Leontien Van Wely

Leontien Van Wely
Amsterdam University Medical Center | VUmc · Rehabilitation Medicine Clinic

About

22
Publications
5,386
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478
Citations
Citations since 2017
9 Research Items
329 Citations
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20172018201920202021202220230102030405060

Publications

Publications (22)
Article
Background: Adults with cerebral palsy (CP) may experience problems with participation in domestic life and interpersonal relationships. Aims: To identify teenage predictors of adult participation in domestic life and interpersonal relationships. Methods and procedures: This 13-year follow-up of the PERRIN 16-24 cohort included 53 adults with...
Article
Purpose: Investigate pain, fatigue, depressive symptoms and sleep disturbance in young adults with cerebral palsy compared to references. Materials and methods: Young adults with cerebral palsy (n = 97, aged 21–34 years) and age-matched references from the general population (n = 190) rated pain using a numeric rating scale and fatigue, depressive...
Article
Aim: To determine the long-term development of autonomy in participation of individuals with cerebral palsy (CP) without intellectual disability. Method: Individuals with CP (n=189, 117 males, 72 females; mean age [SD] 21y 11mo [4y 11mo], range 12-34y); were assessed cross-sectionally (46%) or up to four times (54%), between the ages of 12 and 3...
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Full-text available
Objective To explore participation in social roles of adolescents (aged 12-18y) with cerebral palsy (CP), in terms of satisfaction compared with accomplishment. Design Cohort study as part of a prospective longitudinal research program. Setting Clinic. Participants Participants were adolescents (N=45; 58% male, mean age 15y 6mo) with CP at level...
Article
Background: A good understanding of developmental trajectories is crucial for making prognoses, planning interventions, and monitoring progress in children and adolescents with cerebral palsy. Our study aimed to describe developmental trajectories of mobility and self-care capability in a large sample of children and adolescents with cerebral pals...
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Full-text available
Purpose: To determine childhood predictors of participation in domestic life and interpersonal relationships of young adults with cerebral palsy (CP). Materials and methods: This 13-year follow-up of an existing cohort (baseline age 9–13 years) included 67 young adults with CP (age 21–27 years). The Vineland adaptive behavior scales (VABS) and Life...
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Full-text available
Aim To determine the long‐term course of difficulty in participation of individuals with cerebral palsy (CP) without intellectual disability between 16 years and 34 years of age. Method One hundred and fifty‐one individuals with CP aged 16 to 20 years were included (63% male, 37% female; Gross Motor Function Classification System [GMFCS] levels I–...
Article
Self-management support programs are reported to have positive effects on the health and care of people with physical disabilities. It is unclear how physiotherapists (PTs) view self-management support. A cross-sectional study with mixed-methods design using Q-methodology was conducted to determine the perspectives of Dutch PTs on self-management s...
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Full-text available
Aim: To summarize the best evidence of interventions for increasing physical activity in children with physical disabilities. Method: A systematic review was conducted using an electronic search executed in Academic Search Elite, Academic Search Premier, CINAHL, Embase, MEDLINE, PEDro, PsychINFO, and SPORTDiscus up to February 2016. The selectio...
Article
E-health wordt steeds vaker door cliënten gebruikt bij zelfmanagement en om zelfmanagement van cliënten te ondersteunen. Daarnaast biedt e-health voor de zorgprofessionals mogelijkheden om de zorg op een andere manier in te richten. Op dit moment is er echter nog geen sprake van grootschalige inzet van e-health in de zorg en blijft de meerwaarde va...
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Full-text available
A vicious circle of decreased physical fitness, early fatigue and low physical activity levels (PAL) is thought to affect children with cerebral palsy (CP). However, the relationship of changes in physical fitness to changes in PAL and fatigue is unclear. The objective of this study was to investigate the associations between changes in physical fi...
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Full-text available
In Nederland wordt er door de vergrijzing van de bevolking en het toenemend aantal chronisch zieken een steeds groter beroep gedaan op de zelfmanagementvaardigheden van de cliënt. Het ondersteunen van zelfmanagement vraagt om maatwerk. Dit artikel beschrijft hoe de inzet van zelfmanagement en zelfmanagementondersteuning een impuls geeft aan de eige...
Article
AimThe aim of this study was to determine the longitudinal associations among fitness components and between fitness and mobility capacity in children with cerebral palsy (CP).Method Forty-six children (26 males, 20 females; mean age 9y 7mo [SD 1y 8mo]) with a bilateral (n=24) or a unilateral spastic CP (n=22) participated in aerobic and anaerobic...
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Full-text available
Purpose: To compare walking activity of children with and without cerebral palsy (CP) between the Netherlands and the United States. Methods: A cross-sectional analysis on walking activity data from an international retrospective comparison study including a convenience sample of 134 walking children aged 7-12 years with spastic CP, classified a...
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Question: In children with cerebral palsy, does a 6-month physical activity stimulation program improve physical activity, mobility capacity, fitness, fatigue and attitude towards sports more than usual paediatric physiotherapy? Design: Multicentre randomised controlled trial with concealed allocation, blinded assessments and intention-to-treat ana...
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Objective: To compare daily stride rate activity, daily exercise intensity, and heart rate intensity of stride rate in children with cerebral palsy with that of typically developing children. Methods: Forty-three children with cerebral palsy, walking without (Gross Motor Function Classification System (GMFCS) I and II) or with (GMFCS III) an aid...
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Full-text available
Objective: To determine the effects of a six-month physical activity stimulation programme on social participation, self-perception and quality of life in children with cerebral palsy. Design: Multicentre randomized controlled trial with concealed allocation, blinded assessments and intention-to-treat analysis. Setting: Paediatric physiotherap...
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Purpose: The objective of this study is to compare the maximal aerobic and anaerobic exercise responses of children with cerebral palsy (CP) by level of motor impairment and in comparison with those of typically developing children (TD). Methods: Seventy children with CP, with varying levels of motor impairment (Gross Motor Function Classificati...
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To assess ambulatory activity of children with cerebral palsy (CP), aged 7 to 13 years, and identify associated characteristics.   Sixty-two children with spastic CP (39 males, 23 females; mean age 10y 1mo, SD 1y 8mo; age range 7-13y), classified as Gross Motor Function Classification System (GMFCS) levels I to III, participated. Ambulatory activit...
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Full-text available
Regular participation in physical activities is important for all children to stay fit and healthy. Children with cerebral palsy have reduced levels of physical activity, compared to typically developing children. The aim of the LEARN 2 MOVE 7-12 study is to improve physical activity by means of a physical activity stimulation program, consisting o...
Article
To assess feasibility, acceptability and potential efficacy of group exercise and staff education intervention to promote continence in older people residing in care homes. To establish measures and information to inform a larger trial. Phase II pilot exploratory cluster randomized controlled trial. Six purposely selected care homes in the West Mid...

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Projects

Project (1)
Project
PERRIN DECADE is a 13-year follow-up study on activities, participation and health issues of adults with Cerebral Palsy (CP) aged 21-34 years. The primary goals of this project are: - to extend the present knowledge on the development of activities and participation from childhood into adulthood (early thirties) - to identify which adolescent factors (CP-related, personal and environmental) predict participation and health issues in adulthood