Marta Badia

Marta Badia
Universidad de Salamanca · Dpt. Personality, Assessment & Psychological TreatmentsInstituto Universitario de Integración en la Comunidad

PhD in Psychology

About

88
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837
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January 2012 - present
Universidad de Salamanca

Publications

Publications (88)
Article
Full-text available
Background The diagnosis of a neurodegenerative disease (ND) produces profound changes in the quality of life of the affected families. Despite the vital importance of these processes, the scientific literature has addressed this topic almost exclusively relating to the main caregiver or using limited approaches. Thus, the main objective of this re...
Experiment Findings
Evento de clausura del proyecto trasfronterizo POCTEP "Neuroqualyfam", 24 de marzo de 2022
Preprint
Background: The diagnosis of a neurodegenerative disease (ND) produces profound changes in the quality of life of the affected families. Despite the vital importance of these processes, the scientific literature has addressed this topic almost exclusively relating to the main caregiver or using limited approaches. Thus, the main objective of this r...
Article
Background: Family quality of life (FQoL) is a recent construct to be applied in neurodegenerative diseases (NDs). In this context, there is interest in advancing in the measurement of the FQOL as a first step to determine the supports that families need to perceive quality of life. The aim of this study was to test the validity of the Family Qual...
Article
Introduction Caregivers of people with dementia face important health challenges due to the natural progression of the disease. Self-care is associated with improvements in quality of life and well-being, however, the available evidence on self-care for caregivers is limited. This study aims to create a theoretical Group Therapeutic Songwriting (GT...
Chapter
The United Nations recognizes the right of students to full participation in education. However, there is little evidence on the participation profile of students with disabilities in school and the contextual factors that facilitate or hinder it. Moreover, the available assessment instruments need further development; only the Participation and E...
Chapter
Introduction: Although participation is an essential aspect of health and well-being that contributes to autonomy and sense of accomplishment, and improves interpersonal relationships, school participation of children and youth with disabilities is often limited by the presence of barriers in their environment. The aim of this Research Project is t...
Article
Full-text available
Introduction Neurodegenerative diseases (NDs) are one of the major causes of dependency among older people. Since family members assume most of the care, the impact of NDs goes beyond the patient and affects the functioning of the entire family. Nonetheless, the concept of Family Quality of Life (FQOL) is still insufficiently developed in this fiel...
Article
Full-text available
Background Neurodegenerative diseases (NDs) are one of the main causes of disability and dependence that have a great impact both on the quality of life of people with disabilities and their families. A majority of people with NDs receive care and support from the family, but there is no tool in Spain with which to measure whole-family QOL. The aim...
Article
Full-text available
Promoting quality of life (QOL) has become a goal of support services for people with disabilities and a key intervention outcome. The aim of this study was to examine the psychometric properties of the adapted Spanish version of the Cerebral Palsy Quality of Life Questionnaire (CP QOL) for children and adolescents, in its self-report and primary c...
Article
Previous studies have shown the benefits of group therapeutic songwriting (GTSW) in the quality of life and well-being of caregivers of people with dementia. The objective of this study was to explore the experience of caregivers in a collaborative process of songwriting. Twenty-one caregivers divided into three groups received 12 60-min GTSW sessi...
Preprint
Full-text available
Background: Neurodegenerative diseases (NDs) are one of the main causes of disability and dependence that have a great impact both on the quality of life of people with disabilities and their families. A majority of people with NDs receive career and support from the family, but there is no tool in Spain with which to measure whole-family QOL. The...
Book
Full-text available
El cuestionario Cerebral Palsy Quality of Life (CP QOL) es una herramienta para la medición de la calidad de vida de niños y adolescentes con parálisis cerebral desarrollado por investigadoras de la Universidad de Melbourne (Waters et al., 2005; Waters et al., 2007; Davis et al., 2013). Este manual presenta la versión española del cuestionario tras...
