Olaf Andres Kraus de Camargo

Olaf Andres Kraus de Camargo
McMaster University | McMaster · Department of Pediatrics

Doctor of Medicine

About

175
Publications
44,091
Reads
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886
Citations
Citations since 2017
81 Research Items
623 Citations
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Introduction
As a developmental pediatrician I am interested in the life of children with disabilities and their families. I am closely involved with the clinical use, implementation and teaching of the ICF (International Classification of Functioning, Disability and Health) and the ICF-CY (Children and Youth Version). Since 2022, I am the co-director of CanChild - Centre for Childhood Disability Research at McMaster University. https://www.canchild.ca
Additional affiliations
June 2015 - present
McMaster University
Position
  • Faculty Member
Description
  • The McMaster Autism Research Team (MacART) is a partnership between McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University that aims to bridge the research-to-practice gap in Autism Spectrum Disorder (ASD).
September 2012 - present
McMaster University
Position
  • Researcher
September 2008 - present
McMaster University
Position
  • Professor (Associate)
Education
March 1996 - April 1998
Ulm University
Field of study
  • Medicine
January 1985 - December 1989
University of São Paulo
Field of study
  • Medicine

Publications

Publications (175)
Article
Full-text available
Background: Efforts to involve parents and families in all aspects of research, from initiating the question through to dissemination and knowledge exchange, are increasing. While social media as a method for health communication has shown numerous benefits, including increasing accessibility, interactions with others, and access to health care in...
Article
Full-text available
Children with developmental disorders affecting learning and behaviour (DDALB) (e.g., attention, social communication, language, and learning disabilities, etc.) require individualized support across multiple environments to promote participation, quality of life, and developmental outcomes. Support to enhance participation is based largely on indi...
Article
Full-text available
Pediatric feeding disorders lack a universally accepted definition. Feeding disorders require comprehensive assessment and treatment of four closely-related, complementary domains (medical, psychosocial, and feeding skill-based systems and associated nutritional complications). However, previous diagnostic paradigms have typically defined feeding d...
Article
Full-text available
Providing excellent clinical care, as Sir William Osler would have valued, is ultimately about understanding and addressingeffectively the human dramas of personal predicaments (including those experienced by healthcare providers). In order to teach and to learn these concepts, we need to fuse medical sciences with practical frameworks that activel...
Book
This accessible handbook introduces the ICF to professionals working with children with disabilities and their families. It contains an overview of the elements of the ICF but focusses on practical applications, including how the ICF framework can be used with children, families and carers to formulate health and management goals. The Appendices co...
Article
Full-text available
Background Connections between individuals and organizations can impact knowledge translation (KT). This finding has led to growing interest in the study of social networks as drivers of KT. Social networks are formed by the patterns of relationships or connections generated through interactions. These connections can be studied using social networ...
Article
Full-text available
The COVID-19 pandemic interrupted face-to-face health services, leveraging telehealth strategies. The aim of this cross-sectional study was to investigate, from a parent’s perspective, the feasibility of a remote assessment of functioning in children with developmental disabilities during the pandemic and related contextual factors, based on how pa...
Article
Full-text available
Abstract: The International Classification of Functioning Disability and Health (ICF) was approved in 2001 and, since then, several studies reported the increased interest about its use in different sec- tors. A recent overview that summarizes its applications is lacking. This study aims to provide an updated overview about 20 years of ICF applicat...
Article
Full-text available
Objective: Children with developmental disabilities are associated with a high risk of poor school enrollment and educational attainment without timely and appropriate support. Epidemiological data on cerebral palsy and associated comorbidities required for policy intervention in global health are lacking. This paper set out to report the best avai...
Article
Full-text available
Objectives To identify the perception of the availability of community support and the support needs of autistic people and people with disabilities, from their own perspectives and from those of their caregivers at the time of the COVID-19 pandemic in Quebec, to assess the association between the available support and the perceived stress levels t...
Preprint
BACKGROUND Children with disability face long wait times for rehabilitation services. Prior to the pandemic, telehealth adoption was low across most rehabilitation settings, including pediatrics. As a result of the pandemic restrictions, pediatric therapists were asked to rapidly shift to using telehealth without previous experience and often minim...
Article
Background: Children with disability face long wait times for rehabilitation services. Before the COVID-19 pandemic, telehealth adoption was low across pediatric rehabilitation. Owing to the COVID-19 pandemic restrictions, pediatric therapists were asked to rapidly shift to telehealth, often with minimal training. To facilitate the behavior change...
Article
Full-text available
Saving the lives of children is a moral imperative for any society. However, the epidemiological transitions in low- and middle-income countries, accompanied by rapid population growth and increasing life expectancy, have raised ethical concerns about child health policies that are solely focused on child survival without adequate consideration for...
