M. Cardol

M. Cardol
University of Applied Sciences (Hogeschool), Rotterdam, The Netherlands · Research Centre Innovations in Care (Kenniscentrum Zorginnovatie)

PhD

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146
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Publications

Publications (146)
Article
Introduction: Experience-based codesign (EBCD) is a valuable tool for participatory quality improvement. However, the EBCD process needs to be adjusted to make it suitable for long-term care. The focus of the improvement process needs to shift to the care relationship, as this is an important part of the quality of care in these settings. Furtherm...
Article
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Inclusion for all is an essential theme in current societies, but less so in care. In 2017, Briggs and Harris argued for more debate about the meaning of the concept of inclusion in different settings, including health care practices. The question of this paper is how professionals in long-term care can address inclusion and contribute to more incl...
Article
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Background: Adults with cerebral palsy (CP) may experience an increasing impact of their disability on daily life and this may interfere with their citizenship. Citizenship is a layered construct. Next to formal and theoretical significations, and civil rights acts such as the UN Convention on the Rights for Persons with Disabilities (CRPD), the me...
Article
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The values of patient autonomy and community participation have become central in health care. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional–client relationship as they involve family members, other professionals and community organisations. Good...
Article
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Developing autonomy is a pre-requisite for meaningful participation in society. However, youth leaving secure residential youth care (SRYC) relate that treatment does not prepare them well enough to stand on their own feet. Too often these youth are not involved in decisions regarding their own life and future. The original aim of the present study...
Article
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De auteurs van dit artikel houden een pleidooi voor verschuiving van revalidatie gericht op een individu met een aandoening of beperking naar revalidatie gericht op disability, zoals gedefinieerd vanuit het sociaal model. Hiermee wordt de revalidatieprofessional medestander van de revalidant en denkt oplossingsgericht mee over hoe om te gaan met de...
Article
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Many initiatives including theatre projects with disabled and non-disabled actors aim at increasing the inclusion of people with intellectual disabilities. We took theatre as the context to learn about these inclusive practices. We searched the scientific literature for case studies to investigate: 1) What can inclusive theatre performances look li...
Preprint
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Background: The value of patient autonomy has become central in healthcare. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional-client relationship as they involve family members, other professionals and community organizations. Good care should acknowl...
Article
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Mental health professionals are expected to stimulate the participation of service users with serious mental illness. This not only changes what is expected from service users and professionals, it also changes the values underlying their relationship. The value of autonomy becomes more important as a result. This raises potential ethical dilemmas....
Chapter
Sinds de decentralisatie van het sociaal domein wordt van jeugdigen, gezinnen en professionals een andere manier van samenwerken gevraagd. Dit vraagt om innovaties op het gebied van onderwijs, onderzoek en praktijk. Een manier om te innoveren is door van begin af aan nauw samen te werken met jeugdigen, gezinnen, professionals, studenten en docenten...
Chapter
Dit hoofdstuk beschrijft de methode Mijn Pad die ontwikkeld is om jongeren een stem te geven. De methode is ontwikkeld samen met jongeren en hulpverleners in de jeugdzorg. De onderliggende visie is dat autonomie-ontwikkeling in de adolescentie gericht is op het leren maken van keuzes waar de jongere achter staat en die passen bij de manier waarop h...
Article
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The active involvement of people with intellectual disabilities (ID) in research is expected to lead to relevant research outcomes, increased quality of life, improved healthcare, reduction of health inequities, and empowerment of people with ID. Despite the developments in inclusive health research, a lack of transparency remains with regard to ho...
Article
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Background: People with activity limitations participate less in society, which may be due to both societal barriers and personal factors. The aim of this study was to examine the role of one specific personal factor, namely the perceptions that people have of their health condition. We hypothesized that perceptions of more personal control and le...
Article
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Youth departing from secure youth care are often not well prepared for living on their own. This study aims to provide more insight into youth’s perspectives on what they need to improve their chances for successful return to and participation in Dutch society. The study is a first necessary step on a journey to develop a tool for these youth to ev...
Article
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Background Inclusive research is studied mainly in short‐term collaborations between researchers with and without intellectual disabilities focusing on practicalities. Structural study of long‐term collaborations can provide insight into different roles of inclusive researchers, thereby contributing to a collective approach. Method Interviews with...
Article
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This article relates the eight Guiding Principles of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) to both liberal and relational perspectives on autonomy and different layers of citizenship. While the UNCRPD covers a broad scope of citizenship, accounting for liberal and relational values of autonomy, it appears...
