Madeleine Akrich

Madeleine Akrich
MINES ParisTech | ParisTech · Centre de sociologie de l'innovation (CSI)

PhD, HDR

About

156
Publications
36,843
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7,868
Citations
Citations since 2016
3 Research Items
4057 Citations
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20162017201820192020202120220100200300400500600
20162017201820192020202120220100200300400500600
20162017201820192020202120220100200300400500600

Publications

Publications (156)
Article
Temporality, regimes of participation and community forms This article explores how to capture the dynamics of interactions on a forum, analyses the transformation of this space over time, and characterizes its organization. Combining qualitative and quantitative methods, it describes a large forum (170,000 messages) dedicated to prenatal screening...
Conference Paper
In this presentation, we want to highlight the role of ICT in the transformation of modern health activism. Firstly, many of the recently created patient organizations have stemmed from informal groups of people exchanging through forums, discussion groups or social networks on their experiences, but also on care organization or medicine. It has el...
Article
Full-text available
This article proposes the notion of ‘evidence-based activism’ to capture patients’ and health activists’ groups’ focus on knowledge production and knowledge mobilisation in the governance of health issues. It introduces empirical data and analysis on groups active in four countries (France, Ireland, Portugal and the United Kingdom), and in four con...
Article
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On different types of partnership between families, teachers, and specialists: the HyperSupers association cooperates with schools This article analyzes initiatives in cooperation with schools undertaken by HyperSupers, the French association of parents of children and adults with the Attention Deficit Hyperactivity Disorder (ADHD). The author show...
Article
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(A quite different version of this article has been published in Biosocieties) The literature on childbirth organisations focuses on their critical positioning towards medical definitions/practices of birth, their efforts to promote ‘natural’/’normal’ birth, their espousal of a rhetoric of choice and their relationships to feminist activism. Howeve...
Article
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Drawing on fieldwork in four condition areas (rare diseases, childbirth, Attention Deficit Hyperactivity Disorder, and Alzheimer’s disease), this article shows that patients’ organizations’ (POs) engagement with knowledge is neither limited to a set of diseases nor restricted to biomedical knowledge. Their work on and with academic and experiential...
Article
Full-text available
This article proposes the notion of ‘evidence-based activism’ to capture patients’ and health activists’ groups’ focus on knowledge production and knowledge mobilisation in the governance of health issues. It introduces empirical data and analysis on groups active in four countries (France, Ireland, Portugal, and the UK), and in four condition area...
Article
notice de dictionnaire consultable ici: http://www.participation-et-democratie.fr/fr/print/1283
Article
Qu'est-ce que le marché ? Depuis une quinzaine d'années, Michel Callon et les chercheurs du centre de sociologie de l'innovation (CSI) de l'école des mines se penchent sur cette question si peu discutée par les recherches en économie ; ils l'interrogent dans le prolongement des travaux qu'ils menaient autour de la sociologie de la traduction, dite...
Article
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Au travers de l’analyse des activités de trois associations, nous montrons le rôle central que joue la collecte, la production et la circulation des connaissances dans ces organisations: ces activités sont cruciales pour construire une représentation des usagers, pour créer un espace d’échange et de négociation avec les professionnels, et pour fair...
Article
This article proposes the notion of 'evidence-based activism' to capture patients' and health activists' groups' focus on knowledge production and knowledge mobilisation in the governance of health issues. It introduces empirical data and analysis on groups active in four countries (France, Ireland, Portugal and the United Kingdom), and in four con...
Article
Full-text available
In the health sector, lay expertise refers to two distinct but related phenomena: experiential expertise, i.e. expertise based on the experience of a specific condition, and medical-scientific expertise. A significant part of the activities of patient organizations are devoted to developing both forms of expertise: on the one hand, they collect, sh...
Article
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The literature on childbirth organisations focuses on their critique of medical definitions of birth practices, their efforts to promote 'natural' or 'normal' birth, their espousal of choice rhetoric and their relationship to feminism. It says little, however, about the practices these organisations use to achieve their aims. Our study of the Unite...