Article
Full-text available
Addressing inequity for children with disabilities is enshrined in the UN Convention on the Rights of the Child, the Convention on the Rights of Persons with Disabilities, and the Sustainable Development Goals (SDGs), which include a range of commitments for the provision of disability-inclusive education and health services. Fulfilment of these pl...
Poster
Full-text available
Introduction The International Classification of Functioning, Disability and Health (ICF) was launched 20 years ago by the World Health Organization. Over the past two decades, the ICF has informed and revolutionized how jurisdictions deliver services: e.g., the Federal Participation Act in Germany, the National Disability Insurance Scheme in Austr...
Presentation
Full-text available
Keynote at 70th Anniversary of the Faculty of Medicine in Ribeirão Preto, University of São Paulo
Article
Marlene-18 Jahre, mit ihren Wünschen und Zielen wie auch den Zielen ihrer Eltern-führt in diesem Artikel durch folgende Themenkomplexe: Was bedeutet im Zeitalter der Diversität komplexe Beeinträchtigung? Welche Beiträge kann ein interdisziplinäres Team leisten, damit aktive Teilhabe gelingen kann? Die ICF als »gemeinsame Sprache« aller Beteiligten...
Article
Full-text available
The likelihood of a newborn child dying before their fifth birthday (under-5 mortality rate) is universally acknowledged as a reflection of the social, economic, health, and environmental conditions in which children (and the rest of society) live, but little is known about the likelihood of a newborn child having a lifelong disability before their...
Article
Full-text available
Objective: The day-to-day experience of families with an Autistic child may be shaped by both, child characteristics and available resources, which often are influenced by the socioeconomic context of the family. Using a socioecological approach, this study explored the quantitative associations between child autistic symptoms, family socioeconomic...
Article
Full-text available
Background: Engaging patients and family members as partners in research studies has become a widespread practice in healthcare. However, relatively little has been documented about what happens after the research study ends. For example, is patient and family engagement embedded in the wider infrastructure of organizations, and if so how? What ar...
Article
Purpose To compare functioning and environmental aspects before and during physical distancing (DPD) and to determine which social, physical, behavioral and functioning aspects of DPD are correlated. Methods Sixteen parents of children/adolescents with Down syndrome (11.38 ± 3.00 years) were surveyed before and DPD. Paired t-tests were used to com...
Article
Full-text available
Background In the context of containment measures against the COVID-19 pandemic, the aims were to examine the impact of lockdown and school closures on childs’ and adolescents’ health and well-being and social inequalities in health. Methods Literature review by searching five databases until November 2020. We included quantitative peer-reviewed s...
Presentation
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Presentation
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Chapter
Full-text available
This chapter examines the experiences of mothers of children with disabilities during the first six months of the COVID-19 pandemic.
Conference Paper
Full-text available
To report the experience of implementing the International Classification of Functioning, Disability and Health (ICF) in curricular training during an undergraduate physiotherapy course at a Brazilian university (Faculty of Medical and Health Science of Juiz de Fora -- SUPREMA), at the point of physiotherapeutic evaluation via structuring the asses...
Conference Paper
Full-text available
ICF provides a common language in interdisciplinary work. However, knowledge of ICF and its use seem to not be unanimous among professionals. Therefore, it is important to research the use of ICF in health professionals’ clinical practice, identifying the factors that influence it.
Poster
Full-text available
The primary objective of this study was to understand and compare needs of children with ASD and FASD and their families. Functional issues of 50 paediatric patients with a diagnosis of ASD or FASD were assessed using a retrospective chart review of the patients. This study is in the process of data collection, but preliminary results suggest a sig...
Article
Full-text available
The COVID-19 pandemic provides the opportunity to re-think health policies and health systems approaches by the adoption of a biopsychosocial perspective, thus acting on environmental factors so as to increase facilitators and diminish barriers. Specifically, vulnerable people should not face discrimination because of their vulnerability in the all...
Article
Full-text available
Knowledge and use of the international classification of Knowledge and use of the international classification of functioning, disability and health (icf) among health professionals functioning, disability and health (icf) among health professionals in a developing country in a developing country
Article
Objective Evaluate whether questionnaires identified all the self-reported patient outcomes raised in focus groups. Design Mixed methods research combined with qualitative analysis of focus groups. Settings Physical therapy clinic in a teaching hospital in Brazil. Subjects A total of 27 patients (aged >18 years, mean age 55.2 years) with chronic...
Book
Die ICF-Klassifikation basiert auf dem bio-psycho-sozialen Modell von Gesundheit und wurde von der WHO entwickelt, um den Gesundheitszustand von Menschen mit chronischen Erkrankungen und Behinderungen besser darstellen zu können. Sie ergänzt die medizinischen Diagnosen der ICD (Internationalen Klassifikation der Krankheiten) durch Aspekte wie Funkt...
