Nev Jones

Nev Jones
University of Pittsburgh | Pitt · School of Social Work

PhD

About

117
Publications
57,827
Reads
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2,346
Citations
Introduction
Mental health services researcher and community psychologist with a focus on community-based mental health services, crisis response, racial/ethnic/structural inequities, participatory methods and the phenomenology and sociocultural determinants of psychosis, disability and recovery. Strongly committed to stakeholder participation in all aspects of mental health policy and research and the work of a deep re-imagining.
Additional affiliations
October 2015 - April 2016
Mental Health Services Oversight & Accountability Commission, Sacramento, CA
Position
  • Researcher
June 2014 - November 2015
Stanford University
Position
  • PostDoc Position

Publications

Publications (117)
Article
Full-text available
Objective: In recent years, optimizing the process of transition and discharge from coordinated specialty care (CSC), a program that provides early intervention in psychosis, has emerged as an important focus area for program administrators , clinicians, and policy makers. To explore existing CSC policies and practices and to understand frontline p...
Article
Full-text available
In recent years, investment in participatory research methods within mental health services research has grown. Participatory efforts are often limited in scope, however, and attention to research leadership is largely absent from discourse about stakeholder involvement in the United States. This Open Forum calls for investment in building a pipeli...
Article
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Over the past decade, there has been a marked uptick in interest in increasing service user participation in the U.S. mental health care system, including clinical practice, research, and policy. Too often, however, these efforts remain superficial and unlikely to bring about the deeper transformation of systems long called for by grassroots activi...
Article
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PurposeFew studies have focused on the experience of involuntary psychiatric hospitalization among youth, especially the impact of these experiences on engagement with mental health services post-discharge. In this study, we contribute to a deeper understanding of youth experiences of involuntary hospitalization (IH) and its subsequent impacts on t...
Article
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Over the past decade, police involvement in behavioral health crisis response has generated concern and controversy. Despite the salience and timeliness of this topic, the literature on service user experiences of interactions with officers is small and studies of youths and young adults are nonexistent. The authors aimed to investigate youths' and...
Article
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Objective: In this article, the authors used data from a national survey of mental health activists and advocates (MHAAs) with lived experience of psychiatric disabilities to investigate attitudes toward psychiatric care. Methods: The authors distributed a survey, developed by a team led by researchers who were also service users, to both mainst...
Article
Importance: Intersecting factors of social position including ethnoracial background may provide meaningful ways to understand disparities in pathways to care for people with a first episode of psychosis. Objective: To examine differences in pathways to care by ethnoracial groups and by empirically derived clusters combining multiple factors of...
Article
Challenges associated with operationalising services for the at-risk mental state for psychosis solely in that same diagnostic silo are increasingly well recognised—namely, the differential risk for psychosis being a function of sampling enrichment strategies, declining transition rates to psychosis, questions regarding the validity of transition a...
Article
Peer providers are increasingly used by mental health programs to engage transition age youth (TAY, age 16-24) living with serious mental illness. This study elicited TAY clients’ perspectives on peer providers’ roles, responsibilities, and contribution to TAYs’ use of mental health services. In 2019, six focus groups were conducted with TAY client...
Article
Aim: Community participation in occupational, social, recreational, and other domains is critically important during young adulthood. Coordinated Specialty Care programs provide developmentally tailored care to young adults experiencing early psychosis within the U.S., but little is known about the breadth of efforts to promote community participat...
Article
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The authors of this column describe and reflect on challenges and successes encountered during implementation of a participatory research collaborative focused on the pathways to mental health care for youths and young adults. The collaborative centered development of stakeholder partner-led, small-scale research projects, supported by the academic...
Preprint
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The authors of this column describe and reflect on challenges and successes encountered during implementation of a participatory research collaborative fo-cused on the pathways to mental health care for youths and young adults. The collaborative centered development of stakeholder partner-led, small-scale research projects, supported by the academi...
Conference Paper
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Philosophy of psychiatry webinar paper on the political and ethical stakes of phenomenological psychiatry and that attempts to reflect on why it is that, still in 2022, thinkers and writers in this general space continue to write and publish worker that, at its core, dehumanizes the "actual human beings" in question.
