Marcel W. Post

Marcel W. Post
Hoogstraat Rehabilitation · Center of Excellence in Rehabilitation Medicine

PhD

About

543
Publications
82,006
Reads
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17,960
Citations
Citations since 2016
160 Research Items
9773 Citations
201620172018201920202021202205001,0001,500
201620172018201920202021202205001,0001,500
201620172018201920202021202205001,0001,500
201620172018201920202021202205001,0001,500
Education
January 1992 - April 1997
Utrecht University
Field of study
  • Rehabilitation medicine
September 1980 - August 1985
Utrecht University
Field of study
  • Psychology

Publications

Publications (543)
Article
Objective To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. Design Youth versions of both instruments were used for (1) Content comparison and (2) analyses of relations between both i...
Article
Study design: Expert opinion, feedback, revisions and final consensus. Objectives: To update the International Spinal Cord Injury (SCI) Core Data Set while still retaining recommended standardization of data reporting. Setting: International. Methods: Comments on the data elements received from the SCI community were discussed in the Interna...
Article
Study design: Cross-sectional validation study. Objective: The aim was to validate the AO Spine Patient-Reported Outcome Spine Trauma (PROST) at a minimum of 12 months posttrauma and to evaluate patient characteristics, types of spine fractures, and treatment strategies as determinants of AO Spine PROST scores. Summary of background data: The...
Article
Full-text available
Purpose: (1) To investigate the differences in the course of participation up to one year after stroke between distinct movement behavior patterns identified directly after discharge to the home setting, and (2) to investigate the longitudinal association between the development of movement behavior patterns over time and participation after strok...
Article
Study design: This is a cognitive interview study. Objectives: To examine the applicability of the Patient Reported Outcome Spine Trauma (AO Spine PROST) in people with motor-complete traumatic or non-traumatic spinal cord injury (SCI). Setting: Two rehabilitation centers in The Netherlands. Method: Semi-structured cognitive interviews were...
Article
Objective To describe the prevalence and characteristics of spinal cord injury (SCI) related pain during initial inpatient rehabilitation and to investigate relationships with demographic and lesion characteristics. Design Cohort during inpatient rehabilitation. Setting Eight specialized SCI rehabilitation centers in the Netherlands. Participant...
Preprint
Study design: Expert opinion, feedback, revisions and final consensus.Objectives: To update the International Spinal Cord Injury (SCI) Core Data Set while still retaining recommended standardization of data reporting. Setting: International. Methods: Comments on the data elements received from the SCI community were discussed in the International C...
Conference Paper
Previous studies have shown the AO Spine PROST (Patient Reported Outcome Spine Trauma) to be a valid and reliable tool to measure outcomes of spine trauma patients up to 12 months after their injury. However, it remains unclear whether the tool would also be applicable in the longer term. The primary aim of this cross-sectional study is to assess t...
Article
Full-text available
Purpose: To develop and explore underlying dimensions of the Self-Regulation Assessment (SeRA) and psychometric features of potential components. Further, to identify associations between the SeRA and disability-management self-efficacy, type of diagnosis, and type of rehabilitation. Materials and methods: Based on a previously developed model o...
Poster
Full-text available
Methods Persons registered in the Norwegian SCI Registry (NorSCIR) between 2011 and 2017 were invited to participate in a survey in 2019 when they were in a community setting. The Frequency scale and Restrictions scale of the Utrecht Scale for Evaluation of Rehabilitation-Participation were used to measure objective and subjective participation. Qu...
Article
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Objective: We aimed to identify generic measures of self-regulation and to examine the degree to which these measures fit a recently developed conceptual model of self-regulation in a rehabilitation context. Data sources: Pubmed, Embase, PsycInfo, and CINAHL were searched. Review methods: Articles were included if they were published between J...
