Pauline WhelanThe University of Manchester · Centre for Health Informatics
Pauline Whelan
BA (Mod) (Hons), MSc, PhD
About
59
Publications
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Introduction
Skills and Expertise
Publications
Publications (59)
BACKGROUND
Technology-assisted sexual abuse (TASA) mostly involves the production and non-consensual sharing of sexual images; however, evidence-based support for young people (YP) who have experienced TASA is scant. Digital Health Interventions (DHIs) have the potential to increase access to support and provide timely therapeutic input in a famili...
Co-design has been suggested to improve intervention effectiveness and sustainability. However, digital health intervention co-design is inconsistently reported. This umbrella review aims to synthesize what is known about co-design of digital health interventions. We searched five databases from inception. Reviews which reported on co-design method...
BACKGROUND
Anxiety is one of the most common mental health problems experienced by children worldwide. In the UK, many children experiencing anxiety do not receive adequate or timely help. Children living in economically-disadvantaged areas experience more mental health problems than those living in high income areas and are less able to engage in...
Background
There is growing evidence that Technology Assisted Sexual Abuse (TASA) represents a serious problem for large numbers of children. To date, there are very few evidence-based interventions available to young people (YP) after they have been exposed to this form of abuse, and access to support services remains a challenge. Digital tools su...
Context
This work was undertaken at the Kidney Transplant Unit at Manchester University NHS Foundation Trust, UK. The multi-disciplinary team consisted of clinicians, user experience designers, software developers and project/business managers (included as co-authors).
Issue/Challenge
Kidney transplantation is a complex clinical service with patie...
BACKGROUND
Pharmacogenetics can impact patient care and outcomes through personalizing the selection of medicines, resulting in improved efficacy and a reduction in harmful side effects. Despite the existence of compelling clinical evidence and international guidelines highlighting the benefits of pharmacogenetics in clinical practice, implementati...
Background
Pharmacogenetics can impact patient care and outcomes through personalizing the selection of medicines, resulting in improved efficacy and a reduction in harmful side effects. Despite the existence of compelling clinical evidence and international guidelines highlighting the benefits of pharmacogenetics in clinical practice, implementati...
Aim
Medicines non-adherence is associated with poorer outcomes and higher costs. COVID-19 affected access to healthcare, with increased reliance on remote methods, including medicines supply. This study aimed to identify what affected people’s adherence to medicines for long-term conditions (LTCs) during the pandemic.
Subject and methods
Cross-sec...
Introduction
The use of managerial algorithms is rapidly changing how work is organized and managed globally. Courier work is one of the most affected occupations due to the common use of digital labour platforms (e.g. Meituan, Deliveroo and Uber). Existing research about algorithmic management (AM) has predominantly focused on its functionalities...
Background
Self-efficacy is an important determinant of treatment adherence, and peer modelling of success can provide vicarious self-efficacy. A series of patient stories (‘talking heads’ videos) were developed with people with cystic fibrosis (CF) as part of the CFHealthHub multi-component adherence intervention, aiming to demonstrate success wit...
BACKGROUND
There is no evidence-based support offered to young people who have experienced online sexual abuse (YP-OSA). Interventions aimed at improving mentalisation (the ability to understand the mental states of oneself and others) are increasingly applied to treat young people with varied clinical issues. YP-OSA are reluctant to seek in-person...
Background:
No evidence-based support has been offered to young people (YP) who have experienced technology-assisted sexual abuse (TASA). Interventions aimed at improving mentalization (the ability to understand the mental states of oneself and others) are increasingly being applied to treat YP with various clinical issues. Digital technology use...
There is a need for IT systems that support the complex needs of data management in kidney transplantation. The KidneyCloud project aims to inform a transplant-specific digital solution by exploring patient pathways and data journeys. This paper reports on the early prototyping of the KidneyCloud clinician interface using an iterative codesign meth...
Background
Depression during the postnatal year is prevalent in mothers (17%) and fathers (9%), and suicide is the leading cause of maternal death in this period. Lifelong costs and consequences of untreated postnatal depression (PND) are high due to impacts on infants as well as parents. We aimed to improve access to PND treatment using digital sc...
Objective
To estimate the prevalence of burnout and occupational stress (OS) among couriers and to identify the main risk factors.
Method
We followed PRISMA guidelines to search studies published in English and Chinese databases before February 2022.
Results
The search yielded 15 (7 English and 8 Chinese) papers, 12 of which studied Chinese couri...
Background
People with cystic fibrosis frequently have low levels of adherence to inhaled medications.
Objectives
The objectives were to develop and evaluate an intervention for adults with cystic fibrosis to improve adherence to their inhaled medication.
Design
We used agile software methods to develop an online platform. We used mixed methods t...
As the COVID-19 pandemic has largely increased the utilization of telehealth, mobile mental health technologies – such as smartphone apps, virtual reality, chatbots, and social media – have also gained attention. These digital health technologies offer the potential of accessible and scalable interventions that can augment traditional care. In thi...
Background:
Studies in separate cohorts suggest possible discrepancies between inhaled medicines supplied (median 50-60%) and medicines used (median 30-40%). We performed the first study that directly compares CF medicine supply against use to identify the cost of excess medicines supply.
Methods:
This cross-sectional study included participants...