Article
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Objective: The literature on the experience of mental health providers (MHPs) working with people with serious mental illness (SMI) in community-based mental health programs related to sex, sexuality, and intimacy is scarce. The purpose of the present study was to explore the situations, thoughts, feelings, dilemmas, and challenges experienced by...
Article
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Despite treatment guidelines recommending antipsychotic medication (APM) as the frontline treatment for schizophrenia, its use remains a controversial topic, and nonadherence rates range between 40% and 60%. At the heart of the debate lies a divergence of views about the tradeoffs between side effects and efficacy, particularly over the long term....
Article
Objective: This study examined hospital and emergency room (ER) use among Medicaid enrollees before and after discharge from OnTrackNY, a coordinated specialty care program for recent-onset psychosis. Methods: Medicaid claims data were linked to program data. Inpatient hospitalization, inpatient days, and ER visits were assessed in the 6 months...
Article
Full-text available
This study examines the interconnectedness between absorption, inner speech, self and psychopathology. Absorption involves an intense focus and immersion in mental imagery, sensory/perceptual stimuli, or vivid imagination that involves decreased self-awareness and alterations in consciousness. In psychosis, the dissolution and permeability of the...
Article
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We examine whether the availability of peer support reduces disparities in service use among minority youth ages 16–24 with serious mental illness in Los Angeles and San Diego Counties. Administrative data from 2015–2018 was used to summarize service use among 13,363 transition age youth age 16–24 with serious mental illness who received services f...
Article
Objective: Little is known about clients' preferences for family involvement and subsequent family contact in naturalistic, community-based coordinated specialty care (CSC) settings. The study's primary goal was to characterize clients' preferences and longitudinal patterns of family contact with providers across the OnTrackNY network in New York....
Article
Full-text available
Objective: Little is known about provider perspectives on programmatic responses to structural disadvantage and cultural differences within early intervention in psychosis (EIP) services, programs, and models. The primary objective of this study was to investigate providers' perspectives on the impacts of disadvantage and minority race, ethnicity,...
Article
Full-text available
Objective: This study investigated how clients of a coordinated specialty care (CSC) program for first-episode psychosis perceived how they changed while attending the program, what the most important changes were, and what mechanisms they believed helped bring about these changes. Methods: Study participants were 121 individuals (71 men and 50 wom...
Article
Full-text available
Objective: This study investigated how clients of a coordinated specialty care (CSC) program for first-episode psychosis perceived how they changed while attending the program, what the most important changes were, and what mechanisms they believed helped bring about these changes. Methods: Study participants were 121 individuals (71 men and 50...
Article
Aim: To examine whether roles of peer specialists affect service use among Black, Latinx and White youth ages 16-24 with serious mental illness (SMI) in Los Angeles and San Diego Counties. Methods: Administrative data from 2015 to 2018 was used to summarize service use among 6329 transition age youth age 16-24 with SMI who received services from...
Article
Objective: Although specialized early intervention services (EISs) for psychosis promote engagement in care, a substantial number of individuals who receive these services are discharged from care earlier than expected. The main goal of this study was to examine predictors of early discharge in a large sample of individuals enrolled in an EIS prog...
Article
Objective: Therapeutic benefits associated with early services for psychosis are influenced by the degree to which participants engage in treatment. The main objective of this review was to analyze rates of disengagement in early psychosis services and identify predictors of disengagement in these settings. Methods: A systematic search for studi...
Article
The unpredictability and uncertainty of the COVID-19 pandemic; the associated lockdowns, physical distancing, and other containment strategies; and the resulting economic breakdown could increase the risk of mental health problems and exacerbate health inequalities. Preliminary findings suggest adverse mental health effects in previously healthy pe...
Article
Full-text available
Objective: In recent years, optimizing the process of transition and discharge from coordinated specialty care (CSC), a program that provides early intervention in psychosis, has emerged as an important focus area for program administrators, clinicians, and policy makers. To explore existing CSC policies and practices and to understand frontline p...
Article
Adverse childhood experiences are associated with later development of psychosis, particularly auditory verbal hallucinations and delusions. Although auditory hallucinations have been proposed to be misattributed inner speech, the relation between childhood adversity and inner speech has not been previously investigated. The first aim was to test w...
