Lucila Castanheira Nascimento

Lucila Castanheira Nascimento
University of São Paulo | USP · Maternal-Infant and Public Health Nursing

PhD

About

326
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Publications

Publications (326)
Article
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. Houve um tempo em que os vínculos eram renovados em rodas de conversa que aconteciam geralmente à noite, após o jantar, entre pessoas mais velhas que se sentavam nas calçadas e partilhavam “causos” e histórias do cotidiano. Inspirado por essa tradição, este estudo teve como objetivo relatar a experiência do grupo de conversa “Prosa & Café”, que r...
Article
This qualitative meta-synthesis was conducted with the aim to understand fathers’ experiences and involvement when their child has a chronic condition within family context. Family nurse researchers from five countries identified 19 studies through a systematic search. Inclusion criteria were: (a) fathers as primary informant; (b) children (<19 yea...
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Objective:to assess the perception of self-efficacy, self-confidence, and satisfaction of undergraduate nursing students during the use of expert-modeling videos as a learning strategy in the period of social distancing. Method:this was a descriptive study with undergraduates studying disciplines of caring for hospitalized newborns and children at...
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Objetivo: aferir a percepção da autoeficácia, autoconfiança e satisfação de graduandos em enfermagem durante a utilização do expert-modeling videos como estratégia de aprendizagem, no período de afastamento social. Método: estudo descritivo, com graduandos das disciplinas de cuidado ao recém-nascido e à criança hospitalizados de instituição de ensi...
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Objetivo: medición de la percepción de autoeficacia, autoconfianza y satisfacción de estudiantes universitarios de enfermería durante el uso de expert-modeling videos como estrategia de aprendizaje en el periodo de distanciamiento social. Método: se trató de un estudio descriptivo con estudiantes que cursaban cuidados a recién nacidos y niños hospi...
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Objective To describe the clinical and sociodemographic profile and associate them with the quality of life of adolescents with type 1 diabetes mellitus being followed up in a public hospital in an inner city of the state of São Paulo. Method Quantitative, cross-sectional, and analytical study, performed with 80 dyads. Data were collected through...
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Objective To describe the clinical and sociodemographic profile and associate them with the quality of life of adolescents with type 1 diabetes mellitus being followed up in a public hospital in an inner city of the state of São Paulo. Method Quantitative, cross-sectional, and analytical study, performed with 80 dyads. Data were collected through...
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Aims To analyse how adolescents and young adults who survived childhood cancer experience their quality of life and to explore their meanings and conceptualisations of quality of life. Design Narrative design following Squire's method. Methods In‐person and virtual recruitment, due to the global COVID‐19 pandemic, was carried out in Brazil betwee...
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Review question (CRD42024596532): What are the qualitative evidences on the long-term experiences and repercussions of perinatal grief from the perspective of women who have lost their children?
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Objective To traslate and validate of the Brazilian version of the SDI-2. Methods This was a cross-sectional study. The cultural adaptation considered the stages of initial translation, synthesis of translations, evaluation by a committee of experts from different regions of Brazil, back-translation, and pre-test. The content validity and psychome...
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Background: Congenital toxoplasmosis leads to severe complications in childhood and presents significant global health challenges. In Brazil, the prevalence of toxoplasmosis during pregnancy and congenital cases ranges from 0.3 to 8 per 1000 live births. The clinical manifestations of congenital toxoplasmosis can include neurological and ocular dam...
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Objective To analyze evidence on the financial costs of families caring for children and adolescents during cancer treatment. Methods Integrative review with searches conducted in the PubMed, CINAHL, Scopus, Web of Science, and EMBASE databases. Articles published in Portuguese, Spanish and English, in the last ten years, with different study desig...
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Background and Significance In neonatal intensive care, the communication of difficult news can have lingering repercussions throughout the lives of those receiving such information. Uncertainty and stress associated with the COVID-19 pandemic may negatively influence this sensitive yet essential communication process. Purpose To analyze the commu...
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Objective: to analyze the meaning attributed by parents to the extended and permanent survival of childhood cancer. Method: qualitative narrative inquiry, developed with parents of adolescents and young adults who survived childhood cancer. Recruitment and data collection involved virtual and in-person approaches. The data were collected through...
