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Introduction
Skills and Expertise
Publications
Publications (14)
Background:
Obtaining ethically valid consent to participate in delivery room (DR) studies from parents facing an imminent premature birth can be challenging. This study aims to provide insight into parental experiences with and perceptions of consent for DR studies.
Methods:
Semistructured interviews were conducted with parents of very and extr...
Medical professionals with a special interest in and focus on education are essential to provide good quality education. Despite high numbers of students expressing an interest in teaching, concerns are rising regarding the supply of medical teachers, with few junior educators on the career ladder. To date, only some medical schools offer in-depth...
Background
Recording of neonatal resuscitation, including video and respiratory parameters, was implemented for research and quality purposes at the neonatal intensive care unit (NICU) of the Leiden University Medical Center, and parents were offered to review the recording of their infant together with a neonatal care provider. We aimed to provide...
Video and physiological parameter recording of neonatal stabilization was implemented at the Neonatal Intensive Care Unit (NICU) of the Leiden University Medical Center. In order to improve documentation and the quality of care provided during neonatal transition, we implemented weekly plenary audits reviewing recordings of neonatal stabilization i...
Objective
To gain insight into neonatal care providers’ perceptions of deferred consent for delivery room (DR) studies in actual scenarios.
Methods
We conducted semistructured interviews with 46 neonatal intensive care unit (NICU) staff members of the Leiden University Medical Center (the Netherlands) and the Hospital of the University of Pennsylv...
Improving the quality of care delivered to neonates who require support at birth saves lives and improves long-term outcomes. However, conducting studies in the delivery room can be ethically difficult. To manage the challenge of obtaining prospective consent for delivery room studies, guidelines on deferring the consent process have been establish...
Objective
To assess benefits of recording and reviewing neonatal resuscitation as experienced by neonatal care providers.
Design
A qualitative study using semistructured interviews questioning neonatal care providers about their experiences with recording and reviewing neonatal resuscitation. Data were analysed using the qualitative data analysis...
The relatively new term “Professional Identity Formation” (PIF) complements behavior-based and attitude-based perspectives on professionalism. Unprofessional behavior and its remediation should also be addressed from this perspective. However, a framework is needed to guide discussion and remediation of unprofessional behavior, which can encompass...
Neonatal resuscitation is provided to approximately 3% of neonates. Adequate ventilation is often the key to successful resuscitation, but this can be difficult to provide. There is increasing evidence that inappropriate respiratory support can have severe consequences. Several neonatal intensive care units have recorded and reviewed neonatal resus...
Background: In pediatrics, the “best interest” standard has become the prevailing standard in decision making even though it proves difficult to apply in practice. Differences in values can lead to different views by families and physicians of what is in the interest of a child. Our aim was to gain insight into the views of parents, children, and p...
Pediatric oncology has a strong research culture. Most pediatric oncologists are investigators, involved in clinical care as well as research. As a result, a remarkable proportion of children with cancer enrolls in a trial during treatment. This paper discusses the ethical consequences of the unprecedented integration of research and care in pediat...
In good hands. Nursing practice in a moral perspective. There is much debate about the moral aspects of nursing and the possibilities for moral professionalization. In this study we contribute to the debate by describing the possibilities nurses see for themselves to handle moral problems in patient care. Regarding ethical issues, nurses consider a...
In de kindergeneeskunde is ‘informed consent’ een belangrijk begrip geworden. Informed consent gaat uit van twee visies op ziekte en behandeling: een professionele visie en een persoonlijke visie. Een arts stelt een indicatie en doet een behandelingsvoorstel (de professionele visie), maar het is altijd de patiënt zelf (of diens vertegenwoordiger) d...
