Sophie Hill

Sophie Hill
La Trobe University · School of Psychology and Public Health

Doctor of Philosophy

About

222
Publications
32,125
Reads
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5,081
Citations

Publications

Publications (222)
Article
Full-text available
Background Guideline developers are encouraged to engage patients, carers and their representatives (‘consumers’) from diverse backgrounds in guideline development to produce more widely applicable guidelines. However, consumers from diverse backgrounds are infrequently included in guidelines and there is scant research to support guideline develop...
Technical Report
‘Using social media as a tool to facilitate consumer engagement in service design and quality improvement: A guide for hospitals, service providers and consumers’ is a guide designed to help hospitals, providers and consumers include social media-based methods into their suite of consumer engagement activities. Researchers from the Centre for Heal...
Article
Full-text available
Background: Social media can be used to engage consumers in hospital service design and quality improvement (QI) activities, however its uptake may be limited by a lack of guidance to support implementation. This article presents the perceived barriers and enablers in using social media for consumer engagement derived from an interview study with...
Article
Background: Doctor-patient communication is an important part of safe and effective medication use. There is a lot of evidence about good communication and recognition of several key features that are important when discussing medications. Objective: The aim of this article is to provide evidence-based guidance for general practitioner (GP) comm...
Article
Background: Health services have traditionally been developed to focus on specific diseases or medical specialties. Involving consumers as partners in planning, delivering and evaluating health services may lead to services that are person-centred and so better able to meet the needs of and provide care for individuals. Globally, governments recom...
Article
Objective To gain consensus on the Outcome Measures in Rheumatology (OMERACT) core domain set for rheumatology trials of shared decision making (SDM) interventions. Methods The process followed the OMERACT Filter 2.1 methodology, and used consensus-building methods, with patients involved since the inception. After developing the draft core domain...
Technical Report
Physical distancing measures have been implemented worldwide to contain the transmission of COVID-19, but how best to communicate with the public to promote acceptance, uptake and adherence to these measures is less clear. This rapid review analysed evidence regarding communication with individuals and communities within the wider structural and so...
Article
Full-text available
Background: Health-related social media use is common but few health organisations have embraced its potential for engaging stakeholders in service design and quality improvement (QI). Social media may provide new ways to engage more diverse stakeholders and conduct health design and QI activities. Objective: To map how social media is used by h...
Article
Full-text available
Background Brain injury rehabilitation is an expensive and long‐term endeavour. Very little published information or debate has underpinned policy for service delivery in Australia. Within the context of finite health budgets and the challenges associated with providing optimal care to persons with brain injuries, members of the public were asked ‘...
Article
Full-text available
Background: Health researchers and funders are increasingly consulting with stakeholders to set their research agendas but these activities are rarely evaluated. The Cochrane Consumers and Communication Group (CCCG) conducted a priority-setting project for systematic reviews in partnership with stakeholders (consumers/patients, health professional...
Preprint
BACKGROUND Health-related social media use by health consumers and organisations is increasingly common but few health organisations have embraced its potential for engaging stakeholders in health service design and quality improvement (QI) activities. Social media has the potential to engage a broader range of stakeholders and could provide new wa...
Article
Full-text available
Most people living with HIV (PLHIV) with reliable access to antiretroviral treatment (ART) have a life expectancy similar to uninfected populations. Despite this, HIV can negatively affect their social and psychological wellbeing. This study aimed to enhance understanding of the expectations PLHIV hold for HIV cure research and the implications thi...
Article
Full-text available
Background: Research priority setting with stakeholders can help direct the limited resources for health research toward priority areas of need. Ensuring transparency of the priority setting process can strengthen legitimacy and credibility for influencing the research agenda. This study aims to develop a reporting guideline for priority setting o...
Preprint
Full-text available
Background Research priority setting with stakeholders can help direct the limited resources for health research toward priority areas of need. Ensuring transparency of the priority setting process can strengthen legitimacy and credibility for influencing the research agenda. This study aims to develop a reporting guideline for priority setting of...
Preprint
Background Research priority setting with stakeholders can help direct the limited resources for health research toward priority areas of need. Ensuring transparency of the priority setting process can strengthen legitimacy and credibility for influencing the research agenda. This study aims to develop a reporting guideline for priority setting of...
Article
Full-text available
Abstract Every healthcare encounter involves some form of communication and there is growing recognition that effective health communication is central to the delivery of safe, high-quality healthcare. Conversely, poor communication has a range of adverse consequences for those receiving healthcare and the systems delivering care, including elevate...
Article
Full-text available
Introduction As vaccine-preventable disease outbreaks increase, there is growing international interest in monitoring public attitudes towards vaccination and implementing and evaluating vaccine promotion interventions. Outcome selection and measurement are central to intervention evaluation. Measuring uptake rates alone cannot determine which elem...
Presentation
Full-text available
