Susan Coote

Susan Coote
University of Limerick | UL · Department of Clinical Therapies

PhD

About

152
Publications
26,663
Reads
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2,396
Citations
Citations since 2016
87 Research Items
1838 Citations
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Introduction
The aim of my research programme is to optimise the use of physiotherapy and exercise interventions to reduce symptom severity and improve quality of life for people with Multiple Sclerosis and other neurological conditions living in the community.
Additional affiliations
September 2003 - present
University of Limerick
January 2001 - September 2003
Trinity College Dublin
Position
  • Research Assistant

Publications

Publications (152)
Article
Full-text available
Background Neurogenic lower urinary tract dysfunction is an abnormality in the presence of underlying neurologic disease. A recent systematic review and meta-analysis demonstrated that storage phase symptoms are the predominant symptoms among people with multiple sclerosis (PwMS). Transcutaneous tibial nerve stimulation (TTNS) is a non-invasive tre...
Article
Objective To investigate the impact of the COVID-19 pandemic on physical activity (PA) in persons with multiple sclerosis (PwMS). Design and Setting A multi-centre international online survey study was conducted within 11 participating countries. Each country launched the survey using online platforms from May to July 2021. Participants This was...
Article
Background: Given the high incidence of falls and their associated negative effects, the development of effective falls prevention interventions for people with Multiple Sclerosis (MS), Parkinson's Disease (PD) and stroke is a priority. Currently the implementation of condition-specific falls prevention interventions is challenging in the community...
Article
Background The impact of the COVID-19 pandemic on physical therapy services for people with multiple sclerosis (pwMS) is unknown. Therefore, the Special Interest Group for Mobility (SIG Mobility) of the European Network for Best Practice and Research in Multiple Sclerosis Rehabilitation (RIMS) has undertaken the initiative to examine the impact of...
Article
Full-text available
Background: Understanding the experiences of people with MS taking part in physical activity interventions is critical to inform future interventions. Aim: The aim was to gain insight into the experiences of people with MS taking part in a behavior change group physical activity intervention with a novel social cognitive theory component. Metho...
Article
Background: Given the high incidence of falls and their associated negative effects, the development of effective falls prevention interventions for people with Multiple Sclerosis (MS), Parkinson's Disease (PD) and stroke is a priority. Currently the implementation of condition-specific falls prevention interventions is challenging in the community...
Article
Full-text available
Background The implementation of condition-specific falls prevention interventions is proving challenging due to lack of critical mass and resources. Given the similarities in falls risk factors across stroke, Parkinson’s Disease (PD) and Multiple Sclerosis (MS), the development of an intervention designed for groups comprising of people with these...
Preprint
Full-text available
Background: Neurogenic lower urinary tract dysfunction is an abnormality in the presence of underlying neurologic disease. A recent systematic review and meta-analysis demonstrated that storage phase symptoms are the predominant symptoms among people with multiple sclerosis (PwMS). Transcutaneous tibial nerve stimulation (TTNS) is a non-invasive tr...
Article
Purpose An exploratory qualitative study investigating participants’ experiences of a feasibility study of supervised and home-based Pilates. Methods All 10 females who participated in an eight-week supervised (n = 4) or home-based Pilates (n = 6) program were invited and agreed to be interviewed. Data were collected via semi-structured interviews...
Article
Full-text available
Background Symptoms of anxiety, depression and fatigue are common comorbidities among persons with multiple sclerosis (PwMS). A previous pilot study supported Pilates as a feasible exercise modality that may improve these outcomes among PwMS. Objective To quantify the effects of 8 weeks of home-based Pilates on symptoms of anxiety, depression and...
Technical Report
Full-text available
This policy brief describes children and young people's experiences of living with Developmental Coordination Disorder. It provides recommendations for Irish health and education services. 1. Irish health and education policy is focused on inclusion of children in school as a priority outcome. Future service developments should target friendship a...