Article
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Attention Deficit Hyperactivity Disorder (ADHD) is an unsettled condition whose history is characterised by controversy among medical professionals. Its emergence has frequently been interpreted as an example of the growing 'medicalisation' of society and the individualisation of social issues. This article examines how groups representing children...
Article
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Presents the results and methodology of a set of investigation on mailing lists and online forums.
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(a quite different version of this paper has been published in Biosocieties) Attention Deficit Hyperactivity Disorder (ADHD) is an unsettled condition whose history is characterised by controversy amongst medical professionals. Its emergence has frequently been interpreted as an example of the growing ‘medicalisation’ of society and the individuali...
Article
Full-text available
The regulation of e-groups This chapter is devoted to an analysis of the forms of regulation that can be observed in online discussion groups. By regulation, we mean all the actions intended to define and transform the organization of the activity: the creation of subscribers' groups, the moderating of interaction, the definition and application of...
Article
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Lay expertise in patient organizations: an instrument for health democracy In the health sector, lay expertise refers to two distinct but related phenomena: experiential expertise, i.e. expertise based on the experience of a specific condition, and medical-scientific expertise. A significant part of the activities of patient organizations are devot...
Article
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We all know of innovations which either made their creators a fortune or which led to their downfall. It is easy to retrospectively explain success as a stroke of genius or failure as a blatant mistake. Easy in retrospect…but what about innovation in the making? How does the innovator navigate the pitfalls which threaten him?
Article
Starting from the existing literature, this paper proposes an analytical framework to capture the general dynamics of the controversies in environmental health and, more particularly, the role of the 'layman' in this issue, within democratic societies. The article emphasizes the importance of a research work conducted by non-specialists to provide...
Article
Full-text available
Starting from the existing literature, this paper proposes an analytical framework to capture the general dynamics of the controversies in environmental health and, more particularly, the role of the 'layman' in this issue, within democratic societies. The article emphasizes the importance of a research work conducted by non-specialists to provide...
Book
Michel Callon a marqué les sciences humaines et sociales par sa production académique, par ses activités d'animateur de la communauté scientifique et par son rôle de médiateur entre la recherche et le monde de la politique, de l'administration et de l'entreprise. Il a multiplié les espaces d'entente et de confrontation, en se déplaçant aussi bien s...
Article
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Le collectif interassociatif autour de la naissance (Ciane) regroupe des associations dont les histoires, les ressources et les compétences sont variées; grâce aux outils de coordination fournis par Internet, il a pu construire une articulation entre une expertise tirée de l’expérience des femmes et des couples et une expertise médicoscientifique....
Article
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Plusieurs auteurs se sont interesses a la maniere dont la technique peut prolonger dans l'espace et le temps l'action politique. Nous nous proposons d'inverser cette hypothese et de montrer comment, loin de ne representer que des appendices sur un dispositif politique preexistant, les objets techniques ont un contenu politique au sens ou ils consti...
Article
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This paper describes the emergence of new activist groups in the health sector, spinning off from internet discussion groups. In the first part, it shows how self-help discussion groups can be considered as communities of practice in which, partly thanks to the Internet media, collective learning activities result in the constitution of experiencia...
Article
Repérer des victimes, confondre des suspects : les mobilisations dans le domaine de la santé environnementale se présentent désormais comme de véritables enquêtes policières. À la différence près que, dans ce domaine, les investigations ne sont pas menées uniquement par des enquêteurs professionnels. Les « profanes » cherchent eux aussi à rendre vi...
Article
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The Internet, a shadowy third party in the doctor-patient relationship What role does the Internet now play in the interaction between doctor and patient? Although both practitioners and patients regularly consult it for information on health, indirectly giving this tremendous source of knowledge a huge presence in the consulting room, it does not...
