Monique Heijmans

Monique Heijmans
Nivel – Research for better care | NIVEL

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91
Publications
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Publications

Publications (91)
Article
Overweight and obesity in children are an increasing public health problem. Health literacy (HL) is a determinant of obesity and body mass index (BMI) rates in adults, but few studies have addressed the impact of children’s own HL on their weight and lifestyle. In this study, we aim to assess the impact of Dutch children’s HL on (1) their BMI z-sco...
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Background During the coronavirus disease 2019 (COVID-19) pandemic, people have been confronted with a large amount of information about the virus and the governmental measures against its spreading. However, more than a quarter of individuals have limited health literacy (HL), meaning that they have difficulty finding, understanding, and applying...
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Insights in the challenges that healthcare providers encounter in serving low health literate patients is lagging behind. This study explored challenges perceived by healthcare providers and provides strategies in communication with low health literate patients. Primary and secondary healthcare providers ( N = 396) filled in an online survey. We as...
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Background:For many chronically ill patients self-management of their disease is difficult. This may be especially true for people with limited health literacy as they are faced with additional challenges in the day-to-day management of their disease. Research has shown that self-management support is most effective when tailored to the needs and p...
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Background: Countries are adapting their health and social care systems to better meet the needs of growing populations with (multiple) chronic conditions. To guide this process, assessment of the 'patient experience' is becoming increasingly important. For this purpose, the Person-Centred Coordinated Care Experience Questionnaire (P3CEQ) was deve...
Chapter
There is a rapid increase in trials assessing healthcare interventions consisting of a combination of drugs (polytherapies) or multiple components. In the latter type of interventions (also known as complex interventions), the aspect of complexity is of paramount importance. For example, nonpharmacological interventions, such as psychological inter...
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Introduction : Self-management (SM) interventions are complex interventions and one of the main components of high-quality chronic disease care for which the incorporation of the perspectives of patients and their informal caregivers is crucial. We aim to identify, appraise and synthesise the evidence exploring patients’ and caregivers’ perspective...
Article
Objectives Self-management of chronic diseases is rather complex, especially for patients with limited health literacy. In this review, we aim to disentangle the specific difficulties patients with limited health literacy face in relation to self-management and their associated needs with respect to self-management support. Methods We performed a...
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As health literacy (HL) is hypothesized to develop throughout life, enhancement during childhood will improve HL and health during life. There are few valid, age-appropriate tools to assess children's HL. The German-language European Health Literacy Survey Questionnaire Adapted for Children (HLS-Child-Q15-DE) is a self-report questionnaire adapted...
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Background Self-management (SM) interventions are supportive interventions systematically provided by healthcare professionals, peers, or laypersons to increase the skills and confidence of patients in their ability to manage chronic diseases. We had two objectives: (1) to summarise the preferences and experiences of patients and their caregivers (...
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Background: A large body of evidence suggests that self-management interventions (SMIs) may improve outcomes in chronic obstructive pulmonary disease (COPD). However, accurate comparisons of the relative effectiveness of SMIs are challenging, partly due to heterogeneity of outcomes across trials and uncertainty about the importance of these outcom...
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Background Many health literacy instruments focus on reading skills, numeracy and/or information processing aspects only. In the Netherlands, as in other countries, the need for a comprehensive, person-centred measure of health literacy was observed and consequently the decision was made to translate the Health Literacy Questionnaire (HLQ) into Dut...
Article
This report focuses on the development of health literacy in two European countries, Denmark and the Netherlands. Denmark is part of the Nordic region, while the Netherlands is situated in the Western part of Europe. The report includes examples on Danish and Dutch health literacy research and lessons learned from practice. In Denmark, supported by...
Article
Introduction : Self-management (SM) interventions are complex interventions and one of the main components of high-quality chronic disease care for which the incorporation of the perspectives of patients and their informal caregivers is crucial. We aim to identify, appraise and synthesise the evidence exploring patients’ and caregivers’ perspective...
Article
PurposeType 2 diabetes requires patients to make lifestyle changes and perform daily self-care. To determine at what stages patients may need particular self-management support, we examined (1) whether patients’ performance of self-care related to their diabetes duration, and (2) whether illness characteristics (treatment and complications) and dia...
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Meer dan de helft van de mensen met een chronische ziekte vindt dat er onvoldoende met hen besproken wordt wat zij belangrijk vinden in hun zorg en hun gezondheid. Wel voelen zij zich betrokken bij het nemen van beslissingen over hun behandeling samen met hun zorgverlener. Dit blijkt uit de Zorgmonitor van het Nivel, waarin de zorgsituatie van mens...
