Patricia Minaya

Haute Autorité de Santé | HAS · Service évaluation des actes professionnels

Background: The CareGiver Oncology Quality of Life (CarGOQoL) questionnaire, a 29-item, multidimensional, self-administered questionnaire, was validated using a large French sample. We reported the linguistic validation process and the metric validity of the English version of CarGOQoL in the United- States. Methods: The translation process cons...

Introduction Les individus confrontés à la pathologie cancéreuse vivent des situations fortement anxiogènes auxquelles ils doivent tenter de s’adapter. Cette adaptation est susceptible d’impacter la manière dont ils définissent leurs priorités, et donc la façon dont ils conceptualisent leur qualité de vie (QdV) : « Response shift ». Par ailleurs, l...

The aim of the study was to analyze the impact of gliomas in caregivers' quality of life (QoL) and to compare this specific population to other oncology caregivers and the normative population in order to find differences and understand which aspects of QoL are more impacted. The sample was composed of caregivers of patients with gliomas from the N...

BackgroundMultiple sclerosis (MS), a common neurodegenerative disease, has well-described associations with quality of life (QoL) impairment. QoL changes found in longitudinal studies are difficult to interpret due to the potential response shift (RS) corresponding to respondents’ changing standards, values, and conceptualization of QoL. This study...

The study objective was to validate a specific quality of life (QoL) questionnaire for caregivers of cancer patients, the CareGiver Oncology Quality of Life questionnaire (CarGOQoL), based on the exclusive points of view of the caregivers. A 75-item questionnaire generated from content analysis of interviews with caregivers was self-completed by 83...