Article
Full-text available
As the peer specialist workforce continues to expand, it is critical to better understand peer providers’ working conditions and workplace experiences. The current study utilized a targeted non-probability sample of 801 peer specialists to explore whether key organizational climate and support variables would yield distinct multivariate groups, and...
Article
Full-text available
Background Mental health patients can experience involuntary treatment as disempowering and stigmatising, and contact with recovered peers is cited as important for countering stigma and fostering agency and autonomy integral to recovery. Aims To advance understanding of the interaction between involuntary treatment and contact with recovered peer...
Preprint
Full-text available
Objective: The objectives of the current study were to characterize (a) peer specialist interest in enrolling in/returning to higher education and perceived barriers, (b) perceptions of the local availability of higher education/continuing education programming, and (c) perceived barriers to the advancement of the peer workforce. Method: We util...
Article
Full-text available
Despite the tremendous growth of the peer specialist workforce in recent decades, significant ethical, political, and procedural challenges remain regarding recruitment and retention of peer staff. This column explores such challenges and potential pitfalls by examining the limits of current accommodation practices, the complexity of "shared identi...
Article
Full-text available
Despite the tremendous growth of the peer specialist workforce in recent decades, significant ethical, political, and procedural challenges remain regarding recruitment and retention of peer staff. This column explores such challenges and potential pitfalls by examining the limits of current accommodation practices, the complexity of "shared identi...
Article
Full-text available
Coordinated specialty care (CSC) is a promising multielement treatment for the care of individuals experiencing the onset of schizophrenia. The community mental health block grant program has increased federal support for CSC programs. In order to maximize the number of sites capable of science-to-service or service-to-science translation, the Nati...
Article
Objective: Voice-hearers tend to face a high degree of stigma that can impact subjective well-being and social functioning. However, researchers have hypothesized that the content of the voice-hearing experience and its cultural context are relevant to stigma responses. This study experimentally tested how perceptions of voice-hearing experiences c...
Article
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That trauma can play a significant role in the onset and maintenance of voice-hearing is one of the most striking and important developments in the recent study of psychosis. Yet the finding that trauma increases the risk for hallucination and for psychosis is quite different from the claim that trauma is necessary for either to occur. Trauma is of...
Article
Abstract Early childhood trauma, defined as physical or sexual abuse, neglect, emotional abuse, harm or threat of harm, has long been associated with adulthood dysregulation of the immune system. Trauma can induce chronic immune system activation and hyper-reactivity demonstrating elevated cytokine concentrations with increased psychotic symptom se...
Article
Mounting evidence has indicated that early intervention leads to improved clinical and functional outcomes for young persons experiencing recent onset psychosis. As part of a large early detection campaign, the present study aimed to investigate subjective experiences during the duration of untreated psychosis (DUP), or time between psychosis onset...
Article
Full-text available
Whereas a growing literature has sought to understand challenges involved in the dissemination and implementation of specific evidence-based practices (EBP), few studies have centered on the perspectives of front-line community providers regarding best practices, clinical ideals and barriers to quality improvement for clients with psychosis. The go...
Article
Full-text available
Purpose: Over the past twenty years, few empirical studies have focused on manifestations of sex, sexual identity, and gender within the phenomenology of psychosis. The goal of the present analysis was to explore themes related to gender and sexuality among individuals diagnosed with a psychotic disorder. Methods: We conducted a qualitative analysi...
Article
Diagnostic nomenclatures have been central to mental health research and practice since the turn of the 20th century. In recent years, an increasing number of mental health professionals have proposed that a paradigm shift in diagnosis is inevitable. The Standards and Guidelines for the Development of Diagnostic Nomenclatures and Alternatives in Me...
Article
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Objective The current paper reviews the English-language research on exclusion criteria in bipolar disorder treatment trials and discusses how study samples compare to the general bipolar patient population. Methods & Results: Across 8 identified studies of exclusion criteria and their impact, between 55% and 96% of people with bipolar disorder wo...
Article
A key predictor of whether or not an individual who hears voices (auditory verbal hallucinations; AVH) meets criteria for a psychiatric diagnosis is the level of negative content of the voices (e.g., threats, criticism, abuse).Yet the factors that contribute to negative voice-content are still not well understood. This study aimed to test the hypot...