This presentation outlines the process taken to involve our stakeholder panel in the full-text screening of a Cochrane qualitative evidence synthesis. The abstract for this presentation was accepted for inclusion in the 2019 Cochrane Colloquium in Santiago however the conference was cancelled due to unforeseen circumstances
Preprint
Background Research priority setting with stakeholders can help direct the limited resources for health research toward priority areas of need. Ensuring transparency of the priority setting process can strengthen legitimacy and credibility for influencing the research agenda. This study aims to develop a reporting guideline for priority setting of...
Article
Full-text available
Background This study examined the health literacy demands of My Health Record (MyHR) in the context of preparing for a government-announced opt-out system by repeating two studies of health information and usability conducted in 2016. Objective To examine whether Australia’s MyHR meets the information and usability needs of people at risk of low...
Article
This is a protocol for a Cochrane Review (Intervention). The objectives are as follows: To assess the effects of consumers and health providers working in partnership, as an intervention to promote person‐centred health services.
Presentation
Full-text available
Presents a constructivist grounded theory of how carers participate in patient safety in the hospital setting.
Article
Objective: To examine the views and experiences of patients and their health care providers on developing advance care planning (ACP) and advance care directives (ACD); and determine barriers and facilitators to ACD development, storage, and use, including implications for people with communication disability. Method: An integrative review of 93...
Presentation
Outlines how the consumer and community information for voluntary assisted dying in Victoria, Australia was developed.
Article
Objective: Patient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, pa...
Article
Full-text available
Background: Priority-setting partnerships between researchers and stakeholders (meaning consumers, health professionals and health decision-makers) may improve research relevance and value. The Cochrane Consumers and Communication Group (CCCG) publishes systematic reviews in 'health communication and participation', which includes concepts such as...
Article
Full-text available
Patient safety policies increasingly encourage carer (i.e., family or friends) involvement in reducing health care–associated harm in hospital. Despite this, carer involvement in patient safety in practice is not well understood—especially from the carers’ perspective. The purpose of this article is to understand how carers of adult patients percei...
Presentation
Presents findings from Bronwen Merner's PhD research about carers' involvement in patient safety.
Technical Report
A blog written for the Cochrane Community blog about working with stakeholders to engage in full-text screening for a Cochrane review.
Article
Provision of choice and participation in falls prevention strategies is challenging for people with dementia. This study outlines development of a discussion tool to aid engagement of people with dementia and their caregivers in falls prevention strategies. The tool is based on a literature review of falls prevention and dementia care (1990–2016) a...
Article
Full-text available
Objective The Outcome Measures in Rheumatology (OMERACT) shared decision making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials. Methods A white paper was developed to clarify the draft core domain set. It was then used to prepare stakeholders for intervi...
Article
To synthesise the views and experiences of consumers and health providers of working in partnership to promote person-centred health services. · To identify best practice principles for working in partnership at the health service level by understanding consumers' and health providers' views and experiences. Objectives · To investigate the barriers...
Article
Purpose: Strong evidence exists for falls prevention, yet uptake of strategies can be fragmented and limited. For people with dementia, adoption of strategies may be impacted by changes in memory and planning. This paper describes the findings of a knowledge translation intervention for adoption of falls prevention strategies for people with demen...
Article
Objective: To examine the content, quantity, and quality of multidisciplinary team documentation of 'communication' in hospital progress notes of patients with communication disability, and to explore the relationship of this documentation to patient safety. Design: Retrospective chart review involving a descriptive analysis and a qualitative co...
Article
Background: Patients with communication disability, associated with impairments of speech, language, or voice, have a three-fold increased risk of adverse events in hospital. However, little research yet examines the causal relationship between communication disability and risk for specific adverse events in hospital. Objective: To examine the i...
Article
Full-text available
Background There is increasing recognition that it is good practice to involve stakeholders (meaning patients, the public, health professionals and others) in systematic reviews, but limited evidence about how best to do this. We aimed to document the evidence-base relating to stakeholder involvement in systematic reviews and to use this evidence t...
Article
Objective: Many Australians with disability live in residential care and require assistance to manage their health information across hybrid care settings encompassing residential care, primary and tertiary care, and allied health. In this study, we examined case study reports on people with disability living in residential care in New South Wales...
Article
Full-text available
Objectives Involvement of patients, health professionals, the public and others (defined as ‘stakeholders’) is beneficial to the quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews. However, there is a lack of evidence and resources to guide the authors of systematic reviews in how they can acti...
Article
Background: There is increasing recognition that it is good practice to involve stakeholders (meaning patients, the public, health professionals, and others) in systematic reviews, but limited evidence about how best to do this. We aimed to document the evidence-base relating to stakeholder involvement in systematic reviews, and to use this evidenc...
Article