Article
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Purpose This study aimed at testing the internal consistency and longitudinal measurement invariance of a brief quality of life questionnaire—the spinal cord injury quality of life basic data set (SCI-QoL-BDS)—among individuals with spinal cord injury/disorder undergoing first inpatient rehabilitation. Methods Longitudinal data from the Swiss spin...
Article
Study design: Multicentre longitudinal study. Objectives: To assess overall illness perception and specific illness representations at admission and discharge of inpatient spinal cord injury (SCI) rehabilitation, and to detect associations between demographic and injury-related variables, and illness perception. Setting: Seven Dutch SCI-specia...
Article
Full-text available
Many stroke patients and partners suffer from anxiety, depression, and low life satisfaction. Psychological factors such as coping style and self-efficacy can be protective factors within individuals. The close relationship between stroke patients and partners suggests that there may be interdependence in psychological functioning. The aim of this...
Article
Objectives: To investigate how next of kin of persons with spinal cord injury (SCI) experience various life areas in terms of caregiving, participation, and quality of life (QoL), and the impact of personal characteristics of next of kin and SCI characteristics. Design: Survey among next of kin linked to data on persons with SCI in the Norwegian...
Article
Objective To examine the internal construct validity of the International Spinal Cord Injury Quality of Life Basic Data Set Version 2.0 (QoL-BDS V2.0) and compare this to the internal construct validity of the original version of the QoL-BDS. Design International cross-sectional psychometric study Setting Spinal rehabilitation units, clinics and...
Article
Study design: Longitudinal observational study. Objectives: During the five-month free-living training period for the HandbikeBattle event several participants dropped out. The aim of this study was to clarify the numbers and reasons for drop out, and to characterize the differences between study participants who did (dropouts) and did not (comp...
Article
Study design: Mixed methods inquiry using cognitive interviews and thematic content analysis. Objectives: Cross-validation of the concept of quality of life (QoL) and of the International Spinal Cord Injury Quality of Life Basic DataSet (SCI QoL-BDS) items across five sites in four countries: United States, Australia, Brazil, and the Netherlands...
Article
Study design: Mixed methods. Objectives: The aim of our study was to investigate the content validity of the Work Rehabilitation Questionnaire (WORQ) for use in persons with post-acute and chronic spinal cord injury (SCI). Setting: A university-based Rehabilitation Center in The Netherlands. Methods: Contents of the WORQ, brief ICF core sets...
Article
Cross-sectional study. Neurogenic bowel dysfunction (NBD) is frequent among individuals with spinal cord injury (SCI) and is often difficult to treat. A bowel stoma is considered the last-resort treatment option for individuals with SCI and severe NBD. This study aims to explore whether individuals are satisfied with their bowel stoma and how they...
Article
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Purpose The Work Rehabilitation Questionnaire (WORQ) is a self-report vocational rehabilitation assessment. A comprehensive (WORQ-FULL) and a brief version (WORQ-BRIEF) are available. The purpose of this study was to investigate measurement properties of both versions in persons with physical disabilities. Methods Cross sectional and test–retest de...
Article
Objective: To analyze and compare life satisfaction (LS) in persons with spinal cord injury (SCI) living in 22 countries participating in the International SCI (InSCI) community survey. The study tested the hypothesis that there are differences in LS across InSCI countries according to the countries’ economic status specified as gross domestic prod...
Article
Objective To assess the reliability and validity of the Brief Illness Perception Questionnaire (B-IPQ) and possible subscales, and to interpret Brief Illness Perception Questionnaire (B-IPQ) total scores, in individuals with a spinal cord injury. Design Cross-sectional Setting Seven Dutch rehabilitation centres Subjects Individuals with a recent...
Article
Purpose Self-regulation refers to self-management and self-control, with or without disability. Outcomes of rehabilitation with respect to self-regulation are unclear. This study aims to identify elements of self-regulation that former patients consider important in the context of medical rehabilitation. Materials and methods Qualitative explorati...