Article
Full-text available
Background To date services for children with Developmental Coordination Disorder (DCD) have not been informed by the perspective of children with DCD. This study aimed to synthesise the findings of discrete qualitative studies reporting the lived experiences views and preferences of children and young with DCD using a meta-ethnographic approach to...
Article
Purpose Urinary symptoms are highly prevalent among people with MS. This study aimed to explore the experiences of people with MS and HCPs in managing urinary symptoms and explore their views on using TTNS to treat urinary symptoms. Materials and methods Audio-recorded semi-structured, interviews were employed with people with MS and HCPs. All tra...
Article
Full-text available
Background Children with developmental coordination disorder (DCD) face significant challenges to deal with everyday activities due to underlying motor proficiency difficulties. These challenges affect children and young people’s participation; that is, involvement in daily life situations. Recent years have seen a growing body of qualitative resea...
Article
Objective To identify risk factors for falling for people with Multiple Sclerosis. Design Prospective cohort study. Setting Neurology service in a tertiary hospital. Subjects Participants were 101 people with Multiple Sclerosis and Expanded Disability Status Score of 3-6.5. One participant withdrew after the baseline assessment; data were analys...
Article
Background: Falls are common among people with neurological diseases and have many negative physical, psychosocial and economic consequences. Implementation of single-diagnosis falls prevention interventions is currently problematic due to lack of participants and resources. Given the similarities in falls risk factors across stroke, Parkinson’s Di...
Article
Background Children with developmental coordination disorder (DCD) face significant challenges to deal with everyday activities due to underlying motor proficiency difficulties. These challenges affect children and young people’s participation; that is, involvement in daily life situations. Recent years have seen a growing body of qualitative resea...
Article
Falls are highly prevalent for people with Multiple Sclerosis (MS) and result in a range of negative consequences such as injury, activity curtailment, reduced quality of life, increased need for care and time off work. This narrative review aims to summarize key literature and to discuss future work needed in the area of falls prevention for peopl...
Article
Background: Neurogenic lower urinary tract dysfunction (NLUTD) is common among people with multiple sclerosis (MS) with a pooled prevalence of 68.41% using self-report measures and 63.95% using urodynamic studies. Transcutaneous tibial nerve stimulation (TTNS) is a non-invasive option to manage bladder storage symptoms; however, the potential effic...
Article
Introduction Children and young people with developmental coordination disorder experience multiple occupational performance and participation challenges across environments. Research to date has not fully explored occupational therapy practice with children with developmental coordination disorder and their families. This study aims to describe cu...
Article
Full-text available
Background Children with developmental coordination disorder (DCD) face significant challenges to deal with everyday activities due to underlying motor proficiency difficulties. These challenges affect children and young people’s participation; that is, involvement in daily life situations. A small body of qualitative research has explored the expe...
Article
Purpose: To identify the definitions of a fall, faller classifications and outcomes used in prospectively-recorded falls research among people with Multiple Sclerosis (MS). Methods: A systematic review of peer-reviewed journal articles was conducted using electronic databases. Relevant data were extracted by one reviewer and verified by a second in...
Article
Background: Approximately 56% of people with multiple sclerosis (pwMS) will fall in any three-month period with the potential for physical, psychological and social consequences. Falls prevention research for pwMS is in its infancy with a timely need to develop theory-based interventions that reflect the complexity of falls. The clear articulation...
Article
Full-text available
Background Evidence supports positive effects of exercise on mental health outcomes among people with Multiple Sclerosis (PwMS). However, non-traditional exercise modes like Pilates remain understudied. Objective This study will investigate the effects of an eight-week immediate start home-based Pilates compared to delayed-start control condition...
Article
Background: Falls are common among people with neurological diseases and are associated with many negative physical, psychosocial and economic consequences. Implementation of single diagnosis falls prevention interventions is currently problematic due to lack of participants and resources. Given the similarities in falls risk factors across stroke,...
Article
Full-text available
Objectives To provide clinicians who treat multiple sclerosis (MS) patients with evidence-based or expert opinion–based recommendations for promoting exercise and lifestyle physical activity across disability levels. Methods The National MS Society (“Society”) convened clinical and research experts in the fields of MS, exercise, rehabilitation, an...