Chapter
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Sinds 2015 hebben de wijkteams de opdracht om zoveel mogelijk aan te sluiten bij krachten en mogelijkheden van jongeren en gezinnen en eigen regie bij hen te faciliteren. Het is voor hen een uitdaging om een goede samenwerkingsrelatie op te bouwen met jongeren met meerdere complexe zorgbehoeften en hun opvoeders. Dit hoofdstuk beschrijft de toepass...
Article
Background The active involvement of people with intellectual disabilities in research, or inclusive research, is relatively common. However, inclusive health research is less common, even though it is expected to lead to appropriate healthcare and increased quality of life. Inclusive health research can build upon lessons learned from inclusive re...
Article
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Background: Even though participation of people with intellectual disabilities in research is increasingly common, there is little insight into how many people with intellectual disabilities participate, their motivations to participate and their interests regarding study results. Method: Five questions were added to the Panel Living Together (PLT)...
Article
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Mensen met aangeboren lichamelijke aandoeningen hebben tegenwoordig een zo goed als normale levensverwachting. Daardoor groeit de groep vijftigplussers met zo’n aandoening. Hoe gaan zij om met de beperkingen die ze ondervinden? Welke aanpassings- strategieën gebruiken ze en aan welke ondersteuning hebben ze behoefte?
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Background The British Medical Journal's (BMJ's) patient revolution strives for collaboration with patients in healthcare and health research. This paper studies collaboration with people with intellectual disabilities (ID) in health research, also known as inclusive health research. Currently, transparency and agreement among academics is lacking...
Book
Dit rapport beschrijft een onderzoek onder meiden, ouders en het team van een specialistische Jeugdzorgplus voorziening voor jonge vrouwen die slachtoffer zijn of dreigen te worden van seksueel misbruik, uitbuiting en mensenhandel ('loverboys'). Het onderzoek heeft tot doel een basis te leggen voor een methodiekbeschrijving.
Poster
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Deze poster beschrijft het instrument Mijn Pad en hoe het tot stand is gekomen.
Article
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http://www.socialevraagstukken.nl/site/2015/03/16/ervaring-van-de-patient-is-voetnoot-in-de-zorg
Book
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The report "My Path, My Life, My Future" describes the development of My Path, a new Dutch instrument for youth that stimulates the development of autonomy and participation. My Path supports youth in making choices that lead them towards the future they wish for themselves. Professionals can offer My Path to youth while they make sure that the you...
Article
Providing information to citizens is an important first step in the implementation of new policy. In this study we explain differences in the knowledge of citizens between municipalities of a newly introduced law in the Netherlands, the Social Support Act, 10 months after it became into force. This law is especially important for older people that...
Article
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Ideas about people with disabilities have evolved dramatically since the 1950s – from individuals ‘suffering from illness’ and dependent on others, to today’s credo stressing participation and social inclusion. People with a disability are considered to have capacities and bear responsibility to achieve active citizenship, which is positive in that...
Article
Non-use of social support services: This article explores the underlying reasons for the non-use of support services provided via the Dutch Social Support Act by people with a physical disability who consider themselves unable to manage without help. Why do some people in this position not call in professional support? For this study, 14 respondent...
Article
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Background: In type 2 diabetes, educational interventions that target differences between patients' and partners' illness perceptions have been advocated. Objective: To investigate how the route to diagnosis of type 2 diabetes (through screening versus clinical symptoms) affects illness perceptions of patients and their partners. Methods: In a...
Article
Objective: To provide an insight into developments in participation over the period 2008 to 2010 among Dutch people with physical disabilities and into their demands for additional participation. Design: Trend study with additional cross-sectional survey. Setting: Community-dwelling people with physical disabilities. Participants: A sample o...
Article
Background: The population of ageing people with mild and moderate intellectual disabilities (ID) is growing rapidly. This study examines how personal resources (physical health, mental health and social networks) impact the well-being of ageing people with ID. Methods: Longitudinal survey data on 667 people with a mild or moderate ID were acqui...
Article
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In the current Dutch policy the emphasis is on the participation of all citizens. This study focuses on the general population’s participation through the perspective of the life course. This perspective makes it possible to study the participation of people during different phases of their life as well as the correlation between participation, wor...
Article
Participation of disabled or chronically ill persons into the society may require support in the sense of human or technical aid. In this study we look into the decision making power of governments and the way citizens are involved in these processes. Decision making power can be political, financial and administrative and may be organized at natio...
Article
Mensen met een verstandelijke beperking interviewen elkaar en leveren zo tips voor begeleiders en gemeenteambtenaren voor de uitvoering van hun beleid. Meedoen in de samenleving door de ogen van mensen met een verstandelijke beperking. Hoe ziet dat eruit? Sinds de invoering van de Wet maatschappelijke ondersteuning (Wmo) zijn gemeenten verantwoor...
