Olaf Andres Kraus de Camargo

McMaster University | McMaster · CanChild Centre for Childhood Disability Research

Background: Efforts to involve parents and families in all aspects of research, from initiating the question through to dissemination and knowledge exchange, are increasing. While social media as a method for health communication has shown numerous benefits, including increasing accessibility, interactions with others, and access to health care in...

Children with developmental disorders affecting learning and behaviour (DDALB) (e.g., attention, social communication, language, and learning disabilities, etc.) require individualized support across multiple environments to promote participation, quality of life, and developmental outcomes. Support to enhance participation is based largely on indi...

Pediatric feeding disorders lack a universally accepted definition. Feeding disorders require comprehensive assessment and treatment of four closely-related, complementary domains (medical, psychosocial, and feeding skill-based systems and associated nutritional complications). However, previous diagnostic paradigms have typically defined feeding d...

Providing excellent clinical care, as Sir William Osler would have valued, is ultimately about understanding and addressingeffectively the human dramas of personal predicaments (including those experienced by healthcare providers). In order to teach and to learn these concepts, we need to fuse medical sciences with practical frameworks that activel...

This accessible handbook introduces the ICF to professionals working with children with disabilities and their families. It contains an overview of the elements of the ICF but focusses on practical applications, including how the ICF framework can be used with children, families and carers to formulate health and management goals. The Appendices co...

Aim: To compare caregiver-reported current and desired home participation of infants with and without biological risk in the first year of life. Method: Observational, cross-sectional and comparative study. Caregivers of 48 infants with (mean corrected age = 5.6(±2.3) months) and 32 without (mean corrected age = 5.8(±1.9) months) biological risk...

At the ICF Research Institute (at MSH Medical School Hamburg) multiprofessional experts collaborate on various research projects with a focus on bio-psycho-social health and education. Initially, the main goal was monitoring and evaluating the implementation of the International Classification of Functioning, Disability and Health (ICF) in clinical...

Background Since 2011 when the Canadian Institutes of Health Research launched the Strategy for Patient Oriented Research, there has been a growing expectation to embed patient-oriented research (POR) in the health research community in Canada. To meet this expectation and build capacity for POR in the field of neurodevelopmental disability and chi...

In the context of developmental trajectories, the association between adaptive functioning and core autism symptomatology remains unclear. The current study examines the associations of adaptive behavior with autism symptom sub-domains and with different facets of symptom expression. Participants include 36 children with a recent diagnosis of autis...

Background: When healthcare providers (HCPs) become patients, the experience affects their sense of identity, the care they receive, and their clinical practice. In child health, considerably less is known about the experiences of HCP-parents who access the pediatric healthcare system with their own children with disabilities and/or chronic medical...

Resumo Objetivo Descrever a participação em casa atual (frequência, envolvimento) e o desejo do cuidador por mudança na participação em casa de crianças e adolescentes com síndrome de Down, bem como fatores ambientais da casa, e explorar as associações de fatores pessoais e ambientais com a participação atual e o desejo do cuidador por mudança. M...

Introduction The developmentally variable nature of autism poses challenges in providing timely services tailored to a child’s needs. Despite a recent focus on longitudinal research, priority-setting initiatives with stakeholders highlighted the importance of studying a child’s day-to-day functioning and social determinants of health to inform clin...

Introduction: Children and youth with disabilities and special healthcare needs, and their families, have been uniquely affected by the COVID-19 pandemic. However, the voices of children themselves are still not well represented in the existing literature. Methods: This qualitative descriptive study used a combination of visual methods and intervie...

Aim To describe current home participation (frequency, involvement) and caregiver's desire for change in home participation of children and adolescents with Down syndrome, as well as home environmental factors, and to explore the associations of personal and environmental factors with current participation and caregiver's desire for change. Method...

