Raíssa Passos dos Santos

Raíssa Passos dos Santos
Université de Montréal | UdeM · Faculty of Nursing

Doctor of Philosophy

About

26
Publications
2,317
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188
Citations
Introduction
Additional affiliations
March 2014 - February 2016
Federal University of Santa Maria
Position
  • Master's Student

Publications

Publications (26)
Article
Full-text available
Background Multiple barriers can impede the holistic care of children and their meaningful involvement in their healthcare in the context of surgery. These include lack of clinician knowledge of the ethical concerns impacting children and scarce educational resources. Our team created an open-access training module (https://childsxethics.net) to en...
Article
Full-text available
Background: Innovative approaches are needed to address the self-management needs of youths with osteogenesis imperfecta (OI) transitioning into adult-oriented health care systems. Using a sequentially phased research approach, the goal is to design, develop, and test the usability of an innovative eHealth program called “Teens Taking Charge: Manag...
Preprint
BACKGROUND Innovative approaches are needed to address the self-management needs of youth with osteogenesis imperfecta (OI) transitioning into adult-oriented health care systems. Using a sequentially phased research approach, the goal is to design, develop, and test the usability of an innovative e-health program called “Teens Taking Charge”: Manag...
Article
Full-text available
Children with medical complexity have been defined within the literature as chronically ill and medically fragile children with complex care needs. Care for these children raises significant ethical and moral considerations. Therefore, this participatory ethnographic study conducted with eight children and their families aimed to better understand...
Article
Full-text available
The COVID-19 pandemic has impacted the lives of children and adolescents around the world. Hence, this study aimed to examine how the pandemic has impacted children and adolescents in Brazil through an ethical analysis. An interpretive analysis of Brazilian research on child and adolescent health during the pandemic was conducted. Recognizing this...
Article
Full-text available
The COVID-19 pandemic has impacted the lives of children and adolescents around the world. Hence, this study aimed to examine how the pandemic has impacted children and adolescents in Brazil through an ethical analysis. An interpretive analysis of Brazilian research on child and adolescent health during the pandemic was conducted. Recognizing this...
Article
Full-text available
Objective To know the perception of children and adolescents undergoing cancer treatment about hospitalization. Methods Qualitative research conducted with 13 children and adolescents hospitalized for cancer treatment at a referral hospital in southern Brazil. Semi-structured interviews mediated by the drawing technique were conducted from May to...
Article
During the COVID-19 pandemic, the lives of children and adolescents in resource-limited countries have been significantly impacted in complex ways, while largely having their interests overlooked. The purpose of this colloquium is to examine these impacts across seven resource-limited nations and apply an ethical lens to examine the ways in which c...
Article
Full-text available
Objetivo: caracterizar as crianças com necessidades especiais de saúde, internadas em unidade pediátrica de um hospital de ensino, em relação às suas condições clínicas, demandas de cuidados e situação sociodemográfica. Ainda, caracterizar os familiares cuidadores das crianças quanto a sua idade e grau de parentesco. Método: estudo descritivo, com...
Article
Full-text available
Objectives: The aim of this review was to identify and summarize how the moral experiences of children with medical complexity are being expressed within the Brazilian health-related literature and discuss research gaps and directions for future research. Methods: A scoping review was performed using the methodological framework of Arksey and O’Ma...
Article
Full-text available
Objective: to characterize children with special health care needs admitted to a pediatric unit of a teaching hospital in relation to their clinical conditions, care demands and sociodemographic situation. Also, characterize the family caregivers of the children regarding their age and degree of relationship. Method: a descriptive study with a qua...
Article
Full-text available
Objective: To know how children with special health needs access the health care network. Method: This is a qualitative research of descriptive-exploratory type, developed using semi-structured interviews mediated by the Talking Map design. Participants were 19 family caregivers of these children in two Brazilian municipalities. Data were submit...
