Sandra Julsen Hollung

Sandra Julsen Hollung
Sykehuset i Vestfold HF Tønsberg · Norwegian Quality and Surveillance Registry for Cerebral Palsy (NorCP)

PhD in Medicine and Health Sciences

About

25
Publications
2,383
Reads
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135
Citations
Additional affiliations
April 2007 - February 2021
Vestfold Hospital Trust
Position
  • Researcher
Education
January 2017 - October 2019
Norwegian University of Science and Technology
Field of study
  • Medicine and Health Sciences

Publications

Publications (25)
Article
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In this letter we advocate for rights of children with disabilities in the Ukrainian conflict zone. We express solidarity with colleagues and families helping refugees in nearby countries. Please donate and.support associations helping refugees with disabilities
Article
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Aim To describe causal events, perinatal risk factors and clinical characteristics in children with postneonatal cerebral palsy (PNCP). Methods Population-based registry study of Norwegian children born 1999-2013. Prevalence, causal events and clinical characteristics of PNCP were described. The occurrence of perinatal risk factors for CP was comp...
Article
Full-text available
Cerebral palsy (CP) comprises a heterogeneous group of conditions recognized by disturbances of movement and posture and is caused by a non-progressive injury to the developing brain. Birth prevalence of CP is about 2–2.5 per 1,000 live births. Although the motor impairment is the hallmark of the diagnosis, individuals with CP often have other impa...
Article
Full-text available
Background: Spasticity is present in more than 80% of the population with cerebral palsy (CP). The aim of this study was to describe and compare the use of three spasticity reducing methods; Botulinum toxin-A therapy (BTX-A), Selective dorsal rhizotomy (SDR) and Intrathecal baclofen therapy (ITB) among children and adolescents with CP in six north...
Article
Aim To describe the major congenital anomalies present in children with postneonatally acquired cerebral palsy (CP), and to compare clinical outcomes and cause of postneonatally acquired CP between children with and without anomalies. Method Data were linked between total population CP and congenital anomaly registers in five European and three Au...
Article
Full-text available
BACKGROUND For more than 20 years, intramuscular injections of botulinum toxin A have been an established treatment for spasticity in children with cerebral palsy. We investigated the proportion of children with cerebral palsy who receive such treatment in Norway and the guidelines that apply to the treatment. MATERIAL AND METHOD Data from the fiv...
Article
Full-text available
Aims: To describe the early experiences of a Nordic multidisciplinary cerebral palsy (CP) registry research program combining data from national medical quality registries, follow-up programs and cohort data, in addition to data from other national registries; to explore the scientific and practical uses of such research, and provide recommendatio...
Technical Report
Full-text available
The Surveillance of Cerebral Palsy in Europe (SCPE) 20th Anniversary Scientific Report 1998-2018.
Article
Full-text available
Background: The aim of our study was to explore if the prevalence and clinical characteristics of cerebral palsy (CP), concomitant with perinatal health indicators in the general population, remained unchanged for children born in Norway between 1999 and 2010. Methods: This national multi-register cohort study included 711 174 children recorded...
Conference Paper
Background and Objective(s): Children with cerebral palsy (CP) and epilepsy have more severe gross motor impairment and higher prevalence of associated problems compared with children with CP without epilepsy. The Cerebral Palsy Register of Norway (CPRN) is a national medical quality register that records data on children and youths at three points...
Conference Paper
Introduction: The objective of this study was to explore time trends on children born 1996–2009, recorded in The Cerebral Palsy Register of Norway. Patients and method: 2165 children with CP (58% boys) were categorized into 3 time periods based upon birth years: PI, 1996–1999; PII, 2000–2004; and PIII, 2005–2009. Chi-Square statistics were used to...
Article
Full-text available
Aim: To assess completeness and correctness of cerebral palsy (CP) diagnoses in the Cerebral Palsy Register of Norway (CPRN) and the Norwegian Patient Register (NPR), and to estimate CP prevalence. Method: Among 747 883 Norwegian residents born from 1996 to 2007, 2231 had a diagnosis of CP in the NPR while 1441 were registered in the CPRN. Child...
Conference Paper
Background and Objective(s): The Cerebral Palsy Register of Norway (CPRN) is a national medical quality register that has recorded data on children and youths in Norway since birth year 1996. The main aims are to monitor the prevalence of CP, clinical characteristics and associated impairments, and to report significant time trends. Thus, the objec...
Conference Paper
Full-text available
Title: Prediction of speech intelligibility of children with cerebral palsy (CP) from characteristics at 2 years of age Background: Approximately half of all children with CP have difficulties communicating. The ability to predict speech outcome from early childhood characteristics would enable tailored early intervention to promote communication...
Poster
Full-text available
To study to what extent associated impairments recorded at the time of diagnosis are present at five years of age, to identify areas of concern early.
Poster
Full-text available
To study if the proportion of children with CP treated with BoNT-A differ between GMFCS and MACS levels, as well as between the health regions in Norway.
Thesis
There are nearly 200 national medical quality registries in Scandinavia that collect a defined set of clinical data on patients with a specific diagnosis or condition, with the aim to monitor and improve healthcare services nationwide. However, there is great variation in the quality of data recorded in the registries. Therefore, a literature revie...
Conference Paper
Full-text available
Background and aims CP is a clinical diagnosis caused by a brain anomaly or injury early in life. Cerebral MRI is increasingly used in the diagnostic work-up to demonstrate the location and extension of the lesion, and may in addition provide clues to aetiology and timing. The aim of this study was to describe the distribution of different MRI patt...
Conference Paper
Introduction: Most cerebral palsy (CP) registers record data when the diagnosis is confirmed. The goal of the CP Register of Norway (CPRN) is to also record follow-up data in adolescence. Such data can be used to assess challenges in the transition from childhood to adulthood, and quality of care. For this purpose a comprehensive registration was d...

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Projects

Projects (3)
Project
The CPPain survey is a comprehensive cross-sectional, multinational, study. In total, the researchers plan to recruit approximately 1,400 children with CP (primary participants) across several countries over 6-12 months using multimodal recruitment strategies. The research is headed by PI Randi Dovland Andersen (Norway). Ann Alriksson-Schmidt is responsible for the Swedish arm of the study.
Project
A multisite multidisciplinary 4-year register project that focuses on the outcomes of adults with CP, and parents of children with CP. Funded by Nordforsk.
Archived project
We want to explore trends over the last 15 years, with special interest on the decrease of prevalence of CP in Norway as well as changes in clinical characteristics (less severe disabilty) in relation to newer treatments for premature children and children with HIE.