
Nicola Dell- University of Washington
Nicola Dell
- University of Washington
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99
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Publications (99)
Researchers increasingly look to understand experiences of pain, harm, and marginalization via qualitative analysis. Such work is needed to understand and address social ills, but poses risks to researchers' well-being: sifting through volumes of data on painful human experiences risks incurring traumatic exposure in the researcher. In this paper,...
As the US population ages, a growing challenge is placing hospital patients who require long-term post-acute care into adult foster care facilities: small long-term nursing facilities that care for those unable to age in place because their care requirements exceed what can be delivered at home. A key challenge in patient placement is the dynamic m...
This paper explores opportunities and challenges for data-driven advocacy to support home care workers, an often overlooked group of low-wage, frontline health workers. First, we investigate what data to collect and how to collect it in ways that preserve privacy and avoid burdening workers. Second, we examine how workers and advocates could use co...
Researchers increasingly look to understand experiences of pain, harm, and marginalization via qualitative analysis. Such work is needed to understand and address social ills, but poses risks to researchers' well-being: sifting through volumes of data on painful human experiences risks incurring traumatic exposure in the researcher. In this paper,...
Importance
Home health aides and attendants (HHAs) provide essential care to older adults and those with chronic conditions in the home. However, some HHAs struggle with poor mood and stress, which may have been exacerbated by the COVID-19 pandemic.
Objective
To elicit HHAs’ perspectives toward mental health and well-being, including how their job...
Background
Although family caregivers play a critical role in care delivery, research has shown that they face significant physical, emotional, and informational challenges. One promising avenue to address some of caregivers’ unmet needs is via the design of digital technologies that support caregivers’ complex portfolio of responsibilities. Augmen...
Home care workers (HCWs) are professionals who provide care to older adults and people with disabilities at home. However, HCWs are vulnerable and especially susceptible to wage theft, or not being paid their legally-entitled wages in full by their employers. Prior work has examined other low-wage work settings to show how technology is designed an...
The mass collection and reuse of social data requires a reimagining of privacy and consent, with particular attention to the (in)equitable distribution of benefits and burdens between researchers and subjects. Instrumenting frontline clinical services to collect and steward data might mitigate the exploitation inherent to data collection---with att...
AI-driven tools are increasingly deployed to support low-skilled community health workers (CHWs) in hard-to-reach communities in the Global South. This paper examines how CHWs in rural India engage with and perceive AI explanations and how we might design explainable AI (XAI) interfaces that are more understandable to them. We conducted semi-struct...
This paper presents Saharaline, an intervention designed to provide collective social support for teachers in low-income schools. Implemented as a WhatsApp-based helpline, Saharaline enables teachers to reach out for personalized, long-term assistance with a wide range of problems and stressors, including pedagogical, emotional, and technological c...
BACKGROUND
Although family caregivers play a critical role in care delivery, research has shown that they face significant physical, emotional, and informational challenges. One promising avenue to address some of caregivers’ unmet needs is via the design of digital technologies that support caregivers’ complex portfolio of responsibilities. Augmen...
Introduction: Home Health Aides (HHAs) provide essential care to adults with cardiovascular (CV) disease in the home. Yet, HHAs themselves are a vulnerable workforce with a high burden of cardiovascular (CV) disease risk factors, which poses challenges to their own health, and potentially their patients’. We elicited the perspectives of HHAs toward...
Background: Although home health aides and attendants (HHAs) frequently provide care to community-dwelling adults with heart failure (HF), they have rarely been the focus of interventions aimed at improving patient outcomes. Engaging HHAs and other key home health care stakeholders in the research process is essential to designing user-friendly int...
Purpose
Despite a rapidly growing need for home health aides (HHAs), turnover rates are high. While this is driven in large part by the demanding nature of their work and low wages, another factor may be that HHAs are often not considered part of the medical team which can leave them feeling unheard by other healthcare professionals. We sought to d...
Research involving at-risk users -- that is, users who are more likely to experience a digital attack or to be disproportionately affected when harm from such an attack occurs -- can pose significant safety challenges to both users and researchers. Nevertheless, pursuing research in computer security and privacy is crucial to understanding how to m...
Home care workers (HCWs) provide essential care in patients' homes but are often underappreciated and work in stressful and isolated environments with diverse and intersecting support needs. This paper describes a computer-mediated peer support program that centers around sharing circles: spaces for personal, narrative storytelling to encourage HCW...
Home health aides are paid professionals who provide long-term care to an expanding population of adults who need it. However, aides' work is often unrecognized by the broader caregiving team despite being in demand and crucial to care---an invisibility reinforced by ill-suited technological tools. In order to understand the invisible work aides pe...
Objective:
To understand the perspectives of home health aides (HHAs) towards their own health and health behaviors, and how their job impacts both.
