Mette Terp Hoybye

Mette Terp Hoybye
Aarhus University | AU · Department of Clinical Medicine

BA, MSc, PhD

About

65
Publications
6,493
Reads
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1,194
Citations
Introduction
I lead a the interdisciplinary Borderlands of Living Research Lab, studying uncertainties of prognostics of unresponsive patients with serious brain injury between scientific and clinical reasoning. I currently work at the Interacting Minds Center, Department of Clinical Medicine, Aarhus University, and the Elective Surgery Centre, Regional Hospital Silkeborg, Denmark. I keenly develop my methods and analytical approaches though embodied practices that can drive creative knowledge making
Additional affiliations
March 2016 - May 2016
University of Leeds
Position
  • Visiting scholar
June 2013 - present
Regional Hospital Silkeborg
Position
  • Researcher
January 2011 - present
University of Southern Denmark
Position
  • PostDoc Position

Publications

Publications (65)
Article
Full-text available
Introduction: Given the growing attention to the importance of design in shaping healing hospital environments this study extends the understanding of healing environments, beyond causal links between environmental exposure and health outcome by elucidating how environments and practices interrelate. Material and methods: The study was conducted...
Article
Based on extensive ethnographic material from in-depth interviews with Danish cancer patients after treatment, this study analyzes their stories to explore how interactions with the physician configures and situates a need for rehabilitation. We identify three themes in the illness stories: (1) attentiveness and care; (2) fragmentation and objectif...
Article
Visual approaches to health information reduce complexity and may bridge challenges in health literacy. But the mechanisms and meanings of using animated video in communication with patients undergoing surgery are not well described. By comparing two versions of a two-dimensional animated video on spinal anesthesia, this study tested the patient-av...
Article
Full-text available
Uncertainty is a basic condition of medicine - in research, in the clinic and in the intersection between the two domains. Prognostics is in its very nature an attempt to address and manage the uncertainty of the future. New technologies are continuously developed in order to make prognostics more precise and hence make the future more predictable....
Article
Full-text available
The internet provides new ways of forming social relationships among people with breast cancer and is increasingly used for this purpose. This qualitative study, using ethnographic case-study method, aimed to explore how support groups on the internet can break the social isolation that follows cancer and chronic pain, by analysing the storytelling...
Chapter
This paper presents the results of a Danish study on the scaling of the design approach of design pattern languages into the context of citizen-oriented health animation. We propose that the use of design patterns, and the development of an emerging pattern library of health animation patterns, can support the design of more informative and useful...
Article
Purpose: To evaluate patients’ satisfaction with being examined and diagnosed in an orthopaedic outpatient shoulder clinic, determine whether a difference exists between levels of satisfaction among patients examined by advanced practice physiotherapists (APPs) and orthopaedic surgeons (OSs), and explore patients’ experiences with being examined by...
Article
Much public health research has devoted attention to the question of how interventions aimed at reducing health inequalities can access so-called "hard-to-reach" populations. This work has generally reflected an instrumentalist approach, which implies the preexistence of particular target groups characterized by specific public health problems. The...
Article
Full-text available
Background and aims: PainData is an electronic internet-based clinical pain registry established to improve the understanding and treatment of high-impact chronic pain. The primary aim of this paper is to describe socio-demographics, pain characteristics, quality of life, and treatment values at baseline and follow-up in individuals referred to pu...
Article
Objectives: Sleep disturbances are highly prevalent in patients with chronic pain. However, the majority of studies to date examining sleep disturbances in patients with chronic pain have been population-based cross-sectional studies. The aims of this study were to 1) examine the frequency of sleep disturbances in patients referred to two interdis...
Article
Full-text available
Background Low back pain is a leading cause of disability and sick days worldwide. This type of pain has a fluctuating and recurrent nature, and affects all aspects of a person's life, with profound psychosocial consequences. Objectives This study aims to explore the everyday life of individuals with low back pain over time and across various cont...
Article
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The article investigates the paradoxical success of a Danish telehealth project introducing the “My Pathway” platform to reduce the length of patient stays while maintaining patient satisfaction. These goals were achieved in the project, which was considered successful despite the lack of actual platform usage. Based on a qualitative, longitudinal...
Article
