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Introduction
Skills and Expertise
Publications
Publications (116)
Background:
The overarching project goal is to evaluate the effectiveness of a cross-sectoral and cross-service provider offering professional support for families with chronically ill and disabled children: so-called Family Health Partners (in German: 'Familien-Gesundheits-Partner' or FGP). This needs-oriented service, which is anchored in region...
Background
Quality of life (QoL) of people with dementia (PwD) is an important indicator of quality of care. Studying the impact of acute hospital settings on PwD’s QoL requires assessment instruments that consider environmental factors. Until now, dementia-specific QoL instruments have not yet demonstrated their feasibility in acute hospitals beca...
Background:
Peer support is increasingly recognized as crucial for improving health and psychosocial outcomes in oncological care. The integration of cancer self-help groups (SHGs) into cancer care facilities has gained importance in recent years. Yet, there is a lack of knowledge of the extent and quality of cooperation between cancer care facili...
Background:
Nowadays, much hope and expectations are associated with digitization in the health sector. The digital change also affects health-related self-help. A nationwide survey of self-help organizations (SHOs) aimed to show chances and limitations in the use of interactive IT tools like webforums, online meetings or social media as well as d...
Hintergund: Sozialräumliche Gesundheitsförderung ist eine auf natürliche Lebensbedingungen orientierte Handlungsstrategie. Dieser liegt ein sozialökologisches Modell von Gesundheit zugrunde, in dem die Verbesserung von Lebens- und Arbeitsverhältnissen sowie gesundheitsrelevanten Verhaltensweisen unter Beteiligung der Bürger:innen im Vordergrund ste...
Die Entwicklung der Selbsthilfeforschung basiert auf einem sozialwissenschaftlich begründeten salutogenetischen Verständnis von Gesundheit. Selbsthilfe gilt in diesem konzeptuellen Rahmen als Element sozialer Unterstützung und damit als Ressource für die Bewältigung chronischer Erkrankungen. Im Zentrum der Selbsthilfeforschung stehen seit etwa 1979...
Background
As part of a long-term prevention program for children and their parents in the Hamburg Lenzsiedlung, a new measuring instrument for Germany, “Capacity Building in the Neighborhood” (KEQ), was developed, applied several times, and suggestions from practice were improved in two steps. The aim of the article is to trace this process and to...
Background
Quality of life (QoL) of people with dementia (PwD) is an important indicator of quality of care. Studying the impact of acute hospital settings on PwD’s QoL requires assessment instruments that consider environmental factors. Until now, dementia-specific QoL instruments have not demonstrated their feasibility in acute hospitals. Therefo...
Survey with 1,070 parents of chronically ill and disabled children on the reconciliation of work and care. This survey was conducted in 08/2021 to 12/2021 for an expertise for the Federal Ministry for Family Affairs, Senior Citizens, Women and Youth. -> www.uke.de/famber
Zusammenfassung
Ziel der Studie Der Fragebogen „Kapazitätsentwicklung im Quartier (KEQ)“ hat fünf Dimensionen und ist ein intermediäres Maß für Ergebnisse der quartiersbezogenen Gesundheitsförderung. Es wird von den quartiersinternen Akteur*innen ausgefüllt und hat damit Elemente einer Selbstbewertung. In einer Studie sollte geklärt werden, ob quar...
Purpose
The aim of this observational study was firstly, to assess the Health-related Quality of Life (HrQoL) among migrants and German natives in Hamburg, Germany, using the SF-12 mental and physical summary scores and secondly, to evaluate the contribution of selected sociodemographic and socioeconomic variables to explain the variance in mental...
Background:
Previous systematic reviews of the impact of multi-component community-based health promotion interventions on reducing health inequalities by socio-economic status (SES) were restricted to physical activity and smoking behavior, and revealed limited and rather disillusioning evidence. Therefore, we conducted a comprehensive review wor...
Over the past few decades, a community-based approach was seen to be the “gold standard” for health promotion and disease prevention, especially in the field of socially deprived neighborhoods in urban areas. Up to the beginning of the 2000s, earlier reviews provide valuable information on activities in this context. However, in their conclusions t...
Selbsthilfegruppen sind eine wichtige Säule in der gesundheitlichen Versorgung. Sie unterstützen Menschen mit chronischen Erkrankungen und ihre Angehörigen. Welche Wirkungen die Gruppen auf ihre jeweiligen Mitglieder haben, ist allerdings kaum untersucht. Vor diesem Hintergrund förderte das Bundesministerium für Gesundheit die deutschlandweite Stud...
Ergebnisse aus der vom Bundesministerium für Gesundheit geförderten Studie zur "Gesundheitsbezogenen Selbsthilfe in Deutschland - Entwicklungen, Wirkungen, Perspektiven" - SHILD.
