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Publications (41)
Objectives: One of the behavioral problems strongly associated with emotional dysregulation (ED) in ASD is emotional outbursts (EOs) characterized by a pattern of challenging behavior that varies across individuals and across time. Cultural factors can modulate the expression of EOs. This study aimed to characterize the profile of emotional outburs...
Autistic children and their caregivers in Argentina often lack access to information, resources and evidence-based interventions. Caregiver empowerment may help support families to uphold their child’s rights and access suitable education and support. This study aimed to examine the perceptions on empowerment of caregivers of autistic children in A...
Background
The COVID-19 pandemic brought an increased incidence of disease and mortality in the world at large, making it a particularly salient and stressful life event. For those individuals residing in Latin America, the pandemic was met with fragmented healthcare systems, economic downturn, and sociopolitical crisis which puts autistic individu...
Background
Tuberous sclerosis complex (TSC) is associated with a wide range of physical manifestations for which international clinical recommendations for diagnosis and management have been established. TSC is, however, also associated with a wide range of TSC-Associated Neuropsychiatric Disorders (TAND) that are typically under-identified and und...
Introduction. Here we describe the interim results of the Program to Support Child Sleep from the Occupational Therapy Perspective (Programa de Acompañamiento al Sueño en la Infancia desde Terapia Ocupacional, PASITO) for children with neurodevelopmental disorders (NDDs) aged 3-10 years with insomnia, conducted between June 2020 and September 2021....
Background:
Tuberous sclerosis complex-associated neuropsychiatric disorders (TAND) are often present but underidentified and undertreated in individuals with tuberous sclerosis complex (TSC). The clinician-completed TAND-Lifetime Checklist (TAND-L) was developed to address this identification and treatment gap. Stakeholder engagement identified t...
Metacognition -the human ability to recognize correct decisions- is a key cognitive process linked to learning and development. Several recent studies investigated the relationship between metacognition and autism. However, the evidence is still inconsistent. While some studies reported autistic people having lower levels of metacognitive sensitivi...
An earlier diagnosis of autism spectrum disorder might lead to an earlier intervention, yet knowledge and awareness of autism spectrum disorder in Latin America and Caribbean Countries are limited. A later autism spectrum disorder diagnosis has been associated with negative consequences, as it might imply later access to services. This study aims t...
Delayed diagnosis and a lack of adequate care for people with autism spectrum disorder
(ASD) are related to worse outcomes and quality of life. This study aimed to identify the profile of
service use, barriers to access care, and factors related to those barriers in Brazilian families with
children with ASD. A total of 927 families with children wi...
Do people with autism spectrum disorder (ASD) have altered metacognition? Despite the practical and theoretical importance of this question, the evidence is inconsistent. We ran an experiment to test the relationship between visual metacognition and ASD traits in a sample of 360 neurotypical people. We operationalized metacognition as the correspon...
Delayed diagnosis and a lack of adequate care for people with autism spectrum disorder (ASD) are related to worse outcomes and quality of life. This study aimed to identify the profile of service use, barriers to access care, and factors related to those barriers in Brazilian families with children with ASD. A total of 927 families with ASD childre...
Background
Many countries have developed health initiatives to protect those with disabilities and developmental concerns in the past few years. However, the needs of autistic individuals are still short of being fulfilled. Partially due to limited research expenditure, which would allow bridging the gap between evidence and practice, the long time...
Introducción:
Las personas del Espectro Autista (EA) enfrentan múltiples necesidades de salud, educación, proble mas sociales y económicos. La información disponible en Chile es insuficiente.
Objetivo:
Conocer el acceso y satisfacción con servicios de salud y educación, el impacto familiar y económico, estigma y calidad de vida de personas EA y su...
Introduction
Tuberous Sclerosis Complex (TSC) is a multi-system genetic disorder with various TSC-Associated Neuropsychiatric Disorders (TAND) that significantly impact the mental health and wellbeing of individuals with TSC and their caregivers. TAND represents the number one concern to families worldwide, yet is highly under-identified and under-...
Background
Tuberous sclerosis complex (TSC)–associated neuropsychiatric disorders (TAND) is an umbrella term for the behavioural, psychiatric, intellectual, academic, neuropsychological and psychosocial manifestations of TSC. Although TAND affects 90% of individuals with TSC during their lifetime, these manifestations are relatively under-assessed,...
Background
Relationship of perceived stigma and barrier to service access among Latino populations with autism in cross-cultural settings has not been fully explored.
Aim
The present study explored the relationship between difficulty accessing services and perceived stigma among caregivers of autistic children in Latin America. Additionally, explo...
ASD is a neurodevelopmental disorder that affects people across the entire lifespan, yet most of the research identifying the health and medical needs for autistic individuals have been among minors. As individuals with ASD transition to emerging adulthood, the services, already limited, become less available. This study aimed to identify the use o...
We present a multicenter study conducted through an online survey of 1826 families of people with ASD from Argentina, Brazil, Chile, Mexico, Peru, the Dominican Republic, Uruguay and Venezuela. Our objective is to describe the impact of the pandemic –and social isolation– on the behavior, mood, sleep and diet of people with ASD. To this end, we hav...