SIGNIFICANCE The integrated nature of this project will allow us to co-create with patients, families, and clinicians a set of general recommendations, tailored to local contexts, that can serve as a model for the transition care path of patients with DMD. The period of transition from pediatric to adult care is particularly challenging for adolesc...

The research findings and publications in this collection are based on the ISSOP and INRICH research collaboration established in April 2020 to study the impact of the COVID-19 pandemic on children. Researchers from 18 countries from across the world contributed to the collection. The collection is organised into 6 thematic groups: Voices of Childr...

Background According to a biopsychosocial approach to health and disability, participation at home and functional skills are important components of the functioning. Therefore, knowledge about interactions between these components allows for targeting specific interventions. Objective This study investigated whether participation opportunities (fr...

Purpose: Family-centred service (FCS) is an established approach for delivering services in children's rehabilitation and healthcare. This article describes that parents continue to report mixed experiences with healthcare services for their children, as well as their ideas about what they need and want from these services. These findings will inf...

Healthcare has become more complex in recent years. Such complexity can best be addressed by interprofessional teams. We argue that to ensure successful communication and cooperation in interprofessional teams, it is important to establish interprofessional education in health-related study programs. More precisely, we argue that students in health...

Policy-makers in two Canadian provinces invited CanChild to consult on developmental services for children and their families. This consultation involved jurisdictional and scoping reviews, interviews with stakeholders, and solicitation of expert recommendations.

Developing such a strategy in the 21st century requires a reframing of how we value disability in our society. It requires moving away from a charitable mindset to a rights-based framework. It means moving away from a biomedical model of health to a modern biopsychosocial model. It means being inclusive of all diversity. Read the commentary online...

Background Effects of Selective Serotonin Reuptake Inhibitors (SSRI) for symptoms of autism spectrum disorder (ASD) or comorbid conditions are uncertain. We conducted a systematic review and meta-analyses to determine the efficacy and safety of SSRIs in children with ASD on restricted repetitive behaviors, obsessive-compulsive, anxiety and depressi...

Background: Social support and Quality of life (QoL) are important aspects of life and should be explored during the specific scenario of the pandemic. Aims: (i) to compare the perceived social support (PSS) in caregivers and the domains of QoL of the caregiver and the child with developmental disabilities (DD) and typical development (TD); (ii)...

Purpose: This study aimed to 1) investigate the convergent and discriminant validity, internal consistency, and test-retest reliability of the Canadian English version of the Computer-Based instrument for Low motor Language Testing (C-BiLLT-CAN), and 2) explore feasibility of the C-BiLLT assessment for children with cerebral palsy (CP) and complex...

Background Connections between individuals and organizations can impact knowledge translation (KT). This finding has led to growing interest in the study of social networks as drivers of KT. Social networks are formed by the patterns of relationships or connections generated through interactions. These connections can be studied using social networ...

The COVID-19 pandemic interrupted face-to-face health services, leveraging telehealth strategies. The aim of this cross-sectional study was to investigate, from a parent’s perspective, the feasibility of a remote assessment of functioning in children with developmental disabilities during the pandemic and related contextual factors, based on how pa...

Abstract: The International Classification of Functioning Disability and Health (ICF) was approved in 2001 and, since then, several studies reported the increased interest about its use in different sec- tors. A recent overview that summarizes its applications is lacking. This study aims to provide an updated overview about 20 years of ICF applicat...

Objective Children with developmental disabilities are associated with a high risk of poor school enrollment and educational attainment without timely and appropriate support. Epidemiological data on cerebral palsy and associated comorbidities required for policy intervention in global health are lacking. This paper set out to report the best avail...

Objectives To identify the perception of the availability of community support and the support needs of autistic people and people with disabilities, from their own perspectives and from those of their caregivers at the time of the COVID-19 pandemic in Quebec, to assess the association between the available support and the perceived stress levels t...