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Resumo Objetivo: analisar os significados atribuído pelos pais à sobrevivência estendida e permanente ao câncer infantojuvenil. Método: estudo qualitativo narrativo, desenvolvido com pais de adolescentes e adultos jovens que sobreviveram ao câncer infantojuvenil. O recrutamento e a coleta de dados envolveram abordagens virtuais e presenciais. Os da...
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Resumen Objetivo: analizar los significados que les atribuyen los padres a la supervivencia prolongada y permanente del cáncer infantojuvenil. Método: estudio narrativo cualitativo, desarrollado con padres de adolescentes y adultos jóvenes que sobrevivieron al cáncer infantojuvenil. El reclutamiento y la recogida de datos se basó en enfoques virtua...
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Background/Objectives: The COVID-19 pandemic has profoundly affected the lives of adolescents worldwide, especially those living with chronic diseases. This study aims to explore the impact of the COVID-19 pandemic on the daily lives of adolescents with chronic diseases. Methods: This is a scoping review that follows the guidelines proposed by JBI....
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The Sexual Desire Inventory 2 is a self-report instrument for assessing sexual desire in men and women. In Brazil, there is no validated sexual desire self-report for the adult population. Objective The aim of this study was to determine the evidence of validity for the content and construct of the Brazilian online version of the Sexual Desire Inv...
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Objective to interpret the meanings attributed to the health-related quality of life by caregivers of adolescents with type 1 diabetes mellitus. Methods qualitative, descriptive-exploratory study of 14 caregivers of adolescents with diabetes developed at the reference outpatient clinic for endocrine diseases in a city in the state of Paraíba. Inte...
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Objective to interpret the meanings attributed to the health-related quality of life by caregivers of adolescents with type 1 diabetes mellitus. Methods qualitative, descriptive-exploratory study of 14 caregivers of adolescents with diabetes developed at the reference outpatient clinic for endocrine diseases in a city in the state of Paraíba. Inte...
Article
Background With the increasing survival rates of childhood cancer, nurses’ familiarity with published evidence has become crucial to care for this population and their families throughout the survival process. Objective To systematically identify and conduct a bibliometric analysis of nursing-related evidence concerning extended and long-term surv...
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Objective To identify in the literature and summarize the elements and characteristics of fatherhood involved during pregnancy. Method Scoping review that used PRISMA-ScR guide to report this review. Searches were carried out in PubMed, CINAHL, PsycInfo, LILACS and Scopus. Google search engines and public health agency websites assisted in searche...
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Objective To identify in the literature and summarize the elements and characteristics of fatherhood involved during pregnancy. Method Scoping review that used PRISMA-ScR guide to report this review. Searches were carried out in PubMed, CINAHL, PsycInfo, LILACS and Scopus. Google search engines and public health agency websites assisted in searche...
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Objective To evaluate the sleep pattern of children and adolescents with chronic conditions during hospitalization and correlate it with resilience, quality of life, clinical and sociodemographic data. Method Quantitative, descriptive and cross-sectional study. Data collection took place between May 2022 and January 2023, with children and adolesc...
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Objetivo: compreender os sentidos atribuídos por cuidadores familiares de crianças e adolescentes com câncer ao tratamento quimioterápico. Método: estudo qualitativo, com análise secundária suplementar e ampliada de dois estudos desenvolvidos em enfermarias e ambulatório pediátricos, localizados no estado de São Paulo, Brasil. A coleta de dados foi...
Article
Background The global population of long-term cancer survivors is increasing, thanks to advances in treatments and care. Healthcare systems are working to address the unique needs of these individuals. However, there remains a knowledge gap concerning nurses’ view on cancer survivorship care. Objective To identify nurses’ perspective of care for l...
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Objetivos: Avaliar a qualidade de vida de crianças e adolescentes com condições crônicas e correlacionar o autorrelato da criança e do adolescente com o relato do responsável. Método: Estudo quantitativo, descritivo, transversal, do qual participaram crianças e adolescentes de 8 a 18 anos e seus responsáveis. Realizou-se a coleta de dados em um hos...
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Sleep is of vital necessity for health, and it has a restorative and protective function for children and adolescents with chronic conditions and their families. The purpose of this study was to identify the scientific production on sleep patterns in children and adolescents with chronic conditions and their families. This integrative review was co...