Article
Full-text available
Exercise as a subset of physical activity is a cornerstone in the management of multiple sclerosis (MS) based on its pleotropic effects. There is an exponential increase in the quantity of research on exercise in MS, yet a number of barriers associated with study content and quality hamper rapid progress in the field. To address these barriers and...
Article
Purpose: To examine the possible contributions of capability, opportunity, and motivation for explaining long-term physical activity among people with multiple sclerosis and to report the results of a German survey study. Methods: The questionnaire, which was based on an expert interview study and behavior change theory, was structured and detailed...
Article
Background: No published study, to our knowledge, has systematically reviewed the prevalence estimates of lower urinary tract symptoms (LUTSs) and LUTS types in the general multiple sclerosis (MS) population. Therefore, a systematic review and a meta-analysis were conducted to determine the totality of literature investigating the prevalence of LU...
Article
Full-text available
Background: Neurogenic lower urinary tract dysfunction (NLUTD) is defined as a lower urinary tract dysfunction secondary to confirmed pathology of the nervous system. NLUTD is common in people with multiple sclerosis (MS), with prevalence estimates ranging from 49% to 92%. Managing NLUTD is complex and can be comprised of pharmacological and non-ph...
Article
Full-text available
Stroke is among the leading causes of death and disability worldwide. Poststroke cognitive impairment is a common sequela of stroke. The burden of cognitive impairment poststroke has significant impacts on the individual poststroke, their family and wider society. Despite the prevalence and associated burden of poststroke cognitive impairment, the...
Article
Background: Multiple sclerosis (MS) is one of the most prevalent diseases of the central nervous system with recent prevalence estimates indicating that MS directly affects 2.3 million people worldwide. Fall rates of 56% have been reported among people with MS in a recent meta-analysis. Clinical guidelines do not outline an evidence-based approach...
Article
Full-text available
Children with developmental coordination disorder (DCD) face significant challenges to deal with everyday activities due to underlying motor proficiency difficulties. These challenges affect children and young people’s participation; that is, involvement in daily life situations. In the past, limited consideration was given to personal experience o...
Article
Introduction Developmental coordination disorder affects a child’s motor abilities and participation across environments. This study aimed to review systematically the effectiveness of interventions using a motor, cognitive or psychological approach on participation outcomes in children with developmental coordination disorder. Method A systematic...
Article
Objective Evidence supports benefits of exercise for mental health among people with Multiple Sclerosis (PwMS). However, non-traditional exercise modes like Pilates remain understudied. This eight-week randomized pilot trial explored indicators of feasibility of supervised or home-based Pilates compared to wait-list control on mental health outcome...
Article
To explore the relationship between dual-task cost and falls in people with multiple sclerosis. One hundred participants completed a falls screening questionnaire, Timed Up and Go (TUG), and TUG-Cognitive (TUG-C) at baseline. Dual-task cost was the percentage change in performance between TUG and TUG-C. Falls were recorded prospectively for 3 month...
Article
Objectives: Treatment for progressive multiple sclerosis (pMS) is a key area of research. To date, whether MS type and the rehabilitation setting are associated with worse or better response to rehabilitation is unclear. We aimed to understand the association between balance and MS type, in/outpatient treatment and specificity of the intervention....
Article
Full-text available
Purpose: To explore the views of experts on facilitators and barriers of long-term physical activity among people with multiple sclerosis living in different European countries. Methods: We conducted semi-structured telephone or face to face interviews with twelve multiple sclerosis and physical activity experts (scientists, practitioners, patie...
Article
Background: There are mixed reports on the effectiveness of strength training to improve gait performance in people with multiple sclerosis (MS), yet the reasons for these inconsistent results are not clear. Therefore, a critical review was conducted to explore dosage, frequency, mode, position, and muscle targets of studies that have included str...
