Silke Mader

Silke Mader
European Foundation for the Care of Newborn Infants | EFCNI

Parent representative, research in preterm birth and maternal and newborn care

About

60
Publications
6,313
Reads
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320
Citations
Citations since 2017
44 Research Items
267 Citations
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2017201820192020202120222023020406080
Introduction
Research in the broad field of maternal and newborn care seeking to constantly improve care procedures to provide every newborn with the best start in life.

Publications

Publications (60)
Article
Introduction: Other than for agreement that own mother's milk is the optimum feed, nutritional practice for very preterm babies varies widely. As part of the development of a randomised controlled trial to address preterm nutrition uncertainties, and with the help of the European Foundation for the Care of Newborn Infants (EFCNI), we sought the vi...
Article
Background: Motor impairment is common after extremely preterm (EPT, <28 weeks' gestational age (GA)) birth, with cerebral palsy (CP) affecting about 10% of children and non-CP movement difficulties (MD) up to 50%. This study investigated the sociodemographic, perinatal and neonatal risk factors for CP and non-CP MD. Methods: Data come from a Eu...
Article
Full-text available
Purpose This study aims to (1) describe the health-related quality of life (HRQoL) outcomes experienced by children born very preterm (28–31 weeks’ gestation) and extremely preterm (< 28 weeks’ gestation) at five years of age and (2) explore the mediation effects of bronchopulmonary dysplasia (BPD) and severe non-respiratory neonatal morbidity on t...
Article
Full-text available
Importance: Parent-infant closeness and active parent participation in neonatal care are important for parent and infant health. Objective: To give an overview of current neonatal settings and gain an in-depth understanding of facilitators and barriers to parent-infant closeness, zero-separation, in 19 countries. Methods: Neonatal intensive ca...
Article
Full-text available
Respiratory syncytial virus (RSV) infects nearly all infants at least once by their second birthday (1). It spreads through coughs, sneezes, or close physical contact (2). RSV infections are associated with morbidity and mortality, ranging from mild upper respiratory illness to life threatening lower respiratory tract infections (LRTIs). More than...
Article
Full-text available
Introduction: Approximately, one in ten infants is born preterm or requires hospitalization at birth. These complications at birth have long-term consequences that can extend into childhood and adulthood. Timely detection of developmental delay through surveillance could enable tailored support for these babies and their families. However, the pos...
Article
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Objectives The COVID-19 pandemic has disrupted healthcare systems, challenging neonatal care provision globally. Curtailed visitation policies are known to negatively affect the medical and emotional care of sick, preterm and low birth weight infants, compromising the achievement of the 2030 Development Agenda. Focusing on infant and family-centred...
Article
Full-text available
Zusammenfassung Einleitung Die parenterale Ernährung (PE) ist gewöhnlich bei Frühgeborenen<1500 g Geburtsgewicht und kranken Neugeborenen indiziert und gewährleistet eine Versorgung mit essentiellen Nährstoffen. Da ein hohes Maß Therapiesicherheit erforderlich ist, gibt die europäische Leitlinie Empfehlungen zur sicheren Anwendung. Dieses Projekt z...
Poster
1. Einleitung Deutschlandweit erhalten pro Jahr über 10.000 Früh- und kranke Neugeborene eine parenterale Ernährung. Aufgrund damit verbundener Risiken erarbeiteten europäische Fachgesellschaften eine evidenzbasierte Leitlinie für die Anwendung bei diesem Patientenkollektiv. Dennoch kommt es immer wieder zu Abweichungen und Behandlungsfehlern, von...
Article
Full-text available
Background This study aims to estimate the economic costs of care provided to children born very preterm and extremely preterm across 11 European countries, and to understand what perinatal and socioeconomic factors contribute to higher costs. Methods Generalised linear modelling was used to explore the association between perinatal and sociodemog...
Article
Full-text available
Respiratory syncytial virus (RSV)—the most common viral cause of bronchiolitis—is a significant cause of serious illness among young children between the ages of 0–5 years and is especially concerning in the first year of life. Globally, RSV is a common cause of childhood acute lower respiratory illness (ALRI) and a major cause of hospital admissio...
