Stine Hellum Braathen

• BA (Anthropology), MPhil (Int. Community Health), PhD (Psychology)
• Research Manager at SINTEF

The primary aim of this study was to determine which health care barriers were most important for people with disabilities in Malawi. To accomplish this, we devised a sequential mixed-methods research design that integrated locational survey data and qualitative data from field studies. Our secondary aim was to evaluate this research design not onl...

In this chapter, we will explore the intersections of physical disability and femininity. We look at how societies’ ideas about disability influence the way women with physical disabilities are viewed and view themselves as sexual beings. Using a combination of background literature and qualitative data from our photovoice study, we explore how soc...

In this chapter, we will explore some of the myths and misconceptions that exist about the sexual lives of people with physical disabilities. We look particularly at the myth of asexuality and we report on data from the survey study showing whether this myth exists in the views of South Africans without disability, about people with physical disabi...

In Chapter 10.1007/978-3-030-55567-2_1 we provided a discussion of participatory research as a method for doing research, and provided an outline of what we did in the research project upon which this book is based. In this final chapter, we reflect back on our experiences of doing a participatory research project of this kind.

In this chapter, we investigate some of the social (e.g. negative attitudes about sexuality and parenthood) and structural (e.g. inaccessible health care facilities) barriers that people with physical disabilities face when trying to lead a pleasurable, safe, and healthy sexual life. We do this by presenting an accessible review of the existing res...

In this chapter, we introduce central concepts and theories relevant to thinking about disability and sexuality in the global South. We discuss what we mean by physical disability, sexuality, gender, and embodiment, and provide a brief description of the research study on which this book is based. Here, too, we provide a rationale and outline for t...

This open access edited volume explores physical disability and sexuality in South Africa, drawing on past studies, new research conducted by the editors, and first-person narratives from people with physical disabilities in the country. Sexuality has long been a site of oppression and discrimination for people with disabilities based on myths and...

Many people are reluctant to access voluntary counselling and testing services for fear of stigma and the implications of death often associated with a positive HIV diagnosis. This study however noted how Tonga females residing in Binga, one of Zimbabwe’s poorest and most food insecure districts, were eager for an HIV positive result in order to se...

Photovoice is presented here as an emancipatory, participatory research method with the potential to put minority subjects in charge of their own representation. Drawing on research with disabled people conducted in South Africa, we argue that the meaning of images is often hostage to interpretations which reify untruths about the subject. We consi...

Background: Although sexuality is a ubiquitous human need, recent empirical research has shown that people without disabilities attribute fewer sexual rights and perceive sexual healthcare to benefit fewer people with disabilities, compared to non-disabled people. Within a global context, such misperceptions have tangible, deleterious consequences...

The visual representation of people with physical disabilities has a history which is fraught. Disabled bodies have been variously portrayed as abnormal or abject, or else simply concealed. This mirrors social representations concerning the sexuality of disabled bodies which dictate that bodies which defy societal standards for normality cannot be...

Disability as a social justice issue is not part of mainstream talk. Approximately 15% of the world’s population has a disability, and yet persons with disabilities are systematically subjected to this sort of exclusion. If considered in terms of social power, then persons with disabilities are the largest single minority group. Amongst minorities,...

The present paper examines stereotyping in relation to physical disability and gender in the South Africa. Cross-sectional data for the present study were gathered using free response items in a large survey (n = 1990) examining the attitudes of people without disability towards different facetsof sexuality and disability. The most prominent stereo...

The sexuality of people with disabilities has historically been a site of oppression and discrimination. The sexuality of people with disabilities remains relatively under-researched and poorly understood. As a result, many myths and misconceptions about the sexuality of people with disabilities may prevail. This paper reports on findings from a qu...

This paper presents a team’s engagement with a creative collaborative project challenging the myths about the sexuality of people with physical disabilities in South Africa. The paper is presented in the form of a reflective diary account, which has been constructed from minutes of meetings, email correspondences and personal reflections of the act...

Background: Equitable access to health services is a key ingredient in reaching health for persons with disabilities and other vulnerable groups. So far, research on access to health services in low- and middle-income countries has largely relied on self-reported survey data. Realizing that there may be substantial discrepancies between perceived a...

Background: While disability is universal, there is a marked variation in caregivers’ experiences of caring for children with disabilities. Therefore the diversity of disability experiences across the world needs to be acknowledged in order to understand care practices relative to disability. Aim: The paper explores the link between disability perc...

There is a growing recognition of the sexual and reproductive rights of people with disabilities, and since the World Health Organisation’s World Report on Disability, increased international attention has been given to these issues. Past research, however, suggests that this group encounter barriers to sexual and reproductive rights, which are bot...

Background Global research suggests that persons with disabilities face barriers when accessing health care services. Yet, information regarding the nature of these barriers, especially in low-income and middle-income countries is sparse. Rural contexts in these countries may present greater barriers than urban contexts, but little is known about a...

Persons with disabilities have greater health needs and challenges in accessing health care. In poor countries this is aggravated by constraints in health care and by poverty. In order to achieve equity in health, it is necessary to address the additional challenges faced by persons with disabilities. Persons with disabilities are among the poorest...

