
RÉSUMÉ Objectif : Évaluation (faisabilité, acceptabilité, pertinence et bienfaits potentiels) d’une intervention de transition pour proches aidants. Méthode: L’intervention visait à fournir du soutien émotionnel, de l’information sur les ressources communautaires et du soutien au développement des capacités d’adaptation pour les proches aidants de...
Article
Full-text available
Introduction Colorectal cancer is associated with considerable physical and psychosocial burden. Whilst social support is known to facilitate psychological adjustment to cancer, patients’ and caregivers’ experiences of social support within a treatment setting and their perceptions of the role of the treating team in providing this support is unkno...
Article
Objectives To examine: 1) whether patient characteristics predict perceived self-management support (usefulness of information and collaborative care planning) by primary care providers after six months, and 2) the association between perceived self-management support and patient activation at 6 months Methods We conducted a secondary analysis amo...
Article
Background: Cancer is often called a “we-disease” as the effects of the diagnosis can go beyond the patient to others, including the caregiver. In Australia, it is estimated that approximately 138,000 new cancer diagnoses will be made in 2018, with the 5 year survival rate currently at 68%. This has shifted the way that cancer care is delivered, wi...
Article
Full-text available
Objective To describe fertility‐related informational needs and practices, and to examine if demographic characteristics are related to these needs and practices. Methods A needs assessment survey was conducted at three Canadian cancer centres. Results 192 male cancer patients (Mage=33.6) completed the survey. Most patients (70%) recalled having...
Article
Full-text available
Background: Fear of cancer recurrence (FCR) is reportedly common, persistent, associated with significant morbidity and often higher in cancer caregivers than cancer patients. This review will summarise empirical research on FCR to understand its prevalence, severity, correlates, course and impact in families and caregivers of adults diagnosed wit...
Article
Full-text available
Background: Despite numerous reports of significant distress and burden for hematopoietic stem cell transplantation (HSCT) patients and caregivers (CGs), HSCT-specific coping interventions remain rare. The few in use lack specificity and are often not easily accessible or cost-effective. Whereas the development of new interventions is resource-int...
Article
While burden in cancer caregivers is high and associated with poor outcomes, little is known about significance of specific supportive care needs’ domains in determining survivors’ or caregivers’ perceived caregiver burden. This cross‐sectional study explored which domains of survivor‐ and caregiver‐reported supportive care needs were most associat...
Article
Full-text available
Purpose: To assess the convergent validity of the Patient-Reported Outcomes Measurement Information System (PROMIS) depression measures relative to legacy measures and criterion validity against a structured diagnostic interview for depression in an oncology sample. Methods: 132 oncology/haematology outpatients completed the PROMIS Depression Co...
Article
Objective: Caregiver research has relied on composite measures (e.g., count) of unmet supportive care needs to determine relationships with anxiety and depression. Such composite measures assume that all unmet needs have a similar impact on outcomes. The purpose of this study is to identify individual unmet needs most associated with caregivers' a...
Article
Background: With the burden of chronic illness increasing globally, self-management is a crucial strategy in reducing healthcare costs and increasing patient quality of life. Low income and low health literacy are both associated with poorer health outcomes and higher rates of chronic disease. Thus, self-management represents an important healthca...
Article
Full-text available
Objectives A high proportion of care stemming from chronic disease or disability in low-income and middle-income countries is provided by informal caregivers. The goal of this study was to determine the level of burden experienced by these caregivers, explore associated factors and assess whether caregivers’ and non-caregivers’ health differed. De...
Article
Supported self-care interventions are a low-intensity treatment for depression that has received little research attention in the cancer population. This is a phase II intervention only study to test the feasibility, acceptability and preliminary effectiveness of a depression self-care intervention for cancer patients who have completed their prima...