Article
Full-text available
Background The COVID-19 pandemic restrictions affect provision and quality of neonatal care. This global study explores parents’ experiences regarding the impact of the restrictions on key characteristics of infant and family-centred developmental care (IFCDC) during the first year of the pandemic. Methods For this cross-sectional study, a pre-tes...
Article
Full-text available
Zusammenfassung Hintergrund Die Leitlinien der „European Society for Paediatric Gastroenterology, Hepatology and Nutrition“ (ESPGHAN) liefern evidenzbasierte Empfehlungen zu parenteraler Ernährung (PE) von Frühgeborenen und kranken Neugeborenen. Im Jahr 2013 wurde gezeigt, dass sie in Westeuropa nur teilweise angewendet werden und ihre klinische I...
Article
Aim Among children who receive hospital care, preterm infants are Europe’s largest group, whose numbers are continually increasing. Currently, no pan‐European standards of care for preterm or critically ill infants are available, except for a few specific topics, and practices vary widely in different regions. Methods The European Foundation for t...
Article
Every year more than one in ten infants—an estimated 15 million—are born preterm (before 37 weeks of completed gestation), with increasing numbers globally. Preterm birth has severe consequences, including bronchopulmonary dysplasia (BPD), and is the leading cause of all deaths under five years of life, responsible for approximately one million dea...
Article
Aims: This is an official guideline of the German Society for Gynecology and Obstetrics (DGGG), the Austrian Society for Gynecology and Obstetrics (ÖGGG) and the Swiss Society for Gynecology and Obstetrics (SGGG). The aim of this guideline is to improve the prediction, prevention and management of preterm birth based on evidence obtained from rece...
Article
Zusammenfassung Ziel Offizielle Leitlinie der Deutschen Gesellschaft für Gynäkologie und Geburtshilfe (DGGG), der Österreichischen Gesellschaft für Gynäkologie und Geburtshilfe (ÖGGG) und der Schweizerischen Gesellschaft für Gynäkologie und Geburtshilfe (SGGG). Ziel der Leitlinie ist es, die Prädiktion, die Prävention und das Management der Frühgeb...
Article
Full-text available
Recently adopted regulatory standards on infant and follow-on formula for the European Union stipulate that from 2021 onwards, all such products marketed in the European Union must contain 20-50 mg/100 kcal of omega-3 docosahexaenoic acid (DHA), which is equivalent to about 0.5-1 % of fatty acids and thus higher than typically found in human milk a...
Article
Aims This is an official guideline of the German Society for Gynecology and Obstetrics (DGGG), the Austrian Society for Gynecology and Obstetrics (ÖGGG) and the Swiss Society for Gynecology and Obstetrics (SGGG). The aim of this guideline is to improve the prediction, prevention and management of preterm birth based on evidence obtained from recent...
Article
Aims This is an official guideline of the German Society for Gynecology and Obstetrics (DGGG), the Austrian Society for Gynecology and Obstetrics (ÖGGG) and the Swiss Society for Gynecology and Obstetrics (SGGG). The aim of this guideline is to improve the prediction, prevention and management of preterm birth based on evidence obtained from recent...
Technical Report
Full-text available
In 2018, WHO, UNICEF, the World Bank Group, and other partners launched Nurturing Care for Early Childhood Development: A Framework for Helping Children Survive and Thrive to Transform Health and Human Potential at the 71st World Health Assembly. The new Nurturing Care Framework draws on state-of-the-art evidence regarding early childhood developme...
Article
The European Foundation for the Care of Newborn Infants (EFCNI) is the first pan‐European organisation and network to represent the interests of preterm and newborn infants and their families. The Foundation brings together parents, healthcare experts from different disciplines and scientists with the common goal of improving the long‐term health o...
Article
Full-text available
Background: Breast milk is the best and first choice for the nutrition of newborns and especially preterm and ill newborn infants. When mother’s own milk is not or only insufficiently available, quality controlled donor milk is the second-best option. For this purpose, milk banks fulfill a key role to ensure safe donor milk for infants in need. Goa...
Article
