Martina Roes

• Sociologist, Dr. phil.
• Group Leader at German Center of Neurodegenerative Diseases

Background Dementia-friendly hospitals are increasingly discussed in healthcare, politics, research and society as a way to improve hospital stays for people with dementia. However, the perspective of people with dementia is often underrepresented, and current definitions and concepts are primarily based on the expertise of healthcare professionals...

In dementia care, access to effective psychosocial interventions is often addressed by evidence-based guidelines for care providers. However, it is unclear if current guidelines consider personal characteristics that may impact intervention effectiveness. This study investigates if, and within what framing, dementia care guidelines in Europe addres...

Background To ensure high-quality care for residents living with dementia, recommendations for dementia-specific care do exist internationally as well as in Germany. Nevertheless, it remains unclear how dementia-specific care is currently provided and what can be derived from this for the improvement of dementia-specific care. Therefore, this study...

The concept of social health has recently received increasing attention in dementia research. Various notions of what social health is and how it can be measured are circulating. They may pose challenges for comparing results and interpreting them for the development of interventions. This systematic review aims to classify existing instruments tha...

Hintergrund: Prozessevaluationen (PE) werden als integraler Bestandteil des Entwicklungsprozesses komplexer Gesundheitsinterventionen empfohlen, da sie die Berücksichtigung von Implementierungsaspekten von Beginn an ermöglichen [1]. Die Durchführung von PEs stellt allerdings aufgrund der Komplexität des zu untersuchenden Phänomens eine Herausforder...

Objective This study aimed to identify factors that hinder or facilitate the implementation of an exergaming technology, SilverFit Mile, which offers virtual cycling, for nursing home residents with dementia in and its potential impact on feelings of loneliness. Methods The study followed a descriptive qualitative approach using semi structured in...

Introduction: In Germany, the Federal Ministry of Health has recommended the implementation of innovative nurse-led care models. As currently no nurse-led care models exist for German nursing homes, the study aimed to prioritize care problems and goals for improvement for the development of a dementia-specific, nurse-led care model. Methods: In thi...

Aim To investigate the professional dementia experts' understanding of a dementia‐friendly hospital to identify its characteristics. Design We used a qualitative design embedded in a case study. A total of 16 semi‐structured expert interviews were conducted with 17 professional dementia experts. Using inductive content analysis, the interviews wer...

Background Employees’ decision to speak up or to stay silent can have implications for health care providers, employees and people who need care. As a result, a shift is needed from blindly following guidelines to implementing a sustainable proactive organizational culture in which employees, especially nurses, can evaluate their work environment a...

Background: The policies and mission statements of nursing homes support the implementation of person-centred dementia care. The Dementia Policy Questionnaire assesses the content of person-centred dementia care in policies. To date, it is unknown whether these policies exist exclusively in dementia care units and whether the policies are consisten...

The design of the built environment, from the residential living and care environment to the neighbourhood and urban environment, is important from the perspective of people living with dementia. In this contribution, we share preliminary and informal insights based on our co-research project INCLUDE. Together with co-researchers living with dement...

Background The increasing care complexity of nursing home residents living with dementia requires new care models that strengthen professional collaboration. To contribute to the sustainable implementation of new care models, it is important that they are linked to the care reality. However, little is known about intra- and interprofessional organi...

Open Access on: https://www.taylorfrancis.com/chapters/oa-edit/10.4324/9781003416241-14b/project-2-saskia-kuliga-martina-roes-jim-mann

Objectives This review identifies and examines theoretical approaches (components and objectives) to person-centred dementia care in order to obtain a better understanding of what is meant by the concept of person-centred dementia care. Design Following the approach of Whittemore and Knafl, an integrative literature review was conducted to answer...

Background and Objectives In long-term care, the built environment can help residents maintain activities of daily living and thus positively influence their quality of life. The adequacy of the built environment can be systematically assessed using assessment tools. The German Environmental Audit Tool (G-EAT) was translated and psychometrically te...