Article
L'ambition de cet ouvrage est de mettre à disposition du public français une série de travaux anglo-saxons portant sur des controverses en santé environnementale et sur le rôle que sont amenés à y jouer les non spécialistes ou ce qu'il est désormais convenu d'appeler les « profanes ». Il faut d'emblée préciser que ce recueil de textes ne livre qu'u...
Article
Internet is an important place for debates between patients, whose active discussions allow the patient to appropriate medical information and to build up their expertise. Lists and forums are regulated and organised areas; discussions about common rules take up a large place in the discussion. On discussion lists, we observe that speech is unequal...
Article
Internet is an important place for debates between patients, whose active discussions allow the patient to appropriate medical information and to build up their expertise. Lists and forums are regulated and organised areas; discussions about common rules take up a large place in the discussion. On discussion lists, we observe that speech is unequal...
Article
Les collectifs constitués sur l'interner interviennent-ils dans la cité? Existe-t-il des mécanismes qui permettent de passer des interactions électroniques à des interventions perçues comme émanant d'un groupe? En prenant comme terrain d'étude des listes de discussion par mail sur des thématiques liées à la santé et au handicap, on verra émerger tr...
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The increasingly popular practice of consulting the Internet on health issues has led to much commentary and concern in medical circles. Some observers believe that the proliferation of unstructured and non-validated information is a source of confusion which is likely to erode patients’ confidence in their physicians. The literature on the subject...
Article
Le domaine de la santé a été largement transformé depuis une vingtaine d'années par l'action des associations de patients. Ces associations s'impliquent dans la production et la diffusion de connaissances sur les maladies et les questions de santé ; elles jouent un rôle actif dans l'émergence et la consolidation des mobilisations collectives autour...
Article
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En matière de santé, la famille est généralement considérée comme un des lieux privilégiés dans lequel peuvent s'exercer la vigilance, la prévention, la détection des problèmes et le soin. Cependant, elle apparaît aussi comme un ensemble d'individus aux compétences et aux comportements incertains : à ce titre, elle est objet d'études (quelles sont...
Article
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L'importance de la consultation d'Internet en matière de santé a suscité commentaires et inquiétudes dans le monde médical. Certains considèrent que la prolifération d'informations non hiérarchisées, non validées est une source de confusion, susceptible de détériorer la confiance du patient en son médecin. La littérature disponible a tendance à dép...
Article
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• L'internet est un lieu de débats et d'échanges entre patients avec d'intenses discussions permettant une appropriation collective de l'information médicale et la constitution d'une forme d'expertise.• Les listes et les forums ne sont pas des espaces non régulés ou anarchiques ; la discussion des règles communes occupe une grande place dans les dé...
Article
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In this presentation, we analyse the construction of cancer patient profiles through websites offering information on the disease. We characterize the profiles of cancer patients as they appear on a large number of French websites. Many sites belong to non-profit organizations; others are initiatives by the medical profession; others still are prod...
Article
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L'objectif de cette recherche est de faire une exploration comparative des ressources disponibles sur l'internet francophone en matière de cancer et à destination des patients, afin de comprendre comment sont structurés ces contenus et de quels garants ils s'entourent, quels objectifs ils se donnent par rapport aux patients, comment ils se situent...
Article
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article disponible sur http://hdl.handle.net/2042/25038
Article
Patient organizations today play a major role in the scientific, economic and political arenas. They have become the quasi-obliged partners of researchers, industrialists and political authorities. This book investigates this quite recent configuration by offering an in-depth exploration of three thematic issues: To what social and political stakes...
Article
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L'article retrace la constitution d'un groupe d'usagers à l'initiative de professionnels de la périnatalité, et la manière dont ce groups s'est progressivement défini une identité, un point de vue et un programme d'action.
Article