A recent qualitative study published in Neuroethics by Schembs and colleagues explores how functional neurodiagnostics of consciousness inform surrogate decision making in cases of disorders of consciousness. In this commentary, we argue that the chosen methodology significantly limits the scope of the potential conclusions and suggest an embedded...
Preprint
BACKGROUND There is a growing focus on the potential uses, benefits and limitations of social media in the context of healthcare communication. In this study we have sought to evaluate an initiative, pioneered at a hospital in Denmark, to utilize Facebook to support and enhance patient-provider communication about diabetes. OBJECTIVE To evaluate t...
Article
Full-text available
Background: There is a growing focus on the potential uses, benefits, and limitations of social media in the context of health care communication. In this study, we have sought to evaluate an initiative pioneered at a hospital in Denmark that uses Facebook to support and enhance patient-provider communication about diabetes. Objective: This pape...
Article
Full-text available
Background: In Denmark, exercise therapy in combination with work modification is the first-choice treatment for persons with shoulder complaints and high occupational shoulder exposures. To obtain this treatment they must visit several healthcare providers, which makes usual care fragmented and uncoordinated. Therefore, we developed a new interve...
Article
Full-text available
Objectives The diagnosis and treatment of acute leukaemia (AL) affect physical, psychosocial and existential functioning. Long-lasting treatment periods with impaired immune system, hygienic and social restrictions challenge patient well-being and rehabilitation as compared with other individuals with cancer. This study elucidates how AL patients,...
Article
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Background: Spouses have a key position in the treatment of patients with acute leukemia (AL) who are increasingly managed in an outpatient setting. Patients live at home but appear at the hospital every second day for follow-up visits. Patients must adhere to specific precautions due to an impaired immune system, which challenges and influence th...
Article
Full-text available
Future development of electronic health (eHealth) programs (automated Web-based health interventions) will be furthered if program design can be based on the knowledge of eHealth’s working mechanisms. A promising and pragmatic method for exploring potential working mechanisms is qualitative interview studies, in which eHealth working mechanisms can...
Article
Full-text available
Background: It is seldom questioned, if information delivered (to a patient) actually produces knowledge. There is a lack of understanding of how patients in general, surgical patients in particular, perceive, process, and translate clinical information in their everyday lives. The objective of this study was to elucidate how patients undergoing s...
Article
Full-text available
Introduction Intervening effectively to prevent students’ harmful use of alcohol remains a challenge. Harmful alcohol use has been noted as the most dominant public health problem facing universities today. This study sought to investigate the diversity in staff and student perceptions of the contribution alcohol makes to student life in a Danish u...
Data
Survey questions for students and staff. Copy of the survey questions for students and staff in the study. (DOCX)
Article
Aims: Little is known about long-term mental health in young adults who participate in ongoing grief counseling programs after early parental death in childhood, adolescence or young adulthood. The purpose of this study was to examine mental health in young adults according to early parental death and participation in grief counseling. Methods:...
Preprint
UNSTRUCTURED Future development of electronic health (eHealth) programs (automated Web-based health interventions) will be furthered if program design can be based on the knowledge of eHealth’s working mechanisms. A promising and pragmatic method for exploring potential working mechanisms is qualitative interview studies, in which eHealth working m...
Article
Full-text available
Background: Internet use within health care contexts offers the possibility to provide both health information and peer support. Internet Support Groups (ISGs) for patients may offer advantages, which are not found in face-to-face support. In patients undergoing lumbar spine fusion (LSF), ISGs could have a particular potential, as peer support on...
Preprint
BACKGROUND Internet use within health care contexts offers the possibility to provide both health information and peer support. Internet Support Groups (ISGs) for patients may offer advantages, which are not found in face-to-face support. In patients undergoing lumbar spine fusion (LSF), ISGs could have a particular potential, as peer support on th...
Article
Objective: To review what is known about cancer patients' decisions to enter a phase I trial and how they and their relatives perceive the information they receive when they are invited to participate. Methods: This systematic review is based on the principles of "preferred reporting items for systematic reviews and meta-analyses" (PRISMA). A sy...
Article
Full-text available
Background. Researchers and clinicians within the field of trauma are soon to be deciding between two different diagnostic descriptions of posttraumatic stress disorder (PTSD) in the DSM-5 and the proposed ICD-11. Several studies support different competing models of the PTSD structure according to both diagnostic systems; however, findings show th...