Article
Objectives: To determine average changes and individuals' patterns of change in depressive symptoms, anxiety symptoms, general distress, and life satisfaction between admission to spinal cord injury inpatient rehabilitation and discharge; and to identify factors associated with change. Method: Longitudinal data collection as part of a national c...
Article
OBJECTIVE Secondary health conditions (SHCs) are long-term complications that frequently occur due to traumatic spinal cord injury (tSCI) and can negatively affect quality of life in this patient population. This study provides an overview of the associations between the severity and level of injury and the occurrence of SHCs in tSCI. METHODS A sy...
Article
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Background People with a recent spinal cord injury (SCI) often follow intensive rehabilitation. Learning appropriate self-care, deal with their impairments and prevent secondary health conditions (SHCs), is highly important during rehabilitation. To date it is not clear how self-care skills are taught to people with SCI. The objective of this study...
Article
Objective: To test the spinal cord injury adjustment model (SCIAM) by examining whether primary appraisals (threat or loss) and coping strategies (approach-oriented and denial) sequentially mediate the impact of functional independence, psychological resources, and social support on depressive and anxiety symptoms among individuals with spinal cor...
Article
Full-text available
PurposeTo validate the Dutch version of AOSpine PROST (Patient Reported Outcome Spine Trauma).Methods Patients were recruited from two level-1 trauma centers from the Netherlands. Next to the AOSpine PROST, patients also filled out SF-36 for concurrent validity. Descriptive statistics were used to analyze the characteristics. Content validity was a...
Article
Study design: This study is a cross-sectional analysis using data from the Swiss Spinal Cord Injury Cohort Study. Objectives: To examine internal consistency and convergent validity of the International Spinal Cord Injury Quality of Life Basic Data Set (QoL-BDS) at discharge from first inpatient rehabilitation. Setting: The study was performed...
Article
Full-text available
Background: The Utrecht Scale for Evaluation of Rehabilitation-Participation Restrictions scale (USER-P-R) is a promising patient-reported outcome measure, but has currently not been validated in a hospital-based stroke population. Objective: To examine psychometric properties of the USER-P-R in a hospital-based stroke population 3 months after...
Article
Objectives: To describe the association between sociodemographic and spinal cord injury characteristics with participation and quality of life and to study the association between participation and quality of life. Design: Persons registered in the Norwegian Spinal Cord Injury Registry after post-acute rehabilitation between 2011 and 2017 were i...
Article
Objective: To examine the temporal evolution of subjective cognitive complaints in the long-term after stroke, and to identify predictors of long-term subjective cognitive complaints. Methods: Prospective cohort study including 395 stroke patients. Subjective cognitive complaints were assessed at 2 months, 6 months and 4 years post-stroke, using...
Article
Objective Self-efficacy (SE) is an important determinant for the psychological adjustment of people with spinal cord injury (SCI). However, little is known about the course of SE during inpatient rehabilitation up to one year after discharge. The aim was to determine latent trajectory classes of SE, depressive mood and anxiety in people with SCI an...
Article
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Objective: To describe differences in health, functioning and wellbeing between individuals with spinal cord injury (SCI) with different mobility levels. Methods: Cross-sectional survey (part of the International Spinal Cord Injury (InSCI) community survey) in people with SCI in the Netherlands who were at least 18 years old. Results: Of 253 partic...
Article
Qualitative study using in-depth interviews. To describe experienced barriers and facilitators for work and social participation among individuals with spinal cord injury (SCI). Vocational rehabilitation (VR) center in Yogyakarta Province, Indonesia. Semi-structured interviews were conducted with 12 participants (8 males, 4 females) aged 24–67 year...
Article
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Introduction: More insight is needed into participation in daily activities and autonomy among patients with amyotrophic lateral sclerosis (ALS). Aims of this study were (1) to describe the course of participation restrictions and autonomy in participation during the first 10 months after diagnosis; (2) to study the influence of the rate of ALS pro...
