Natalie Dren

Natalie Dren
Lymphoma Coalition · Research

Master of Public Health

About

15
Publications
339
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Publications

Publications (15)
Poster
Full-text available
Patients with lymphoma face various emotional consequences as a result of their diagnosis and treatment. Progress in providing high-quality care for the psychosocial impacts of lymphoma has not matched the advances in lymphoma detection and treatment. Patients in different life stages may experience different psychosocial issues or varying intensit...
Article
e18517 Background: Patient-centricity remains a cornerstone in the care of patients with lymphoma and CLL, as informed patients are consistently associated with better outcomes and experiences. This study uses the Lymphoma Coalition (LC) 2020 Global Patient Survey (GPS) on Lymphomas and CLL to describe the global differences in the top choices for...
Presentation
Full-text available
Cutaneous lymphoma is a rare and complex disease. Patients require clear and credible information, yet patients reported not receiving enough information at diagnosis. Additionally, patients with cutaneous lymphoma were disproportionately affected by psychosocial issues specific to their disease; indicating psychosocial assessment and intervention...
Presentation
Full-text available
Patients with lymphoma who were treated with a stem cell transplant reported a higher prevalence of psychosocial issues compared to patients who had not received a stem cell transplant. The treatment and recovery periods for stem cell transplants are complex, and psychosocial assessment and intervention should be a high priority for this population...
Poster
Full-text available
CAR-T patients would like more information and support than what was provided by their doctors. Doctors are more likely to address physical aspects of care. Gaps in need exist in the communication and support for psychosocial issues, and in the explanation of the processes of care in a patient-friendly manner. Lymphoma Coalition advocates for stron...
Poster
Full-text available
Results show CAR-T patients have a higher burden of treatment side effects yet are less likely to communicate all of their side effects experienced to their doctor and a number feel they are not receiving enough help from their doctors in coping with side effects. This remains a major concern and a gap in care. Lymphoma Coalition believes that cont...
Poster
Full-text available
European lymphoma patients, regardless of region of residence, would like more information and support than currently provided by their doctors. Respondents indicate doctors are more likely to address physical aspects of care, with the exception of fatigue. A large gap exists regarding communication surrounding the emotional/psychosocial issues tha...
Article
e20071 Background: Over the past two decades, the incidence of lymphoma has increased by 8-10% per year in older adults. Despite the growing population of older cancer patients, there are a limited number of studies that focus on the experience of these patients. Lymphoma Coalition (LC) saw the need in the 2019 Report Card on Lymphomas to examine t...
Article
Introduction In recent years, healthcare reform strategies have encouraged patients to become more participatory in the effective management of their health and healthcare. Knowledge dissemination is required to incite and sustain this shift, and there is a growing body of evidence pointing to better outcomes for more 'informed' patients. In 2018,...
Article
Introduction: There have been great strides in lymphoma treatment options and patients' health outcomes but one area of lymphoma care that seems to have been left behind is ensuring patient-centred medical practice. The complexity of the lymphoma experience and the myriads of side effects from treatments makes patient-centricity a cornerstone for t...
Poster
Full-text available
This study presents a unique look at how CLL patients are faring in this complicated therapeutic landscape, by comparing their level of understanding of key issues after their initial doctor’s appointment with that of diffuse large B-cell lymphoma (DLBCL) patients (given that DLBCL has a more established standard of care), using the Lymphoma Coalit...
Article
Full-text available
Background: Across recent health reform research, there is growing advocacy and awareness surrounding the idea that patients should act as more effective managers of their health and healthcare. Knowledge dissemination is frequently named as a preliminary requirement for this shift in attitude and behaviors. In 2017, the Lymphoma Coalition (LC) con...

Projects

Project (1)
Project
The main objective of this research is to identify the differences, if any, between outcomes for informed vs. uninformed patients. If a patient does not posses the knowledge or confidence in their ability and right to inquire, to ask questions of a physician, to take a certain therapy or not, to request further clarification when they do not understand, to feel like they have the right to take up more of the doctor’s time, to bring up emotional issues and so on, then they are at risk for poor ‘outcomes’ throughout their patient experience.