Myriam Winance

Myriam Winance
French Institute of Health and Medical Research | Inserm · Center of Medicine, Sciences, Health, Mental Health and Health Policy CERMES 3

Phd

About

78
Publications
18,422
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Introduction
My aim is to analyze the evolutions of the notion of disability through discourses, practices and experiences, in France. I have analysed the french political debates around the new disability law (2005). I have also focused on the relation between “disability” and “repair”. Concerning the analysis of practice, I have launched an ethnographic research project on the wheelchair, examining how using a wheelchair transforms a person, and how norms of action and relationship are questioned.

Publications

Publications (78)
Article
Since the 1980s, “personalisation” is at the centre of the evolution of disability policies and more generally of the Welfare state. It refers on one hand to the question of self-determination through the allocation of personalised budgets, and on the other to the adaptation of care to the specificities of a given person, through the development of...
Presentation
Dans cette intervention, nous revenons sur la pluralité et la diversité qui caractérisent le secteur médico-social, pluralité et diversité héritées de l'histoire. Nous soulignons que cette pluralité et cette diversité sont d’abord une richesse, car elles ouvrent des possibilités très variées de prise en charge ou de modalité d’accompagnement. Elles...
Chapter
Livre publié chez Open Edition, disponible en accès ouvert à: https://books.openedition.org/emsha/727
Book
Full-text available
Et si comprendre le handicap c’était aussi et d’abord comprendre un certain rapport à l’espace ? Bien que le rôle de l’environnement soit primordial pour définir le handicap, l’étude des interactions spatiales, des espaces et des pratiques de l’espace commence à peine à se développer en France. Cet ouvrage vise à expliciter la dimension spatiale du...
Article
Partant d’une critique de l’usage extensif de la notion de prothèse, je réinterroge la question des relations entre les objets techniques et les personnes. Plus précisément, je pose deux questions : « Ces objets techniques sont-ils d’emblée et toujours des prothèses ? et « Les relations que nous nouons avec ces objets produisent-elles des qualités...
Article
In this article, I re-examine the question of the relationships between humans and non-humans, between subjects and objects. I analyse how relationships shape and define these –both them and their assemblage. While I concur with work in STS that has shown the ongoing process through which the embodied self is performed, I shift my attention from th...
Article
Full-text available
Résumé Dans cet article court, nous proposons un commentaire de l’article de Cyril Desjeux (« Le “soin” pensé au nom des personnes handicapées : quels enjeux éthiques et de pouvoir ? »). Nous revenons sur plusieurs questions posées par cet article. La première concerne les diverses manières de qualifier un acte comme « aide » ou « soin », les tensi...
Chapter
Full-text available
Dans ce chapitre, je propose une réflexion sur le handicap, à partir d'un texte de Simone Weil, "L'amour de Dieu et le malheur (1942)". Je contraste l'attitude compassionnelle et une attitude issue du "prendre soin", de la sollicitude, telle que pensée par l'éthique du care, plus précisément, par Eva Feder Kittay. Des similitudes intéressantes émer...
Article
Full-text available
In this article we examine the body's status in the complaints that patients filed with a compensation agency. Taking a corpus of letters, we analyse the way in which the patients mobilise their bodily experience from the angle of the damage for which they demand compensation. To this end, we articulate an approach in terms of the sociology of comp...
Article
Background: In France little is known about either the characteristics of people who take legal action because they believe themselves to be victims of harm caused by medical activity, or about their complaint trajectory. The law of 4th March 2002 created an out-of-court settlement mechanism which aims to reduce inequitable access to compensation...
Book
Les recherches dans le domaine de la santé recourent de plus en plus fréquemment aux méthodes qualitatives, caractérisées par leur diversité : enquêtes anthropologiques à visée compréhensive, évaluations d’interventions ou encore recherches exploratoires en vue de la mise en place d’essais cliniques. Leur enseignement a donc un rôle essentiel à jou...
Poster
Full-text available
Ce poster présente un projet de recherche collectif autour de l’histoire et des usages de la catégorie ”handicaps rares”, en France. A partir de cette histoire, nous essayons d’analyser certaines des tensions qui traversent le secteur médico-social et leurs évolutions. Nous montrons notamment comment dans ce secteur, les acteurs passent d’une organ...
Article
Full-text available
In this article, I analyze one evolution in disability research over the past 30 years: the shift from an individual to a social approach to disability. While most disability research has currently “socialized” disability or at the least situates disabled people within a social context, not all do so in the same way nor based on the same assumption...
Article
Full-text available
Dans cet article, j’analyse l’une des évolutions des recherches sur le handicap depuis 30 ans : le passage d’une approche individuelle à une approche sociale du handicap. Si actuellement, la majorité des recherches sur le handicap ont « socialisé » le handicap, ou du moins, situent la personne handicapée dans un contexte social, toutes ne le font p...
Article
Care et handicap. 2eme partie : declinaisons historiques et perspectives internationales / Care and Disability. 2nd part: Historical Variations and International Perspectives. Editeurs / Guest editors : Aurelie Damamme, Emmanuelle Fillion, Myriam Winance
Presentation
Full-text available