Die vom Bundesministerium für Gesundheit geförderte Studie zur "Gesundheitsbezogenen Selbsthilfe in Deutschland - Entwicklungen, Wirkungen, Perspektiven" - kurz: SHILD - wurde im Juni 2018 nach über fünfeinhalb Jahren abgeschlossen. Das SHILD-Modul zu den Wirkungen der Selbsthilfe untersuchte unter anderem die Gesundheitskompetenz und den Umgang mi...
Background
Self-help groups (SHGs) are an inherent part of patient involvement and play an important role in the healthcare system. Until now, however, there has been a lack of systematic investigations and quantitative data about the individual impact of self-help for patients and relatives.
Objectives
This study presents the results of a compari...
Objectives:
Between 2001 and 2012, the health authority of Hamburg-Eimsbüttel carried out a health promotion programme for children and their parents in a disadvantaged neighbourhood called Lenzsiedlung. The programme consisted of different action fields aiming at sustainable establishment of community capacities.
Study design:
The research goal...
This article is about the personal view of MS-patients on self-help groups on the basis of the qualitative data (free comments) gathered in the SHILD-study.
The whole book (in German only) containing the chapter can be downloaded here (free access): https://www.dag-shg.de/data/Fachpublikationen/2018/DAGSHG-Jahrbuch-2018-Gesamtdatei.pdf
This is a 20 pages condensed version of the core results from the SHILD study.
Objectives:
The importance of health-related quality of life (HRQoL) in multiple sclerosis (MS) is widely acknowledged. In 2015, a multicenter study was launched to assess the HRQoL and coping styles of chronically ill persons in Germany. The aims of this paper were (i) to describe how persons affected by MS assess their HRQoL and (ii) find out so...
Fragestellung:
Das vom Bundesministerium für Gesundheit geförderte Forschungsprojekt „SHILD“ untersucht Entwicklungen, Wirkungen und Perspektiven gesundheitsbezogener Selbsthilfe in Deutschland. Die Wirkung von Selbsthilfe wird anhand ausgewählter Indikationen (Diabetes mellitus Typ 2, Prostatakarzinom, Multiple Sklerose, Angehörige Demenzerkrankt...
Collaboration between laypersons and professionals is closely linked to the concept of patient centeredness. Patient centeredness means meeting the needs of individual patients as well as reacting to patients' demands on the collective level. The support of self-help groups and their integration into healthcare institutions represent a major policy...
Background:
The importance of patient participation and involvement is now widely acknowledged; in the past, few systematic health-care institution policies existed to establish sustainable co-operation. In 2004, in Germany, the initiative 'Self-Help Friendliness (SHF) and Patient-Centeredness in Health Care' was launched to establish and implemen...
Hintergrund: Das vom BMG geförderte Projekt „Gesundheitsbezogene Selbsthilfe in Deutschland – Entwicklungen, Wirkungen, Perspektiven“ (SHILD) untersucht seit 2013 Strukturen und Bedarfe der Selbsthilfe. Im partizipativen Design sind die zentralen Akteure der Selbsthilfe in Konzeption und Organisation eingebunden. Ziel des laufenden Studienteils ist...
In an interdisciplinary research project at Hamburg University, psychoanalysts and historians investigated the long-term psychological effects of World War II bombing attacks during the "Hamburger Feuersturm" (Operation Gomorrha) in 1943. The paper looks at the experiences from that time and the different modalities of how they were processed and c...
Question: In an interdisciplinary research project at Hamburg University, psychoanalysts and historians investigated the long-term psychological effects of World War II bombing attacks during the "Hamburger Feuersturm" (Operation Gomorrha) in 1943. The paper looks at the experiences from that time and the different modalities of how they were proce...
In Germany, the term 'self-help friendliness' (SHF) describes a strategy to institutionalize co-operation of healthcare institutions with mutual aid or self-help groups of chronically ill patients. After a short explanation of the SHF concept and its development, we will present findings from a longitudinal study on the implementation of SHF in thr...
Einleitung: Selbsthilfegruppen und ihre Dachorganisationen sind zu wichtigen Akteuren im deutschen Gesundheitswesen geworden. Ziel eines vom Bundesministerium für Gesundheit geförderten Projekts „Gesundheitsbezogene Selbsthilfe in Deutschland – Entwicklungen, Wirkungen, Perspektiven“ (SHILD) ist es, eine Struktur- und Bedarfsanalyse der Selbsthilfe...
In 2005 the local health authority Hamburg-Eimsbüttel developed a prevention programme for the disadvantaged quarter "Lenzsiedlung" which has been implemented by the stakeholders committee "Round Table Lenzgesund" and other partners led by the health authority. The Department of Medical Sociology and Health Economics of the University Medical Centr...
Background
Community participation is a key domain of capacity building and is also an essential element of participatory quality development. Both concepts are largely based on the knowledge of the participants and help to use this knowledge in health promotion.
Aims
In a long-term prevention programme for children and their parents in the Hambur...
Recently, the concept of patient satisfaction has been established as an essential part of the quality management of hospitals. Despite the concept's lack of theoretical and methodological foundations, patient surveys on subjective hospital experiences contribute immensely to the improvement of hospitals. What needs to be considered critically in t...