Article
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Objectives To determine differences in participation problems between diagnostic groups and to examine diagnosis as a determinant of participation with and without statistically accounting for confounders. Design Secondary analyses of data from eight studies (total 1,735 participants). Setting Community, the Netherlands Participants Diagnostic-g...
Article
Study design: Cross-sectional. Objectives: To examine the association between post-traumatic stress disorder (PTSD) symptoms and pain intensity, taking symptoms of anxiety and depression into account within persons with spinal cord injury (SCI). Setting: Persons with SCI, who visited a Dutch rehabilitation centre between 2005 and 2010, were in...
Article
Background: Although the use of patient-reported outcome measures to assess Health-Related Quality of Life (HRQoL) has been advocated, it is still open to debate which patient-reported outcome measure should be preferred to evaluate HRQoL after stroke. Aim: To compare the measurement properties (including concurrent validity and discriminant abi...
Article
Longitudinal community survey. To determine subgroups in social participation of individuals living with spinal cord injury (SCI). Community. Data were collected in 2012 and 2017 as part of the community survey of the Swiss Spinal Cord Injury cohort. Participation was assessed using the 33-item Utrecht Scale of Evaluation of Rehabilitation-Particip...
Article
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Objective: (1) to compare physical capacity at one-year follow-up with physical capacity before and after the training period for the HandbikeBattle event; (2) to identify determinants of the course of physical capacity during follow-up. Design: Prospective observational study. Former rehabilitation patients (N=33) with health conditions such as...
Article
Background: Employment rates among people with spinal cord injury or spinal cord disease (SCI/D) show considerable variation across countries. One factor to explain this variation is differences in vocational rehabilitation (VR) systems. International comparative studies on VR however are nonexistent. Objectives: To describe and compare VR systems...
Article
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Expert workgroup consensus, focused literature review, and vetting via feedback from international presentations and spinal cord professional membership groups. Develop and refine a basic dataset to enable standardized documentation of physical therapy (PT) and occupational therapy (OT) interventions delivered in a controlled clinical trial intende...
Article
Background Evaluating treatment of traumatic spinal cord injuries (TSCIs) from the prehospital phase until postrehabilitation is crucial to improve outcomes of future TSCI patients. Objective To describe the flow of patients with TSCI through the prehospital, hospital, and rehabilitation settings and to relate treatment outcomes to emergency medic...
Article
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Purpose: (1) to analyze training characteristics of recreationally active wheelchair users during handcycle training, and (2) to examine the associations between training load and change in physical capacity. Methods: Former rehabilitation patients (N = 60) with health conditions such as spinal cord injury or amputation were included. Participants...
Article
Cohort study with two measurement occasions. To investigate change in environmental barriers experienced by people living with spinal cord injury (SCI) over a 5-year period. Community, Switzerland. Data were from the Swiss spinal cord injury (SwiSCI) survey. Main outcome measure was the Nottwil Environmental Factors Inventory-Short Form. Random-eff...
Article
Full-text available
Background: Self-efficacy is an important determinant of adjustment following spinal cord injury. Self-efficacy is defined as the belief that one can successfully execute behavior required to produce the desired outcomes. In its original conceptualization, self-efficacy refers to the confidence that people have in their ability to accomplish speci...
Article
Full-text available
PurposeTo report on the development of AOSpine CROST (Clinician Reported Outcome Spine Trauma) and results of an initial reliability study. Methods The AOSpine CROST was developed using an iterative approach of multiple cycles of development, review, and revision including an expert clinician panel. Subsequently, a reliability study was performed a...
Article
Study design: Multicentre, cross-sectional study. Objectives: To identify which markers of obesity, injury characteristics and autonomic function variables are related to cardiovascular disease (CVD) risk after spinal cord injury (SCI), and establish cut-points for detection and risk management. Setting: Eight SCI rehabilitation centres in the...
Article
Full-text available
Purpose (1) To explore the course of participation from two months up to four years after stroke, and (2) to examine if adaptive and maladaptive psychological factors and mood measured at two months after stroke are determinants of the course of participation during this period. Materials and methods Prospective cohort study in which 369 individua...
