Stephanie Vanclooster

Stephanie Vanclooster
Vrije Universiteit Brussel | VUB · Public Health Care (GESG)

Doctor of Social Health Sciences

About

14
Publications
1,534
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43
Citations

Publications

Publications (14)
Article
Full-text available
Background Tuberous sclerosis complex (TSC)–associated neuropsychiatric disorders (TAND) is an umbrella term for the behavioural, psychiatric, intellectual, academic, neuropsychological and psychosocial manifestations of TSC. Although TAND affects 90% of individuals with TSC during their lifetime, these manifestations are relatively under-assessed,...
Article
Article in Psoriant, magazine for psoriasis patients in Flanders, Belgium Psoriant, 40 (march - april - may 2022)
Article
Article published in Belgian journals Medi-sfeer, Gunaikeia and Neuron. https://www.medi-sfeer.be/nl/nieuws/medisch-nieuws/fibromyalgie-en-seksuele-gezondheid-onderbelicht-bij-een-onderbelichte-ziekte.html https://www.medi-sphere.be/fr/actualites/medical/fibromyalgie-et-sante-sexuelle-un-aspect-meconnu-d-rsquo-une-maladie-sous-exposee.html https:...
Article
Full-text available
Introduction Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-...
Article
Full-text available
Fibromyalgia (FM) is a chronic illness that does not have clear physical consequences, yet research shows that FM patients often have a low body image. An online cross-sectional study was conducted in Flanders, Belgium, among FM women who are connected to the Flemish League for fibromyalgia patients. An adjusted Body Image Scale (BIS) was used to a...
Article
Full-text available
Background Fibromyalgia (FM) is associated with sexual dysfunction, though much less is known about the sexual desire, and especially dyadic and solitary sexual desire, among women with fibromyalgia. Aim To investigate on the one hand the global sexual desire, the dyadic sexual and solitary sexual desire, and on the other hand the association with...
Article
Full-text available
Research on tuberous sclerosis complex (TSC) to date has focused mainly on the physical manifestations of the disease. In contrast, the psychosocial impact of TSC has received far less attention. The aim of this study was therefore to examine the impact of TSC on health, quality of life (QoL), and psychosocial well-being of individuals with TSC and...
Article
Full-text available
This multiple case study investigated perspectives of childhood brain tumor survivors on reintegration into school over a 2-year period. Semistructured interviews were conducted with 5 children at 3 times to obtain an extensive view of their overall school experience. Thematic analysis of data resulted in 4 themes: “school life and participation,”...
Article
Full-text available
Background Reintegration into school is a decisive time for children who have been absent from school due to health problems, such as survivors of brain tumours and other types of acquired brain injury or cancer in childhood. Parents, school staff and healthcare providers are important stakeholders during this phase of transition. Objective To stud...
Article
Full-text available
Objective: To discover short-term changes in perspectives of parents and teachers of childhood brain tumour survivors on school reintegration, in order to reveal similarities and differences between them over time. Methods: Semi-structured interviews were conducted with parents and teachers of five children at the start and the end of a 1-year per...
Article
Full-text available
Reintegration into school is a milestone for childhood brain tumor survivors, as well as for their parents, teachers, and healthcare providers. We explored their experiences following the school re-entry by conducting semi-structured interviews. Thematic analysis resulted in four main themes: “school performance,” “psychosocial well-being,” “suppor...

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Projects

Projects (2)
Project
The TANDem project will design a smartphone application for patients with Tuberous Sclerosis Complex (TSC) and their families. This app will allow them to identify their own personal set of neuropsychiatric effects associated with this condition (TSC-Associated Neuropsychiatric Disorders or 'TAND'), and provide first-step advice on how to deal with these effects.