Article
Introduction and hypothesis: The aim of the study was to evaluate the predictors and reasons for help-seeking behavior among women with urinary incontinence (UI) in Germany and Denmark. Methods: This international postal survey was conducted in 2014. In each country, 4,000 women of at least 18 years of age were randomly selected. The questionnai...
Article
Aims Chronic pain is a significant clinical problem with few effective therapies. Objectives of this clinical registry are (1) to assist clinical decision-making, and (2) facilitate quality assurance and research projects to improve understanding and optimize treatment of patients with chronic pain. Methods PainData is an electronic software syste...
Poster
Full-text available
Clinicians and researchers are becoming increasingly aware of the difficult decision that they are likely to be making within the next years; deciding between the use of two rather different descriptions of the posttraumatic stress disorder (PTSD) diagnosis. The Diagnostic and Statistical Manual of Mental Disorders 5th edition (DSM-5), which descri...
Article
This paper examines the organisational dynamics that arise in health promotion aimed at reducing health inequalities. The paper draws on ethnographic fieldwork among public health officers in Danish municipalities and qualitative interviews from an evaluation of health promotion programmes targeting homeless and other marginalised citizens. Analyti...
Article
Introduction: Urinary incontinence (UI) is a prevalent condition that interferes with women's health-related quality of life. Prevalence rates from earlier studies are wide-ranging, due to heterogeneity in methodology, definition of UI and the populations included. We aimed to determine the prevalence of UI and associated risk factors in Germany a...
Article
Full-text available
Purpose: This paper reports expert opinion on e-health intervention characteristics that enable effective communication of characteristics across the diverse field of e-health interventions. The paper presents a visualization tool to support communication of the defining characteristics. Methods: An initial list of e-health intervention characte...
Article
85 Background: While phase I trials are essential for the development of new anticancer drugs, there is a limited chance of benefitting for cancer patients participating in such trials. The information dialogue is therefore of substantial importance for providing a foundation to make a decision, and the support from relatives of potential value for...
Article
Background: International guidelines recommend health care professionals to use supportive tools like questionnaires when assessing cancer patients' needs. Little is known about GPs' perspectives and experience in this regard. Objective: To examine how GPs experience to involve a short questionnaire, completed by patients' prior to a consultatio...
Article
Bringing virtual environments into cancer support may offer a particular potential to engage patients and increase adherence to treatment. Developing and pilot-testing an online real-time multi-user three-dimensional platform, this study tested the use of an early prototype of the platform among adolescent and young adult cancer patients. Data were...
Article
Full-text available
Introduction: Recent reports indicate that total hip arthroplasty (THA) can be further accelerated and might be managed as day-case. This could provide benefits to health care expenditure, lower patient risks and change patient satisfaction. We evaluated the feasibility, efficacy, safety and patient satisfaction of same-day (<12 hours) THA operati...
Article
Full-text available
Purpose: In recent years, patients with acute leukemia (AL) have, to a greater extent, been managed in an outpatient setting where they live at home but appear every other day for follow-up visits at hospital. This qualitative article elucidates how patients with AL experience the different conditions of the inpatient and outpatient settings and h...
Article
Background: Insight into how early parental death impact psychological well-being in children and young adults is important to developing suitable supportive care. The purpose of this study was to investigate the association between early parental death before the child reaches age 30 years and subsequent use of antidepressants. Methods: Our nat...
Article
Background Systematic assessments of cancer patients’ rehabilitation needs are recommended, and questionnaires are considered to be useful tools when making such assessments. Objective The aim of this study was to explore patients’ experience of completing a questionnaire about their problems and distress at home prior to a needs assessment in gene...
Article
Full-text available
Today, hospitals offer surgical treatment within a short hospital admission. This brief interaction may challenge the well-being of old patients. The aim of this study was to explore how the well-being of old hospitalized patients was affected by the interaction with staff during a fast-track surgical treatment and hospital admission for colon canc...
Article
Guidelines are increasingly used in an effort to standardize and systematize health practices at the local level and to promote evidence-based practice. The implementation of guidelines frequently faces problems, however, and standardization processes may in general have other outcomes than the ones envisioned by the makers of standards. In 2012, t...