Article
Objective To evaluate changes in duration of physical activity (PA) and sedentary behavior (SB) from discharge to one year after inpatient rehabilitation in ambulatory people with spinal cord injury (SCI). Design Longitudinal cohort study with objective measurements of physical behavior at discharge, 6 months and 12 months post-discharge. Setting...
Article
Review of the literature and semi-structured interviews. To explore the possible use of topical analgesics for the treatment of neuropathic pain (NP) in spinal cord injury (SCI). Institute for Neuropathic Pain, Soest, The Netherlands. A review was performed of studies on topical analgesics for SCI-related NP published up to May 2019. In addition, e...
Article
As a community survey of people living with spinal cord injury in 22 countries, representing all six of WHO regions of the world, InSCI is one of a very few surveys that highlights, not only the basic medical issues, but also the impact of SCI on the everyday lives of people. As well, the InSCI survey is part of a much larger project called the Lea...
Article
Objective To describe the employment situation of people with spinal cord injury (SCI) in 22 countries participating in the International Spinal Cord Injury Community Survey (InSCI), compare observed and predicted employment rates, estimate gaps in employment rates among people with SCI compared to the general population, and study differences in e...
Article
Full-text available
A variety of approaches are currently used to explore the relationship between cognitive functioning and participation after stroke. We aimed to gain insight into the preferred approach to measure cognitive functioning when exploring the association between cognitive functioning and participation in the long term after stroke. In this inception coh...
Article
Objective To detail the methodological features of the first International Spinal Cord Injury (InSCI) community survey by describing recruitment and data collection procedures, and to report on the recruitment results and basic characteristics of participants by country and income setting. Design Cross-sectional survey. Setting 22 countries repre...
Article
Full-text available
Objective To investigate if the combination of self-efficacy levels of persons with spinal cord injury (SCI) or acquired brain injury (ABI) and their significant others, measured shortly after the start of inpatient rehabilitation, predict their personal and family adjustment six months after inpatient discharge. Design Prospective longitudinal st...
Article
Objective To identify intra-personal and inter-personal sociodemographic, injury-related and psychological variables measured at admission of inpatient rehabilitation that predict psychological distress among dyads of persons with spinal cord injury (SCI) or acquired brain injury (ABI) and their significant others (i.e., persons close to the indivi...
Article
To investigate sports participation among individuals in the HandbikeBattle project 1.5–5.5 years after the event, the barriers and facilitators to sport participation and benefits of participating in the event. Former participants of the HandbikeBattle, a handcycling race on an Austrian mountain. Handcyclists who took part in one or more HandbikeB...
Article
Full-text available
Background: Many significant others of persons with serious conditions like spinal cord injury (SCI) and acquired brain injury (ABI) report high levels of psychological distress. In line with the stress-coping model, the aim of the present study was to investigate the relationship between personal resource resilience and psychological distress, and...
Article
Full-text available
Study design: Multicenter validation study OBJECTIVE.: To translate and adapt the AOSpine PROST (Patient Reported Outcome Spine Trauma) into English, and test its psychometric properties among North-American spine trauma patients. Summary of background data: In the absence of an outcome instrument specifically designed and validated for traumati...
Article
Objective: To provide an overview of clinical assessments and diagnostic tools, self-report measures (SRMs) and data sets used in neurogenic bladder and bowel (NBB) dysfunction and recommendations for their use with persons with spinal cord injury /disease (SCI/D). Methods: Experts in SCI/D conducted literature reviews, compiled a list of NBB relat...
Article
Cross-sectional survey. Most studies on neurological recovery after traumatic spinal cord injury (tSCI) assess treatment effects using the American Spinal Injury Association Impairment Scale (AIS grade) or motor points recovery. To what extent neurological recovery is considered clinically meaningful is unknown. This study investigated the perceive...