Article
Full-text available
Purpose To explore how children with Cerebral Palsy (CP) experience participation in leisure activities and to describe the environmental barriers and facilitators. Methods Sixteen children with CP ages 7-17 years participated in three focus groups. Data were analyzed thematically by three researchers on the basis of the International Classificatio...
Article
Full-text available
Purpose: To explore how children with cerebral palsy (CP) experience participation in leisure activities and to describe the environmental barriers and facilitators. Methods: Sixteen children with cerebral palsy aged 7 to 17 years participated in 3 focus groups. Data were analyzed thematically by 3 researchers on the basis of the International C...
Article
Introduction: Living with a person with dementia (PWD) causes physical and psychological problems in family caregivers (FCGs), as well as a reduction in their Quality of Life (QOL). The purpose of this study was to examine the possible effectiveness of the therapeutic songwriting method for improving the QOL and well-being of FCGs of PWD. Methods:...
Article
Full-text available
El objetivo de esta investigación fue evaluar la calidad de vida, la participación en actividades extraescolares y las características resilientes del alumnado de primaria, e identificar factores contextuales que limitan o facilitan su desarrollo saludable. Participaron 156 alumnos, de entre 10 y 13 años, de las comunidades autónomas de Castilla y...
Article
Full-text available
Dementia is a progressive health condition, affecting an increasing number of people, characterised by the cognitive impairment and the presence of neuropsychiatric symptoms that limit daily life and diminish the quality of life of the person. The goal of this systematic review is to analyse those investigations related to the impact of visual arts...
Article
The aim of this study was to examine the level of agreement between reports of health-related quality of life (HR-QoL) obtained from children and adolescents with cerebral palsy (CP) and their parents. We also examined the relationships between child and parent perception of the different domains of HR-QoL and participation dimensions. Sixty-nine c...
Poster
Full-text available
Poster presented in the 29th Annual Meeting of the European Academy of Childhood Disability (EACD), 17-20 May 2017, Amsterdan, The Netherlands
Poster
Full-text available
Currently, people with Developmental Disabilities (DD) who live in the community can perform roles and interactions in different areas of life, but they have less opportunities for full and effective participation. Promoting participation has become a goal of the support services of people with DD and a key outcome of intervention. The purpose of t...
Article
Full-text available
Currently, the intervention models for individuals with Developmental Disabilities (DD) focus on Quality of Life outcomes (QOL). The goal of this study was to analyze the QOL of adults and to determine the influence of personal and dis-ability factors in QOL. A sample of 119 adults with DD (91 male and 28 female; age: M = 45.68; SD = 12.57) partici...
Poster
Background: Leisure participation is vital to the growth and development of children and adolescents, as these activities promote development of skill competencies, peer interactions, and greater independence. However, children and adolescents with cerebral palsy (CP) are at risk for decreased participation in leisure activities, a key component fo...
Article
Support needs assessment instruments and recent research related to this construct have been more focused on adults with intellectual disability than on children. However, the design and implementation of Individualized Support Plans (ISP) must start at an early age. Currently, a project for the translation, adaptation and validation of the support...
Article
Full-text available
Abstract Physical, social, and attitudinal environment may affect the quality of life (QoL) of children and adolescents with cerebral palsy (CP). Participants in this study included parents of 206 children and adolescents with CP (55.8% males) aged 8–18 years (M = 11.96, SD = 3). Distribution according to the Gross Motor Function Classification Sys...
Conference Paper
Full-text available
Introducción: Las personas con discapacidad intelectual presentan los mismos tipos de trastornos conductuales y de salud que la población general, sin embargo, la prevalencia es significativamente mayor, especialmente cuando la discapacidad es severa o profunda. El objetivo de este estudio es analizar en qué media la presencia de estos trastornos a...
Chapter
Full-text available
The promotion of quality of life (QOL) and participation in the community for people with cerebral palsy (CP) is important to their overall well-being. This chapter will discuss the interaction between the individual and the environment, the importance of assessment of QOL interventions for the personal outcomes of individuals with CP, and support...
