Natacha Bolanos

Natacha Bolanos
Lymphoma Coalition · Patient Advocacy

About

12
Publications
1,487
Reads
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32
Citations
Citations since 2016
12 Research Items
32 Citations
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Introduction
I work at Lymphoma Coalition as Global Alliances Manager and Regional Manager for Europe. I have significant experience in patient advocacy, education and service provision in the field of cancer and hematological malignancies. As a Cancer Rehabilitation Specialit thru exercise referral, I have helped patients to maintain or recover the physical condition during and after cancer treatment. I am interested in data about the patient experience and preferences, QOL, access, HTA assessments, etc.

Publications

Publications (12)
Article
The purpose of this article is to explore whether any differences exist between the general population and patient based preferences towards EQ-5D-5L defined hypothetical health states. The article discusses the role of adaptation and self-interest in valuing health states and it also contributes rigorous empirical evidence to the scientific debate...
Article
Full-text available
One of the key goals in the personalised medicine era is to improve communication between front-line healthcare professionals and their patients. The latter should have an equal role in any decisions made about their treatment, and this requires them to be able to input vital information, such as lifestyle and work circumstances, as well as to be p...
Article
Full-text available
The paper presents the position of the European Cancer Patient Coalition (ECPC), in partnership with Interel, on the value of innovation in oncology today, focusing on issues that would benefit most from the direct involvement of patients.The objective of the paper is to present key factors affecting access to innovation in oncology in Europe and t...
Conference Paper
Full-text available
Executive Summary This White Paper is a joint collaboration between the European Cancer Patients Coalition (ECPC) and Eurocarers, aimed at presenting European policy-makers at the European Union (EU) and national level with policy recommendations for a robust policy framework supporting cancer carers. Carers are people who provide unpaid care t...
Article
Chimeric antigen receptor (CAR) T-cell therapy is a promising immunotherapeutic approach in the treatment of multiple myeloma, and the recent approval of the first two CAR T-cell products could result in improved outcomes. However, it remains a complex and expensive technology, which poses challenges to health-care systems and society in general, e...
Article
Full-text available
Objectives The Innovative Medicines Initiative–funded, multistakeholders project Healthcare Alliance for Resourceful Medicine Offensive Against Neoplasms in hematologY (HARMONY) created a task force involving patient organizations, medical associations, pharmaceutical companies, and health technology assessment/regulator agencies’ representatives t...
Article
Introduction: Commonly accepted standardized sets of outcomes to be measured in clinical trials are still limited. In accordance, outcome measures vary widely between clinical trials even within defined hematological malignancy (HM) entities. Definition of a core outcome set (COS), which represents a standardized agreed set of outcomes that should...
Article
Full-text available
In 2016, the European Hematology Association (EHA) published the EHA Roadmap for European Hematology Research1 aiming to highlight achievements in the diagnostics and treatment of blood disorders, and to better inform European policy makers and other stakeholders about the urgent clinical and scientific needs and priorities in the field of hematolo...
Poster
Full-text available
European lymphoma patients, regardless of region of residence, would like more information and support than currently provided by their doctors. Respondents indicate doctors are more likely to address physical aspects of care, with the exception of fatigue. A large gap exists regarding communication surrounding the emotional/psychosocial issues tha...
Article
e20071 Background: Over the past two decades, the incidence of lymphoma has increased by 8-10% per year in older adults. Despite the growing population of older cancer patients, there are a limited number of studies that focus on the experience of these patients. Lymphoma Coalition (LC) saw the need in the 2019 Report Card on Lymphomas to examine t...

Questions

Question (1)
Question
I'm very interested in your approach and would like to suggest, if you haven't done yet, to incorporate patient perspective, how patients are integrated in the health related policy making, or HTA processes, and so on. I presented an umbrella patient orgenization and we have members in small countries.

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Projects

Project (1)
Archived project