BACKGROUND Children with disability face long wait times for rehabilitation services. Prior to the pandemic, telehealth adoption was low across most rehabilitation settings, including pediatrics. As a result of the pandemic restrictions, pediatric therapists were asked to rapidly shift to using telehealth without previous experience and often minim...

Background: Children with disability face long wait times for rehabilitation services. Before the COVID-19 pandemic, telehealth adoption was low across pediatric rehabilitation. Owing to the COVID-19 pandemic restrictions, pediatric therapists were asked to rapidly shift to telehealth, often with minimal training. To facilitate the behavior change...

Saving the lives of children is a moral imperative for any society. However, the epidemiological transitions in low- and middle-income countries, accompanied by rapid population growth and increasing life expectancy, have raised ethical concerns about child health policies that are solely focused on child survival without adequate consideration for...

Addressing inequity for children with disabilities is enshrined in the UN Convention on the Rights of the Child, the Convention on the Rights of Persons with Disabilities, and the Sustainable Development Goals (SDGs), which include a range of commitments for the provision of disability-inclusive education and health services. Fulfilment of these pl...

34th European Academy Of Childhood Disability (EACD) Annual Meeting

Introduction The International Classification of Functioning, Disability and Health (ICF) was launched 20 years ago by the World Health Organization. Over the past two decades, the ICF has informed and revolutionized how jurisdictions deliver services: e.g., the Federal Participation Act in Germany, the National Disability Insurance Scheme in Austr...

Keynote at 70th Anniversary of the Faculty of Medicine in Ribeirão Preto, University of São Paulo

Marlene – 18 Jahre, mit ihren Wünschen und Zielen wie auch den Zielen ihrer Eltern – führt in diesem Artikel durch folgende Themenkomplexe: Was bedeutet im Zeitalter der Diversität komplexe Beeinträchtigung? Welche Beiträge kann ein interdisziplinäres Team leisten, damit aktive Teilhabe gelingen kann? Die ICF als »gemeinsame Sprache« aller Beteilig...

Marlene-18 Jahre, mit ihren Wünschen und Zielen wie auch den Zielen ihrer Eltern-führt in diesem Artikel durch folgende Themenkomplexe: Was bedeutet im Zeitalter der Diversität komplexe Beeinträchtigung? Welche Beiträge kann ein interdisziplinäres Team leisten, damit aktive Teilhabe gelingen kann? Die ICF als »gemeinsame Sprache« aller Beteiligten...

The likelihood of a newborn child dying before their fifth birthday (under-5 mortality rate) is universally acknowledged as a reflection of the social, economic, health, and environmental conditions in which children (and the rest of society) live, but little is known about the likelihood of a newborn child having a lifelong disability before their...

Objective: The day-to-day experience of families with an Autistic child may be shaped by both, child characteristics and available resources, which often are influenced by the socioeconomic context of the family. Using a socioecological approach, this study explored the quantitative associations between child autistic symptoms, family socioeconomic...

Plain English summary More and more patients and family members are getting involved in health research studies as partners. However we do not know much about what happens after the research study ends. This article looks at how parents have been involved in research studies at CanChild Centre for Childhood Disability Research at McMaster Universit...

Purpose To compare functioning and environmental aspects before and during physical distancing (DPD) and to determine which social, physical, behavioral and functioning aspects of DPD are correlated. Methods Sixteen parents of children/adolescents with Down syndrome (11.38 ± 3.00 years) were surveyed before and DPD. Paired t-tests were used to com...

Background In the context of containment measures against the COVID-19 pandemic, the aims were to examine the impact of lockdown and school closures on childs’ and adolescents’ health and well-being and social inequalities in health. Methods Literature review by searching five databases until November 2020. We included quantitative peer-reviewed s...

This chapter examines the experiences of mothers of children with disabilities during the first six months of the COVID-19 pandemic.

To report the experience of implementing the International Classification of Functioning, Disability and Health (ICF) in curricular training during an undergraduate physiotherapy course at a Brazilian university (Faculty of Medical and Health Science of Juiz de Fora -- SUPREMA), at the point of physiotherapeutic evaluation via structuring the asses...