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Aims: To evaluate the immediate and six-month effectiveness of a group-based self-management support program for people diagnosed with type 2 diabetes (1-3 years post diagnosis) on diabetes self-care, distress and cognitions. Methods: People with type 2 diabetes were randomized into the intervention (four group-based interactive sessions) or the...
Article
Objective: To characterize patients interested in support by a patient coach to guide them in medical specialist consultations. Methods: We compared 76 patients interested in a patient coach with 381 patients without such an interest, using a representative panel of patients with a chronic disease in the Netherlands. Independent variables were d...
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Background In the last decade, the attention for health literacy has increased in the European Union. This is due to three main reasons. First, reviews have shown that inadequate health literacy is associated with worse health outcomes, higher health care use and expenditure. Second, in all European countries the population is aging and the number...
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Many health literacy interventions have a limited focus on functional/cognitive skills. In psychosocial models, the capacity to act however is seen as a major driver of behavioural change. This aspect is often lacking in health literacy concepts. In this study, we examine the impact of both aspects of health literacy (functional/cognitive and capac...
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Background: Low socioeconomic status (SES) is persistently associated with poor health and suboptimal use of healthcare services, and more unplanned healthcare use. Suboptimal use of emergency and acute healthcare services may increase health inequalities, due to late diagnosis or lack of continuity of care. Given that health literacy has been ass...
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Background Chronically ill patients such as people with type 2 diabetes develop perceptions of their illness, which will influence their coping behaviour. Perceptions are formed once a health threat has been recognised. Many people with type 2 diabetes suffer from multimorbidity, for example the combination with cardiovascular disease. Perceptions...
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The new COPD-GRIP (Chronic Obstructive Pulmonary Disease – Guidance, Research on Illness Perception) intervention translates evidence regarding illness perceptions and health-related quality of life (HRQoL) into a nurse intervention to guide COPD patients and to improve health outcomes. It describes how to assess and discuss illness perceptions in...
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Background: Illness perceptions involve the personal beliefs that patients have about their illness and may influence health behaviours considerably. Since an instrument to measure these perceptions for Malay population in Malaysia is lacking, we translated and examined the psychometric properties of the Malay version of the Brief Illness Percepti...
Article
Objective To enhance patient participation during (oncological) encounters, this study aims to gain insight into communication barriers and supportive interventions experienced by elderly patients with cancer. Method A mixed method design, including both quantitative (secondary survey data analysis) and qualitative (interviews) methods Survey data...
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Background There is a growing emphasis on self-monitoring applications that allow patients to measure their own physical health parameters. A prerequisite for achieving positive effects is patients’ willingness to self-monitor. The controllability of disease types, patients’ perceived self-efficacy and health problems could play an essential role i...
Article
The neighbourhood may provide resources for health. It is to date unknown whether people who live in neighbourhoods with more social capital have more access to practical and emotional support by neighbours, or whether this is a resource only available to those who are personally connected to people in their neighbourhood. We investigated whether s...
Article
In de zorg voor mensen met chronische aandoeningen is ruimte voor substitutie. Dat houdt in dat een deel van de zorg die nu in de tweede lijn wordt geleverd, kan worden geboden in de eerste lijn en dat patiënten dus eerder terugverwezen kunnen worden naar de huisarts en de praktijkondersteuner.
Article
Background : Neighbourhood social capital might provide resources that can benefit chronic illness self-management. Improved self-management is a possible mechanism behind the relationship between neighbourhood social capital and health of people with chronic illness. Methods : To test this mechanism, we collected data on self-management and self-...
Article
Background: The new nurse-led COPD-Guidance, Research on Illness Perception (COPD-GRIP) intervention translates the evidence concerning illness perceptions and Health Related Quality of Life (HRQoL) into a care plan to guide COPD patients and to improve HRQoL. The aim: was to assess whether the COPD-GRIP intervention in primary care is more effect...
Article
Health literacy skills are important for health and self-management for people with chronic illness. Neighborhood social capital can provide resources, such as access to information and informal social control over unhealthy behavior. The benefit of these resources, and the access people have to these resources, might depend on levels of health lit...
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Zelfmanagement is een belangrijke pijler van persoonsgerichte zorg. Zorgverleners kunnen patiënten en hun netwerk op drie manieren ondersteunen in hun zelfmanagement: 1) door in hun werk zoveel mogelijk aan te sluiten bij de zorgvraag van een patiënt, 2) door patiënten te helpen persoonlijke doelen te formuleren en hen te begeleiden om deze te beha...