Data sources and study setting:
Interviews were conducted with 28 HHAs from 16 unique home care agencies from August 2021 to January 2022. The study was conducted in partnership with the 1199SEIU Tr...
This study examines the unique challenges facing rural home care workers. Semi-structured interviews were undertaken between July 2021 and February 2022 with 23 participants that have experience in rural home care delivery. The major challenge confronting rural home care workers involved distance and transportation. This challenge emerged due to lo...
BACKGROUND
Home health aides (HHAs) provide necessary hands-on care to older adults and those with chronic conditions in their homes. Despite their integral role, HHAs experience numerous challenges on the job, including their ability to communicate with other healthcare professionals about patient care while caring for patients and accessing educa...
Background:
Home health aides (HHAs) provide necessary hands-on care to older adults and those with chronic conditions in their homes. Despite their integral role, HHAs experience numerous challenges on the job, including their ability to communicate with other healthcare professionals about patient care while caring for patients and access educat...
Home care workers (HCWs) are increasingly central to post-acute and long-term health services in the United States. Despite being a critical component of the day-to-day care of home-dwelling adults, these workers often feel underappreciated and isolated on the job and come from low-income and marginalized backgrounds. Leveraging the support of peer...
Smartphones play an increasingly large role in the professional lives of teachers in low-income contexts, creating an urgent need to better understand the role of technology-related stress (technostress) in teachers' smartphone use for work. We contribute a mixed methods study analyzing the impact of smartphone use on teachers' work lives in low-in...
This paper describes how village-level officials, relatively new to the Internet, use popular digital platforms on smartphones to supplement and extend long-standing patterns of information control and authoritarian power in rural Cambodia. They use these tools to monitor local affairs, report to the central government, and promote local government...
A growing body of research suggests that intimate partner abusers use digital technologies to surveil their partners, including by installing spyware apps, compromising devices and online accounts, and employing social engineering tactics. However, to date, this form of privacy violation, called intimate partner surveillance (IPS), has primarily be...
A growing body of research suggests that intimate partner abusers use digital technologies to surveil their partners, including by installing spyware apps, compromising devices and online accounts, and employing social engineering tactics. However, to date, this form of privacy violation, called intimate partner surveillance (IPS), has primarily be...
Importance
Home health care workers care for community-dwelling adults and play an important role in supporting patients with confirmed and suspected coronavirus disease 2019 (COVID-19) who remain at home. These workers are mostly middle-aged women and racial/ethnic minorities who typically earn low wages. Despite being integral to patient care, th...
This paper examines refugees' experiences with and perspectives on the digital identity systems used by humanitarian organizations to collect, manage, and share their personal data. Through a qualitative study with 198 refugees in Lebanon, Jordan, and Uganda, we show how existing humanitarian identity systems present numerous challenges for refugee...
Abusers increasingly use spyware apps, account compromise, and social engineering to surveil their intimate partners, causing substantial harms that can culminate in violence. This form of privacy violation, termed intimate partner surveillance (IPS), is a profoundly challenging problem to address due to the physical access and trust present in the...
Technology increasingly facilitates interpersonal attacks such as stalking, abuse, and other forms of harassment. While prior studies have examined the ecosystem of software designed for stalking, there exists an unstudied, larger landscape of apps-what we call creepware-used for interpersonal attacks. In this paper, we initiate a study of creepwar...
We aim to bring together a number of designers, researchers, and practitioners to share their experience of the influence of crime and legality on their work. Through these discussions, we aspire to highlight the existing knowledge base for discussions of crime within HCI, provide a space for sharing researcher's personal experiences in their work...
Although highly involved in heart failure (HF) patients' care, home care workers (HCWs) lack HF training and are poorly integrated into the healthcare team. For its potential to address these challenges, we examined the role of technology among HCWs caring for HF patients. We conducted 38 interviews with key stakeholders. Overall, four themes emerg...
Background
Readmission rates are high among heart failure (HF) patients who require home health care (HHC) after hospitalization. Although HF patients who require HHC are often sicker than those who do not, HHC delivery itself may also be suboptimal.
Objective
We aimed to describe the workflow of HHC among adults discharged home after a HF hospita...
This interactive poster will discuss challenges and lessons learned designing and deploying ShareBox, a hardware-based system that enables people to share physical resources within local communities. Our goal in sharing the insights and struggles we encountered creating ShareBox is to help other researchers working on similar platforms to avoid the...
The proliferation of mobile devices around the world, combined with falling costs of hardware and Internet connectivity, have resulted in an increasing number of organizations that work to introduce educational technology interventions into low-income schools in the Global South. However, to date, most prior HCI research examining such intervention...
Community health programs in low-resource settings (like rural Kenya) aim to provide essential health services to vulnerable populations. However, to date, there has been limited research that explores the design of mechanisms that enable care recipients to provide feedback regarding their satisfaction with the services they receive. Such feedback...