Article
Engaging issues of affectivity and embodiment in ethnographic fieldwork in mediated environments on the Internet, I will examine how ethnographic presence and affectivity is crucial to the production of ethnographic knowledge of the digitally mediated experience. Exploring social relations and negotiations in an extensive ethnographic fieldwork in...
Article
Background. In 2002, the Danish Cancer Society opened a rehabilitation centre in which cancer patients were offered a free, six-day, multidimensional residential course. Our previous studies of the effects of this course at one and six months of follow-up showed no positive effect on distress. We investigated long-term effects at 12 months of follo...
Article
Full-text available
Objective: To explore how patients experience being in the hospital environment and the meaning they assign to the environment during serious illness. Method: A qualitative study design was applied, and the data analysis was inspired by Ricoeur's phenomenological-hermeneutic theory of interpretation. Data were collected through multiple qualitativ...
Article
Full-text available
This paper explores the lived experiences of older surgical patients' (aged 74 years and older) experienced challenges during a brief admission to hospital. Age, gender, polypharmacy, and the severity of illness are also factors known to affect the hospitalization process. For an ethnographic study using participant observation and interviews, surg...
Article
Background: Early parental death is one of the most stressful childhood life events and may influence subsequent psychological health. We investigated the association between early parental loss and risk of hospitalization for an affective disorder in adulthood. Methods: Our nationwide register-based cohort study comprises 1,225,660 people born...
Article
Rehabilitation programmes are intended to help cancer patients achieve optimal functioning and live independently. We evaluated whether a psychosocial rehabilitation course was effective in relieving cancer patients' distress and improving their well-being. Patients with breast, prostate or colorectal cancer diagnosed within 2 years who had finishe...
Article
Full-text available
Little research has been conducted on the effect of self-reported rating of symptom severity on quality of life (QoL) among cancer survivors. The aim of the study was to examine the prevalence of symptoms and whether information about self-reported symptom severity adds value to QoL measurements. A questionnaire including the EORTC QLQ-C30 and an e...
Article
Full-text available
The aim of cancer rehabilitation is to enable patients to attain and maintain optimal physical, psychological and social functioning. We evaluated the effect on health behavior, BMI and self-rated health of a residential psychosocial rehabilitation course for cancer patients. Patients with a primary cancer of the breast, prostate, colon or rectum w...
Article
Full-text available
We conducted a randomised study to investigate whether providing a self-guided Internet support group to cancer patients affected mood disturbance and adjustment to cancer. Baseline and 1-, 6- and 12-month assessments were conducted from 2004 to 2006 at a national rehabilitation centre in Denmark. A total of 58 rehabilitation course weeks including...
Article
Full-text available
In this study, we identified the social and psychological characteristics of Danish cancer patients that determine use of the internet for support. We invited 230 cancer patients taking part in a public rehabilitation program to participate in an internet module comprising training in the retrieval of cancer-related information from the internet an...
Article
We investigated the effects of socioeconomic, demographic and health-related indicators on the incidence of and survival from breast cancer diagnosed in 1994-2003 with follow-up through 2006 in Denmark using information from nationwide population-based registers. The analyses were based on data on 25,855 patients with breast cancer in a cohort of 3...
Article
The internet provides new ways of forming social relationships among people with breast cancer and is increasingly used for this purpose. This qualitative study, using ethnographic case-study method, aimed to explore how support groups on the internet can break the social isolation that follows cancer and chronic pain, by analysing the storytelling...
Article
Full-text available
Worldwide, the number of cancer survivors is increasing, owing to improvements in cancer therapy, resulting in an increased need to address the physical and mental sequelae of cancer. This paper introduces a Danish psychosocial cancer intervention and presents the baseline characteristics of the cancer survivors with respect to cancer site, sociode...

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Projects

Projects (8)
Project
The Borderlands of Living project traces uncertainties of prognostics of unresponsive patients with serious brain injury between scientific and clinical reasoning, as a study of knowledge relationality through an interdisciplinary inquiry taking its outset in anthropology, medical humanities and philosophy. https://interactingminds.au.dk/projects/borderlands-of-living/
Project
Et forskningsprogram med fokus på tværsektorielle forløb for patienter med lænderygsmerter