Article
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Objetivo: o objetivo deste estudo foi descrever o conhecimento prévio de cuidadoras de crianças com necessidades especiais de saúde sobre os cuidados com seus filhos. Métodos: utilizou-se a Pesquisa Convergente Assistencial para a produção de dados por meio de observação participante e entrevistas antes e após a realização da prática de educação em...
Article
Objetivo: o objetivo deste estudo foi descrever o conhecimento prévio de cuidadoras de crianças com necessidades especiais de saúde sobre os cuidados com seus filhos. Métodos: utilizou-se a Pesquisa Convergente Assistencial para a produção de dados por meio de observação participante e entrevistas antes e após a realização da prática de educação em...
Article
Invitation to review a manuscript for publication marks an exciting milestone in graduate and postgraduate students’ training. Yet, peer reviewing is seldom explicitly taught. First-time reviewers approaching this task often lack mentorship, guidelines, and confidence. The ongoing debate about how to judge the quality of qualitative research can fu...
Article
Full-text available
In an ethical dilemma, there is always an option that can be identified as the best one to be chosen. When it is impossible to adopt such option, the situation can lead professionals to experience moral distress. This review aims to define the issue of moral distress and propose coping strategies. Systematic searches in the MEDLINE/PubMed and SciEL...
Article
Background: Pediatric nursing care involves many significant ethical challenges. Although nurses are broadly recognized as professionals with relevant knowledge about children and families, little is known about how nurses experience ethical concerns in their everyday practice. Objective: The objective of this study was to better understand the...
Article
Full-text available
Objetivo: descrever a vivência de professores da educação infantil no processo de inclusão de crianças com necessidades especiais de saúde. Método: pesquisa qualitativa desenvolvida a partir de grupo focal com dez professores de uma escola de educação infantil de um município do Rio Grande do Sul - Brasil. Os dados foram submetidos à análise de con...
Article
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Objective: this article reports on the experience of using the interpretive phenomenological framework of Patricia Benner in a Brazilian context. Benner's interpretive phenomenology, based on existential and interpretative philosophy, aims to understand human experiences in the particular worlds of research participants. Data were collected throug...
Article
Objetivo: Descrever e analisar as implicações da hospitalização nos cuidado à criança com doença crônica ou incapacitante no contexto hospitalar. Método: Trata-se de uma pesquisa bibliográfica do tipo revisão integrativa. A busca foi desenvolvida nas bases de dados LILACS e MEDLINE nos idiomas inglês, português e espanhol sem recorte temporal espec...
Article
Full-text available
Objetivo: Descrever e analisar as implicações da hospitalização nos cuidado à criança com doença crônica ou incapacitante no contexto hospitalar. Método: Trata-se de uma pesquisa bibliográfica do tipo revisão integrativa. A busca foi desenvolvida nas bases de dados LILACS e MEDLINE nos idiomas inglês, português e espanhol sem recorte temporal espec...
Article
Full-text available
Estudio cualitativo que objetivó describir la red de cuidados de niños con necesidades especiales en salud en los diferentes niveles de atención después del alta hospitalaria. Los datos fueron producidos con la aplicación de la dinámica de creatividad y sensibilidad, el mapa hablante y del método creativo sensible, con cinco familias de estos niños...
Article
Full-text available
Se trata de un relato de experiencia que describe una visita realizada al Montreal Children Hospital (Hospital de Niños de Montreal), Canadá, para un curso de enfermería de grado académico en agosto de 2013. El objetivo fue discutir la práctica de la educación en salud desarrollado por la enfermera en este sitio, destacando los puntos donde se acer...
Article
Resumo: O estudo objetiva caracterizar os recém­nascidos internados em terapia intensiva neonatal de um hospital de ensino de 2002 a 2006. Trata­se de um estudo descritivo, retrospectivo com uma abordagem quantitativa. A coleta de dados foi realizada diretamente nos prontuários, por meio de um formulário no período de abril de 2008 a agosto de 2010...

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