Manna Alma

Manna Alma
University of Groningen | RUG · Department of Health Sciences

PhD

About

31
Publications
5,376
Reads
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290
Citations
Introduction
Skills and Expertise
Additional affiliations
January 2007 - present
Universitair Medisch Centrum Groningen
Position
  • PostDoc Position
Description
  • Qualitative research on patient experiences

Publications

Publications (31)
Article
Background In daily practice, sleep apnea is underdiagnosed in people with Down syndrome. The WatchPAT can detect sleep apnea in a less invasive way. Aim This study aimed to evaluate the feasibility of the WatchPAT to detect sleep apnea in individuals with Down syndrome. Methods and procedures Thirty-one participants with Down syndrome (aged 18+)...
Article
Background: Work can have a major positive impact on health and wellbeing. Employment of kidney transplant recipients (KTR) of working age is much lower than in the general population. The first aim of this study was to examine the impact of a preemptive kidney transplantation (PKT) on employment, in addition to other possible influencing factors....
Article
Full-text available
Purpose Employers play an important role in facilitating sustainable return to work (RTW) by workers with disabilities. The aim of this qualitative study was to explore how employers who were successful in retaining workers with disabilities at work fulfilled their supportive role, and which facilitators were essential to support these workers thro...
Article
Objective: The aim of this study was to investigate how patients experience the information, the source investigation and contact tracing and the measures in isolation at the start of a pandemic. Design: Secondary analysis of semi-structured interviews was conducted as part of a larger exploratory mixed-methods study on COVID-19 patient experien...
Article
Purpose To identify factors affecting the implementation of lifestyle interventions (LIs) in patients with hip and/or knee osteoarthritis (OA) from the perspective of primary and secondary healthcare professionals (HCPs) in the Dutch healthcare system. Methods Multidisciplinary focus groups were composed. Data analysis was performed following them...
Article
Background Employers play an important supportive role in facilitating sustainable Return to Work (RTW) of workers with disabilities. Little is understood about how employers deal with their supportive role, what kind of support they offer and which facilitators of employer support are important to successful RTW. Methods A semi-structured intervi...
Article
Full-text available
Experts in clinical mental health research count on personalized approaches based on self-monitoring and self-management to improve treatment efficacy in psychiatry. Among other things, researchers expect that Ecological Momentary Interventions (EMI) based on self-monitoring and personalized feedback will reduce depressive symptoms. Clinical trial...
Preprint
There are high expectations of Ecological Momentary Interventions (EMI) for depression treatment. Findings on their ability to reduce depressive symptoms have, however, been conflicting. A recent trial did not find statistical evidence that an EMI comprising self-monitoring and personalized feedback impacted clinical or functional outcomes beyond t...
Article
Full-text available
Rationale & Objective Although patients with chronic kidney disease (CKD) are at risk for work disability and work loss, not all experience work disruption. We aimed to describe the experienced barriers to and facilitators of sustained employment among Dutch patients with CKD. Study Design Qualitative study using semi-structured interviews. Setti...
Chapter
To be able to tell the story of your illness, as well as relating to the stories of others, has always been important in people’s subjective handling of illness. In the digital age, this practice is extended to the Internet. Today there are various resources offering people possibilities to share and access health and illness narratives online. In...
Article
Objective: To gain insight into 1) the symptoms and the disease process of healthcare professionals (HCPs) who tested positive for COVID-19 and were not hospitalized because of mild symptoms, 2) the impact on their psychological well-being and 3) the experiences with (after) care and infection prevention measures. Design: Explorative mixed-metho...
Article
Full-text available
Background Although symptomatic remission is considered the optimal outcome in depression, this is not always achieved. Furthermore, symptom indicators do not fully capture patients’ and clinicians’ perspectives on remission. Broader indicators of (partial) remission from depression should be considered. Aims To investigate relevant outcomes of de...
Article
According to the European definition, rare diseases are life-threatening or chronically debilitating conditions that affect only 5 out of 10,000 people in the European Union. It is estimated that there are around 6000-8000 different rare diseases, affecting 6-8% of the population in the course of their lives. For the Netherlands, this means that ab...
Article
Full-text available
Introduction: This Dutch study is a qualitative interview study. It aims to contribute to our understanding of the day-to-day experiences by providing an idiographic description of what it means existentially to be in the world as a person affected by a form of dementia, taking into account the contextual nature of these embodied experiences. Met...
Article
This Viewpoint presents and discusses the development of the first core principles and standards for effective, personalised care of children living with complex care needs in Europe. These principles and standards emerged from an analysis of data gathered on several areas, including the integration of care for the child at the acute–community inte...
Chapter
This chapter shows how a selection of narrative videotaped accounts of people with dementia and their informal carers are used to develop course material on dementia care for students in Dutch secondary Vocational Education and Training (VET). It provides illustrative segments of two pilot lessons on dementia care to show how the narrative clips st...
Article
Inleiding Zeldzame aandoeningen komen niet weinig voor. Naar schatting leven er in Nederland ongeveer een miljoen mensen met een zeldzame aandoening, van wie een groot deel kinderen. Het diagnostische traject kan erg lang duren en is voor de ouders vaak frustrerend. Het onderzoek naar hun ervaringen in dit traject bleef tot nu toe steeds beperkt to...
Article
Full-text available
Objectives To describe the degree of loneliness among the visually impaired elderly and to make a comparison with a matched reference group of the normally sighted elderly. In addition, we examined self-management abilities (SMAs) as determinants of loneliness among the visually impaired elderly. Methods In a cross-sectional study, 173 visually im...
Article
Introduction: The pilot study reported here determined the effectiveness of a multidisciplinary group rehabilitation program, Visually Impaired Elderly Persons Participating (VIPP), on psychosocial functioning. Methods: The single-group pretest–posttest pilot study included 29 persons with visual impairments (aged 55 and older) who were referred to...
Article
Full-text available
To pilot test the newly developed multidisciplinary group rehabilitation programme Visually Impaired elderly Persons Participating (VIPP). A single group pretest-posttest design pilot study included 29 visually impaired persons (≥ 55 years). The intervention (20 weekly meetings) consisted of four components (practical training; education, social in...
Article
Full-text available
To assess determinants of social participation among visually impaired older adults. This cross-sectional study included visually impaired persons (≥55 years; n = 173) who were referred to a low-vision rehabilitation center. Determinants (i.e., sociodemographic, physical, social and psychological factors, and personal values) of participation were...
Article
Full-text available
To describe the degree of loneliness among the visually impaired elderly and to make a comparison with a matched reference group of the normally sighted elderly. In addition, we examined self-management abilities (SMAs) as determinants of loneliness among the visually impaired elderly. In a cross-sectional study, 173 visually impaired elderly perso...
Article
Full-text available
Purpose. To assess the degree of participation of the visually impaired elderly and to make a comparison with population-based reference data. Method. This cross-sectional study included visually impaired elderly persons (≥55 years; n=173) who were referred to a low-vision rehabilitation centre. Based on the International Classification of Function...
Article
Full-text available
To assess the degree of participation of the visually impaired elderly and to make a comparison with population-based reference data. This cross-sectional study included visually impaired elderly persons (≥55 years; n = 173) who were referred to a low-vision rehabilitation centre. Based on the International Classification of Functioning, Disability...

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Projects

Project (1)
Project
Goal: The MOCHA project appraises the differing models of child health that are used across Europe, see http://www.childhealthservicemodels.eu/ The project is funded by the European Commission through the Horizon 2020 Framework.