Objectives: The current study aimed to develop and preliminarily validate an initial version of an instrument to assess the leisure activity preferences of people receiving adult day services (ADS). Methods: Based on previously conducted concept mapping steps, we identified 12 clusters of preferences for leisure activities. We adopted the structure...

In this article, we explore how pet robots come into being in a Danish nursing home for people with dementia, based on five months of ethnographic fieldwork. We argue that the researcher and the robot become an assembled temporary figure in the nursing home: the woman with the dog. We show how pet robots are characterized by their fluidity and can...

Background This article examines the concept of autonomy in the context of person-centred dementia research and care, which is frequently being used but not clearly defined. Also, there is no clear conceptual relation between autonomy and personhood in this context. Methods Therefore, literature on person-centred dementia research and care was exa...

Background: Specific challenges in the health care sector, such as hierarchical structures, shortages of nursing staff, and high turnover of nursing staff, can be addressed by a change process of organizational culture into shared governance. Data from business organizations show that the use of digital voice channels provides employee voice. This...

Objective:INDUCT (Interdisciplinary Network for Dementia Using Current Technology), and DISTINCT (Dementia Inter-sectorial strategy for training and innovation network for current technology) are two Marie Sklodowska-Curie funded International Training Networks that aimed to develop a multi-disciplinary, inter-sectorial educational research framewo...

Background:Besides aspects of physical and mental health and quality of life aspects the concept of social health is getting increasing attention in dementia research. Current research has led to a new umbrella concept of social health and first studies show relationships between social health markers and cognitive decline and dementia. But so far,...

Currently it is unknown what people receiving adult day services (ADS) understand as leisure and the activities they prefer remain unknown. To address these gaps, we investigated the understanding of leisure of people receiving ADS. We conducted semistructured interviews with 15 people receiving ADS in Germany. Interviews were analyzed using reflex...

This Open Access publication can be downloaded from: https://content-select.com/de/portal/media/download_oa/9783779969822/?client_id=406 Das Phänomen Demenz scheint die etablierten Verfahren der qualitativen Sozialforschung zugleich vor spezifische Herausforderungen zu stellen und spezifische Chancen für qualitativ Forschende mit sich zu bringen....

This book is available as an open access free download here. https://content-select.com/de/portal/media/download_oa/9783779969822/?client_id=406

Background and Objectives: Providing preferred leisure activities appears to be an important approach to support and empower people receiving adult day services (ADS) allowing them to age in place. To provide the conceptualization for a preference instrument, we actively involved people receiving ADS in exploring the content and structure of their...

Background To become a dementia-friendly hospital (DFH) is increasingly being discussed in health care practice, research, politics and society. In our previous integrative review, we identified six characteristics of DFHs. To thoroughly discuss and contextualize these characteristics in relation to hospitals in Germany, we involved professional de...

Background: Due to demographic trends, a growing number of people living with dementia reside in care facilities. To ensure appropriate care, a few recommendations for dementia-specific care were developed in Germany. What remains unclear is how dementia-specific care is currently organized in residential care facilities and what can be derived fro...

Background: Adult day services (ADS) are a preferred care environment for people with dementia living at home. Providing preferred leisure activities in ADS centers appears to be an important approach to support and empower people receiving ADS to age healthy and in place. Currently, no specific instrument exists to assess their preferences for lei...

Background: Involving people with dementia and other stakeholders broadens the perspective and expertise of dementia care researchers. In our DEMfriendlyHospital study different stakeholders were involved in the development of an interview guideline. Aim: To apply an active engagement approach to develop a guideline for conducting interviews with...

Hintergrund und Stand der Forschung: Die Relevanz der baulichen Umgebung für eine demenzspezifische Versorgung ist seit längerem bekannt. In der stationären Langzeitpflege kann die Umgebung dazu beitragen, dass Bewohner:innen trotz Umzug in die Pflegeeinrichtung Alltagskompetenzen beibehalten und ihre Lebensqualität so positiv beeinflusst wird. Die...