Privacy scholarship has shown how norms of appropriate information flow and information regulatory processes vary according to environment, which change as the environment changes, including through the introduction of new technologies. This paper describes findings from a qualitative research study that examines practices and perceptions of privac...
Intimate partner abusers use technology to track, monitor, harass, and otherwise harm their victims, and prior work reports that victims have few resources for obtaining help with such attacks. This paper presents a qualitative analysis of data from a field study of an approach to helping survivors of intimate partner violence (IPV) with technology...
This paper examines refugees' experiences with and perspectives on the digital identity systems used by humanitarian organizations to collect, manage, and share their personal data. Through a qualitative study with 198 refugees in Lebanon, Jordan, and Uganda, we show how existing humanitarian identity systems present numerous challenges for refugee...
Home health aides (HHAs) increasingly being used by adults with heart failure for long-term assistance and post-hospitalization care. Despite being heavily involved in numerous aspects of heart failure management, most HHAs have not received heart failure training. They also struggle to get in touch with supervising nurses or other members of the c...
People's content choices are ideally driven by their intentions, aspirations, and plans. However, in reality, choices may be modulated by recommendation systems which are typically trained to promote popular items and to reinforce users' historical behavior. As a result, the utility and user experience of content consumption can be affected implici...
We created a quiz-based intervention to help secondary school students in Cameroon with exam practice. We sent regularly-spaced, multiple-choice questions to students' own mobile devices and examined factors which influenced quiz participation. These quizzes were delivered via either SMS or WhatsApp per each student's preference. We conducted a 3-w...
People in South Asia frequently share a single device among multiple individuals, resulting in digital privacy challenges. This paper explores a design concept that aims to mitigate some of these challenges through a 'tiered' privacy model. Using this model, a person creates a 'shared' account that contains data they are willing to share and that i...
This paper explores the design space of feedback systems that connect care recipients to the community health feedback loop. While related work in this vein has often emphasized gathering feedback for the sake of transparency alone, our study emphasizes opportunities to integrate the collection and use of feedback in ways that may improve the quali...
Our paper provides an enriched understanding of the relationship between research and practice through the study of practitioners variously engaged in field research on technology interventions in the context of global development. By conducting a qualitative inquiry with 33 practitioners from 26 global development organizations, we highlight how t...
Digital overuse on mobile devices is a growing problem in everyday life. This paper describes a generalizable mobile intervention that combines nudge theory and negative reinforcement to create a subtle, repeating phone vibration that nudges a user to reduce their digital consumption. For example, if a user has a daily Facebook limit of 30 minutes...
Evaluations of technological artifacts in HCI4D contexts are known to suffer from high levels of participant response bias---where participants only provide positive feedback that they think will please the researcher. This paper describes a practical, low-cost intervention that uses the concept of social proof to influence participant response bia...
This paper examines the opportunities and issues that arise in designing technologies to support low-income rural women in Bangladesh. Through a qualitative, empirical study with 90 participants, we reveal systemic everyday challenges that women face that form the backdrop against which technology design could potentially happen. We discuss how tec...
This paper describes a qualitative study with 89 participants that details how abusers in intimate partner violence (IPV) contexts exploit technologies to intimidate, threaten, monitor, impersonate, harass, or otherwise harm their victims. We show that, at their core, many of the attacks in IPV contexts are technologically unsophisticated from the...
The HCI Across Borders (HCIxB) community has been growing in recent years, thanks in particular to the Development Consortium at CHI 2016 and the HCIxB Symposium at CHI 2017. For CHI 2018, we plan to organize an HCIxB symposium that focuses on building the scholarship potential and quality of junior HCIxB researchers - paving new pathways, while al...
Prior research on technology use in the Global South suggests that people in marginalized communities frequently share a single device among multiple individuals. However, the data privacy challenges and tensions that arise when people share devices have not been studied in depth. This paper presents a qualitative study with 72 participants that an...
Digital technologies, including mobile devices, cloud computing services, and social networks, play a nuanced role in intimate partner violence (IPV) settings, including domestic abuse, stalking, and surveillance of victims by abusive partners. However, the interactions among victims of IPV, abusers, law enforcement, counselors, and others --- and...
Nutrient-based meal recommendations have the potential to help individuals prevent or manage conditions such as diabetes and obesity. However, learning people’s food preferences and making recommendations that simultaneously appeal to their palate and satisfy nutritional expectations are challenging. Existing approaches either only learn high-level...
With the rapid growth of ICT adoption in the Global South, crimes over and through digital technologies have also increased. Consequently, governments have begun to undertake a variety of different surveillance programs, which in turn provoke questions regarding citizens' privacy rights. However, both the concepts of privacy and of citizens' corres...
