Robin L. Pierce

Robin L. Pierce
University of Exeter | UoE · Law School

J.D., P.h.D.
pierce7@post.harvard.edu

About

51
Publications
6,341
Reads
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425
Citations
Education
August 2001 - June 2007
Harvard University/ University of California - Berkeley
Field of study
  • Health Policy - Ph.D./ Juris Doctor (Law) - UC, Berkeley

Publications

Publications (51)
Chapter
Full-text available
The eagerly awaited transition back into a functioning and vibrant society presents numerous challenges, not the least of which is how to protect the vulnerable. As society emerges from the “crisis” phase and the lockdown is lifted, it remains unclear to what extent it should be left to the vulnerable to protect themselves. The elderly, the infirm,...
Chapter
Full-text available
The integration of artificial intelligence (AI) technologies in healthcare promises safer, more efficient, and more personalised care. Typical applications of such systems include personalised diagnosis, early disease detection, hospitalisation risk prediction, and drug discovery. These technologies process vast amounts of data, can learn from expe...
Article
Full-text available
Many are calling for concrete mechanisms of oversight for health research involving artificial intelligence (AI). In response, institutional review boards (IRBs) are being turned to as a familiar model of governance. Here, we examine the IRB model as a form of ethics oversight for health research that uses AI. We consider the model's origins, analy...
Article
Participatory research in multiple forms is rapidly gaining ground and stands to provide valuable benefits in the area of health research. Citizen science, an increasingly popular form of participatory research, aims to involve laypersons in knowledge production and, as such, can offer new insights that may not be readily accessible by the traditio...
Article
Full-text available
The use of artificial intelligence (AI) in healthcare comes with opportunities but also numerous challenges. A specific challenge that remains underexplored is the lack of clear and distinct definitions of the concepts used in and/or produced by these algorithms, and how their real world meaning is translated into machine language and vice versa, h...
Article
Several types of robots are currently being designed and introduced to address the needs of dementia patients at various stages of the disease progression. Robots hold the potential to fill some of the gap left by nursing and other staff shortages. In recent years, smaller, lighter, and less expensive robots have entered the market. Moreover, more...
Article
Full-text available
Pediatric access to exoskeletons lags far behind that of adults. In this article, we promote inclusiveness in exoskeleton robotics by identifying and addressing challenges and barriers to pediatric access to this potentially life-changing technology. We first present available exoskeleton solutions for upper and lower limbs and note the variability...
Chapter
Full-text available
The integration of cyber-physical robotic systems in healthcare settings is accelerating, with robots used as diagnostic aids, mobile assistants, physical rehabilitation providers, cognitive assistants, social and cognitive skills trainers, or therapists. This chapter investigates currently still underexplored privacy and data protection issues in...
Article
Present discussions on the implications of the GDPR for medical practice and health research mostly target the passive collection of health data. This article shifts the lens of analysis to the scarcely researched and rather different phenomenon of the active sharing of health data within the framework of Citizen Science projects. Starting from thi...
Article
Teaching the topic of genetics in relationship to ancestry and race generates many questions, and requires a teaching strategy that encourages perspective-based exploration and discussion. We have developed a set of dialogues for discussing the complex science of genetics, ancestry, and race that is contextualized in real human interactions and tha...
Article
*Gelinas, *Pierce (co-lead authors)The use of social media as a recruitment tool for research with humans is increasing, and likely to continue to grow. Despite this, to date there has been no specific regulatory guidance and there has been little in the bioethics literature to guide investigators and institutional review boards (IRBs) faced with n...
Article
Full-text available
In the face of energy security and climate change, and with technological advances, many industrial countries have embraced the transition to a bioeconomy – an economy based on energy, chemicals and materials obtained from biomass. However, the policy and academic discourses on a bioeconomy transition suggest growing controversy around its social,...
Article
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Abstract A currently burgeoning literature in planning and policy studies engages with the travel of policy models across countries and sites through novel concepts such as policy translation, policy mobility, and mutations. Increasingly, this literature calls for ethnographic methods to study the travel of policy models. Such methods require vario...
Article
Translational nanomedicine occurs only through the successful integration of multiple inputs and iterative modifications. The therapeutic window plays a pivotal role in the trajectory of translational nanomedicine. Often defined in terms of the range of dosage for safe and effective therapeutic effect, a second definition of the therapeutic window...
Article
The challenges encountered in biotechnology research cannot be characterized solely by the scientific undertaking alone. Increasingly, scientists and policy-makers are actively seeking ways to address social responsibility in biotechnological innovation. The European Commission has taken a highly visible position on the importance of societal opini...
Article
The recent proposal by Douglas and Savulescu for an ethics of knowledge provokes a renewed consideration of an enduring issue. Yet, the concept raises significant challenges for procedural and substantive justice. Indeed, the operationalisation of 'an ethics of knowledge' could be as alarming as what it seeks to prevent. While we can acknowledge th...
Article
This work addresses the implications of the “biomedical paradigm” for criminal responsibility. Both descriptive and normative distinctions are frequently made about criminal responsibility based on what may be described as “the biomedical paradigm”, i.e. whether the underlying cause of criminal behavior was due to illness or disease or to some flaw...
Article
Full-text available
Many legal scholars well recognize that, in some instances, support for a law or policy may be primarily because of its expressive function, i.e. the statements it makes about underlying values. In these cases, the expressive content of a law or policy may actually overshadow its central purpose. Examples of this phenomenon, according to Cass Sunst...
Article
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In dementia research evidence is mounting that therapeutic strategies that target moderate and even mild Alzheimer's disease may be missing the 'therapeutic window'. Given that the neuropathology that leads to Alzheimer's disease probably begins somewhere between 10 and 15 years before symptoms manifest, many believe that the optimal therapeutic st...
Article
Potentially major shifts in privacy norms are taking place as a result of advances in genetic technologies. This chapter identifies a spillover effect in the form of the inadvertent emergence of new norms and introduces an original typology developed in response to these new norms regarding privacy. It focuses on the emerging practice of compelling...
Article
The number of persons afflicted by dementia has increased steadily. The need for research leading to diagnostic and therapeutic interventions is widely recognized. However, dementia patients eventually lose the capacity to consent to the very research that could lead to discoveries of effective interventions. Worldwide, surrogate decision-making re...
Article
Mental health courts, premised on the notion of therapeu- tic justice, have become an increasingly appealing way of dealing with what is widely, although not uniformly, seen as the inappropriate incarceration of people who engage in criminal behavior caused by mental illness. Neverthe- less, mental health courts are not without their critics and a...
Article
Full-text available
Deception in human subject research is neither uncommon nor prohibited. The use of deception in the recruitment phase of clinical research has received relatively little attention. Given that informed consent is foundational to human subject research, the practice of misrepresenting the study purpose in clinical research would seem to contradict on...