Article
Full-text available
Aim: In order to strengthen specialized early intervention in psychosis (EIP) services, a contextually nuanced understanding of psychosocial forces driving suboptimal treatment response is critical. This study sought to examine factors driving poor outcomes through a systematic emic coding of psychosocial assessments for discharged EIP clients cat...
Conference Paper
Full-text available
Keynote address focused on what it is that a "critical psychiatry"--not one yet in existence, would look like--and on the undecidability at the heart of involuntary treatment.
Article
Traumatic life events (TLEs) have been associated with multiple psychiatric diagnoses, including anxiety disorders, major depression, PTSD, and psychosis. To advance our understanding of the complex interactions between forms of adversity as they manifest across the lifespan, psychosis, and symptom content, we undertook a mixed-methods investigatio...
Presentation
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Peer-led webinar focused on gaps in existing early intervention models, the need for greater attention to social context, racial/ethnic disparities and background adversity/trauma and a vision for transformed services.
Article
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The “EAWE: Examination of Anomalous World Experience” is a detailed semi-structured interview format whose aim is to elicit description and discussion of a person's experience of various aspects of their lived world. The instrument is grounded in the tradition of phenomenological psychopathology and aims to explore, in a qualitatively rich manner,...
Article
Background: Traditionally, hallucinations have been understood as abnormalities of perception and delusions as abnormalities of cognition. However, descriptive psychopathologists have long noted the presence of “silent” or thought-like AVHs as well as AVHs with ambiguous perceptual and cognitive qualities. Some researchers have proposed that delusi...
Article
To advance the area of phenomenology of voices and their interrelatedness to forms of delusions this study investigated the prevalence and interrelatedness of co-occurring auditory verbal hallucinations (AVHs) and delusions. Additionally we explored the characterization of distinct sub-categories/clusters of AVHs and delusions. Ninety-two participa...
Article
Full-text available
Purpose: The aim of this work was to develop a campaign to promote an environment of solidarity and support on college campuses for students with mental illnesses. Method: Data were gathered from 24 members of a Chicago university campus who were selected as representatives of key campus stakeholder groups including students, administrative staff,...
Technical Report
Full-text available
The student/family version of twin toolkits designed to support the full inclusion of students with early psychosis. Resources include detailed suggestions regarding academic accommodations, legal troubleshooting and advice/perspectives from other students with lived experience.
Technical Report
Full-text available
Fact sheet focused on the importance of early intervention in psychosis programs collaborating with institutions of higher education and promoting campus-based services and supports.
Technical Report
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Optimizing step-down, discharge and continuity of care policy and practice in multidisciplinary early intervention in psychosis (EIP) programs that address first episode psychosis (FEP) is a relatively underdeveloped but critical component of specialized early intervention. This issue brief reviews the relevant research literature and provides gene...
Technical Report
Full-text available
Campus administrator, faculty and staff version of twin toolkits designed to promote the development and implementation of campus-based services and resources to support the success and full inclusion of students with early psychosis.
Article
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There is a growing literature on what contemporary cultural theorists have broadly termed the “postsecular”: the abandonment of clear-cut boundaries between the secu- lar and nonsecular in the industrialized West and an embrace of a complex understand- ing of what is real that neither accepts nor rejects the supernatural. These new cultural current...
Article
Background/aims: This paper reports on analyses designed to elucidate phenomenological characteristics, content and experience specifically targeting participants with Schneiderian voices conversing/commenting (VC) while exploring differences in clinical presentation and quality of life compared to those with voices not conversing (VNC). Methods:...
Article
Full-text available
Objectives: This study examined the implementation of age-specific services for transition-age youths in California under the Mental Health Services Act (MHSA). Methods: This study employed a sequential, exploratory mixed-methods design. Qualitative interviews with 39 mental health service area administrators in California were analyzed to devel...
Article
Full-text available
Objective: To investigate the subjective experience of agency in the onset and early development of psychosis.Method: We conducted 19 in-depth interviews with a sample of individuals with self-reported diagnoses of schizophrenia and/or affective psychosis. Interviews focused on participants’ experiences of agency and control in the onset and develo...
Chapter
Throughout the world, children and adults with intellectual disabilities face social exclusion, marginalization, discrimination, and abuse. This chapter provides an overview of the effects of stigma in perpetuating social inequalities and violating the basic human rights of people with intellectual disabilities. The impact of stigma on a number of...