Chapter
Summary of the training of developmental paediatricians in Canada, the services offered to children with impairments and their families and a comparison with the structures in Germany.
Data
Gelişimsel Yetersizlikler ve Tanılama Etiketlerinin Etik Kuralları
Presentation
Full-text available
This keynote discusses the different aspects of diagnosing children with a neurodevelopmental disability and the ethical reflections required in relation to therapy, prognosis, advocacy and service delivery. The concepts of beneficence, non-maleficence, autonomy and justice will be used. Examples of how a functional formulation based on the Interna...
Poster
Full-text available
FDRG has been meeting in Korea for the WHO FIC 2018 as well in Kuwait during the FDRG midyear meeting. Every month a Secretariat conference including WHO is held to discuss the items arising by the intense work on ICF and other relevant WHO FIC Classifications. The full FDRG Conferences provide a clear insight of the progresses of the work and all...
Poster
Full-text available
This poster presents a website with an Android Application that were made to improve ICF skills throw ICF using. The portal also provides an online course and a specific ICF Journal, but the knowledge is performed during ICF using on reports and registering patient data using ICF into the platform
Poster
Full-text available
Despite the years since the ICF was published there is still a high demand for education about the classification and, importantly, how to use it in practice. A series of international symposia have been conducted in association with the Functioning and Disability Reference Group mid-year meetings since 2015. These symposia offer an opportunity for...
Conference Paper
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Introduction how the ICF can be used to facilitate multi professional collaboration leading to the development of transdisciplinary teams.
Conference Paper
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Invited keynote about the use of the ICF in health professionals' education
Article
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Objective: To identify the most common quality oflife instruments for children with cystic fibrosis and link the content with the International Classification of Functioning, Disability and Health (ICF). Methods: The study was conducted in 2 stages. The first stage involved a review of the literature to select quality of life questionnaires. In the...
Conference Paper
Full-text available
Description of the application and use of ICF in the development of IEPs (individualized education plans) for inclusion of children with disabilities in school.
Presentation
Full-text available
Introduction to the concepts of the ICF in Developmental Paediatrics and Rehabilitation
Article
Full-text available
Background: Systems for health must evolve to become learning systems, facilitating the implementation of Universal Health Coverage, the integration of social and health services, and the democratization of health data to put service users at the center. https://www.rosalindfranklin.edu/about/interprofessionalism/interprofessional-healthcare-workfo...
Conference Paper
Full-text available
A personal reflection on working in Social Pediatrics in Germany and Developmental Pediatrics in Ontario/Canada, covering education, team structure, policies and their challenges and solutions.
Poster
Full-text available
This poster proposes a process on how to clarify concepts of personal factors, identify them in a systematic way and describes a multistep process to verify where such factors are already present in other classifications.
Poster
Full-text available
Description of the work on behalf of the members of the Functioning Disability Reference Group in the WHO Family of International Classifications Network.
Article
This commentary is on the original article by Schiariti et al. To view this paper visit https://doi.org/10.1111/dmcn.13922.
Conference Paper
Full-text available
Objectives: Rehabilitation focuses on patient/caregiver involvement to improve functioning and participation. The ICF offers opportunities to actively engage patients and their families in these prospects. Summary: We will explore and discuss various clinical steps as: (i) the initial consultation where we define what the actual ‘problem’ is. (ii...
Conference Paper
Full-text available
Workshop together with Mareike Decker (REHADAT) about the use of digital tools to facilitate the access to ICF describing the ICanFunction mICF platform: find the slides here: https://www.slideshare.net/OlafKrausdeCamargo/digitale-tools-fr-die-icf
Conference Paper
Full-text available
This presentation was part of a point and counter-point debate with Sabine Grotkamp about the use of personal factors of the International Classification of Functioning, Disability and Health. Slides on slideshare: https://www.slideshare.net/OlafKrausdeCamargo/individuell-oder-standardisiert-unterschiedliche-positionen-zu-den-personbezogenen-faktor...
Presentation
Full-text available
Description of the proposed use of the Functional Abilities Classification Tool
Article
Background: The International Classification of Functioning, Disability and Health (ICF) and subsequent ICF-CY (child and youth version) recognize the importance of personal and environmental factors in facilitating holistic transition planning and service delivery for youth with chronic health conditions (YCHC). Aims: The objective of this scop...
Poster
Full-text available
FDRG had a midyear meeting in South Africa at Stellenbosch University with 36 attendees. In addition, we had a workshop of the mICF group and the 2nd International Symposium for ICF Education. Regarding the current use of the ICF a global survey was distributed and the results are reported in a separate poster entitled ”HOW IS ICF USED AROUND THE W...