Our research aims to support community health workers (CHWs) in low-resource settings by providing them with personalized information regarding their work. This information is delivered through a combination of voice- and web-based feedback that is derived from data already collected by CHWs. We describe the in situ participatory design approach us...
This paper presents an analysis of the privacy issues associated with the practice of repairing broken digital objects in Bangladesh. Historically, research in Human-Computer Interaction (HCI), Information and Communication Technologies for Development (ICTD), and related disciplines has focused on the design and development of new interventions or...
Accredited Social Health Activists (ASHAs) have been shown to have a positive impact on health outcomes of the households they visit, particularly in maternal and neonatal health. As the first line of the public health system in many countries, they are a critical link to the broader public health infrastructure for community members. Yet they do t...
Many ubiquitous computing projects have addressed health and wellness behaviors such as healthy eating. Healthy meal recommendations have the potential to help individuals prevent or manage conditions such as diabetes and obesity. However, learning people's food preferences and making healthy recommendations that appeal to their palate is challengi...
We present an empirical analysis of HCI for development (HCI4D), a growing research area aimed at understanding and designing technologies for under-served, under-resourced, and under-represented populations around the world. We first present findings from our survey of 259 HCI4D publications from the past six years and summarize how this research...
Though every country and context is unique, and much of HCI research aims to design for situatedness, there are lessons to be learned across borders, across contexts. Questions we ask include: What are common themes that tie together different contexts? For instance, could a maternal health project in India benefit from lessons learned from a proje...
We present the first analysis of the use and non-use of social media platforms by low-income blind users in rural and peri-urban India. Using a mixed-methods approach of semi-structured interviews and observations, we examine the benefits received by low-income blind people from Facebook, Twitter and WhatsApp and investigate constraints that impede...
A growing body of HCI4D research studies the use of SMS communication to deliver health and information services to underserved populations. This paper contributes a novel dimension to this field of study by examining if a hybrid computer-human SMS system can engage pregnant women in Kenya in health-related communication. Our approach leverages the...
The Fifth ACM Symposium on Computing for Development (DEV-5) focused on applications, technologies, architectures, and protocols for computing in developing regions. It highlighted research results from contexts where conventional computing solutions are often inappropriate due to limited resources and a variety of contextual factors. Focusing on i...
Global development organizations rely on the essential affordances provided by both paper and digital materials to navigate hurdles posed by poor infrastructure, low connectivity, linguistic differences, and other socioeconomic constraints that render communication and collaboration challenging. This paper examines the collaborative practices aroun...
Health workers in remote settings are increasingly using mobile devices to assist with a range of medical tasks that may require them to handle potentially infectious biological material, and touching their mobile device in these scenarios is undesirable or potentially harmful. To overcome this challenge, we present Maestro, a software-only gesture...
The worldwide adoption of mobile devices presents an opportunity to build mobile systems to support health workers in low-resource settings. This paper presents an in-depth field evaluation of a mobile system that uses a smartphone's built-in camera and computer vision to capture and analyze diagnostic tests for infectious diseases. We describe how...
We describe our experiences integrating ODK Scan into the community health worker (CHW) supply chain in Mozambique. ODK Scan is a mobile application that uses computer vision techniques to digitize data from paper forms. The application automatically classifies machine-readable data types, like bubbles and checkboxes, and assists users with the man...
This paper describes Snippets, a novel method for improving computerized data entry from paper forms. Using computer vision techniques, Snippets segments an image of the form into small snippets that each contain the content for a single form field. Data entry is performed by looking at the snippets on the screen and typing values directly on the s...
Open Data Kit (ODK) is an open-source, modular toolkit that enables organizations to build application-specific information services for use in resource-constrained environments. ODK is one of the leading data collection solutions available and has been deployed by a wide variety of organizations in dozens of countries around the world. This paper...
Remote health monitoring and disease detection in the developing world are hampered by a lack of accurate, convenient and affordable diagnostic tests. Many of the tests routinely administered in well-equipped clinical laboratories are inappropriate for the settings encountered at the point of care, where low-income patients may be best served. To a...
Although HCI researchers and practitioners frequently work with groups of people that differ significantly from themselves, little attention has been paid to the effects these differences have on the evaluation of HCI systems. Via 450 interviews in Bangalore, India, we measure participant response bias due to interviewer demand characteristics and...
In low-resource settings in developing countries, most records are still captured and maintained using paper forms. Despite a recent proliferation of digital data collection systems, paper forms remain a trusted, low-cost and ubiquitous medium that will continue to be utilized in these communities for years to come. However, it can be challenging t...
Many of the diagnostic tests administered in well-funded clinical laboratories are inappropriate for point-of-care test-ing in low-resource environments. As a result, inexpensive, portable immunoassay tests have been developed to facil-itate the rapid diagnosis of many diseases common to de-veloping countries. However, manually analyzing the test r...