Présentation lors du Colloque de l’Institut Fédératif de Recherche sur le Handicap, Recherches en Mobilité et Handicap, 24 septembre 2015 – Valenciennes. La conception universelle (Universal Design) est un courant qui s’est développé dans le domaine de l’architecture à partir de la fin des années 1980, pour s’étendre ensuite au domaine du design. E...
Conference Paper
La question qui guide cette présentation est la suivante : quelle a été la principale évolution des recherches sur le handicap, depuis les années 70 ? Où cela nous a-t-il menés ? Quelles pistes de réflexion pour nos futures recherches sur le handicap peut-on en tirer ? Or, ce principal apport, n’est pas difficile à pointer, il s’agit du passage d’u...
Article
L’article étudie les plaintes des patients (ou de leurs proches) qui s’estiment victimes de préjudices liés à l’activité médicale. Sur la base d’un corpus de courriers adressés au dispositif de règlement amiable créé par la loi du 4 mars 2002, nous analysons les trois opérations critiques qui structurent la plainte : imputer des dommages à des soin...
Article
The article examines complaints made by patients (or their families) who consider they have been victims of medical injury. Using a corpus of letters addressed to the out-of-court settlement mechanism created under the law dated 4th March 2002, we analyse the three critical operations that make up the complaint: attributing the injury to the care r...
Chapter
Full-text available
The history of the rehabilitation of the body can be traced back to 2300 years before Christ, and analysis of the terminology concerning persons with disabilities shows a transformation in the way they have been perceived in society. Persons yesterday called “the lame” or “the infirm” are today known as “disabled”. This article tries to analyze how...
Article
Purpose. The author analyses some theoretical presuppositions of the Universal Design approach. She shows that it is based on two paradoxes: 1/ it reduces diversity to the “universal”, 2/ it depends on an asymmetrical view of abilities and disabilities. The author suggests a way of changing this concept in order to take into account uniqueness and...
Article
This article proposes a reflection on an interdisciplinary seminar, initiated by philosophy and sociology researchers and public health professionals. The objective of this seminar was to explore the mechanisms involved in setting up and conducting interdisciplinary research, by investigating the practical modalities of articulating health and huma...
Article
Full-text available
Purpose. The author analyses some theoretical presuppositions of the Universal Design approach. She shows that it is based on two paradoxes: 1/ it reduces diversity to the "universal", 2/ it depends on an asymmetrical view of abilities and disabilities. The author suggests a way of changing this concept in order to take into account uniqueness and...
Article
Full-text available
In France, a notion is currently the focus of a number of political debates, that of “rare disabilities”, a notion that does not seem to be used, or to a limited extent, in other countries. The aim of this article is to return to the history of this notion in France: when and why did it appear? What issue and what population does this category desi...
Article
Full-text available
En France, une notion fait actuellement l’objet d’un certain nombre de débats politiques, celle de « handicaps rares », notion qui semble ne pas être employée ou peu, dans les autres pays. L’objectif de cet article est de revenir sur l’histoire de cette notion en France : quand et pourquoi apparaît-elle ? Quel problème et quelle population cette ca...
Article
For decades and in many countries, the issue of compensation for victims of medical injuries has led to lively debates. In 2002, a law set up a new model for compensation in France - based on the creation of a "no fault" compensation scheme and of an out-of-court settlement mechanism. This is one of the most recent models to have been adopted in Eu...
Article
Full-text available
Cet article propose un retour réflexif sur une expérience de séminaire interdisciplinaire, à l’initiative de chercheurs en philosophie et en sociologie, et de médecins chercheurs en santé publique. L’objectif du séminaire était de s’interroger sur les mécanismes à l’oeuvre lors de la mise en place et de la réalisation de recherches interdisciplinai...
Chapter
Full-text available
L'article porte sur l'histoire de l'émergence des mouvements de revendications des personnes handicapées aux Etats-Unis et en Angleterre dans les années 1970-1990. A travers cette histoire, il s'agit d'examiner comment se sont constitués des mouvements qui mettent l'expérience subjective au fondement de leurs revendications politiques et comment il...
Article
The question of the "frontiers of humanity" is at the heart of the social sciences project. It is possible to distinguish two ways of addressing the issue. The first is normative: the aim is to draw a line between what is "peculiar to humans" and that what is not. The second way of considering the "frontiers of humanity" is descriptive: it is a for...
Article
Full-text available
Mobility in Wheelchair: Bodily Adjustment and Practical Arrangements within the Social and Physical Space The author uses wheelchair mobility to examine the distinction (based on the historical opposition of two models of disability – an individual model and a social model) between the individual experience and the social experience of disability....
Article
Full-text available
Towards a Sociology of the “Frontiers of Humanity” The question of the “frontiers of humanity” is at the heart of the social sciences project. It is possible to distinguish two ways of addressing the issue. The first is normative: the aim is to draw a line between what is “peculiar to humans” and that what is not. The second way of considering the...
Article
