Lisbeth Nilsson

Lisbeth Nilsson
Lund University | LU · Department of Health Sciences

PhD, Occupational therapist
Implementation of the ALP tool and exploration of process-based intervention

About

91
Publications
16,117
Reads
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382
Citations
Introduction
Lisbeth Nilsson developed the Driving to Learn intervention. She now focus on tool use learning in children and adults with cognitive disabilities practicing powered mobility use and access methods for Augmentative and Alternative Communication (AAC). More information at: Home page: http://www.lisbethnilsson.se/en/ YouTube: https://www.youtube.com/channel/UCUBwG9MOiJgzBUTvxp-sWGA
Additional affiliations
September 2011 - present
Lund University, Health Science Centre
Position
  • PhD, lecturer (hours)
January 1993 - present
Lund University, Health Science Centre
Position
  • Chair
Description
  • Using practice in a special powered wheelchair to enhance attention, cognition and executive functions Assessing and facilitating tool use learning
Education
October 1996 - March 2007
Lund University
Field of study
  • Occupational therapy
September 1992 - October 1996
Lund University
Field of study
  • Public health and community medicine, with focus on occupational therapy
September 1971 - June 1974
Health Care School, Gothenburg
Field of study
  • Occupational therapy

Publications

Publications (91)
Article
Full-text available
The Driving to Learn project explored ways to help people with profound cognitive disabilities practice operating a joystick-operated powered wheelchair. The project used a grounded theory approach with constant comparative analysis and was carried out over 12 yr. The participants were 45 children and adults with profound cognitive disabilities. Re...
Article
Full-text available
Collaboration by two grounded theory researchers, who each had developed a learning continuum instrument, led to the emergence of a new tool for assessment of learning powered mobility use. We undertook a rigorous process of comparative reanalysis that included merging, modifying, and expanding our previous research findings. A new instrument toget...
Article
The Driving to Learn project was an exploration of how those with significant cognitive disabilities could benefit from training in a joystick-operated powered wheelchair. This study focuses on a particular part of the wider Driving to Learn project, mainly looking at the relationship between characteristics connected to powered wheelchair-use and...
Article
Purpose: To explore the knowledge necessary for adoption and implementation of the Assessment of Learning Powered mobility use (ALP) tool in different practice settings for both adults and children. To consult with a diverse population of professionals working with adults and children, in different countries and various settings; who were learning...
Article
Full-text available
Young infants, children, and persons of any age who have cognitive limitations can be thought of as tyro learners, who are beginners in learning. For tyro learners, the self-produced mobility afforded by a powered mobility device offers opportunities, to explore tool-use learning and interact with the surrounding environment, thereby potentially en...
Conference Paper
Every Child Has the Right to Move: Providing Self-generated Mobility Experiences in Early Childhood
Conference Paper
Using powered mobility as a therapeutic intervention to support development and learning across the lifespan Four decades have passed since powered mobility studies first documented the developmental and functional benefits of self-generated mobility for children with disabilities. But why are power mobility interventions still so rarely used with...
Conference Paper
Exploring power mobility use – a learning approach for children and adults with cognitive impairment If children and adults with multiple and complex disabilities involving cognitive impairment, are given opportunities to explore power mobility experiences, their consciousness of tool use can grow. Power mobility devices are powerful mediators of...
Conference Paper
Assessment of Learning Powered mobility use - approach and application The learning approach Assessment of Learning Power mobility use (ALP) was developed for power mobility intervention with children and adults with multiple and complex disabilities involving mild to profound cognitive impairment. The ALP tool includes the ALP-instrument for asse...
Conference Paper
Full-text available
1,500-1,800 words (characters including spaces). The project Driving to Learn resulted in the identification of the process of learning tool-use. Awareness of the process was developed in interaction with children and adults with cognitive disabilities and infants with typical development who were engaged in joystick-operated powered wheelchair pra...
Conference Paper
Full-text available
1,500-1,800 words (characters including spaces). Powered mobility intervention for infants and toddlers is an emerging field. Actual research has suggested the new concept ON Time mobility, emphasising the importance of becoming mobile at the time when crawling and walking occur in very young children. A guideline on introducing powered mobility to...
Conference Paper