Background Chronic conditions are the leading cause of mortality, morbidity and disability in children. However, children and caregivers are rarely involved in identifying research priorities, which may limit the value of research in supporting patient-centred practice and policy. Objective To identify priorities of patients, caregivers and health...
Article
Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results:...
Conference Paper
Full-text available
Background: Involvement of patients, health professionals, the public and others (stakeholders) is beneficial to the quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews. However there is a lack of evidence and resources to guide the authors of systematic reviews in how they can actively involve...
Conference Paper
Full-text available
Background: There is increasing recognition that it is good practice to involve patients, health professionals, the public and others (stakeholders) in systematic reviews, but limited evidence about how best to do this. Objectives: We aimed to document the evidence-base relating to stakeholder involvement in systematic reviews, and to use this evi...
Presentation
Full-text available
Describes our model for co-producing a Cochrane qualitative evidence synthesis with a stakeholder panel of consumers, health providers and policymakers.
Article
Full-text available
Participation in HIV cure-related clinical trials that involve antiretroviral treatment (ART) interruption may pose substantial individual risks for people living with HIV (PLHIV) without any therapeutic benefit. As such, it is important that the views of PLHIV are considered in the design of HIV cure research trials. Examining the lived experience...
Article
Full-text available
Introduction Communication interventions are widely used to promote childhood vaccination and sustain vaccine acceptance, but communication’s role in changing people’s beliefs and behaviours is not well understood. To determine why these interventions work or where they fail, evaluations must measure a range of outcomes in addition to vaccination u...
Data
Focus group visual aids. (PDF)
Data
Focus group themes and codes. (DOCX)
Data
Focus group discussion guides. (DOCX)
Data
Comparison of outcomes measured in trials and raised by focus group participants. (DOCX)
Article
This paper describes the people, activities and methods of consumer engagement in a complex research project, and reflects on the influence this had on the research and people involved, and enablers and challenges of engagement. The 2.5-year Integrating and Deriving Evidence Experiences and Preferences (IN-DEEP) study was conducted to develop onlin...
Article
Full-text available
Background: Early childhood vaccination is an essential global public health practice that saves two to three million lives each year, but many children do not receive all the recommended vaccines. To achieve and maintain appropriate coverage rates, vaccination programmes rely on people having sufficient awareness and acceptance of vaccines.Face-t...
Article
Full-text available
Objective To identify research priorities of consumers and other stakeholders to inform Cochrane Reviews in ‘health communication and participation’ (including such concepts as patient experience, shared decision-making and health literacy). Setting International. Participants We included anyone with an interest in health communication and partic...
Article
Objective To evaluate research priority setting approaches in childhood chronic diseases and to describe the priorities of stakeholders including patients, caregivers/families and health professionals. Design We conducted a systematic review of MEDLINE, Embase, PsycINFO and CINAHL from inception to 16 October 2016. Studies that elicited stakeholde...
Article
Full-text available
Objective The aim of the present study was to investigate whether the content of annual Victorian quality of care reports had an increased consumer participation focus following the introduction of the National Safety and Quality Health Service (NSQHS) Partnering with Consumers standard.MethodsA mixed-methods approach comprising a comparative descr...
Article
Full-text available
Background and Aims In earlier work, we identified that people affected by multiple sclerosis (MS) can have difficulty finding online treatment information that is up to date, trustworthy, understandable, and applicable to personal circumstances, but does not provoke confusion or negative emotional consequences. The objective was to develop online...
Article
Full-text available
Background Effective vaccination communication with parents is critical in efforts to overcome barriers to childhood vaccination, tackle vaccine hesitancy and improve vaccination coverage. Health workers should be able to provide information to parents and other caregivers and support them in reaching decisions about vaccinating their children. Lim...
Data
Focus group discussion guidefor caregivers. (DOCX)
Data
Interview guide for vaccinators, health workers, traditional and religious leaderss. (DOCX)
Article
People with intellectual and/or developmental disability (I/DD) commonly have complex health care needs, but little is known about how their health information is managed in supported accommodation, and across health services providers. This study aimed to describe the current health information infrastructure (i.e., how data and information are co...
Article
Full-text available
Objectives While still in its early stages, recent scientific research towards a cure for HIV has generated widespread media interest. The aim of this paper was to explore the ways in which this research has been represented in Australian print and online media and discuss implications of this. Methods A search of databases from four selected medi...
Article
Full-text available
Background: My Health Record is Australia's electronic personal health record system, which was introduced in July 2012. As of August 2017, approximately 21 percent of Australia's total population was registered to use My Health Record. Internationally, usability issues have been shown to negatively influence the uptake and use of electronic healt...
Article
Full-text available
Background Understanding stakeholders’ (parents’, communities’ and health workers’) perspectives of communication about childhood vaccination, including their preferences for its format, delivery and content, is an important step towards designing better communication strategies and ensuring more informed parents. Our objectives were to explore sta...
Data
Survey results for communication about the polio vaccine. (PDF)