Article
To examine the use of individual care plans (ICPs) within primary chronic illness care in the Netherlands, and to explore the relationships between ICP use, patient characteristics, and patient-perceived quality of care. Cross-sectional study using survey data from a panel of chronically ill patients and medical registration data provided by their...
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Objective: To assess illness perceptions, self-care behaviours and their relationship in recently diagnosed type 2 diabetes mellitus (T2DM) patients with and without diabetes-related complications. Design: Cross-sectional survey among 192 recently diagnosed T2DM patients of whom 23% reported the presence of diabetes-related complications. Illnes...
Article
This is the protocol for a review and there is no abstract. The objectives are as follows: To assess the effects of psychological interventions for diabetes-related distress (DRD) in adults with type 2 diabetes mellitus (T2DM). Secondary objectives are to evaluate separately the effects of emotion-focused and cognition-focused psychological inter...
Article
Objective To explore how patient activation, i.e. patients’ perceived knowledge, skills and self-confidence to manage their health and healthcare, develops within chronically ill individuals over time, and to estimate the impact of self-rated health on this development. Methods Linear regression analyses and structural equation modeling were condu...
Article
Background: Self-management is widely accepted as an essential component of chronic care. Nevertheless, little is known about patients' perceptions of self-management. Purpose: This study aims to explore which self-management tasks and support needs people with chronic illness perceive for themselves, and to establish whether these tasks and sup...
Article
Background Despite high expectations and numerous initiatives in the area of eHealth, implementation and use of eHealth applications on a national level is no common practice yet. There is no full understanding of patients’ attitude on eHealth yet. Aim of this study is to gain insight into the level of knowledge and experiences with eHealth of peop...
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Background: Previous research has shown that in Chronic Obstructive Pulmonary Disease (COPD) patients, it is important to consider not only physical functioning and complaints but also psychological factors, such as illness perceptions, to explain differences in Health-Related Quality of Life (HRQoL). The objective of this study is to analyse the...
Article
Chronic patients are increasingly expected to participate actively in medical consultations. This study examined (i) patients' perceived efficacy and barriers to participation in consultations, (ii) patients' interest in communication support and (iii) correlates of perceived efficacy and barriers, with an emphasis on differences across providers'...
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The present article presents the protocol for a randomised controlled trial to test the effectiveness of a group-based self-management support programme for recently diagnosed type 2 diabetes mellitus (T2DM) patients (one to three years post-diagnosis) and their partners. The course aims to support T2DM patients and their partners in successfully i...
Article
In this chapter we will begin with an introduction to the family context in illness and then provide a selective overview of recent studies that have examined care illness perceptions, their congruence with patients' perceptions and their effects on outcome. Although the primary focus will be on carers within the family setting, one section will al...
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Despite diabetes patients' efforts to control their disease, many of them are confronted with an acute coronary event. This may evoke depressive feelings and self-management may be complicated. According to the American Diabetes Association, the transition from hospital to home after an acute coronary event (ACE) is a high-risk time for diabetes pa...
Article
To estimate the societal costs of asthma, COPD and respiratory allergy for the year 2007 and future healthcare costs for the period 2007-2032. Descriptive study. Representative registries were used to estimate the healthcare costs of asthma, COPD and respiratory allergy for the year 2007. A simulation model for asthma and COPD and a demographic pro...
Article
To determine whether chronically ill patients' needs for self-management support depend on their course of illness. Cross-sectional and longitudinal linear regression analyses were conducted using data from 1300 patients with chronic disease(s) who participated in a nationwide Dutch panel-study. Self-management support needs were assessed by the Pa...
Article
To examine the variability of illness and treatment perceptions – that have been found to be associated with chronic kidney disease (CKD) patients' outcomes (e.g., quality of life) – across the CKD trajectory, by investigating whether there are differences in perceptions in patients: (1) on varying treatments (pre-dialysis, haemodialysis, peritonea...
Article
Een chronische ziekte kan nadelige gevolgen hebben voor de mogelijkheden om een persoonsverzekering, zoals een levensverzekering, af te sluiten. Wij onderzochten in welke mate mensen met een chronische ziekte problemen ondervinden bij het afsluiten van persoonsverzekeringen. Hoe vaak komen problemen bij het afsluiten van een verzekering voor en hoe...
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Background The American short form Patient Activation Measure (PAM) is a 13-item instrument which assesses patient (or consumer) self-reported knowledge, skills and confidence for self-management of one’s health or chronic condition. In this study the PAM was translated into a Dutch version; psychometric properties of the Dutch version were establi...
Data
Dutch version of the PAM-13 (PAM-13-Dutch).
