Stephanie A Kolakowsky-Hayner

Stephanie A Kolakowsky-Hayner
Santa Clara Valley Medical Center | scvmed · Rehabilitation research Center

PhD

About

82
Publications
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3,342
Citations

Publications

Publications (82)
Article
Full-text available
Background and Objectives: There is strong evidence in the literature that women experience psychological disorders at significantly higher rates than men. The higher rates of psychological disorders in women may partly be attributable to gender differences in response to stressors and coping styles. The objective of this study was to contribute to...
Article
Full-text available
Objective: To determine if there are pandemic-related sleep and mental health problems at different ages in the general population. Design: Survey data were collected following a snowball sampling method via social media platforms and mailing lists. Results: The current findings show significant differences among age groups in sleep quality and men...
Article
Objective To examine associations of patient characteristics and treatment quantity delivered during inpatient spinal cord injury (SCI) rehabilitation with outcomes at 5 years post-injury and compare them to the associations found at 1 year post-injury. Design Observational study using Practice-Based Evidence research methodology in which clinicia...
Article
Worldwide, the rehabilitation community has been impacted by the Corona Virus Disease 2019 (COVID-19). This impact has been disproportionately devastating for individuals with disabilities, and particularly individuals with acquired brain injury (ABI) due to injury-related cognitive and/or sensory/physical difficulties. Many physical and psychologi...
Article
Objective: To examine the factors associated with the remission of insomnia by examining a sample of individuals who had insomnia within the first two years after traumatic brain injury (TBI) and assessing their status at a secondary time point. Design and Methods: Secondary data analysis from a multicenter longitudinal cohort study. A sample of 40...
Article
Objective: To develop a traumatic brain injury (TBI)-specific, item response theory (IRT)-calibrated Fatigue item bank, short form, and computer adaptive test (CAT) as part of the Traumatic Brain Injury-Quality of Life (TBI-QOL) measurement system. Setting: Five TBI Model Systems rehabilitation centers in the US PARTICIPANTS:: Adults with compli...
Article
Purpose/objective: The objective of the study was to evaluate the extent to which 1- and 2-year outcomes after traumatic brain injury (TBI) are predicted by resilience. Research Method/Design: This was an observational, longitudinal study of persons (n = 158) with moderate or severe TBI who completed both 1- and 2-year outcome assessments. Outcome...
Article
Fatigue is one of the most commonly reported sequelae after traumatic brain injury (TBI). This study evaluated the impact of a graduated physical activity programme on fatigue after TBI. Using a prospective randomised single-blind crossover design, 123 individuals with TBI, over the age of 18, were enrolled. Interventions included a home-based walk...
Article
Objective: The research attempting to disentangle the directionality of relationships between mental health and functional outcomes after traumatic brain injury (TBI) is growing but has yielded equivocal findings or focused on isolated predictors or isolated outcomes. The purpose of the current study was to use cross-lagged panel and structural eq...
Article
Post-traumatic brain injury fatigue (PTBIF) is a major problem in the years after traumatic brain injury (TBI), yet little is known about its persistence and resolution. The objective of the study was to identify factors related to PTBIF remission and resolution. TBI Model System registrants at five centres participated in interviews at either one...
Article
Background: The top three causes of fatal unintentional injuries are falls, motor vehicle crashes, and being struck against or struck by objects or persons. These etiologies also happen to be the leading causes of TBI, a serious public health problem, in the US. Reduced cognitive functioning, poor decision making, increased risk taking, disinhibit...
Article
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Objective: Describe the 10 year patterns of employment for individuals of working age discharged from a Traumatic Brain Injury Model Systems (TBIMS) center between 1989 and 2009. Design: Secondary data analysis. Setting: Inpatient rehabilitation centers. Participants: Patients aged 16 to 55 years who were not retired at injury, received inpa...