Article
To explore how professional caregivers in communal living arrangements support people with a mild or moderate intellectual disability (ID) who have diabetes. A qualitative study, 13 caregivers participated in semi-structured interviews. Professional caregiver support in diabetes care is almost solely directed towards administering medication and co...
Article
The prevalence of diabetes is relatively high in people with intellectual disability (ID). However, little is known about how people with ID experience having diabetes and how they manage the condition. Seventeen people with mild to moderate ID who have diabetes were interviewed. A framework on illness perceptions having an influence on diabetes se...
Article
Samenvatting Cardol lM, Dusseljee JC, Rijken PM, Van Schrojenstein Lantman-de Valk HMJ. Huisartsenzorg voor mensen met een verstandelijke beperking. Huisarts Wet 2011;54(7):354–8. ACHTERGROND Mensen met een verstandelijke beperking maken vaker dan voorheen gebruik van de huisartsenzorg. Dat vraagt specifieke kennis en vaardigheden van de huisarts....
Article
People with an intellectual disability (ID) visit primary care services more often than in the past. This requires general practitioners to have appropriate knowledge and skills. We investigated what the relatives thought of the primary care services used by their family members with mild or moderate intellectual disability. METHOD: In 2009, 216 re...
Article
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Ondersteuning van consulenten van de MEE-organisaties verbetert zelfredzaamheid, welbevinden en participatie van mensen met een beperking, zo blijkt uit een eerste onderzoek hiernaar onder consulenten. Onderzoek onder cliënten moet dit nog bevestigen. MEE is een organisatie die mensen met een beperking of chronische ziekte en kinderen met een ont...
Article
Community participation has been defined as performing daytime activities by people while interacting with others. Previous studies on community participation among people with intellectual disability (ID) have mainly focused on the domestic life aspect. This study investigates the variation in community participation in the domains work, social co...
Article
Background and purpose: There is an increasing need to get insight into the social and societal impact of chronic conditions on a person's life, i.e. person-perceived handicap. The purpose of this study is to report how current handicap questionnaires assess handicap. Method: A literature search using both Medline and the database of the Dutch Inst...
Article
People with chronic physical disabilities participate less in both paid and voluntary work and are less satisfied with their lives than people without health problems. Governments and scientists have suggested that participation in employment is the main road to well-being. We analysed national survey data on the participation in work and satisfact...
Article
De Wet maatschappelijke ondersteuning (Wmo), die in januari 2007 is ingegaan, heeft als doel om de participatie van alle burgers in de samenleving te bevorderen. Participatie verwijst naar sociale contacten en vrijetijdsbesteding, het hebben van werk of volgen van een opleiding. Het is bekend dat veel mensen met een chronische ziekte of lichamelijk...
Article
Hoe doen mensen met een beperking mee in de maatschappij? Mensen met een lichamelijke beperking wonen en werken meestal net als iedereen, en ook zij zijn niet altijd tevreden met hun werk. Mensen met een verstandelijke beperking wonen en werken vaak in een speciale omgeving. Het overheidsbeleid is erop gericht dat iedereen – dus ook mensen met ee...
Article
De Wmo kent een aantal prestatievelden. Een daarvan gaat over individuele voorzieningen (prestatieveld 5). Om zicht te krijgen op de ondersteuning aan mensen met een matige of ernstige beperking hebben we in dit hoofdstuk het gebruik van informele en professionele zorg, een pgb, hulpmiddelen en aanpassingen beschreven. Hierbij ging het niet alleen...
Article
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To evaluate the cross-cultural validity of the five subscales of the Impact on Participation and Autonomy (IPA) measure and the full 31-item scale. Data from two validation studies (Dutch and English) were pooled (n = 106). Participants (aged 18-75), known to rehabilitation services or GP practices, had conditions ranging from minor ailments to sig...
Article
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Het kabinet wil er de komende jaren voor zorgen dat mensen met beperkingen meedoen in de samenleving, het liefst in de vorm van werk. Dit bevordert hun zelfstandigheid en welzijn is de gedachte van de overheid. Maar geldt dat voor iedereen? Eerder onderzoek liet zien dat maatschappelijke participatie en tevredenheid weinig samenhang vertonen. In de...
Article
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The reasons why patients decide to consult a general practitioner vary enormously. While there may be individual reasons for this variation, the family context has a significant and unique influence upon the frequency of individuals' visits. The objective of this study was to explore which family factors can explain the differences between striking...