Patientenzufriedenheit konnte sich neben anderen Qualitätsfaktoren als fester Bestandteil von Qualitätsmanagement etablieren. Auch wenn das Konstrukt theoretisch noch nicht ausreichend fundiert scheint und zusätzlich methodische Diskurse die Literatur durchziehen, können Patientenbefragungen Aussagen über das subjektive Erleben eines Krankenhausauf...
In Germany, "self-help friendliness" is an upcoming popular concept for the promotion of patient centredness through closer cooperation of health care services with self-help groups of chronically ill and/or disabled patients and their relatives. The study aimed at gathering information from physicians with special expertise in quality management o...
Partizipation von Patienten und ihren Angehörigen in der Gesundheitsversorgung ist eine zwar allgemein akzeptierte, bisher aber kaum umgesetzte Forderung. Selbsthilfefreundlichkeit ist ein Weg, diesem Defizit zu begegnen.
Selbsthilfefreundlichkeit steht als Schlagwort für die Kooperation von Selbsthilfegruppen und -organisationen mit Einrichtungen...
Measuring change is fundamental to evaluations, health services research and quality management. To date, the Gold-Standard is the prospective assessment of pre- to postoperative change. However, this is not always possible (e.g. in emergencies). Instead a retrospective approach to the measurement of change is one alternative of potential validity....
Es gibt eine ganze Reihe von Bemühungen, Ärzte und Selbsthilfegruppen einander näher zu bringen. Dennoch ist die Zusammenarbeit mit einer Selbsthilfegruppe für viele Ärzte noch lange nicht selbstverständlich. Hier fehlt es offenbar an Information und Anreiz.
The concept of a special label for "self-help-friendly" institutions was first developed for hospitals. A demonstration project (funded by the BKK BV, the German Federal Association of Company Health Insurance Funds) was launched in Hamburg. Between 2004 and 2007 quality criteria were developed and put into practice. Shortly thereafter, a group of...
Since 2004 a large German health insurance company (Techniker Krankenkasse) has provided integrated inpatient health care (IHC) contracts to its members. The aim of the study was to evaluate the effects of this programme on patient satisfaction and health-related quality of life among heart disease patients.
A case-control study was conducted with...
Despite novel multimodal therapeutic approaches, the vast majority of glial tumors are not curable. Patients may search for complementary therapies in order to contribute to the fight against their disease or to relieve symptoms induced by their brain tumor. The extent of the use of complementary or alternative therapies, the patients' rationale be...
Despite modern microsurgical techniques and interdisciplinary treatment options, intramedullary spinal cord tumors often lead to profound neurological deficits. Some patients may search for non-scientific or unconventional therapeutic options to treat the symptoms induced by the tumor itself or arising from treatment. The extent of non-scientific t...
Ziele: Der Beitrag geht der Frage nach, ob es im Rahmen des obligatorischen Qualitätsmanagements von Einrichtungen der vertragsärztlichen Versorgung gelingen könnte, die Kooperation mit Selbsthilfezusammenschlüssen als festen Bestandteil alltäglichen Handelns zu implementieren. Dabei werden Ergebnisse einer Vorstudie zur Entwicklung eines Modellpro...
The article discusses different possibilities to integrate a sustainable co-operation with self-help groups within the framework of the obligatory quality management in SHI-physicians' establishments. The results of a pilot study, which was conducted to develop a model project "self-help friendly doctor's offices", are presented and discussed.
Unti...
The idea of introducing a special label for "self-help-friendly" institutions was first developed for hospitals. A demonstration project (BKK BV, the German Federal Association of Company Health Insurance Funds) was launched and organized by the local contact point for self-help groups in Hamburg. Shortly thereafter, a group of experienced self-hel...
Hoffmann von Fallersleben is quoted with the sentence "Self-help is worthwhile, because it does not demand anything from others". This sounds catchy; it is, however, wrong: Self-help groups ask for support, particularly for financial resources for the work of either individual, highly organized self-help associations or for general support of self-...
Hoffmann von Fallersleben is quoted with the sentence “Self-help is worthwhile, because it does not demand anything from others”. This sounds catchy; it is, however, wrong: Self-help groups ask for support, particularly for financial resources for the work of either individual, highly organized self-help associations or for general support of self-...
Die Idee, Einrichtungen der Gesundheitsversorgung als besonders selbsthilfefreundlich zu kennzeichnen, ist zuerst für Krankenhäuser
aufgegriffen worden. Hieraus entstand ein vom Bundesverband der Betriebskrankenkassen (BKK BV) unterstütztes Projekt in Hamburg
mit dem Titel „Selbsthilfefreundliches Krankenhaus“. Parallel dazu sind aus einem Kreis er...
Capacity building is regarded as an intermediate outcome and success parameter for community health promotion and empowerment. The first aim of the study was the development and examination of a tool to measure capacity building in the context of a programme of health promotion for children and parents in a socially disadvantaged quarter in Hamburg...