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Projects

Projects (5)
Project
Healthcare today, more than ever before, is affected by many factors from the shortage of an educated labour force, to the complexity of diseases requiring specific rationalisation leading to increased welfare and the prolongation of the human life span. These issues being relevant to the development and use of digital technologies. Therefore, this installation research project aims, primarily, to analyse the ethical and social implications of technological development critically, and use of digital technologies (artificial intelligence, big data, digital phenotyping) in the healthcare domain. The relevance of this project is reflected in its dual purpose developed through two project phases: the first being scientific-research and the second being an institutional-organisational phase. The former comprises the theoretical and empirical part, providing a complete picture of the ethical and social acceptability of these new technologies within the healthcare sector. The project itself comprises more research goals, the first being to investigate and check whether there exist new ethical and social issues or challenges arising from the digital technologies used within healthcare. The second goal is to verify whether the existing instruments, principles and theories in bioethics and medical ethics can be useful in dealing with these new technologies, or, whether they require particular evolution in the form of a new discipline or sub-discipline of digital medical ethics or bioethics. The empirical part refers to the investigation using qualitative and quantitative methodologies to examine the perception and acceptance of these new technologies in terms of the precise expectations, fears and potential issues as perceived by stakeholders: physicians, patients, engineers and medical students. Besides these research goals, this project, in its institutional-organisational phase, aims to establish a research group and found a digital healthcare ethics laboratory (Digit-HeaL). Funded by the Croatian Science Foundation UIP2019-04-3212.
Project
Explores regulatory, ethical, and governance issues regarding emerging AI technologies for health and medicine.