Hintergrund und Stand der Forschung: Um eine bedarfsgerechte Versorgung in Altenpflegeeinrichtungen zu erreichen und die Attraktivität des Berufsfeldes Pflege zu erhöhen, werden aktuell neue Skill-Mix-Modelle in der Pflege erprobt. Zur Erweiterung der Kompetenzen und Aufgabenprofile von Pflegefachkräften wurden dazu in Deutschland u.a. auch Ausbild...

Background To provide an overview of the available evidence on the implementation of direct and capacity‐building interventions to promote and maintain the functional mobility of nursing home residents. Methods We conducted a scoping review following the methodological guidance for the conduct of scoping reviews as described by the Joanna Briggs In...

Background: Employees’ decision to speak up or to stay silent can have implications for health care providers, employees and people who need care. As a result, a shift is needed from blindly following guidelines to implementing a sustainable proactive organizational culture in which employees can evaluate their work environment and take advantage o...

Background Caring for people with dementia is complex, and there are various evidence‐based interventions. However, a gap exists between the available interventions and how to implement them. The objectives of our review are to identify implementation strategies, implementation outcomes, and influencing factors for the implementation of evidence‐ba...

Introduction The positive influence of a well-designed built environment in dementia-specific care has been known for several years. Many studies focusing on the built environment have captured the perspectives of people living with dementia. However, it remains unclear to what degree and with which methods these individuals have been actively invo...

Background Systematic reviews summarize and evaluate relevant studies to contribute to evidence-based practice. Internationally, researchers have reached a consensus that the active involvement of the public leads to better research. Despite this agreement, there are many reviews of research concerning healthcare interventions intended to promote t...

Background So far, health services research in dementia has yet led to insufficient transfer of research evidence into healthcare practice or implementation of patient and caregiver perspective into the design of research studies. A strong transdisciplinary network of people with dementia, relatives, researchers, and healthcare service providers is...

Background: In the lives of people with dementia, loneliness is an important issue with psychological and physical consequences. Active assisted living (AAL) technology has been gaining visibility in the care of persons living with dementia, including addressing loneliness. However, to the best of our knowledge, there is a lack of evidence concern...

Social robots are increasingly used in the care of older adults, including people living with dementia. An important prerequisite for effective use is knowledge about which factors facilitate and hinder the acceptance of social robots. The aim of this review at the intersection of health care research and human–robot interaction research is to unde...

Background: When developing a dementia-specific nurse-led care model, it is important to include the perspective of residents with dementia. To ensure a comfortable interview situation for the interviewee and to bridge formulation and understanding difficulties, there are efforts to conduct interviews with residents with dementia together with a re...

BACKGROUND Specific challenges in the health care sector, such as hierarchical structures, shortages of nursing staff and high turnover of nursing staff, can be addressed by a change process of organizational culture into shared governance. Data from business organizations show that the use of digital voice channels provides employee voice. This ap...

Background Care counseling is an important psychosocial intervention for people with care needs and their relatives and can contribute to maintaining and/or improving a patient’s quality of life and reducing the burden of caregivers. This is especially the case for people with dementia and their relatives, in which the methods of care counseling ne...

Background Currently, there is a lack of interaction between research and healthcare practice. As a result, research findings reach healthcare practice only late, and topics relevant to practice are often not known in research. Involving people living with dementia (PlwD), their relatives and healthcare providers in dementia care research can accel...

After publication of this article [1], the authors reported that the author name ‘Hoffmann’ was incorrectly written as ‘Hoffman’. Moreover, In the Results section citations to references [24] and [25] were mixed up. The original article [1] has been corrected.