Article
If and how much dural penetration influences long-term outcome after traumatic brain injury (TBI) is understudied, especially within the civilian population. Using the large TBI Model Systems cohort, this study assessed and compared penetrating TBI (PTBI) and closed TBI with respect to global outcome and late seizures 2 years after injury. After pe...
Article
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To use a patient-centered approach or participatory action research design combined with advanced psychometrics to develop a comprehensive patient-reported outcomes (PRO) measurement system specifically for individuals with traumatic brain injury (TBI). This TBI Quality-of-Life (TBI-QOL) measurement system expands the work of other large PRO measur...
Article
This study investigated the influence of race, gender, functional ability, and an array of preinjury, injury-related, and sociodemographic variables on life satisfaction trajectories over 10 years following moderate to severe traumatic brain injury (TBI). A sample of 3157 individuals with TBI from the TBI Model Systems database was included in this...
Article
Objective To determine whether racial/ethnic disparities occur in depression, anxiety, and satisfaction with life at 1 and 2 years post-discharge. Design A prospective, longitudinal, multicenter study of individuals with traumatic brain injury (TBI) participating in the National Institute on Disability and Rehabilitation Research Traumatic Brain I...
Article
Full-text available
Unlabelled: Abstract Objective: To determine whether a 12-week home-based walking programme can decrease perceived stress and depressive symptoms in persons with a traumatic brain injury (TBI). Setting: Community- and home-based. Participants: Sixty-nine participants with a TBI. Design: Comparative effectiveness cross-over design with random...
Article
Background: Sleep disturbances are common following traumatic brain injury (TBI). The Pittsburgh Sleep Quality Index (PSQI) is a widely used measure of sleep quality that has been used in numerous populations. Although this measure has been used in TBI research, there are few studies examining the psychometric properties in this population. Objec...
Article
Purpose: Falls are a challenge for rehabilitation nurses, facilities, families, and individuals. Studies related to the causes of falls and potential strategies for risk management have been conducted across disability groups and with the elderly. Still, a focus on individuals with traumatic brain injuries (TBI), specifically, has been limited. Th...
Article
Objective To identify baseline participant variables in the domains of demographics, medical/psychosocial history, injury characteristics, and postinjury functional status associated with longitudinal follow-up completeness in persons with traumatic brain injury (TBI) using the TBI Model Systems (TBIMS) National Database (NDB). Design Exhaustive c...
Article
The SWLS consists of 5-items that require a ratingon a 7-point Likert scale. Administration is rarely morethan a minute or 2 and can be completed by interview(including phone) or paper and pencil response. The in-strumentshouldnotbecompletedbyaproxyansweringfortheperson.Itemsofthe SWLSaresummedtocreatea total score that can range from 5 to 35.The S...
Article
TITLE: Low Vitamin D Levels in Persons with Spinal Cord Injury and Increased Incidence of Venous Thromboembolic Events During Acute Inpatient and Rehabilitation Stay. AUTHORS (FIRST NAME, LAST NAME): Molly A. Timmerman1, James Crew2, Kazuko Shem1, Min Kim2, Stephanie A. Kolakowsky‐Hayner1, Jerry A. Wright1 INSTITUTIONS (ALL): 1. Physical Medicin...
Article
The Participation Assessment with Recombined Tools-Objective (PART-O) is an outcome scale measuring participation in the community. The PART-O consolidates questions from 3 commonly used instruments, and measures 3 domains of community participation postrehabilitation: Productivity, Out and About, and Social Relations. Information on administration...
Article
OBJECTIVE: To determine the association between demographic, psychosocial, and injury-related characteristics, and traumatic brain injury (TBI) occurring prior to a moderate or severe TBI requiring rehabilitation. DESIGN: Secondary data analysis. SETTING: TBI Model System inpatient rehabilitation facilities Participants: 4,464 persons 1, 2, 5, 10,...