Book
Full-text available
El concepto de autodeterminación y sus implicaciones en la infancia, la adolescencia y la vida adulta están apareciendo cada vez con mayor fuerza en la investigación y en los servicios de atención a personas con discapacidad debido a la relevancia que tiene para todos los individuos la expresión y el ejercicio del derecho a la autodeterminación. De...
Article
Full-text available
To promote well-being and integral education of all the students has turned into a prior aim in the educational policies of many countries. Several investigations try to know the variables that can act as barriers or facilitators in this process. The aims of the present investigation were to evaluate the quality of pupils’ life in primary education...
Article
Full-text available
Background Children and adolescents with cerebral palsy suffer from higher levels of pain than their peers without disability. The aim of this study was to explore the impact of pain on health-related quality of life and motor function in individuals with cerebral palsy as reported by health professionals. Methods Cross-sectional study carried out...
Conference Paper
Full-text available
Aims: The purpose of this study was to examine the differences of QOL perceptions between reports of Spanish children with CP and their parents. Specifically, this study has three objectives: (1) to examine the level of agreement between reports of QOL; (2) to analyze the rates of agreement and disagreement; (3) and to explore the relationships bet...
Article
Full-text available
El constructo de autodeterminación y sus implicaciones prácticas se están convirtiendo en un componente educativo clave, especialmente para los alumnos con necesidades específicas de apoyo. La investigación avala que mostrar un comportamiento autodeterminado tiene un impacto fundamental en la obtención de resultados importantes, como son el logro d...
Article
Full-text available
Promover la autodeterminación de las personas con discapacidad intelectual se considera una meta importante y a la vez un medio para lograr mayor autonomía, participación y bienestar personal. El objetivo de este estudio ha sido analizar el efecto de diferentes variables individuales (género, edad, etc.) y contextuales (tipo de escolarización, prog...
Article
Full-text available
Purpose: The objective of this study is to present the process of translating, adapting and validating the European Child Environment Questionnaire (ECEQ) in the Spanish context. Method: The participants were 200 parents of children and adolescents with cerebral palsy (CP) aged 8-18 years, from seven regions in Spain. The adaptation of the ECEQ...
Article
Full-text available
Objective To determine quality of life (QoL) of adult patients with cerebral palsy (CP) during the ageing process and to analyze the effect of motor function, communication disorders, and intellectual disability (ID) on QoL. Material and method A cross-sectional study on adults with CP was performed. A questionnaire to collect sociodemographic cha...
Article
Full-text available
Objective: To describe a contemporary artistic educational program based on photographic cyanotype techniques and to present the results of the program carried out with older people with early dementia. We determined whether these people could participate in the program, their viewpoint about it, and what this program could contribute to their exp...
Article
Full-text available
Objetivo: Evaluar la calidad de vida (CDV) de los niños y adolescentes con parálisis cerebral (PC) desde la percepción de sus padres y de ellos mismos; analizar el grado de acuerdo entre ambas percepciones e identificar las variables que influyen en la CDV. Métodos: Fue realizado un estudio transversal que incluyó a 92 niños y adolescentes con PC...
Article
Full-text available
Participation is an important modifiable quality of life (QOL) determinant and a key outcome measure. The aim of this study was to confirm if participation in leisure activities affects the QOL domains in children and adolescents with Cerebral Palsy (CP) in Spain. A total of 206 children and adolescents with CP (and their parents), 115 boys and 91...
Article
Background Studies of people with developmental disabilities suggest that participation in leisure activities might be a key factor for good quality of life. This study explores the relationships between objective and subjective quality of life and leisure participation of adults with developmental disabilities. Materials and MethodsA cross-section...
Article
Introduction: Many factors affect the assessment and treatment of pain, among them being the knowledge and attitudes of clinical staff. The goal of this work was to determine the opinions and attitudes of clinical staff from two hospitals on the different aspects of the assessment and treatment of children's pain. Method: A cross-sectional, desc...