Introduction: For children who have multiple, complex disabilities, learning to use a powered mobility device provides more than just locomotion. Our work suggests that the experience of self-produced movement in a powered mobility device enhances development in these children by providing opportunities to explore tool-use learning and interact wit...
Data
Paper II in the dissertation from 2007 includes more information than the article based on this paper, published in AOTJ 2011
Article
Introduction The Assessment of Learning Powered mobility use (ALP) tool including the ALP instrument and facilitating strategies, was developed for Driving to Learn. This therapeutic intervention aims to provide children and adults who have profound cognitive disabilities with opportunities to learn tool use through powered mobility practise. To al...
Article
We employed a study with a time series design to evaluate the effectiveness of powered mobility training in two children with cerebral palsy using following assessments: mobility in meters/session, the Assessment of Learning Powered Mobility Use (ALP), Assessment of Motor and Process Skills (AMPS), Paediatric Evaluation of Disability Inventory (PED...
Conference Paper
Full-text available
Disclosure B. I (Tim Adlam) have an ongoing association with Designability Charity (UK reg. charity no. 256335), manufacturers of the Wizzybug powered wheelchair. I was employed by Designability full time from 1996 to December 2018, and part time (1 day / week) since then. I hold the post of Principal Engineer. B. I (Lisbeth Nilsson) have and have...
Conference Paper
Full-text available
Disclosure B. I (Lisbeth Nilsson) have and have had associations with equipment manufacturer in the fields of Alternative and Augmented Communication (Saltillo-Prentche Romich Company, today) and Powered mobility (Permobil Sweden/Europe, ended in 2017). In both fields the involvement only concern research collaboration, agreements on ownership of i...
Conference Paper
Despite growing evidence focused on early power mobility, questions regarding application in practice persist and may influence a young child’s access to power mobility. This full day workshop explores advantages and barriers for clinical and community implementation of power mobility programs for infants and toddlers with mobility limitations. Evi...
Article
Invited editorial for the British Journal of Occupational Therapy. The editorial presents Nilsson's research trajectory from 1993 and on, covering the development of the Driving to Learn intervention; the properties of the theory of de-plateauing; the collaboration with Durkin leading to the development of the ALP tool and the discovery of the theo...
Data
Åhörarkopian är en färsk översättning av den aktuella amerikanska versionen av bedömningsinstrumentet ALP for AAC, som utvecklats tillsammans med logopederna Sarah Wilds och Chip Clarke i USA. ALP for AAC har fått ett mycket positivt mottagande av kliniker i USA. Instrumentet är en adaptation av ALP verktyget (Avgöra fas i LärandeProcessen) som ut...
Conference Paper
Full-text available
Det finns många hjälpmedel för kommunikation, men vi behöver lära oss hur de fungerar för att använda dem på bästa sätt i vardagen. Om vi har förståelse för den individuella lärandeprocessen kan vi lättare anpassa inlärningen och välja de strategier som passar bäst för att utveckla individens förståelse av hur deras nya verktyg och hjälpmedel kan a...
Conference Paper
Full-text available
The Assessment of Learning Process (ALP) for AAC (2017) is a framework for assessing how individuals learn to use AAC devices. This presentation will use case studies and videos to illustrate the stages/ phases of the ALP, highlight facilitating strategies, discuss communication & language development, and identify influencing factors in an individ...
Data
Handout of ALP for AAC provided to participants at various conference presentations in 2018 and also at the ATIA conference in Orlando in Jan 2019.
Conference Paper
Full-text available
Smart wheelchairs are powered wheelchairs equipped with technologies that can collect information on powered wheelchair use, the driver, and interaction with the environment, and can use this information to modify wheelchair and/or driver behavior. These technologies could potentially be used to create tools to optimize design of training sessions,...
Conference Paper
60 word abstract: The Assessment of Learning Process (ALP) for AAC (2017) is a framework for assessing how individuals learn to use AAC devices. This presentation will use case studies and videos to illustrate the stages/ phases of the ALP, highlight facilitating strategies, discuss communication & language development, and identify influencing fac...
Presentation
Presentation of the Driving to Learn intervention in a powered wheelchair and the application of the ALP tool for assessment of the learning process and stimulation of further learning.
Conference Paper
Full-text available
The aim of this on stage conversation is to inspire delegates so that they might see for themselves the potential of Driving to Learn with this cohort of people and to trigger their own curiosity and response, and consider taking the research and exploration further. Initially Lisbeth will illustrate the intervention with a short video and then Gr...
Conference Paper
Full-text available
This session examines tool use learning as it applies first to powered mobility (Assessment of Learning Powered mobility use – ALP), second as it applies to augmentative and alternative communication (ALP for AAC), and third as it applies to other areas within assistive technology. Through interprofessional collaboration, the authors will demonstra...