Article
Full-text available
A spinal cord injury (SCI) not only causes paralysis, but also has long-term impact on physical and mental health. There are between 236,000 to 327,000 individuals living with the consequences of SCI in the United States, and the economic burden on the individuals sustaining the injury, their support network, and society as a whole is significant....
Article
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Primary objective: To better characterize, describe and highlight issues that individuals with TBI and active LPTS may face in their daily lives. Design: Prospective multi-centre mixed method qualitative and quantitative interview. Participants: Twenty-five individuals, 5-13 years post-injury, who had reported having LPTS and TBI. Measures:...
Article
Objective: Evaluate feasibility and safety of EksoTM to aid ambulation in individuals with SCI. Design: Prospective pilot study. Setting: SCI Rehabilitation Center Outpatient Gym. Participants: Eight individuals, at least 18 years of age, with complete T1 SCI or below, within 2 years of injury, completed initial inpatient rehabilitation. All partic...
Article
Objective: To determine the prevalence of insomnia and posttraumatic brain injury (TBI) fatigue (PTBIF) in individuals with moderate to severe TBI, to explore the relationship between PTBIF and insomnia and their association with outcomes. Design: Cross-sectional study. Setting: Five National Institute of Disability and Rehabilitation Research...
Article
Objective: To investigate the psychometric properties of the Multidimensional Assessment of Fatigue (MAF) scale in a traumatic brain injury (TBI) sample. Design: Prospective survey study. Setting: Community. Participants: One hundred sixty-seven individuals with TBI admitted for inpatient rehabilitation, enrolled into the TBI Model Systems n...
Article
: To compare and contrast the levels of impairment, disability, and community participation of individuals with traumatic brain injury (TBI) with or without late posttraumatic seizures (LPTS). : Prospective survey study. : Community. : Two groups of 91 individuals with TBI, with and without LPTS, were enrolled in the TBI Model Systems National Data...
Article
Objective: To assess mortality, life expectancy, risk factors, and causes of death by age groups among persons who received inpatient traumatic brain injury (TBI) rehabilitation. Design: Prospective cohort study. Setting: The TBI Model Systems. Participants: 8573 individuals injured between 1988 and 2009, with survival status per December 31...
Article
Objective: To characterize overall and cause-specific mortality and life expectancy among persons who have completed inpatient traumatic brain injury rehabilitation and to assess risk factors for mortality. Design: Prospective cohort study. Setting: The Traumatic Brain Injury Model Systems. Participants: A total of 8573 individuals injured b...
Article
Full-text available
Objectives: To understand the course of changes in function and need for assistance in the chronic stages of TBI; and to identify factors associated with these changes. Design: Longitudinal review of participants in the TBI Model Systems Database, who have been prospectively followed for at least 10 years. Participants: Four hundred and sevent...
Article
To describe the sociodemographic and injury characteristics and psychosocial outcomes at 1 and 10 years post-injury in a group of Spanish-speaking individuals with traumatic brain injury. Descriptive cross-sectional and longitudinal analyses of prospectively collected data. Assessments were completed on 57 non-English speaking Latinos with TBI, inj...
Article
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Information is presented on a community-based mentoring program, developed to work with existing community agencies and provide structure to the frequently confusing network of services for young adults, ages 16 to 26 years, with a recently acquired disability including TBI, SCI, and other neurological disorders. The over-arching goal of the Mentor...
Article
To assess the accuracy of bedside swallow evaluation (BSE) compared with videofluorosopic swallow study (VFSS) in diagnosing dysphagia in individuals with tetraplegia due to spinal cord injury (SCI). A prospective diagnostic accuracy study according to STAndards for the Reporting of Diagnostic accuracy studies (STARD) criteria. A county hospital wi...
Article
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To determine which demographic, injury, and rehabilitation factors are associated with employment rates in Hispanic individuals 1 year post traumatic brain injury (TBI). Retrospective study. Setting: Longitudinal dataset of the TBI Model Systems National Database. 418 Hispanic individuals with TBI hospitalized between 1990 and 2009 having year 1 fo...