Introduction Dementia-friendly hospitals (DFH) are mentioned as one of several key initiatives in national dementia strategies. In our previous integrative review, we identified 17 descriptions of DFHs and analysed six characteristics of DFH: continuity, person-centredness, consideration of phenomena within dementia, environment, valuing relatives...

Introduction Community-based care such as adult day services (ADS) are preferred by people with dementia. ADS offers the opportunity to support the health and social needs of their clients and provide respite to family members, contributing to a stable care situation at home. The psychological needs of humans according to the self-determination-the...

Aim: The study aims to present and analyze the daily practices of Advanced Practice Nurses in hospitals and to reconstruct the constitutive spaces of action, especially in the context of clinical leadership. In doing so, a detailed picture of the prevailing social practices will be described. Research Question: How can Clinical Leadership be interp...

BACKGROUND In the lives of people with dementia, loneliness is an important issue with psychological and physical consequences. Active assisted living (AAL) technology has been gaining visibility in the care of persons living with dementia, including addressing loneliness. However, to the best of our knowledge, there is a lack of evidence concernin...

Most persons with dementia live at home and are cared for by family carers and professional carers. Together, they form care arrangements to address the needs of persons with dementia. The aim of this study is to (1) uncover the underlying structures of home-based care arrangements for persons living with dementia, (2) construct types of these care...

Frontotemporal Lobar Degeneration (FTLD) is a form of dementia that is characterized by prominent and gradual changes in behavior and language, whereas memory is relatively preserved (therefore different from Alzheimer dementia). In our FTD project we analyze care services for people with FTLD in Germany and we are working together with persons wit...

Background One way to contribute person-centered care is the use of a preference-based approach. In our project PELI-D the original PELI USA-version for Nursing Homes was (1) translated into German (2) and structured to explore construct validity of the instrument. Objective and Method: The PELI-D instrument (72-items) is used to illustrate how str...

There has been a recent movement towards greater involvement of the patient/person voice in aging research. However, many researchers embark on engaged research without adequate training or knowledge and without the skills or experience to train those they hope to engage. We define engaged research as research topics, designs, methods, analyses and...

Collaborating across disciplines, professions, and countries as well as engaging a variety of stakeholders has been a goal for researchers for a long time. Interestingly, when people living with dementia and their significant others are actively involved and become a co-researcher or a member of a patient advisory board, the perspective of what col...

Nursing home administrators are responsible to operationalize dementia-specific person-centred care into their care practice, e.g. by internal policies. To assess the degree of existence of internal policies on person-centred care for dementia-specific care in German nursing homes, we developed the Dementia Policy Questionnaire (DemPol-Q). After pr...

Background: Currently, there is a lack of sustainable, translational structures in dementia care research that enable a nationally guided participatory interaction between research, care practice, and those affected by dementia. A close cooperation between research and care practice with a simultaneous inclusion of those affected by dementia is es...

With a growing interest in intersectionality, critical qualitative researchers acknowledge the benefit from incorporating an intersectional lens. Incorporated intersectionality can be beneficial since it allows researchers from different disciplines to consider and account for the participant identities as multidimensional, fluid and, interdependen...

Introduction The concept of personhood is particularly important in person-centred dementia care because its overall aim is to maintain the personhood of people living with dementia despite disease progression. In a previous review on autonomy for people with dementia, two different underlying concepts of personhood were identified: a rationalistic...

Background To ensure the sustainable implementation of dementia-specific person-centred care (PCC) in nursing homes, internal policies are crucial. The preliminary German Dementia Policy Questionnaire, which features 19 dichotomous items, assesses the existence of and evaluates these policies. This article reports the results of an exploration of t...

Background Most people with dementia live at home and are supported by informal carers. During the care trajectory, the creation of a stable care situation is a guiding principle of informal carers, who often manage complex care arrangements. A recently developed theory – ‘Stability of home-based care arrangements for people living with dementia' (...