Presentamos un estudio multicéntrico realizado a través de una encuesta en línea a 1826 familias de personas con TEA de Argentina, Brasil, Chile, México, Perú, República Dominicana, Uruguay y Venezuela. Nuestro objetivo es describir el impacto de la pandemia –y el aislamiento social– en la conducta, el estado de ánimo, el sueño y la alimentación de...
Background:
There is a worldwide emergency because of the COVID-19 outbreak. Challenges related to quarantine and lockdown are an added burden to those already experienced by families with a member on the spectrum living in low and middle-income countries. Approximately 6 million individuals with autism live in Latin America. These countries share...
Background: Core symptoms of Autism Spectrum Disorder (ASD) continue to affect everyday life as children grow and transition into adulthood. That way, different services may be needed at various stages of their lifetimes. This study aimed to describe service encounters and hours of service per week for individuals with ASD in Latin American countri...
ASD knowledge, services and research infrastructure in Latin America are limited and unevenly distributed. In 2015, researchers from Argentina, Brazil, Chile, Uruguay, Venezuela and Dominican Republic constituted the Latin American Autism Spectrum Network (Red Espectro Autista Latinoamerica – REAL) in order to conduct international research collabo...
Lay abstract:
Approximately 6 million individuals with autism spectrum disorder live in Latin America. In order to strengthen autism spectrum disorder research collaborations and awareness in the region, the Latin American Autism Spectrum Network (Red Espectro Autista Latinoamerica) was constituted in 2015, comprising researchers and clinicians fr...
In 2014, parent and professional organizations in Argentina created RedEA (Red Espectro Autista – Autism Spectrum Network) in order to increase ASD awareness and influence public policy related to ASD. The first project undertaken by RedEA was an ASD early detection awareness campaign called Mirame (Look at Me). In 2016, RedEA developed the Transit...
The knowledge, services and research infrastructure in Latin America are limited and unequally distributed. In Peru, there are no precise epidemiological data on ASD or health and education services for people with ASD and their families. This research collects data from Peruvian families about their needs, their life quality and whether they have...
No medication has been proven effective in treating core characteristics of intellectual disability or autism. Psychotropic medications are frequently used to target psychiatric symptoms in children, adolescents and adults with developmental conditions, despite the little evidence for their efficacy. This article aimed to summarize current evidence...
Background: Parent-implemented interventions for young children with ASD have been found to be associated with improvements in child social engagement (e.g. Casenhiser and Shanker. 2011; Kasari et al.2010; Patterson, Elder, Gulsrud and Kasari, 2013) language (Coolican et al. 2010; Vismara et al. 2009), imitation (Ingersoll and Gergans, 2007), and p...
The dimensional approach to autism spectrum disorder (ASD) considers ASD as the extreme of a dimension traversing through the entire population. We explored the potential utility of electroencephalography (EEG) functional connectivity as a biomarker. We hypothesized that individual differences in autistic traits of typical subjects would involve a...
This comment is based on our research studies related to the development of written language in persons with Pervasive Developmental Disorders (American Psychiatric Association, 1998) who lacked language, or whose language was echolalic or bizarre, limited to few words and who did not communicate by means of sign language or handwriting.
Anatomical and functional brain studies have converged to the hypothesis that Autism Spectrum Disorders (ASD) are associated with atypical connectivity. Using a modified resting-state paradigm to drive subjects' attention, we provide evidence of a very marked interaction between ASD brain functional connectivity and cognitive state. We show that fu...
Anatomical and functional brain studies have converged to the hypothesis that autism spectrum disorders (ASD) are associated with atypical connectivity. Using a modified resting-state paradigm to drive subjects' attention, we provide evidence of a very marked interaction between ASD brain functional connectivity and cognitive state. We show that fu...
Background:
Interoception is our sensitivity to stimuli originating inside of the body. As humans, we perceive feelings from our bodies that relate our state of well-being, our energy and stress levels, our mood and disposition, all of which seem to be impaired in ASD. Anatomical and functional brain studies have converged to the hypothesis that A...
Background: The concept of public health is relatively new in Latin America where general knowledge about ASDs is poor. In Argentina, most of the trained clinicians, diagnostic and treatment resources, and medical infrastructure are centralized in the capital, Buenos Aires, and knowledge and resources in the interior of the country are largely lack...
Autism Spectrum Disorders do not have a treatment that offers definitive solution to the serious challenges faced by people who suffer from them. Consequently, as in other chronic conditions, many therapeutic interventions are offered, each based on different neurobiological or psychological hypotheses. In the present article criteria for the organ...
Over the last years, increasing evidence has fuelled the hypothesis that Autism Spectrum Disorder (ASD) is a condition of altered brain functional connectivity. The great majority of these empirical studies relies on functional magnetic resonance imaging (fMRI) which has a relatively poor temporal resolution. Only a handful of studies has examined...
Over the last years, increasing evidence has fuelled the hypothesis that Autism Spectrum Disorder (ASD) is a condition of altered brain functional connectivity. The great majority of these empirical studies rely on functional magnetic resonance imaging (fMRI) which has a relatively poor temporal resolution. Only a handful of studies have examined n...
Autism constitutes one of the most investigated disorders in child psychiatry. The heterogeneous clinical phenomena that characterize it have been exhaustibly described along the last 62 years. Multiple aetiological hypothesis, neuropsychological theories and physiopathological mechanisms, sometimes complementary and other times mutually exclusive,...