Presentation
Full-text available
We present the development of FunctionMapper. FunctionMapper is one of the main components of the ICanFunction mHealth solution (mICF), and converts natural language to a structured output using ICF categories. It enables and supports coordinated content translations in all spoken languages in the world. This is the first prototype of mICF that giv...
Presentation
Full-text available
We report the results of a global survey among users of the ICF. 40 questions were provided and we obtained 437 responses from 32 different countries. It seems that the use of qualifiers is difficult for many users (only 81 responses indicated making use of qualifiers). The need for additional development of tools and guiding principles is discusse...
Presentation
Full-text available
Description of the latest developments towards the ICanFunction (mICF) Solution, including the underlying library in multiple languages and lay terms (FunctionMapper) and first Frontend Prototype.
Poster
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Three topics were the basis for discussions at the 2nd International Symposium: ICF Education. The discussions revolved around the application of ICF in Sub-Saharan Africa and were informed by the experiences of participants from other regions of the world. Significant issues raised, amongst others, were that (1) ICF as catalyst for interprofession...
Poster
Full-text available
We report the results of a global survey among users of the ICF. 40 questions were provided and we obtained 437 responses from 32 different countries. It seems that the use of qualifiers is difficult for many users (only 81 responses indicated making use of qualifiers). The need for additional development of tools and guiding principles is discusse...
Poster
Full-text available
We are developing the ICanFunction mHealth solution (mICF), a state-of-the-art application and paradigm shifting platform for personalised health and social services. It is based on ICF. In this poster we report on the progress made over the past year. This includes the evaluation of the first proof of concept, the progress made with FunctionMapper...
Poster
Full-text available
We present the development of FunctionMapper. FunctionMapper is one of the main components of the ICanFunction mHealth solution (mICF), and converts natural language to a structured output using ICF categories. It enables and supports coordinated content translations in all spoken languages in the world. This is the first prototype of mICF that giv...
Conference Paper
Full-text available
This keynote provides an overview of the development of health education and how the ICF should be incorporated into current curricula for health care professionals to prepare them to work in multidisciplinary environments and be able to provide patient-centred care.
Conference Paper
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This project will create an ICanFunction app (mICF) that will improve practical andclinical applicability of the International Classification of Functioning, Disability and Health (ICF). ICFprovides a framework and conceptualise health and wellbeing as a dynamic interaction between aperson's health condition, functioning and contextual factors. ICF...
Data
Internet link: https://medium.com/@DevPeds/divide-and-conquer-a-class-system-of-care-29dfc45ee106
Presentation
Full-text available
Palestra dada no primeiro simpósio científico do Hospital Universitário Ana Bezerra. De uma análise histórica sobre a evolução do ensino nas ciências da saúde é explicada a utilidade da CIF tanto no preparo de profissionais como na organização de sistemas de saúde e nos cuidados centrados no paciente.
Conference Paper
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Abstract On behalf of the International mICF Partnership we present this progress report regarding the development of the ICanFunction mHealth solution (mICF). The progress made by the 6 work groups of the mICF development team is described, namely (1) Partnership Facilitation and Development, (2) Content Specification, (3) Lean minimum viable prod...
Conference Paper
Full-text available
With mobile ICanFunction (mICF) individuals can describe their life situation in natural language or by using patient-reported outcome measures (PROM), and the mICF will convert that to a structured output using ICF categories. To create and use these linkages we developed a dynamic tool, the FunctionMapper using THL Term editor. This tool enables...
Conference Paper
Full-text available
The paradigm shift in healthcare in the last 20 years is characterized by an increase of chronic health conditions. They usually present a spectrum of limitations of functioning modified by the interaction of the person in her environment (physical and social). The World Health Organization (WHO) provides a framework to describe and classify such v...
Article
Full-text available
Die Anwendung personbezogener Faktoren der Internationalen Klassifikation der Funktionsfähigkeit, Behinderung und Gesundheit (ICF) wird kontrovers diskutiert. Im Schaubild der ICF sind sie als Kasten vorgesehen, jedoch ohne klaren Inhalt. Sie sind zwar Teil des Modells, können jedoch nicht codiert und damit auch nicht statistisch erfasst werden. De...
Article
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Corresponding author. Antonio Pedro University Hospital – NeuroUPC R. Marquês do Paraná, 303/5th floor - Centro, Niterói – RJ - Brazil, 24033-900. Tel.: +55 21 998050588.
Conference Paper
Full-text available
Der Spannungsbogen zwischen den Bestrebungen einer individualisierten, bedürfnisorientierten Gesundheitsförderung und der Erfassung möglichst detaillierter Patientendaten zur Verbesserung der Gesundheitsplanung wird aufgezeigt und diskutiert. Unter dem Aspekt der ursprünglichen Überlegungen bei der Entwicklung der ICF mit der Aufnahme des Bereichs...