ICF provides a common language in interdisciplinary work. However, knowledge of ICF and its use seem to not be unanimous among professionals. Therefore, it is important to research the use of ICF in health professionals’ clinical practice, identifying the factors that influence it.

The primary objective of this study was to understand and compare needs of children with ASD and FASD and their families. Functional issues of 50 paediatric patients with a diagnosis of ASD or FASD were assessed using a retrospective chart review of the patients. This study is in the process of data collection, but preliminary results suggest a sig...

The COVID-19 pandemic provides the opportunity to re-think health policies and health systems approaches by the adoption of a biopsychosocial perspective, thus acting on environmental factors so as to increase facilitators and diminish barriers. Specifically, vulnerable people should not face discrimination because of their vulnerability in the all...

Knowledge and use of the international classification of Knowledge and use of the international classification of functioning, disability and health (icf) among health professionals functioning, disability and health (icf) among health professionals in a developing country in a developing country

Objective Evaluate whether questionnaires identified all the self-reported patient outcomes raised in focus groups. Design Mixed methods research combined with qualitative analysis of focus groups. Settings Physical therapy clinic in a teaching hospital in Brazil. Subjects A total of 27 patients (aged >18 years, mean age 55.2 years) with chronic...

Die ICF-Klassifikation basiert auf dem bio-psycho-sozialen Modell von Gesundheit und wurde von der WHO entwickelt, um den Gesundheitszustand von Menschen mit chronischen Erkrankungen und Behinderungen besser darstellen zu können. Sie ergänzt die medizinischen Diagnosen der ICD (Internationalen Klassifikation der Krankheiten) durch Aspekte wie Funkt...

Summary of the training of developmental paediatricians in Canada, the services offered to children with impairments and their families and a comparison with the structures in Germany.

Gelişimsel Yetersizlikler ve Tanılama Etiketlerinin Etik Kuralları

This keynote discusses the different aspects of diagnosing children with a neurodevelopmental disability and the ethical reflections required in relation to therapy, prognosis, advocacy and service delivery. The concepts of beneficence, non-maleficence, autonomy and justice will be used. Examples of how a functional formulation based on the Interna...

FDRG has been meeting in Korea for the WHO FIC 2018 as well in Kuwait during the FDRG midyear meeting. Every month a Secretariat conference including WHO is held to discuss the items arising by the intense work on ICF and other relevant WHO FIC Classifications. The full FDRG Conferences provide a clear insight of the progresses of the work and all...

This poster presents a website with an Android Application that were made to improve ICF skills throw ICF using. The portal also provides an online course and a specific ICF Journal, but the knowledge is performed during ICF using on reports and registering patient data using ICF into the platform

Despite the years since the ICF was published there is still a high demand for education about the classification and, importantly, how to use it in practice. A series of international symposia have been conducted in association with the Functioning and Disability Reference Group mid-year meetings since 2015. These symposia offer an opportunity for...

Introduction how the ICF can be used to facilitate multi professional collaboration leading to the development of transdisciplinary teams.

Invited keynote about the use of the ICF in health professionals' education

Objective: To identify the most common quality oflife instruments for children with cystic fibrosis and link the content with the International Classification of Functioning, Disability and Health (ICF). Methods: The study was conducted in 2 stages. The first stage involved a review of the literature to select quality of life questionnaires. In the...

Description of the application and use of ICF in the development of IEPs (individualized education plans) for inclusion of children with disabilities in school.

Introduction to the concepts of the ICF in Developmental Paediatrics and Rehabilitation

Background: Systems for health must evolve to become learning systems, facilitating the implementation of Universal Health Coverage, the integration of social and health services, and the democratization of health data to put service users at the center. https://www.rosalindfranklin.edu/about/interprofessionalism/interprofessional-healthcare-workfo...