Article
Purpose: To examine (a) approaches used by oncologists to administer the Palliative Care Needs Assessment Tool (PC-NAT) in consultations with patients with advanced cancer and their caregivers, (b) potential of this tool to facilitate discussion of psychosocial issues, and (c) whether use of the tool alters the length of consultations. Design: A qu...
Article
Objective The cost of implementing professionally-led psychosocial interventions has limited their integration into routine care. To enhance the translation of effective psychosocial interventions in routine care, a self-administered format is sometimes used. The meta-analysis examined the efficacy of written self-administered, psychosocial interve...
Article
In 2015, approximately 2.7 million Australians were unpaid caregivers, including partners, family members, friends and neighbours. However, the true population of Australian caregivers may be under-estimated due to lack of carer self-identification, and this may be even more so for Australians of culturally and linguistically diverse backgrounds an...
Article
La dépression est un problème répandu, sérieux, et souvent chronique chez les aînés, qui sont souvent atteints de maladies physiques chroniques, et affecte de façon négative leurs traitements et leurs soins. Malheureusement, le taux de détection et de suivi adéquat de la dépression est faible dans cette population. Au cours des deux dernières décen...
Article
Full-text available
PurposeWhile online interventions are increasingly explored as an alternative to therapist-based interventions for cancer-related distress, limitations to efficacy potentially include low uptake and adherence. Few predictors of uptake or adherence to online interventions have been consistently identified, particularly in individuals with cancer. Th...
Conference Paper
Transitions between diagnosis, treatment and survivorship are psychologically stressful for cancer patients. As a values-based intervention, emphasising return to functional living, ACT may improve wellbeing in this population. This study investigates associations between ACT components and patient-reported outcomes in a cohort of cancer patients....
Article
Full-text available
Background Sample selection can substantially affect the solutions generated using exploratory factor analysis. Validation studies of the 12-item World Health Organization (WHO) Disability Assessment Schedule 2.0 (WHODAS 2.0) have generally involved samples in which substantial proportions of people had no, or minimal, disability. With the WHODAS 2...
Article
Introduction: Despite being the 6(th) cause of cancer death in Australia, cancer of unknown primary (CUP) site remains poorly understood. Aims: To describe practices relating to the diagnosis, investigation, classification, communication and management of CUP amongst medical oncologists. Methods: We invited all members of the Medical Oncology...
Article
Objectives To describe unmet needs of caregivers of hospitalized older adults during the transition from hospital back home, and identify subgroups with different needs. Methods Patients and family caregivers were recruited from an acute care hospital in Montreal, Canada. Measures included Instrumental Activities of Daily Living (IADL), Hospital A...
Article
Objective: Identify the trajectories of physical and mental functioning among spouse caregivers of patients with cancer over the first five years post-diagnosis and variables associated with low or deteriorating functioning. Methods: Caregivers completed a survey at 6 months and 1, 2, 3.5, and 5 years post-patient diagnosis, including the SF-12...
Article
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Background Patients who undergo surgery for cancer of the head and neck and their families face complex and difficult challenges and are at risk of anxiety and depression and inability to cope with symptom and treatment burden. Information available to support them is not flexible enough to adjust to individual need. Design/Methods A randomised cl...
Article
Full-text available
Background Many men lack knowledge about male infertility, and this may have consequences for their reproductive and general health. Men may prefer to seek health information online, but these sources of information vary in quality. Objective The objective of this study is to determine if online sources of information regarding male infertility ar...
Conference Paper
Background: The end-of-treatment transition period is psychologically stressful for cancer survivors. As a values-based intervention, focused on finding meaning and return to functional living, Acceptance and Commitment Therapy (ACT) may improve well-being in this population. This study will explore: (i) which components of the ACT framework predic...
Chapter
Caregiving by a family member or a friend is critical in maintaining and improving the health and well-being of individuals living with cancer, and in reducing demands on the health care system. The increased prevalence of cancer and co-morbidities is applying pressure on already stretched cancer care resources and high-quality cancer care now reli...