Preprint
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Sleep is of vital necessity for health, it has a restorative and protective function for children and adolescents with chronic conditions and their families. The purpose was to identify the scientific production on sleep patterns in children and adolescents with chronic conditions and their families. This integrative review was developed in March a...
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Resumo Objetivo Analisar evidências sobre os custos financeiros de famílias no cuidado de crianças e adolescentes durante o tratamento oncológico. Métodos Revisão integrativa. As buscas foram realizadas nas bases de dados: PubMed, CINAHL, Scopus, Web of Science e EMBASE. Foram considerados artigos publicados em português, espanhol e inglês, nos últ...
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Remote learning during the COVID-19 pandemic demanded adaptations from adolescents who showed a noticeable dependency on screens. However, little is known about their own experiences during this period. This study aimed to investigate how experiences with remote learning influenced daily lives and, consequently, adolescent mental health during the...
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Objetivo: Analisar a experiência de crianças e adolescentes com doenças crônicas no processo de reinserção escolar. Método: Estudo qualitativo, de natureza descritiva-exploratória, conduzido em uma enfermaria pediátrica de um hospital público do interior paulista, com 15 crianças e adolescentes com doenças crônicas, que interromperam a frequência e...
Chapter
Em pediatria, há necessidade de reconhecer o desenvolvimento infantil como processo de formação, transacional e determinante na formação do adulto. A abordagem terapêutica em pacientes neonatais e pediátricos é diferenciada, ocorre muitas vezes sem testes clínicos adequados, e sempre deve buscar a promoção do conhecimento. Para assegurarmos a quali...
Chapter
A Editora Pasteur apresenta com muito prazer a 11ª edição da coletânea de capítulos sobre Saúde Pública. Essa é uma área de interesse internacional, onde comunidades com realidades diversas trocam experiências com o objetivo de reduzir custos e prestar a melhor cobertura possível em políticas públicas que atendam o maior número de pessoas. Por ser...
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Resumo Objetivo Identificar estudos que utilizaram as técnicas de Foto-Elicitação e Photovoice como estratégia para coleta de dados com crianças e adolescentes com condições crônicas. Métodos Revisão integrativa da literatura, efetuada nas bases de dados Web of Science, CINAHL, MEDLINE, PsycINFO e LILACS, com busca de artigos publicados em inglês,...
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Objective: To identify studies that used Photo-Elicitation and Photovoice techniques as a strategy for data collection with children and adolescents with chronic conditions. Methods: This is an integrative literature review, carried out in the Web of Science, CINAHL, MEDLINE, PsycINFO and LILACS databases, with a search for articles published in En...
Chapter
Em pediatria, há necessidade de reconhecer o desenvolvimento infantil como processo de formação, transacional e determinante na formação do adulto. A abordagem terapêutica em pacientes neonatais e pediátricos é diferenciada, ocorre muitas vezes sem testes clínicos adequados, e sempre deve buscar a promoção do conhecimento. Para assegurarmos a quali...
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Objetivo: sintetizar estudos qualitativos sobre as experiências de luto após um natimorto em pais que vivem na América Latina. Método: revisão sistemática qualitativa realizada em quatro bases de dados eletrônica e que utilizou o Guideline Enhancing Transparency in Reporting the Synthesis of Qualitative Research. A qualidade metodológica dos estudo...
Article
This study aims to describe the prototype development and testing of a serious game designed for Brazilian children with diabetes. Following an approach of user-centered design, the researchers assessed game's preferences and diabetes learning needs to develop a Paper Prototype. The gameplay strategies included diabetes pathophysiology, self-care t...
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Objective To provide five methodological and pragmatic tips for conducting remote qualitative data collection during the context of the COVID-19 pandemic. Method The tips presented in this article are drawn from insights of our own experiences as researchers conducting remote qualitative research and from the evidence from the literature on qualit...
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Objective: to identify the social and clinical profile of children and adolescents with type 1 diabetes mellitus. Method: quantitative, cross-sectional and descriptive research, developed with 81 guardians of children and adolescents with type 1 diabetes mellitus between March and September/2021, in two reference centers in Paraiba. The descriptiv...