Poster
Full-text available
Introduction Occupational therapists experience difficulties in finding effective interventions for rehabilitation of patients with stroke and neglect syndrome. Recovery after stroke is negatively affected by persistent neglect and cognitive limitations. Driving to Learn in a powered wheelchair is an intervention developed for children and adults w...
Poster
Full-text available
Augmentative and Alternative communication (AAC) is a growing field for many occupational therapists working in pediatric and adult settings. Specifically, OTs are a primary part of an AAC assessment and implementation team when the client requires an alternative form of access – eye gaze, switch scanning, head pointing, joystick, etc. Unfortunatel...
Conference Paper
1 hour Educational Breakout Session on Augmentative and Alternative Communication (AAC). Abstract: Alternative access of AAC devices (e.g. eye gaze, head pointing, switch use) can be difficult to assess and teach. There is a lack of research-based assessments / frameworks available to help guide clinicians in assessing a client's understanding of a...
Article
Full-text available
Smart wheelchairs are powered wheelchairs equipped with technologies that can collect information on powered wheelchair use, the driver, and interaction with the environment, and can use this information to modify wheelchair and/or driver behavior. These technologies could potentially be used to create tools to optimize design of training sessions,...
Conference Paper
Alternative access of AAC devices (e.g., eye gaze, head pointing, switches) can be difficult to assess and teach. There is a lack of research-based assessments/frameworks available to help guide the SLP in assessing a client's understanding of an alternative access method, and to help increase proficiency with the chosen access method. This present...
Conference Paper
Full-text available
Bakgrund: Eldrivna förflyttningshjälpmedel ger användarna ökade möjligheter till aktivitet och delaktighet. Hur de använder hjälpmedlet påverkas av hur väl bedömningen och träningen de fick under förskrivningsprocessen stämmer överens med deras förmåga, behov och livsmiljö. Syfte: Att göra en övergripande genomgång av instrument och metoder för bed...
Conference Paper
Full-text available
Bakgrund: Metoden Köra för att Lära i elrullstol utvecklades för personer med kognitiva funktionsnedsättningar men är användbar för att stimulera utveckling och lärande över hela åldersspannet oavsett funktionsnedsättning. Verktyget Avgöra fas i LärandeProcessen (ALP) används för att bedöma framsteg i lärandet och ger ideer om hur förståelse av ver...
Conference Paper
Background: The growing elderly population, increasing number of individuals returning from conflict situations, availability of better medical care for children and adults with complex disabilities, and provision of powered mobility interventions at younger ages has led to the increase in number of powered mobility device (PMD) users. With escalat...
Presentation
Full-text available
Scenario: Early positive engagement with powered mobility can offer physical, developmental and cognitive benefits to young children from the age of 18 months. There is general agreement that service and provision improvements can be made across stakeholder networks which will assist first access to, and support for, young children effectively util...
Chapter
Att få uppleva rörelse är en stark drivkraft för att främja lärande och öka barns delaktighet i vardagen. Eldrivna hjälpmedel används för att ge barn möjlighet till självständig förflyttning men också för att förbättra deras psykosociala utveckling. Metoden Köra för att Lära utvecklades för barn och vuxna med stora kognitiva svårigheter och den är...
Data
ALP-instrument version 2.0 translated to Hebrew, December 2015 Translators: Vardit Kindler, Naomi Gefen and Lori Rosenberg, Jerusalem, Israel
Conference Paper
Full-text available
Tema: OTHER – Abstraktet presenterar ett innovativt Nka-projekt med fokus på att stödja anhöriga i deras ansträngningar att ge sina barn och unga med flerfunktionsnedsättning möjligheter att vara aktiva och delaktiga i olika sammanhang. Abstraktet avser en oral presentation på 15-20 minuter Lisbeth Nilsson Barn och unga med flerfunktionsnedsättning...
Conference Paper
Full-text available
Theme: OTHER-This abstract presents an innovative Nka-project with focus on providing carers with a review of relevant knowledge about resources that can assist their efforts to provide their child or youth with multiple and complex disabilities with opportunities to activity and participation. This is an abstract for an oral presentation of 15-20...
Data
Full-text available
ALP-verktyget med ALP-instrument och ALP-främjande strategier version 2, på svenska Den engelska versionen av orginalet finns i Appendix 1 och 2 i JRRD artikeln om Assessment of learning powered mobility use
Data
Full-text available
Original ALP-instrument and ALP-facilitating strategies, version 2.0 Both can be accessed as Appendixes in the article about assessment of learning powered mobility use. Link to the article at Journal of Rehabilitation Research and Development home page: https://www.rehab.research.va.gov/JOUR/2014/516/jrrd-2013-11-0237.html Appendix 1, ALP Instru...
