Leslye Rojas-Concha

Leslye Rojas-Concha
  • Doctor of Public Health and Epidemiology
  • Researcher & Project Coordinator at Bispebjerg Hospital, Copenhagen University

About

21
Publications
1,158
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84
Citations
Introduction
Passionate about scientific research and patient care. I am an experienced and engaged professional within the field of strategic planning in public health, palliative care and cancer research. I have background in international collaborations and project management.
Current institution
Bispebjerg Hospital, Copenhagen University
Current position
  • Researcher & Project Coordinator

Publications

Publications (21)
Preprint
Full-text available
Background: Patients with life threatening disease often experience palliative care needs (symptoms and problems) before death and those with the most complex needs should be those who get access to specialized palliative care. To examine if that is the case, studies are needed comparing palliative care needs of patients with life-threatening cance...
Article
Full-text available
To systematically review qualitative studies on outcomes, needs, experiences, preferences, concerns and health-related quality of life (HRQoL) of people surviving cancer in Europe in the last decade. Protocol registered (https://www.crd.york.ac.uk/PROSPERO, ID575065). Inclusion criteria: studies with qualitative methods, constructs related to HRQoL...
Article
Full-text available
Purpose This study aimed to develop utility weights for the European Organization for Research and Treatment of Cancer (EORTC) QLU-C10D, a cancer-specific utility instrument, tailored to the Norwegian and Swedish populations. The utility weights are intended for use in the specific welfare contexts of Norway and Sweden to support more precise healt...
Article
Full-text available
Background Patients with non-cancer disease are less likely to receive specialized palliative care than cancer patients. To be able to provide the best specialized palliative care, it is important to understand palliative care needs of non-cancer patients and whether the type and level of needs differ from those of cancer patients. Large studies in...
Preprint
Full-text available
Background: There is limited evidence on whether the implementation of clinical guidelines has a positive effect on the symptomatology of cancer patients in palliative care. A large national project conducted 2017-2019 aimed to improve the quality of life of cancer patients by implementing clinical guidelines for severe pain, dyspnea, constipation...
Article
Full-text available
Background The use of open-ended questions supplementing static questionnaires with closed questions may facilitate the recognition of symptoms and toxicities. The open-ended ‘Write In three Symptoms/Problems (WISP)’ instrument permits patients to report additional symptoms/problems not covered by selected EORTC questionnaires. We evaluated the acc...
Article
Full-text available
Purpose Since 2010, a comprehensive symptom/problem (S/P) assessment has been carried out in Danish specialist palliative care using the EORTC QLQ-C15-PAL questionnaire and the open-ended “Write In three Symptoms/Problems” (WISP) instrument. On WISP patients can report up to three S/Ps not included in the EORTC QLQ-C15-PAL. However, little is known...
Preprint
Full-text available
Background The use of open-ended questions supplementing static questionnaires with closed questions may facilitate the recognition of symptoms and toxicities. The open-ended ‘Write In three Symptoms/Problems (WISP)’ instrument permits patients to report additional symptoms/problems not covered by selected EORTC questionnaires. We evaluated the acc...
Article
Full-text available
Purpose In this study, we developed Danish utility weights for the European Organisation for Research and Treatment of Cancer (EORTC) QLU-C10D, a cancer-specific utility instrument based on the EORTC QLQ-C30. Methods Following a standardized methodology, 1001 adult participants from the Danish general population were quota-sampled and completed a...
Preprint
Full-text available
Purpose Since 2010, a comprehensive symptom/problem (S/P) assessment has been carried out in Danish specialist palliative care using the EORTC QLQ-C15-PAL questionnaire and the open-ended “Write In three Symptoms/Problems” (WISP) instrument. On WISP patients can report up to three S/Ps not included in the EORTC QLQ-C15-PAL. However, little is known...
Article
Full-text available
Background Knowledge about the process and the results of the implementation of clinical guidelines to improve palliative care is limited. A national project aimed at improving the quality of life of advanced cancer patients admitted to specialized palliative care services in Denmark by implementing clinical guidelines for the treatment of pain, dy...
Article
Full-text available
Purpose Nausea is a common and distressful symptom among patients in palliative care, but little is known about possible socio-demographic and clinical patient characteristics associated with nausea at the start of palliative care and change after initiation of palliative care. The aim of this study was to investigate whether patient characteristic...
Preprint
Full-text available
Purpose Nausea is a common and distressful symptom among patients in palliative care, but little is known about possible socio-demographic and clinical patient characteristics associated with nausea at the start of palliative care and change after initiation of palliative care. The aim of this study was to investigate whether patient characteristic...
Article
Full-text available
ABSTRACT INTRODUCTION Comprehensive symptom assessment may be achieved by combining patient-reported outcome instruments with open-ended questions. The open-ended “Write In three Symptoms/Problems” (WISP) instrument allows patients to report symptoms and problems (S/Ps) not covered by the EORTC QLQ-C15-PAL. This study investigated whether sociodemo...
Article
Full-text available
Objectives This study aimed to examine the symptomatology of patients with advanced cancer at admittance to palliative care services and to investigate how the symptomatology changed during the first month, and whether these changes were associated with various patient characteristics. Methods In a longitudinal study in Chile, outpatients with adv...
Article
Full-text available
Background Previous studies suggest that the symptomatology threshold (i.e. the level and types of symptoms) for a referral to specialized palliative care might differ for doctors in different parts of the healthcare system; however, it has not yet been investigated. Aim To investigate if the number and level of symptoms/problems differed for pati...
Article
Full-text available
Background: The assessment of patients' quality of life (QOL) is essential when evaluating the outcome of palliative care; however, no instruments have been validated for measuring symptoms and QOL in patients receiving palliative care in Chile. We aimed to investigate the content validity of the EORTC Quality of Life Questionnaire Core 15 Palliat...
Article
Full-text available
Background Large, nationally representative studies of the association between quality of life and survival time in cancer patients in specialized palliative care are missing. Aim The aim of this study was to investigate whether symptoms/problems at admission to specialized palliative care were associated with survival and if the symptoms/problems...
Article
Full-text available
Purpose Patients in palliative care are willing to answer short questionnaires, like the EORTC QLQ-C15-PAL; however, patients may suffer from other symptoms and problems (S/Ps) not covered by such questionnaires. Therefore, to identify which other S/Ps patients experience, in addition to those already included in the EORTC QLQ-C15-PAL, we developed...
Preprint
Full-text available
Background: The assessment of patients’ quality of life (QOL) is essential when evaluating the outcome of palliative care; however, no instruments have been validated for measuring symptoms and QOL in patients receiving palliative care in Chile. We aimed to investigate the content validity of the EORTC Quality of Life Questionnaire Core 15 Palliati...

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