Article
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To determine which demographic, injury, rehabilitation, and follow-up characteristics are associated with satisfaction with life in a population of Hispanic individuals 1 year post-traumatic brain injury (TBI). Retrospective study. Longitudinal dataset of the TBI Model Systems National Database. 291 Hispanic adults with TBIs occurring between 1999...
Article
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Dysphagia occurs in a significant number of individuals with spinal cord injury (SCI) presenting to acute care and inpatient rehabilitation. This prospective study has found dysphagia in nearly 40% of individuals with tetraplegia. Tracheostomy, mechanical ventilation, nasogastric tube, and age are significant risk factors. The detrimental complicat...
Article
Full-text available
This is a prospective study. Young individuals with spinal cord injury (SCI) need support to actively participate in the community after their injuries. The 'Back on Track' mentoring program was developed to match mentees with SCI with mentors to assist with post-injury adjustment. The objectives of this study were to improve the percentage of yout...
Conference Paper
Full-text available
With an amplified need for ongoing accreditation and evidence-based medicine and rehabilitation after disability, an increased call for rigor in research, and mounting costs of clinical trial research, affordable, reliable and valid measurement of outcomes is paramount. Many clinicians and researchers have developed home-grown tools to meet an imme...
Article
To utilize Aday and Andersen's Framework for the Study of Access to examine racial disparity within the State-Federal vocational rehabilitation system, among clients with brain injury. Research questions included: Do pre-disposing characteristics such as age, race, ethnicity, gender, marital status and education influence vocational rehabilitation...
Article
Full-text available
Item response theory (IRT) methodology is introduced as a tool for improving assess-ment instruments used with people who have disabilities. Need for this approach in rehabilitation is emphasized; differences between IRT and classical test theory are clar-ified. Concepts essential to understanding IRT are defined, necessary data assumptions are ide...
Article
To identify factors relating to the intensity of rehabilitation services received and to ascertain the relation between injury outcomes, demographics, types of therapy, and the intensity of rehabilitation services provided. A multicenter, prospective, nonrandomized study with inpatient rehabilitation data collected between 1989 and 1996. Three medi...
Article
To compare demographics, injury characteristics, therapy service and intensity, and outcome in minority versus nonminority patients with traumatic brain injury (TBI). Retrospective analysis. Twenty medical centers. Two thousand twenty patients (men, n=1,518; women, n=502; nonminority, n=1,168; minority, n=852) with TBI enrolled in the Traumatic Bra...
Article
To investigate the incidence, risk factors, and outcome in patients with fecal incontinence after acute brain injury. A retrospective study of the incidence of and risk factors contributing to fecal incontinence, and outcomes at admission to and discharge from inpatient rehabilitation and at 1-year follow-up. Medical centers in the federally sponso...
Article
Given the limitations of the literature, a structured approach to helping families after brain injury is clearly needed. On the basis of considerable clinical experience and research review, this article describes the Brain Injury Family Intervention (BIFI), developed to address common issues, concerns, and challenges. The foundation of the BIFI is...
Article
Primary objective: To identify the patient population at greatest risk for post-injury adjustment problems, the present study independently examines and compares alcohol and drug use rates in patients with traumatic brain injury (TBI) and patients with spinal cord injury. Research design: The two samples were matched with regard to age, gender a...
Article
To interpret the data from the Spinal Cord Injury-Model Systems as it applies to demographics, incidence and functional outcomes of minority patients with spinal cord injury. Retrospective analysis of patients admitted to acute inpatient rehabilitation Spinal Cord Injury Model Systems Centers. Descriptive statistics including means, standard deviat...
Article
Full-text available
This investigation evaluated yearly trends in charges and lengths of stay for patients with brain injury in acute care and rehabilitation settings over a 7 year period. Data was collected from 800 consecutive patients enrolled in four NIDRR Model Systems Traumatic Brain Injury programmes. Acute care daily charges showed almost routine increases, av...