Presentation
Full-text available
”Köra för att Lära” - en övning som stimulerar Barn och vuxna med kognitiva funktionsnedsättningar kan utvecklas och återhämta funktioner genom övning i elrullstol. Övningselrullstolen Tiro är utvecklad för metoden och har en sittenhet som kan användas av både barn och vuxna. Senaste nytt om övningens effekter och pågående forskning med små barn. L...
Conference Paper
It is a challenge to select suitable and developing activities for children with limited physical and cognitive abilities. Their restricted ability to perform, express themselves and participate in a multiplicity of activities may hide potential to learn and develop. The empirically based research project Driving to Learn focused on what people wi...
Conference Paper
Background: The research project Driving to Learn (1994-2007) found that practice in a joystick-operated powered wheelchair could facilitate cognitive development in children and adults with cognitive disabilities of different origins, severity, and time passed after onset of impairment/injury. Method: The project used grounded theory methodology...
Conference Paper
Full-text available
Background: During the research project Driving to Learn (1994-2007) evidence was found that children and adults with profound cognitive disabilities could achieve unexpected cognitive achievements from practice in a joystick-operated powered wheelchair. Method: Participatory action research during implementation of the new intervention Driving t...
Article
Full-text available
Forskningsprojektet som ledde till utvecklingen av metoden Köra för att Lära™ startade 1993. Effekterna av övning i elrullstol med styrspak undersöktes med 126 barn, unga och vuxna: 45 med djupa kognitiva funktionsnedsättningar; 64 med andra grader av kognitiva svårigheter; och 17 spädbarn med normal utveckling. Resultaten presenterades i en avhand...
Conference Paper
The Driving to Learn research project, initiated in 1993, had the aim to explore what could be achieved if children and adults with profound cognitive disabilities were provided with access to practice in a joystick-operated powered wheelchair. The findings encompass: TIRO – the learning tool, a special joystick-operated powered wheelchair for prac...
Article
Full-text available
This paper describes a pilot study aimed at exploring the effects of using the Driving to Learn method in the sub-acute phase after stroke with spatial neglect. Five participants, aged 40-82 years, 10 days to 10 months post stroke with right hemisphere lesions and spatial neglect, did one test trial in a TIRO, a special powered wheelchair for peopl...
Conference Paper
Full-text available
Introduction: The Driving to Learn project studied possible benefits from practice in a joystick-operated powered wheelchair in people with cognitive disabilities. It showed that also people with profound cognitive disabilities could develop some tool use ability Aim: To explore the effects from using Driving to Learn with old people with cognitiv...
Conference Paper
Full-text available
Introduction: The method Driving to Learn in a joystick-operated powered wheelchair was developed and tested with children and adults with cognitive disabilities at pediatric clinics, special schools, day centers for adults with intellectual disabilities and primary health day care. The most important effects from using the method were increased al...
Conference Paper
Full-text available
Introduction: Durkin and Nilsson each developed a tool for assessment of powered mobility use when they carried out studies for their dissertations. Durkin studied children and youth and Nilsson studied children, youth, adults and old people. Aim: To merge the two assessment tools into a new modified and expanded version. Methods: Using classic gro...
Conference Paper
Full-text available
Practice in a powered wheelchair may have effects other than independent mobility. These effects may be essential for people with cognitive disabilities, a population frequently excluded from access to powered mobility. The research project Driving to Learn focused on what could be achieved if children and adults with profound cognitive disabilit...
Chapter
The chapter in the book provides perspectives on the use of video-recordings in grounded theory research, using the experience from studying people with profound cognitive disabilities practicing in powered wheelchair as an example. About the book: "This anthology provides a unique collection of articles on classic grounded theory, as developed by...
Article
People with profound cognitive disabilities are not expected to learn powered mobility use. The Driving to Learn project focussed on what this population could achieve from practising in a joystick-operated powered wheelchair. By means of using grounded theory methodology an eight-phase process 'growing consciousness of joystick-use' was identified...
Conference Paper
Full-text available
Powered Mobility for People with Cognitive Disabilities Learning Objectives: Introduction Cognitive disabilities – causes and definitions Powered mobility – safety, technology, learning tool use The research project Driving to Learn Short about method, participants, practice, outcomes, findings Infants with typical development making tests in a jo...
Article