Chapter
Families of children with chronic health conditions experience situations in their daily lives that impact their family functioning. To meet the unique demands of this population, a greater investment is fundamental in the contributions by healthcare professionals as well as changes in public policies and proposition of nursing care models to assis...
Chapter
O livro Doenças Infecciosas e Parasitárias reúne aspectos da prevenção, diagnóstico e manejo de doenças infecciosas e sexualmente transmissíveis em humanos e animais, bem como genética molecular, fisiopatologia e epidemiologia. O Brasil é considerado um local endêmico para várias dessas doenças como dengue, chikungunya, malária, doenças de Chagas e...
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Objective To analyze clinical and sociodemographic factors associated with the health-related quality of life of children and adolescents with type 1 Diabetes Mellitus. Method A quantitative, cross-sectional and analytical study, developed in a municipality in northeastern Brazil, between March and September 2021, with 81 children/adolescents with...
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Objective To analyze clinical and sociodemographic factors associated with the health-related quality of life of children and adolescents with type 1 Diabetes Mellitus. Method A quantitative, cross-sectional and analytical study, developed in a municipality in northeastern Brazil, between March and September 2021, with 81 children/adolescents with...
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This scoping review aimed to synthesize the best available evidence of the associations between molecular and genetic markers of mitochondrial metabolism and fatigue in human adults. The research question guiding this review was, "Are there potential relationships between mitochondrial metabolism markers and fatigue?" The literature search used thr...
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Objective: to document adolescents' understanding of chemotherapy-related core adverse events from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events and thus begin the validation process of this tool's items with Brazilian adolescents. Method: this is a prospective, qualitative study of concept...
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Resumo Objetivo: documentar a compreensão dos adolescentes sobre os principais eventos adversos relacionados à quimioterapia a partir da versão Pediátrica dos Desfechos Relatados pelo Paciente (Patient-Reported Outcomes) dos Critérios de Terminologia Comum para Eventos Adversos (Common Terminology Criteria for Adverse Events), e assim iniciar o pro...
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Resumen Objetivo: documentar la comprensión de los adolescentes de los principales eventos adversos relacionados con la quimioterapia a partir de la versión de los Criterios Terminológicos Comunes para Eventos Adversos reportados por los pacientes pediátricos y así iniciar el proceso de validación de los ítems de esta herramienta con adolescentes b...
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The diagnosis and treatment of a life-threatening disease have adverse consequences on child development and impact the family. This study aimed to investigate bereavement due to the impact of bodily and psychosocial changes resulting from Bone Marrow Transplantation from the perspective of adolescent patients and their parents. This is a qualitati...
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Objective: To explore parents' perceptions in relation to communication about sexuality with their autistic children. Methodology: Qualitative, descriptive and exploratory study, which was developed in three care centers for autistic children and adolescents in the states of Baja California and Sinaloa, Mexico. Four mothers and one father of childr...
Article
Purpose: The diagnosis of children and adolescents with a chronic disease may affect the entire family system. When families have diverse structures, additional tensions can be present and affect the balance of family functioning. This metasynthesis aims to analyze and synthesize qualitative evidence on the functioning of structurally diverse fami...
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This study explored the evidence of validity of internal structure of the 12-item Functional Assessment of Chronic Illness Therapy—Spiritual Wellbeing Scale (FACIT-Sp-12) in Brazilian adolescents with chronic health conditions. The study involved 301 Brazilian adolescents with cancer, type 1 diabetes mellitus, or cystic fibrosis. Exploratory Factor...
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RESUMO: A atuação qualificada do professor de Educação Especial é condição fundamental para o apoio à inclusão escolar do público-alvo em diferentes contextos escolares. Este estudo objetivou analisar a atuação do professor de Educação Especial no cenário da pandemia da Covid-19. Os dados foram coletados por meio da técnica de grupo focal on-line,...
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Background: Body image is a multidimensional concept that involves the mental image of the human body and the feeling of being oneself throughout existence. Treatment for breast cancer causes several bodily changes that affect women's body image. Aims: This meta-synthesis aims to synthesise and interpret primary qualitative studies on the experi...