Article
Mensen met een verstandelijke beperking wonen tegenwoordig vaker in woonwijken dan op een instellingsterrein. Voelen ze zich ook beter in de woonwijk? Onderzoek wijst uit dat hun ervaringen en wensen sterk verschillen. Maatwerk lijkt de enige oplossing. Woonwijk of bos Mensen met een lichte of matige verstandelijke beperking nemen steeds meer deel...
Article
De Wet maatschappelijke ondersteuning (Wmo) is bedoeld om chronisch zieken en gehandicapten bij hun deelname aan de samenleving te helpen. Degenen die hulpmiddelen nodig hebben, kennen de wet vaak wel. Wat ze van de wet mogen verwachten, weten veel mensen nog niet. Ongeveer een kwart van de Nederlanders heeft een lichte of ernstigere lichamelijke...
Article
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Headaches and abdominal pain are examples of minor ailments that are generally self-limiting. We examined the extent to which patterns of visits to family physicians for minor ailments, such as headaches or abdominal pain, cluster within families. Using information from the Second Dutch National Survey of General Practice for 96 family practices, w...
Data
ANNEX un-weighted results. The data provided represent the relation between proportion home visits in 2001 (dependent) and the proportion of home visits in 1987 (as in table 2) and the five strongest decreases, these data are un-weighted.
Article
Why do contact frequencies with general practice of family members resemble each other? Many aspects related to the clustering of health-care utilisation within families have been studied, but the underlying mechanisms have not been addressed. This article considers whether family similarity in contact frequency with general practice can be explain...
Article
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In most European countries and North America the number of home visits carried out by GPs has been decreasing sharply. This has been influenced by non-medical factors such as mobility and pressures on time. The objective of this study was to investigate changes in home visiting rates, looking at the level of diagnoses in 1987 and in 2001. We analys...
Article
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In 2001, roughly half a million people (4% of the Dutch population) received informal care from family members living outside their home, and a quarter of a million (2% of the Dutch population) received this care from acquaintances, such as friend, neighbours and work colleagues. The potential supply of informal care - indicate by the number for pe...
Article
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To assess the reproducibility (reliability and inter-rater agreement) of the client-centred Canadian Occupational Performance Measure (COPM). The COPM was administered twice, with a mean interval of seven days (SD 1.6, range 4-14), by two different occupational therapists. Data analysis was based on intraclass correlation coefficients, the Bland an...
Article
Hoewel het duidelijk is dat bevordering van gezond gedrag en preventie substantiële gezondheidswinst voor patiënten kunnen opleveren, verschillen huisartsen van mening over de vraag welke preventieactiviteiten tot hun terrein behoren. Zij voeren het tijdsbeslag en vraaggestuurde zorg wel aan als argumenten tegen systematische preventie. In deze rub...
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Cardol M, Groenewegen PP, De Bakker DH, Spreeuwenberg P, Van Dijk L, Van den Bosch WJHM. Gezinsgelijkenis in contactfrequentie met de huisartsenpraktijk: een retrospectief cohortonderzoek. Huisarts Wet 2005;48(10):490-4. Inleiding Het gedachtegoed van de gezinsgeneeskunde is op de achtergrond geraakt; er wordt nauwelijks nog gepubliceerd over de i...
Article
Objective To examine the extent to which the family influences individual use of general practitioner care. Design Retrospective cohort study of all consultations in one calendar year. Multilevel modelling was used to analyse contact frequencies of individuals within families within practices. Setting General practice in the Netherlands. Participan...
Article
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Patients' attitudes towards the management of minor ailments influence help-seeking behaviour. Up-to-date information about patients' attitudes is valuable for understanding changes in help-seeking behaviour. To describe changes in patients' attitudes between 1987 and 2001, and to explain the relationship between patients' attitudes and attributes...
Article
Samenvatting Bijna 90% van de Nederlanders rapporteert gezondheidsklachten wanneer hun daarnaar gevraagd wordt. Een kwart van hen, ofwel 4 miljoen Nederlanders, had de afgelopen 2 weken problemen met slapen. Daarmee staan slaapstoornissen op de derde plaats in de top 10 van gezondheidsklachten. Vergeleken met 1987 is er sprake van een forse toename...
Article
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To examine the extent to which the family influences individual use of general practitioner care. Retrospective cohort study of all consultations in one calendar year. Multilevel modelling was used to analyse contact frequencies of individuals within families within practices. General practice in the Netherlands. 42 262 families with children aged...
Article
Abstract No-claimregeling uitgesteld, maar niet van de baan De regering heeft recent besloten om de no-claimregeling voor het gebruik van huisartsenzorg niet in 2005 in te voeren. Maar helemaal van de baan is het niet. In 2005 neemt de regering opnieuw een beslissing over deze regeling. Bedoeld effect van de regeling is dat mensen zich (meer) bewus...