The Driving to Learn project explored what people with profound cognitive disabilities could achieve from practice in a joystick-operated powered wheelchair and what facilitated their eventual achievements. Grounded theory methodology was applied for a project involving 45 children and adults with profound cognitive disabilities, 64 with milder de...
Conference Paper
Full-text available
Describes the development of TIRO-the learning tool a powered wheelchair for enhancement of tool use and cognitive abilities.
Article
Aim: The Driving to Learn project focused on people with profound cognitive disabilities and their possible achievements from practicing joystick-use in a powered wheelchair. The aim of this study within the project was to statistically analyse the participants' outcomes, and to explore factors, in terms of participant and training characteristics,...
Conference Paper
Full-text available
Driving to Learn™ an intervention for people with profound cognitive disabilities. Introduction People with profound cognitive disabilities seldom get the opportunity to learn powered mobility. The obvious reason is low expectations of their ability to learn safe and secure driving. Rehabilitation engineers have created technology enabling this po...
Thesis
Full-text available
The Driving to Learn project explored possible achievements of training people with cognitive disabilities in a joystick-operated powered wheelchair utilizing the grounded theory approach. Theoretical sampling led the concomitant collection and analysis of data. During a period of 12 years, 45 participants with profound cognitive disabilities, aged...
Article
Analysis of the case studies of two preschool children with profound cognitive disabilities indicates that training in a powered wheelchair can increase wakefulness and alertness, stimulate a limited use of the arms and hands, and promote the understanding of very simple cause-and-effect relationships. The enhanced activity level had a positive inf...
Book
Full-text available
Methodbook The Methodbook describes how the powered wheelchair, in an unconventional manner can be used as a tool for treatment and training. The method is suitable for children, adolescents and adults who from different causes have profound or mild cognitive disabilities. The method Driving to Learn can be practiced as early as at the age of 6 mo...
Book
Full-text available
Metodboken Boken beskriver hur man på ett okonventionellt sätt kan använda elrullstol som ett verktyg för att ge träning och behandling. Metoden är lämpad för barn, ungdomar och vuxna som av olika anledningar har svårare eller lättare kognitiva funktionsnedsättningar. Metoden kan användas så tidigt som vid 6 månaders ålder och därefter i alla åldra...
Article
Full-text available
Objectives. Traditional habilitation recommends the use of single switch control and simple computer games as pre-training of cause-effect relationships and joystick control before training in use of a powered wheelchair. Findings from studies of individuals at an early developmental level driving a powered wheelchair suggest it may be more effecti...
Article
Full-text available
Objectives. Traditional habilitation recommends the use of single switch control and simple computer games as pretraining of cause-effect relationships and joystick control before training in use of a powered wheelchair. Findings from studies of individuals at an early developmental level driving a powered wheelchair suggest it may be more effectiv...
Thesis
Full-text available
Conservative prescription criteria for powered wheelchairs has often ruled out children with multihandicaps as candidates for independent mobility. Their outward appearance and multiple dysfunctions conceal their potential for development and success. Results of an initial pilot study with two preschool children with severe handicaps revealed that...
Thesis
Full-text available
[also in English] Under mitt mångåriga arbete som arbetsterapeut med barn och ungdomar har jag sett att det kan gå att utveckla förmågan självständig målriktad förflyttning med fri körning i vanlig elrullstol hos barn och ungdomar med mycket svåra multihandikapp. Betydelsen av självständig förflyttning för rörelsehindrade och utvecklingsstörda barn...
Thesis
Full-text available
This is Lisbeth Nilsson's own translation of her thesis written in Swedish. SUMMARY: During my long experience as an occupational therapist in a paediatric rehabilitation team I have seen that it can be possible for children with multiple and complex disabilities to develop the ability independent goal-directed mobility through free driving in a po...

Questions

Question (1)
Question
Dear collegues,
I have referenced your work and appreciate it. Hope you will put more energy into the project as it seamingly always is actual. It is astonishing that it is more than 30 years since Butler presented her findings and still it is difficult for young children to be provided with powered mobility equipment, not to talk of people with cognitive limitations.
Best wishes
Lisbeth Nilsson

Network

Cited By

Projects

Projects (5)
Archived project
The aim of this case study was to investigate if and how powered mobility training had an effect on children with cerebral palsy’s (CP) driving distance, learning to use a powered wheelchair, quality of task performance, and quality of social interaction.
Project
To develop and implement an assessment tool useful for evaluation and stimulation of tool-use learning in clinical practice and research.