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Introduction: The diagnosis of chronic illness in childhood implies frequent hospitalizations and, consequently, the interruption of school attendance. This study aimed to understand the process of school reintegration of children and adolescents with chronic illness from the mothers' perspective METHOD: A qualitative descriptive-exploratory study...
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Objectives: to synthesize evidence from qualitative studies about the implications that the deprivation of liberty process has on incarcerated adults' family relationships. Methods: a qualitative meta-synthesis, carried out in January 2021, by searching for publications indexed in six databases. The sample consisted of 10 studies, which were ana...
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Objectives to synthesize evidence from qualitative studies about the implications that the deprivation of liberty process has on incarcerated adults’ family relationships. Methods a qualitative meta-synthesis, carried out in January 2021, by searching for publications indexed in six databases. The sample consisted of 10 studies, which were analyze...
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Background: Having children admitted in the intensive care unit is a demanding experience for parents. They encounter several difficulties during this process, and it is important to properly identify their psychosocial needs for the health team to address appropriately. Objective: The aim of the study is to identify the psychosocial needs encou...
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Objective To compare the health-related quality of life (HRQoL) scores of children and adolescents hospitalized with cancer who had and did not have fatigue and to correlate fatigue and HRQoL. Method This is a cross-sectional study carried out for 48 months in the onco-hematology sector of a public hospital located in the interior of São Paulo, wi...
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Objetivo: Comparar os escores de qualidade de vida relacionada à saúde (QVRS) de crianças e adolescentes hospitalizados com câncer que apresentaram e não apresentaram fadiga e correlacionar fadiga e QVRS. Método: Estudo transversal realizado durante 48 meses no setor de onco-hematologia de hospital público localizado no interior paulista, com 63 cr...
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Purpose This study aimed to analyze the experience of quality of life for urological cancer survivors. Methods This is a qualitative narrative research based on the experience-centered approach. Twenty-one semi-structured face-to-face interviews were conducted with 12 survivors of urological cancer at different survival seasons. Participants were...
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Background Coronaphobia is an excessive fear of becoming infected by the COVID-19 virus. Situations of coronaphobia against health professionals have been identified. Therefore, there is a need to develop studies to understand family impact and experience of COVID-19 pandemic and coronaphobia. Aim To describe the coronaphobia experience of health...
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Background Among the treatments for type 1 diabetes mellitus (T1DM), Continuous Subcutaneous Insulin Infusion (CSII) is a device that infuses insulin through the subcutaneous tissue in an uninterrupted manner and that comes closest to the physiological secretion of insulin. The use of CSII can provide the family with greater security and children a...
Poster
The IFNA Practice Committee was asked to create an IFNA Repository of Useful Resources This initiative was requested February 2017 by IFNA President Carole Robinson with the aim to serve as a toolkit of resources for family nurses around the world who are caring for migrant and refugee families. Many family nurses have limited expertise regarding t...
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Through a theoretical-reflective essay, we sought to identify the sociocultural aspects of ADHD (Attention Deficit Disorder with or without Hyperactivity). In order to explore the different concepts of ADHD and discuss elements capable of favoring their understanding, in the expectation of contributing to better performance of education and health...
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Objective: to analyze narratives about the experience of hope of families in the context of pediatric chronic illness. Method: a narrative research using Family Systems Nursing as a conceptual framework. Three families of children and adolescents diagnosed with complex chronic illness participated in this study, totaling 10 participants. Data co...
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Objective: To describe the chemotherapy-associated symptoms and the strategies used for their management from the perspective of pediatric cancer patients' family caregivers. Methods: This is a descriptive study with qualitative data analysis. Data collection took place in a pediatric hospital, from December 2017 to December 2018, with family ca...
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Violência e estressores psicossociais relacionados a experiências de discriminação por orientação sexual estão associados a resultados negativos para a saúde e à diminuição da expectativa de vida de mulheres lésbicas e bissexuais ao longo da vida. Este estudo teve por objetivo analisar a produção científica acerca da violência perpetrada contra mul...
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The aim of this study is to analyze and critically reflect on childhood cancer survival, including conceptual aspects, repercussions, survival care, and challenges. This is a theoretical and reflective study, based on the scientific literature on the subject and on the researchers’ experience. Childhood cancer survival is conceptualized as the proc...