This article analyses the emergence of disability rights movements in United States and in England between 1970 and 1990. Through this history, we try to understand how movements that put subjective experience at the core of their political actions have developed and how they have solved the existing tension between subjective experience and social...
Article
Full-text available
The starting point of this article is the debate between Disability Studies researchers and the theorists of the ethics of care about the notion of care, with the former rejecting it and the latter defending it in order to construct an ethic. Whilst at first sight these two movements are in opposition to each other, they are based on an identical c...
Article
Full-text available
To highlight the prevalence of manual and/or powered wheelchair use within the general French population living at home or in institutions, to describe the users and to identify factors determining wheelchair use. Data were obtained from national community-based Handicaps-Incapacités-Dépendance surveys on disability and dependency carried out on 2...
Article
Dans cet article, l'auteur analyse l'évolution de la notion de handicap en s'intéressant aux deux classifications du handicap publiées par l'OMS, en 1980 puis en 2001. La "Classification Internationale du Handicap: déficiences, incapacités et désavantages. Un manuel de classification des conséquences des maladies", de 1980, prolonge la "Classificat...
Article
Full-text available
Dynamis Fecha de recepción: 4 de septiembre de 2007 [0211-9536] 2008; 28: 377-406 Fecha de aceptación: 21 de enero de 2008 SUMARIO: 1.—La Classification Internationale des Handicaps: Deficiences, incapacites, des-avantages. 1.1.–Des causes aux conséquences des maladies. 1.2.—De la maladie à la personne malade. D'un point de vue médical à un point d...
Article
Full-text available
Focusing on the situation in France, the author analyses the link between the notion of “disability” and the way “disabled people” are integrated into society and normalised. Throughout the 20th century, disability has been defined in France in terms of divergence from a social norm. This definition leads to a normalisation process which consists i...
Article
Full-text available
In this article, the authors show that the current French disability policy is traversed by conflicts between three different approaches to disability which came about at different periods in history. They begin by looking at the origins of disability policy in France. This policy was developed during the 20th century, from notions of repair, indem...
Article
Full-text available
This article examines the role and importance of discourse in the field of disability. Based on Austin's contributions to pragmatics, it shows how discourse, being descriptive, prescriptive and embodied, creates differences for individual people. Words define a person's world, body and (dis)abilities. They thus define the way in which this world ca...
Article
Rehabilitation experts and disabled people are faced with the question of pain on a daily basis. This is a complex phenomenon with various different aspects: physiological, social, cultural and personal experience. In this article the author focuses on the personal experience of pain, i.e., the way in which it is experienced by the person in questi...
Article
To throw light upon the dynamic processes which may or may not lead persons with severe motor disability to employment. A qualitative approach to the chronology of both the professional and non-professional occupations of wheelchair users between acquisition of the disability and the interview; this approach focuses upon actions and meanings, thus...
Article
Full-text available
Focusing on the interactions between people suffering from neuromuscular diseases and their wheelchairs, the author raises the question of action: how is action made possible for people suffering from neuromuscular diseases? Starting with actor-network theory, the author shows that action not only results from distribution and delegation to heterog...
Article
Full-text available
Handicap et normalisation. Analyse des transformations du rapport à la norme dans les institutions et les interactions Myriam Winance Dans cet article, l'auteur analyse le lien entre la notion de handicap et l'insertion ou la normalisation des « personnes handicapées ». Au cours du XXe siècle, la notion de handicap est définie en termes de déficit...
Article
Full-text available
The two-faced experience of people suffering from neuromuscular diseases: retraction and extension Focusing on the experience of people suffering from neuromuscular diseases, the author shows that the disease and the use of technical aids to survive and to live are not only disrupting the self (biographical disruption), but also transforming the li...
Article
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En s’appuyant sur l’apport de la pragmatique, l’auteur s’interroge sur l’aspect performatif du discours dans le champ du handicap. Il analyse la manière dont le discours agit, c’est-à-dire à la fois les effets du discours sur les personnes concernées et les conséquences du maniement du discours pour le locuteur (en termes de légitimité et de respon...
Article
The French Muscular Dystrophy Association (AFM) gathers together families whose one member is touched by a neuromuscular disease. This Association supports scientific research and helps families in their daily life. In my dissertation, I focus on the second aspect. I analyse the way the AFM faces disability and its action to include disabled people...
Article
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L'Association Française contre les Myopathies, association de malades, soutient la recherche scientifique et aide les malades dans leur vie quotidienne. Ma thèse se focalise sur le second aspect. Je m'interroge sur la politique du handicap de l'AFM et cherche à décrire le processus d'insertion des personnes handicapées dans la cité, en analysant tr...

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