Article
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This article describes the development of an intervention programme for patients with end-stage renal disease (ESRD) and their partners. The programme is based on theories of self-regulation, social learning, and self-determination aimed at maintaining and increasing patients' activities, including paid work, and sense of autonomy. The intervention...
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Compared to healthy people, patients with chronic kidney disease (CKD) participate less in paid jobs and social activities. The aim of the study was to examine a) the perceived autonomy, self-esteem and labor participation of patients in the pre-dialysis phase, b) pre-dialysis patients' illness perceptions and treatment perceptions, and c) the asso...
Article
Een huisarts ziet jaarlijks gemiddeld 8 nieuwe en 25 bekende patiënten met een maligne tumor. Door verbeterde (vroeg)diagnostiek en behandeling overleven steeds meer mensen kanker. Dat betekent echter niet dat ze geen zorg meer nodig hebben: de lichamelijke en psychosociale gevolgen van de ziekte en de behandeling kunnen groot zijn en lang voortdur...
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Compared to healthy people, end-stage renal disease (ESRD) patients participate less in paid jobs and social activities. This study explored the perceived autonomy, state self-esteem and labour participation in ESRD patients on dialysis, and the role illness and treatment perceptions play in these concepts. Patients completed questionnaires at home...
Article
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We aimed to investigate associations between work disability and illness perceptions, over and above medical assessment and self-reported health. A representative sample of people aged 15-64 years with various chronic physical diseases was derived from the Panel of Patients with Chronic Diseases in the Netherlands. In this group, 189 patients were...
Article
The present study explored illness perceptions of end stage renal disease (ESRD) patients on both haemodialysis (HD) and peritoneal dialysis (PD) treatment, and their associations with quality of life. Leventhal's self-regulation model (SRM) was used as a theoretical framework. Illness perceptions and quality of life were assessed with the IPQ-R an...
Article
A chronic physical disease not only has direct consequences for the chronically ill person but can also distort the life of the healthy partner. This study of a representative sample of chronically ill persons and their partners in the Netherlands presents quantitative information on the proportion of partners who experience consequences in 4 disti...
Article
In 2007 had 37% van de mensen met een chronische ziekte of lichamelijke beperking betaald werk voor minimaal 12 uur per week. Dat is een lichte stijging ten opzichte van 2005 (34%) en 2006 (35%). De jongeren werken zelfs evenveel als hun leeftijdgenoten zonder beperking. Betaald werk is voor veel mensen, ook voor chronisch zieken of gehandicapten,...
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This one-year follow-up study (n = 130 at baseline, n =2745 at follow-up, aged 45-74 years) examined the relationship of patients' perceptions of coronary heart disease (CHD) and illness-related factors with global health status and global quality of life (QOL) ratings. The independent variables were CHD history (myocardial infarction, revascularis...
Article
Negentig procent van de mensen met de ziekte van Addison, de ziekte van Cushing of het Adrenogenotaalsyndroom (AGS) is altijd moe. Dit is ruim tweemaal zoveel als in de algemene bevolking. Hoewel hun aandoening in medisch opzicht ‘onder controle’ is, is de kwaliteit van hun leven vaak verre van optimaal door gezondheidsklachten en de daaruit voortv...
Article
This study examined illness perceptions (IP) and their correlates in coronary heart disease (CHD). The sample of the questionnaire study (n = 3130 at baseline and n = 2745 at 1-year follow-up, aged 45-74 years) was drawn from the drug reimbursement register, which covers persons with various drug-treated conditions. Independent variables were CHD s...
Article
The aim of this study was to achieve a better understanding of the relationship between chronic medical illness and mental distress. Therefore, the association between chronic medical illness and mental distress was analysed, taking into account the modifying effects of generic disease characteristics (concerning course, control and possible stress...
Article
Ruim 40% van de chronisch zieken geeft aan dat zij maatschappelijk niet zo kunnen functioneren als zij zouden willen. Problemen op het gebied van werk worden als het meest ernstig ervaren. Maar één op de drie chronisch zieken in de leeftijd van 15-65 jaar heeft een betaalde baan, terwijl dat in de algemene bevolking twee op drie is. Dat blijkt uit...
Article
23% van de mensen met COPD (chronische bronchitis en longemfyseem) en één op de tien astmapatiënten heeft contact met een longverpleegkundige. Vijf jaar geleden werd deze zorgprofessional nog nauwelijks bezocht. Tot die conclusie komt het NIVEL in het tweede jaarrapport van de Monitor Zorg en Leefsituatie van mensen met astma en mensen met COPD. De...