Article
Full-text available
Objective: To evaluate quality of life (QoL) of children and adolescents with cerebral palsy (CP) according to the perception of the children themselves and their parents, examining the degree of agreement between the two perceptions, and identify the variables that influence QoL. Methods: We conducted a cross-sectional study that included 92 child...
Article
Various nonpharmacological strategies to relieve hospitalized children's pain propose play as a central element. Play is considered an essential resource to improve the negative psychosocial effects of the disease and the hospitalization itself. However, the empirical research of play in health settings has not received much attention. The goal of...
Article
Full-text available
Background: Despite growing interest in the topic of participation, the construct has not yet been assessed in children and adolescents with and without cerebral palsy (CP) in Spain. As there are no available instruments to measure participation in leisure activities which have been adapted in this country, the goal of this study was to validate a...
Article
Full-text available
Participation--defined as engagement in life situations, including leisure and recreational activities--is associated with the improvement of people with disabilities' quality of life. Several specific instruments assess leisure, but none of them has been adapted to the Spanish context. The goal of this study is to adapt and validate the Spanish ve...
Article
The purpose of this study was to determine and compare the preferences and priorities of youths and adults about the best ways to improve hospitals to have an impact on the quality of life of hospitalized adolescents. Participants in this study were 364 adolescents between 14 and 17 years of age (96 hospitalized) and 148 adults (96 parents of patie...
Article
Background People with developmental disabilities are at high risk for a limited participation in leisure activities. The aim of this study was to investigate the participation in, preference for and interest in leisure activities of young and adults with developmental disabilities, and to examine the factors associated with leisure activity. Metho...
Article
Full-text available
The purpose of this study was to assess the self-determination of Spanish high school students with Intellectual Disability and other Special Educational Needs (SEN). A total of 371 students between 11 and 17 years of age participated in the study. Of these, 46.4% (n=171) presented SEN, specifically learning disabilities (n=97; 26.2%), borderline a...
Article
Full-text available
Objective: To assess the agreement between children with Duchenne Muscular Dystrophy (DMD) and their parents regarding the perception of quality of life (QOL) and the wishes expressed by children. Methods: The study involved 14 patients (median age = 9.9 yearsold) followed up in Sarah Rehabilitation Center – Fortaleza, Brazil and their parents. The...
Article
Participation in leisure activities has been identified as a factor that favors inclusion in the community and it also contributes to a better quality of life. This study analyzed the influence of certain personal characteristics and environmental factors in the participation in leisure activities of youngsters and adults with developmental disabil...
Article
Objective To determine the preferences and priorities of a sample of hospitalized adolescents on potential ways to improve their stay in the hospital.
Article
To determine the preferences and priorities of a sample of hospitalized adolescents on potential ways to improve their stay in the hospital. We performed a prospective, cross-sectional, descriptive study. The participants completed a questionnaire on their preferences and priorities regarding hospitalization, which included data about age, sex, and...
Article
Full-text available
Este artículo pretende ser una aproximación sobre cómo el cine ha abordado la realidad de las personas con discapacidad visual. Más concretamente, trata de analizar cuáles han sido las descripciones habituales que se han realizado de las personas ciegas en las películas y cuáles son los estereotipos identificados que las representan. Para ello se h...
Article
Full-text available
Objective: To assess the agreement between children with Duchenne Muscular Dystrophy (DMD) and their parents regarding the perception of quality of life (QOL) and the wishes expressed by children. Methods: The study involved 14 patients (median age = 9.9 yearsold) followed up in Sarah Rehabilitation Center – Fortaleza, Brazil and their parents. The...
Article
Full-text available
En este artículo se presenta una revisión sobre el tema de la participación en las actividades de ocio de los niños y adolescentes con discapacidades, centrada en la Parálisis Cerebral. Según los resultados, los niños y adoles-centes con PC participan menos en las actividades de ocio, siendo los más gravemente afectados los que se encontraban más l...