Article
This investigation assessed the life quality and long-term family needs of caregivers of persons with brain injury. Respondents completed the Virginia Traumatic Brain Injury Family Needs Assessment Survey. Community-based sample. Respondents included 57 caregivers of persons with traumatic brain injury who were at least 4 years after injury and who...
Article
To investigate the effects of age at injury on neurological and functional outcomes and hospitalization length of stays and charges following spinal cord injuries resulting in paraplegia. Subjects were 180 adults with paraplegia who were assessed in acute care and inpatient rehabilitation as part of the National Institute on Disability and Rehabili...
Article
For many, returning to work after a brain injury is an extremely difficult task. Many factors influence a person's decision whether or not to work. While some people with brain injury are excited to return to their old jobs, others are afraid of the physical, emotional, and financial consequences of returning to work, and some just do not want to w...
Article
To describe the distribution of charges, to distinguish between "charge outliers" and nonoutliers, and to identify a model that uses demographics and injury characteristics to predict charge outlier status in individuals with spinal cord injury (SCI). Retrospective data analysis of patients admitted to 24 acute inpatient rehabilitation national Spi...
Article
There is limited information regarding the effects of pre-injury history of arrest or history of substance use on neurobehavioural functioning after brain injury. The current study included 211 patients with traumatic brain injury, who were seen for a follow-up neuropsychological evaluation in an outpatient setting. An effort was made to distinguis...
Article
Spinal cord injury (SCI) requires significant and expensive medical intervention, including prolonged hospitalization and intense in-patient treatment and rehabilitation. Development of predictive models for lengths of stay in spinal cord injury patients provides a method for early prediction of patients that will require greater care, incur greate...
Article
To describe the demographics, incidence and functional outcome for African Americans and Hispanics treated at a traumatic brain injury (TBI) model systems centre. Retrospective data analysis of patients admitted to an acute inpatient rehabilitation national TBI model systems centre. A tertiary care university medical centre participating in the NID...
Article
Interdisciplinary rehabilitation can be a complex, challenging, and sometimes confusing process. The varying experiences and perspectives of patients and professionals contribute to the diversity of challenging dilemmas. This manuscript is intended to help rehabilitation professionals improve their effectiveness and the quality of their relationshi...
Article
Traumatic brain injury is a leading cause of death and disability in the United States. Limited access to specialized medical and rehabilitation services has been linked to poor outcomes. Literature provides little guidance for assessment of service obstacles and satisfaction with community resources. The present investigation describes the develop...
Article
A study was designed to directly compare individuals with tetraplegia and paraplegia to further explore neurological and functional outcomes and their impact on the expense of rehabilitation when controlling for level of completeness, age at the time of injury, and length of stay. A sample was drawn from the National Spinal Cord Injury Database con...
Article
The function of working memory has not been investigated in a brain injured population. There are no generally accepted measures of working memory. The degree to which these measures correlate with Ether measures of learning and performance is unclear. The results of several analyses indicated that working memory is a state of active processing tha...
Article
The object of this study was to investigate the relationships of age on neurologic and functional outcome, hospitalization length of stay (LOS), and hospital charges after spinal cord injury (SCI). At 20 medical centers, 2,169 consecutive adult patients with paraplegia SCI were assessed in acute care and inpatient rehabilitation. Outcome and treatm...
Article
Alcohol and drug use at the time of injury have been strongly implicated as causal factors of spinal cord injury (SCI) and traumatic brain injury (TBI). Researchers have only begun their efforts to investigate the pre-injury incidence of substance abuse in an effort to identify persons at risk for traumatic injury. No studies have compared brain an...
Article
In the past 30 years, literally hundreds of cognitive enhancing substances have been investigated. This large body of research has produced mixed results and there is no consensus as to whether these substances actually enhance cognition. Furthermore, little systematic evidence is available that documents whether or not these substances are efficac...