Introduction: Worldwide, our societies are characterised by increasing diversity, which is greatly contributed to by people who have migrated from one country to another. To provide person-centred care, healthcare staff need to consider the personal background, biography and preferences of people with care needs. Little is known about the care pref...

Introduction: Dementia-friendly hospitals (DFH) are mentioned as one of several key initiatives in national dementia strategies. In our previous integrative review, we identified 17 descriptions of DFHs and analysed six characteristics of DFH: continuity, person-centredness, consideration of phenomena within dementia, environment, valuing relatives...

Introduction: Community-based care such as adult day services (ADS) are preferred by people with dementia. ADS offers the opportunity to support the health and social needs of their clients and provide respite to family members, contributing to a stable care situation at home. The psychological needs of humans according to the self-determination-th...

Most persons with dementia live at home and are cared for by family carers and professional carers. Together, they form care arrangements to address the needs of persons with dementia. The aim of this study is to (1) uncover the underlying structures of home-based care arrangements for persons living with dementia, (2) construct types of these care...

Vor dem Hintergrund des demografischen Wandels und der damit einhergehenden steigenden Zahl von Menschen mit einer Demenz [1-4] hat die Allianz für Menschen mit Demenz unter dem Vorsitz der Bundesministerien für Gesundheit (BMG) und für Familie, Senioren, Frauen und Jugend (BMFSFJ) die im Sommer 2020 veröffentlichte Nationale Demenzstrategie NDS [5...

Background and status of (inter)national research: Although the implementation of nurse-led care models that require highly qualified nurses and promote interprofessional care is recommended, there are so far no nurse-led care models in residential long-term care in Germany that meet these requirements. To develop a suitable new care model, it is,...

Background Most persons with dementia live at home and want to stay there as long as possible. In most cases, informal carers such as spouses or children care for them. Together with other family members and professional carers, they form care arrangements to address the complex needs of persons with dementia. One major aim of informal carers is to...

Backgrounds: The implementation of nurse-led care models in which highly qualified nurses lead und coordinate residents’ care autonomously is highly recommended. However, the scope and the way in which autonomy is conceptualized in nurse-led care models is so far unclear. Objectives: This scoping review aimed to identify key characteristics and fa...

Background/Objectives Dementia-friendly initiatives are becoming common in society, politics, and research, including health care. Regarding efforts to improve care for patients with dementia in hospitals, the term dementia-friendly hospital is being used increasingly. However, a theoretical understanding of this term and the underlying concept are...

Introduction Literature reviews represent an important type of study for the various professions in healthcare. The consideration and inclusion of grey literature is gaining importance in all types of reviews. However, searching for grey literature is challenging for different reasons and the search is often insufficiently transparently reported in...

Background: Despite the care and support needs of migrants affected by dementia differing from the population of the country where they live now, most European countries do not provide specific strategies to address migration in their national dementia plans. The concept of intersectionality provides an innovative approach to dementia care perspec...

Objective We aimed to investigate the perception of the implementation success of reporting and learning systems in German hospitals, the perceived relevance of the implementation outcomes and whether and how these implementation outcomes are monitored. An reporting and learning system is a tool used worldwide for patient safety that identifies and...

Considering the preferences for everyday living of older people with various care needs across different care settings is important in nursing care. Currently, there is no systematic overview of the various instruments, and it is unclear what instruments exist, and which preferences they measure. We systematically searched for studies in the electr...

Aim: Evidence on effective communication in antenatal consultations between midwives and pregnant women is lacking. In a study, antenatal consultations implementation outcomes were evaluated. From the data, relevant aspects emerged concerning communication during consultations. This paper presents selected results and proposes a theoretical foundat...

Participatory approaches are increasingly required and used in research. In this review, we examined the impact (benefits and disadvantages) of participatory dementia research on researchers as potential key actors to sustainably implement the participatory approach. Our aim was to provide information on how the participatory process could be impro...