Article
Full-text available
Objective: To investigate discriminative ability and clinical utility of the Timed Up and Go under single- and dual-task conditions between fallers and non-fallers in multiple sclerosis (MS). Design: Prospective cohort study. Setting: Neurology service in a tertiary hospital. Subjects: Participants were 101 people with MS and Expanded Disabi...
Article
Purpose To quantify physical activity (PA) levels in people with Multiple Sclerosis (pwMS) using objective measurement and to establish using a meta‐analytical approach if pwMS are less active than the general population. Methods A systematic search of 8 databases was conducted. Cohort and intervention studies which included an objective measure o...
Article
Full-text available
Increasing physical activity (PA) through exercise is associated with improvements in many of the symptoms associated with multiple sclerosis (MS) such as fatigue, strength, balance, and mobility. Despite this, people with MS remain largely inactive. Interventions that are grounded in theory and that aim to change PA behavior need to be developed....
Article
Full-text available
Background: Multiple sclerosis (MS) is a neurological condition that can affect the postural stability of the individual and predispose falls in this population. Methods: A systematic literature search identified case-control studies investigating differences in postural control across a diversity of task conditions, with the exception of gait, be...
Article
Full-text available
Objective: To investigate the bivariate correlations between objective physical activity (PA), self-efficacy, and a range of multiple sclerosis (MS) symptom measures. Also, to determine whether any MS symptom measures moderate the relationship between self-efficacy and PA. Method: Baseline analysis from a randomized control trial exercise plus a...
Article
Objective: To systematically review the literature on behavioural interventions for people with Multiple Sclerosis (pwMS) that aim to change physical activity (PA) behaviour. To explore if these interventions are clinically-effective in improving PA, theory-based and employ established behaviour change techniques (BCTs). Data sources: A systemat...
Article
Full-text available
Objective: To determine the ability of clinical measures of balance to distinguish fallers from non-fallers and to determine their predictive validity in identifying those at risk of falls. Data sources: AMED, CINAHL, Medline, Scopus, PubMed Central and Google Scholar. First search: July 2015. Final search: October 2017. Review methods: Inclus...
Article
Full-text available
Objective To investigate feasibility of multiple sclerosis (MS) exercise guidelines for inactive people with MS (PwMS) and to examine preliminary efficacy for walking. To investigate effect of augmenting that intervention with education based on social cognitive theory (SCT). Design Pilot multicentre, double-blind, randomised, parallel, controlled...
Article
Full-text available
There is a need to identify modifiable risk factors for falls in people with multiple sclerosis (MS) to enable the design of successful falls prevention interventions. There is conflicting evidence regarding the association between medication use and occurrence of falls in MS. A total of 101 people with MS had medications classified using the Anato...
Article
Full-text available
Introduction Psychosocial contributors to fall risk for people with multiple sclerosis are often overlooked in falls prevention practice. This study explored several fall-related, psychosocial variables and their association with falls self-efficacy in a sample of people with multiple sclerosis reporting a fall. Method A cross-sectional, structure...
Article
Full-text available
Purpose: Evidence supports that physical activity (PA) improves symptoms of multiple sclerosis (MS). Although application of principles from Social Cognitive Theory (SCT) may facilitate positive changes in PA behaviour among people with multiple sclerosis (pwMS), the constructs often explain limited variance in PA. This study investigated the exte...
Article
Full-text available
Background Recent exercise guidelines for people with multiple sclerosis (MS) recommend a minimum of 30 min moderate intensity aerobic exercise and resistance exercise twice per week. This trial compared the secondary outcomes of a combined 10-week guideline based intervention and a Social Cognitive Theory (SCT) education programme with the same ex...
Poster
Full-text available
ROC analysis and sensitivity and specificity values of the TUG in identifying falls risk among people with MS.
Article
Context This study examined the extent to which patient and trial characteristics moderate the effects of exercise on depressive symptoms among people with multiple sclerosis. Evidence acquisition Twenty-four effects were derived from 14 articles published before August 2016 located using Google Scholar, MEDLINE, PsycINFO, PubMed, and Web of Scien...
