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14
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Introduction
Pier Jaarsma holds a PhD in Health and Society. In the four papers presented in his PhD thesis he analyzes and discusses various value statements and moral stances, which he regards as unjustifiably harmful for persons with Autism and obstacles for the creation of an Autism-friendly society. The fourth paper (Cultivation of Empathy in Individuals with High-Functioning Autism Spectrum Disorder. Ethics and Education Volume 8, Issue 3, November 2013, pages 290-300) is not (yet) on ResearchGate.
Additional affiliations
January 2010 - present
Education
January 2010 - April 2014
Publications
Publications (14)
Aim
To describe nurses’ experiences of ethical challenges in relation to thirst in terminally ill patients in specialist palliative care units.
Research design
A qualitative, reflexive thematic design with an inductive analysis was used.
Participants and research context
Eighteen qualitative interviews with nurses working in six different special...
Background:
Ethical principles behind prioritization in healthcare are continuously relevant. However, applying ethical principles during times of increased need, such as during the COVID-19 pandemic, is challenging. Also, little is known about nursing home nurses' prioritizations in their work to achieve well-being and health for nursing home res...
Background
Thirst and dry mouth are common symptoms in terminally ill patients. It is known that family members usually request drips for their dying relative. Few studies have focused on thirst in terminally ill patients and their spouses’ experience of this, leading to a knowledge gap in this area.
Aim
The aim of this study was to explore spouse...
Aims
To describe assistant nurses' experiences of thirst and ethical challenges in relation to thirst in terminally ill patients in specialized palliative care (PC) units.
Design
A qualitative, reflexive thematic design with an inductive analysis was used.
Methods
Data were collected during November 2021–January 2023. Twelve qualitative interview...
Introduction:
Two ethical challenges of nursing home nurses during the COVID-19 pandemic in Sweden are discussed in this paper.
Background:
Historically, the nurse's primary concern is for the person who is ill, which is the core of nurses' moral responsibility and identity. In Sweden, person-centered care is generally deemed important in nursin...
Background
Thirst and dry mouth are common symptoms in terminally ill patients. In their day-to-day practice, palliative care physicians regularly encounter ethical dilemmas, especially regarding artificial hydration. Few studies have focused on thirst and the ethical dilemmas palliative care physicians encounter in relation to this, leading to a k...
Introduction
Thirst and dry mouth are common symptoms among patients at the end of life. In palliative care today, there is a focus on mouth care to alleviate thirst. There are no qualitative studies on thirst from a physician’s experience, which is why this study is needed.
Purpose
This study aimed to explore palliative care physicians’ experienc...
In this paper, for the benefit of reflection processes in clinical and in local, regional, and national priority-setting, we aim to develop an ethical theoretical framework that includes both ethical principles and medium-range narratives. We present our suggestion in the particular case of having to choose between treatment interventions for atten...
We are very grateful to Chong-Ming Lim for his thoughtful reply published in this journal on one of our articles, which motivated us to think more carefully about accommodating autistic individuals and treating autism. However we believe there are some confusions in Lim's argument. Lim uses the accommodation thesis, according to which we should acc...
In the four papers presented in this dissertation I analyze and discuss various value statements
and moral stances, which I regard as unjustifiably harmful for persons with Autism and obstacles
for the creation of an Autism-friendly society. In the papers I try to show that the positions
underpinning the Autism-phobic moral stances are not warrante...
High-functioning individuals with autism spectrum disorder (HF-ASD) typically lack cognitive empathy, compromising their moral agency from both a Kantian and a Humean perspective. Nevertheless, they are capable of exhibiting moral behavior, and sometimes, they exhibit what may be deemed ‘super-moral’ behavior. The empathy deficit poses, to varying...
A preimplantation genetic test to discriminate between severe and mild autism spectrum disorder might be developed in the foreseeable future. Recently, the philosophers Julian Savulescu and Guy Kahane claimed that there are strong reasons for prospective parents to make use of such a test to prevent the birth of children who are disposed to autism...
Lying is a common phenomenon amongst human beings. It seems to play a role in making social interactions run more smoothly. Too much honesty can be regarded as impolite or downright rude. Remarkably, lying is not a common phenomenon amongst normally intelligent human beings who are on the autism spectrum. They appear to be 'attractively morally inn...
Neurodiversity has remained a controversial concept over the last decade. In its broadest sense the concept of neurodiversity regards atypical neurological development as a normal human difference. The neurodiversity claim contains at least two different aspects. The first aspect is that autism, among other neurological conditions, is first and for...