Background: Although approximately 80% of the global population of people with disabilities reside in low- and middle-income countries (LMICs), very little is known about their sexual lives due to a lack of empirical data. We aimed to provide a scoping review of English-language research conducted on disability and sexuality in LMICs. Objective: Ou...

There is good reason to believe that the attitudes of persons without disability towards dating a person with a physical disability might be unfavourable. However, in general, and in the Global South in particular, there is a dearth of research in this area. This study sought to take the first step in addressing this lack of enquiry, by surveying t...

There is a body of theoretical work, and some empirical research, which suggests that non-disabled people assume people with physical disabilities are not suitable romantic partners, do not have sexual drives or desires, or are not sexually active. It has also been proposed that people with physical disabilities face barriers to sexual healthcare a...

Background: While it is widely assumed that disability, poverty and health are closely linked, research falls short of fully understanding the link. One approach to analysing the links between disability and poverty is through the concept of structural violence, referring to social structures that contribute to the impoverishment of individuals or...

Background There are many factors that influence access to public health services, such as the context people live in, the existing health services, and personal, cultural and community factors. People with disabilities (activity limitations), through their experience of health services, may offer a particular understanding of the performance of th...

Background: Vulnerability in the past has sometimes been measured and understood in terms of checklists or common understanding. It is argued here that vulnerability is a more complex issue than this. Although checklists of vulnerable groups are important, they do not capture the essence and dynamics of vulnerability. Objective: The case of rural h...

Background: Equitable access to health care is a challenge in many low-income countries. The most vulnerable segments of any population face increased challenges, as their vulnerability amplifies problems of the general population. This implies a heavy burden on informal care-givers in their immediate and extended households. However, research fal...

Health providers’ understanding of disability determines how disabled people are treated, and hence it is imperative to address conceptualisations of disability, as this will contribute to better opportunities and realisation of human rights for disabled people. This article will use data from a qualitative study exploring conceptualisations of dis...

Tuberculosis occurs in all populations, but with higher prevalence in poor contexts. Vulnerable groups, including individuals with disability, run a particular risk due to poorer access to information and health services. Studying access to tuberculosis services for vulnerable groups in poor contexts may provide useful insight into the quality of s...

Adult (18+ years old) Malawian men and women’s alcohol use and social drinking norms were examined. From 31,676 screened households, heads and spouses in 1,795 households with at least one alcohol user were interviewed. Alcohol use last 12 months was reported by 27.3% and 1.6% of all adult men and women respectively. Male and female alcohol users’...

This article presents a relatively new phenomenon regarding alcohol related problems in Malawi; the context and consequences of the consumption of liquor sachets among young people. The results presented are part of a larger study looking at the prevalence and social norms related to alcohol use, as well as people’s opinions on policies and interve...

Objective To explore whether there are other factors besides communication difficulties that hamper access to health care services for deaf patients. Methods Qualitative methodology using semi-structured interviews with 16 deaf participants from the National Institute for the Deaf in Worcester and 3 Key informants from the Worcester area, South Af...

Background: Epilepsy is a disability as defined in the 2012 Disability Act of the Government of Malawi. Objectives: This article explores the health-seeking behaviour of people with epilepsy in a rural town in southern Malawi and how having a person with epilepsy impacts on the households’ productivity. Method: A snowball approach was used to ide...

The global mental health movement has supplied ample evidence of treatment gaps for mental health care in low and middle-income countries. It is also clear that substantial progress has been made in developing an evidence base for innovative treatments which have been shown to work. It is only through rich and detailed understandings of local conte...

Poor people with disabilities who live in poor rural societies experience unique problems in accessing health services. Their situation is influenced by multiple factors which unfold and interplay throughout the person’s life course. The difficulties do not only affect the person with a disability and his or her family, but also impact on the relev...

This article discusses the link between disability and malaria in a poor rural setting. Global malaria programmes and rehabilitation programmes are organized as vertical and separate programmes, and as such they focus on prevention, cure and control, and disability respectively. When looking at specific conditions and illnesses, the impairing long-...

One of the main predictors of poverty becomes the level of and access to education. It is generally believed that having an education can lift individuals and their families out of poverty, while the lack of an education merely entrenches the individual in a perpetual state of poverty. This chapter focuses specifically on the challenges and obstacl...

Purpose. HIV/AIDS has grown to become the biggest epidemic in modern history. Southern Africa is at the epicentre of the global epidemic, with just of a third of the world's HIV-positive population living here. It is known that HIV/AIDS affect vulnerable population groups. It is surprising then, that persons with disabilities, one of the world's mo...

The aim of this article is to give an overview of the daily life stories of 23 women with disabilities in Malawi. The stories were gained through qualitative interviews that covered aspects of being a woman and living with a disability in Malawi. Recent studies from countries in southern Africa have documented how people with disabilities experienc...

This article is based on a pilot study conducted in Malawi in 2006 that intended to uncover episodes of violence and abuse against women and girls with disabilities and furthermore to explore the mechanisms behind such acts. The stories of 23 women with disabilities were obtained through in-depth semistructured interviews that covered, among other...

This article is based on a qualitative project which has set out to examine knowledge, beliefs and behaviour related to people living with albinism in Malawi. Individual, in‐depth interviews were carried out with 25 people with albinism and their family members. The findings show that most people with albinism, as well as their families, have very...