Introduction
Recurrent pulmonary exacerbations lead to progressive lung damage in cystic fibrosis (CF). Inhaled medications (mucoactive agents and antibiotics) help prevent exacerbations, but objectively measured adherence is low. We investigated whether a multi-component (complex) self-management intervention to support adherence would reduce exac...
BACKGROUND
Recent work across Greater Manchester reports that schools, teachers, and parents/guardians are increasingly concerned about the mental health and well-being of their children, but lack the resources, skills and time to identify or support those susceptible to poor mental health. Similar concerns have been expressed by parents and teachi...
Background:
The incidence of mental health problems in children and adolescents in the United Kingdom has significantly increased in recent years, and more people are in contact with mental health services in Greater Manchester than in other parts of the country. Children and young people spend most of their time at school and with teachers. There...
Background
Cystic fibrosis (CF) is a life-limiting genetic condition in which daily therapies to maintain lung health are critical, yet treatment adherence is low. Previous interventions to increase adherence have been largely unsuccessful and this is likely due to a lack of focus on behavioural evidence and theory alongside input from people with...
Background
Cystic Fibrosis (CF) is a life-limiting genetic condition in which daily therapies to maintain lung health are critical yet treatment adherence is low. Previous interventions to increase adherence have been largely unsuccessful and this is likely due to a lack of focus on behavioural evidence and theory alongside input from people with C...
Objectives
To undertake a process evaluation of an adherence support intervention for people with cystic fibrosis (PWCF), to assess its feasibility and acceptability.
Setting
Two UK cystic fibrosis (CF) units.
Participants
Fourteen adult PWCF; three professionals delivering adherence support (‘interventionists’); five multi-disciplinary CF team m...
BACKGROUND
Improving recovery from acute symptoms and preventing relapse are two major challenges in serious mental illness. We developed a smartphone-based personalised technology to monitor symptoms in real time with good acceptability, reliability and validity.
OBJECTIVE
To assess (i) acceptability of continuous monitoring to SMI patients and h...
Background:
Improving recovery from acute symptoms and preventing relapse are two significant challenges in severe mental illness. We developed a personalized smartphone-based app to monitor symptoms in real time and validated its acceptance, reliability, and validity.
Objective:
To assess (i) acceptability of continuous monitoring to SMI patien...
Background
Preventative medication reduces hospitalisations in people with cystic fibrosis (PWCF) but adherence is poor. We assessed the feasibility of a randomised controlled trial of a complex intervention, which combines display of real time adherence data and behaviour change techniques.
Methods
Design: Pilot, open-label, parallel-group RCT wi...
Drawing on research with over 350 staff across 11 English higher education institutions this chapter draws attention to how ‘widening participation’ is being, differently, conceptualised within institutional discourses; how concerns, or not, to widen participation relate to pedagogy and how this differs across different types of institution. In par...
Background
We developed a smartphone-based personalised technology to monitor symptoms in real time and showed good acceptability, reliability and validity for active remote monitoring of symptoms in previous published studies (www.clintouch.com). We report a randomised trial testing its efficacy in improving psychotic symptom control, and its pote...
Cystic Fibrosis (CF) is a genetic disease that affects around 10,000 individuals in the UK. Individuals with CF are prone to lung infections; inhaled medications are required to stay healthy, costing £30 million annually, yet average adherence has been estimated at 36%. Patients with 80% of prescribed medication). This is both costly to the healthc...
The global HE sector is being profoundly reshaped by global neoliberalism, driven by economic imperatives to develop ‘global, entrepreneurial, corporate, commercialised universities’ (Morley, 2011: 224). Within this neoliberal context policy discourses are increasingly being driven by world league tables, market competition, and the dominance of pr...
The Proceedings is the outcome of a workshop, which was jointly organised by Sichuan University and University of Bradford, with the generous support of the National Natural Science Foundation of China (NSFC) and the British Council Researcher Links scheme offered within the Newton Fund. The workshop was hosted by the College of Electronics and Inf...
Current approaches to the management of severe mental illness have four major limitations: 1) symptom reporting is intermittent and subject to problems with reliability; 2) service users report feelings of disengagement from their care planning; 3) late detection of symptoms delay interventions and increase the risk of relapse; and 4) care systems...
This paper discusses how dominant discourses of neoliberalism intersect with teaching and learning practices, and considers the implications of this for both widening participation goals and for social equity agendas in higher education. Drawing on the concept of 'pedagogic stratification', we examine the discourses of 'teaching excellence' as thes...
The relatively recent surge of interest in feminist conversation analysis within the United Kingdom appears to have been met with a largely positive response. Proponents declare that they “know of no other approach which offers a more viable basis from which to drive social change” (Speer 2005, p. 192), and they envisage in conversation analysis (C...
What is community and what are useful concepts in trying to understand communities? The term, community, is used in daily interaction with rather different meanings. The usage and therefore reach of the concept does not lead to a neat summary. In this chapter, we set ourselves a difficult task - which is to unpack understandings of community. This...
The PsyGrid project was established to design, build and operate a multi-centre, secure, clinical data capture system that could support clinical trials and cohort studies from any clinical domain. After two years of development and one year of operational experience we present an evaluation of the technological, operational and organisational choi...