Aims and objective: To identify and summarise core elements, resident-, staff- and process-related outcomes and challenges of nurse-led care models in residential long-term care. Background: Due to demographic trends, the complexity of residential long-term care has increased. To address this complexity, the implementation of nurse-led care mode...

Leib. Grenze. Kritik. Wer mit der Soziologie vertraut ist und diese drei Begriffe zusammen sieht, weiß sofort: Jetzt kann es nur um Gesa Lindemann gehen. Die hier vorgelegte Festschrift zum 66. Geburtstag von Gesa Lindemann trägt daher diesen Titel. Zu ihr beigetragen haben Kolleginnen und Kollegen im umfassenden Sinne des Wortes, Wissenschaftlerin...

Background: The tool “Preferences for Everyday Living Inventory” (PELI) for Nursing Homes (NH) was developed in the USA. In our project PELI-D, the PELI was translated from English into German and piloted in three care settings: Nursing Home (NH), Home Care (HC) and Adult Day Care (AD). Objective: The objective is to provide insights in pref- erenc...

Background: Instruments to identify and assess pref- erences for everyday living are important tools for health professionals. For research purposes, they appear equally es- sential, for example, to develop new care approaches based on the preferences of the older adults. So far, it seemed un- known which instruments already exist to identify and a...

Identifying preference of older adults supports person-centred care. The most sophisticated instrument is the preference for everyday living inventory (PELI). The PELI has been translated into German language and tested in different care settings. For people who experience difficulties communicating their preference the PELI has been combined with...

Background The tool “Preferences for Everyday Living Inventory” (PELI) for Nursing Homes (NH) was developed in the USA. In our project PELI-D, the PELI was translated from English into German and piloted in three care settings: Nursing Home (NH), Home Care (HC) and Adult Day Care (AD). Objective The objective is to provide insights in preferences...

Background Worldwide, our societies are characterized by an increasing diversity, greatly contributed by immigrants. When in need of care older immigrants face various barriers and serious challenges in terms of unmet preferences. To provide person-centered care, health care professionals need to consider the personal background of immigrants to id...

The importance of Public Involvement (PI) is increasingly being recognized in the field of dementia research. In 2012, Alzheimer Europe set up the European Working Group of People with Dementia (EWGPWD) which provides advice and input for all activities of the organization including several large European-funded research projects. The German Center...

Background: To provide Person-Centered Care (PCC) for People with Dementia (PwD), patient's stated preferences must be known. Data about stated care-preferences among PwD are limited. This study aimed to identify key components of PCC for PwD by a systematic review of PCC-interventions, to inform the construction of a decision model for PwD-prefer...

Background Dementia special care units represent a widely implemented care model in nursing homes. Their benefits must be thoroughly evaluated given the risk of exclusion and stigma. The aim of this study is to present an initial programme theory that follows the principles of realist methodology. The theory development was guided by the question o...

Introduction Leisure activities appear to be an important factor in maintaining and improving health in old age. To better understand what people want to do when visiting an adult day service (ADS), it is important to systematically assess their preferences. Currently, there is no instrument for assessing preferences for leisure activities for peop...

Objectives: The objective of the present systematic review was to investigate the effects of organizational capacity building interventions on the environment, nursing staff capacity and mobility of residents in nursing facilities. Design: Systematic review Setting and Participants: Nursing facilities, staff and residents. Methods: We conducted a s...

Background Complex interventions in health care are characterized by multiple interacting components as well as by numerous nonlinear interactions with the social systems within which they are being implemented. The process of developing, evaluating and implementing complex interventions is therefore challenging. Established guidance such as the MR...

Purpose We aimed to identify assistive technologies that are promising for addressing loneliness in people living with dementia in long-term care. Materials and methods A scoping review was conducted. EBSCO, PubMed, Cochrane Library, and ProQuest were searched from 2000 to 2020. The included studies were selected by three independent researchers a...