Article
Purpose: The purpose of this study is to identify the objective physical activity (PA) measurement tools and outputs that are used within Multiple Sclerosis (MS) literature. Methods: A systematic search strategy on eight databases (2000–2016) using keywords associated with MS and PA. Results: This review includes 32 papers. Uni-axial accelerometers...
Article
Full-text available
Background: Non-ambulatory people with multiple sclerosis comprise 25% of the multiple sclerosis population. Literature reviews show insufficient evidence exists regarding physiotherapy for this population. A qualitative study suggested benefits from ‘exercise buddies’, who were paid carers delivering a physiotherapy home exercise programme. Aims:...
Article
Background and purpose: The purpose of this study was to examine the minimum number of days needed to reliably estimate daily step count and energy expenditure (EE), in people with multiple sclerosis (MS) who walked unaided. Methods: Seven days of activity monitor data were collected for 26 participants with MS (age=44.5±11.9years; time since di...
Article
Full-text available
Objective: To synthesize current knowledge of the modifiable psychosocial constructs associated with physical activity (PA) participation in people with multiple sclerosis. Data sources: A search was conducted through October 2015 in 8 electronic databases: CINAHL, PubMed, SPORTDiscus, Web of Knowledge, MEDLINE, EMBASE, Cochrane Database of Syst...
Article
Full-text available
Background: Multiple Sclerosis (MS) results in postural instability and gait abnormalities which are associated with accidental falls. Objective: This systematic review and meta-analysis aims to quantify the effect of MS on gait to inform the development of falls prevention interventions. Methods: A systematic literature search identified case-con...
Article
This is a protocol for a Cochrane Review (Intervention). The objectives are as follows: The aim of this review is to evaluate the effectiveness of interventions designed to reduce the rate of falls in people with multiple sclerosis (MS). Specific objectives include comparing the effectiveness of single, multiple and multifactorial interventions des...
Article
Full-text available
Background: There is a growing body of evidence that physical activity (PA) improves symptoms of multiple sclerosis (MS). Despite the benefits of PA, people with MS (pwMS) are relatively inactive compared to their healthy counterparts. This study investigated associations between social cognitive theory (SCT) constructs and energy expenditure (EE)...
Article
Background: Balance deficits are common in people with multiple sclerosis, and accurate measurement of balance using clinical measures is important. This study investigates the inter-rater reliability of the mini Balance Evaluation System test (mini-BESTest) in ambulatory people with multiple sclerosis. Methods: People with multiple sclerosis atte...
Article
Purpose: The purpose of this study was to identify potential items for an observational screening tool to assess safe, effective and appropriate walking aid use among people with multiple sclerosis (MS). Such a tool is needed because of the association between fall risk and mobility aid use in this population. Methods: Four individuals with MS were...
Conference Paper
Full-text available
Title: Profile of Falls in Community-Dwelling People with Multiple Sclerosis: Preliminary Results from an Irish Cohort Research Objectives: 1.To investigate the context, causes and consequences of falls in people with Multiple Sclerosis (pwMS) 2.To assess the level of concern about falling in this population 3.To investigate the level of reporting...
Conference Paper
Full-text available
Title: What do People with Multiple Sclerosis want from Falls Prevention Interventions? Preliminary Results from Ireland Research Objectives: 1.To investigate the topics people with Multiple Sclerosis (pwMS) would like included in falls prevention interventions 2. To investigate how pwMS would like these interventions to be delivered 3.To investig...
Conference Paper
Full-text available
Multiple sclerosis (MS) care and research face multiple challenges in the Middle East region. The rapidly rising prevalence of the disease in this region, is putting a strain on medical and financial resources. Lack of awareness in the medical community leading to delayed or wrong diagnosis, is still a major drawback. There is an urgent need to imp...
Poster
Full-text available
An analysis looking at the relationship of dual task cost and falls status in people with MS.
Poster
Full-text available
Preliminary results from our study looking at development of a falls prediction tool for use with people with MS.