The European Foundation for the Care of Newborn Infants (EFCNI), founded in April 2008, is the first pan-European organisation and network to represent the interests of preterm and newborn infants and their families. It gathers together parents, healthcare experts from various disciplines, scientists, politicians and other stakeholders with the com...
Article
The family-centered care model is becoming a broadly accepted care concept for infants in the intensive care environment. The involvement of parents as equal partners to deliver optimal care for the baby is one key element of this concept. This article highlights seven aspects to be addressed when parents become an integral part of the care team. H...
Article
Especially parents of former preterm infants know exactly what it means to get a preterm baby. The pregnancy can end before the pregnant woman has had a belly or even felt the movements of the baby. Many couples did not yet decide on the baby’s name when it is born. Psychologists often speak about a stolen pregnancy and a stolen normal delivery. Ev...
Article
Full-text available
Maternal mortality has declined by nearly half since 1990, but over a quarter million women still die every year of causes related to pregnancy and childbirth. Maternal-health related targets are falling short of the 2015 Millennium Development Goals and a post-2015 Development Agenda is emerging. In connection with this, setting global research pr...
Article
This position statement summarises a view of academia regarding standards for clinical research in collaboration with commercial enterprises, focussing on trials in pregnant women, breastfeeding women and children. It is based on a review of the available literature and an expert workshop co-sponsored by the Early Nutrition Academy and the European...
Chapter
Accoucher d’un enfant prématuré peut s’avérer être une expérience traumatisante et source d’isolement. Peu de gens comprennent les problèmes spécifiques que rencontrent les parents de bébés nés trop tôt. Les bébés prématurés sont hospitalisés durant de longues périodes, parfois plusieurs mois, dans des établissements qui peuvent être éloignés de le...
Article
Full-text available
Ohlsson and Jacobs1 have again examined the NIDCAP and the research on its efficacy. The Board of Directors of the NIDCAP Federation International (NFI) deems their report an invalid and misleading evaluation of a well-established and demonstrably effective program. In fact, they summarize an array of impressive results, most from randomized contr...
Chapter
Full-text available
The situation and the challenges with regard to preterm birth in Europe 69 The situation and the challenges with regard to preterm birth in Europe 68 © EFCNI This chapter is based on a verbal presentaion given to the Quality of Childhood Group in the European Parliament by Professor Luc Zimmermann, Professor Dominique Haumont and Silke Mader on 4th...
Book
Caring for Tomorrow, the EFCNI White Paper on Maternal and Newborn Health and Aftercare Services aims to highlight some of the key concerns with regard to this growing patient group. The White Paper should be used as a reference for policy makers and politicians, but also for parent organisations, healthcare professionals and other concerned stakeh...
Article
Objective: Infants born preterm are at increased risk of adverse health and developmental outcomes. Our objective was to measure the socioeconomic burden of preterm birth on their parents and the society.
Article
The risk of dying is highest in the time around birth - a time when safe childbirth and effective neonatal care are essential to the survival of the newborn baby. Four million neonatal deaths occur every year around the world - that is 450 every hour. Preterm birth is the major cause of infant mortality and morbidity in both developed and developin...
Article
Preterm birth is the major cause of infant mortality and morbidity in both developed and developing countries. In Europe, the prevalence rate of premature birth ranges from 5.5 to 11.4% - an average of 7.1% of all live births. In this report, we aim to compare the current health and social policies, as well as practices in 13 EU member states. Usin...

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Projects

Project (1)
Project
Europe needs new ideas and solutions to address the disparities in the care of preterm and ill babies. The European Standards of Care for Newborn Health project presents such a solution by providing European reference standards for this health care area. For more details see also here: https://www.efcni.org/activities/projects-2/escnh/