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Report of the Expert Group. Directorate-General for Research Directorate C – European Research Area: Knowledge-based economy Unit C4 – Economic and prospective analysis
Article
How do electronic groups of discussion intervene in politics? Is it possible to identify mechanisms of transition from electronic interactions to collective interventions attributed to the group as a whole? Drawing upon an analysis of electronic groups concerned with health and disability issues, we will describe three forms of collective action: i...
Article
Full-text available
Les collectifs constitués sur l'internet interviennent-ils dans la cité ? Existe-t-il des mécanismes qui permettent de passer des interactions électroniques à des interventions perçues comme émanant d'un groupe ? En prenant comme terrain d'étude des listes de discussion par mail sur des thématiques liées à la santé et au handicap, on verra émerger...
Article
Full-text available
Transcribes a dialogue on the evolution of actor-network theory.
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version française remaniée de Akrich, M. et Pasveer, B., 2004, Embodiment and Disembodiment in Childbirth Narratives, Body & Society. Special Issue on Bodies on Trial., 10, pp.63-84.
Article
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Analyse dans le cadre d'un dossier consacré à l'ouvrage de Luc Boltanski, "La condition foetale. Une sociologie de l'engendrement et de l'avortement" (Gallimard, 2004)
Book
Diffusion gratuite (envoi postal) dans la limite des stocks : se renseigner auprès de edition@msh-alpes.fr
Article
Full-text available
TELEVISION A LA CARTE, A PREDICTED DIVORCE Despite many projects and applications, interactive television, which was supposed to reconfigure the broadcasting industry and change forms of consumption, has not developed as expected. This article re-examines three French experiences of pay-per-view and on-demand video, based on the frame proposed by t...
Book
Au début des années 80, un groupe de chercheurs de l'école des mines se penche sur un aspect du monde contemporain négligé par les sciences sociales : les sciences et les techniques. Comment sont-elles produites? Comment leur validité ou leur efficacité sont-elles établies ? Comment se diffusent-elles ? Comment contribuent-ils à transformer le mond...
Article
Despite many projects and applications, interactive television, which was supposed to reconfigure the broadcasting industry and change forms of consumption, has not developed as expected. This article re-examines three French experiences of pay-perview and on-demand video, based on the frame proposed by the "economy of qualities" which places the p...
Article
Full-text available
Ce texte présente un ensemble de contributions d'auteurs comme Judith Butler, Liane Mozère , Geneviève Sellier, Maneesha Lal, Ingunn Moser, Cynthia Kraus, qui travaillent dans le domaine des études de genre et des études post-coloniales. C'est notamment l'occasion de s'interroger sur les normes implicites qui président à l'édification des connaissa...
Article
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In this article, our concern is to describe how body(ies) and self are performed in women’s birth narratives through the mediation of a number of significant elements, including technical devices. We will show how, in these narratives, (1) action is distributed among a series of actants, including professionals and technology; (2) that dichotomies...
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This special issue, devoted to the question of the body in medicine and biology, brings together a group of authors whose roots lie within the field of science and technology studies (STS), and at the intersections of STS with medical sociology and medical anthropology. As testified by the vitality of Body & Society, ‘the body' is in the center of...
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Introduction au numéro thématique "les technologies de l'information à l'épreuve des pratiques"
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L’univers carcéral constitue un monde fermé qui ne s’ouvre que très rarement aux acteurs de la société civile. De ce point de vue, le programme 13000, qui a confié à des entreprises le soin de concevoir et de gérer de nouveaux établissements pénitentiaires, constitue une intéressante exception. Des acteurs influents de la société civile sont entrés...
Article
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Solve the technical problems first", we often hear, "then we'll deal with the market". The real history of innovations does not generally follow this simple schema; it is made of adaptations, series of trial and error and countless negotiations between numerous social actors. A genuine combat from which conquerors who know how to choose good repres...
Book
Aujourd'hui, lorsque l'environnement apparaît dans les médias, le conflit n'est pas loin... au point que la controverse semble constituer le mode d'existence privilégié des questions environnementales contemporaines. Cela ne doit pas nous étonner : au travers de l'environnement, est en jeu l'émergence de nouvelles articulations entre activités écon...

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